ME/CFS Science @mecfsscience.org · 06/10/20264) The lack of good science and medical care has resulted in an active patient community that tries to fill in the gaps as well as it can. As a result, patients are often better informed about their illness than their doctors. 1325
ME/CFS Science @mecfsscience.org · 06/10/20265) IMHO past overstatements and bad studies such as PACE have created a skeptical subcommunity that became more involved in the scientific process. They check references, download the supplementary material, and re-analyze the raw data. 1316
ME/CFS Science @mecfsscience.org · 06/10/20266) Canson uses ME/CFS as an example to show that patients are often competent and well-informed. She criticises Elizabeth Barnes who argued that a knowledge imbalance is a good reason" for physicians not to trust patients about at least some of their own narratives." 1222
