ME/CFS Science @mecfsscience.org · 28/04/20262) One presentation I look forward to is the one by Michelle James from Stanford. She's doing interesting work on whole body imaging in ME/CFS using Positron emission tomography (PET) scans. Will be interesting to see if she has more data. 1130 0
ME/CFS Science @mecfsscience.org · 28/04/20263) Oystein Fluge will talk about Daratumumab in ME/CFS: will be good to get an update about the randomized trial they are setting up. Jeroen den Dunnen will also speak. He recently got the prestigious Vici grant for research on autoimmunity in PAIS such as ME/CFS. 2130 0
ME/CFS Science @mecfsscience.org · 28/04/20264) Birgit Sawitzki is also an interesting speaker, she leads a research network called "Characterisation of autoimmune responses to identify targets in ME/CFS (CURE-ME)", funded by the German government. it looks at autoimmune processes induced by Epstein-Barr Virus. 1130 0
Post-Viral Trials @postviraltrials.bsky.social · 29/04/2026AFAIK the daratumumab RCT is actually ongoing, and has been since maybe before they were even crowdfunding for it. Kinda out of the game though so I haven’t been following as closely! 000 0
