ME/CFS Science @mecfsscience.org · 23/04/20265) Another recurring theme is isolation by the illness. Some were "confined to one room and could not tolerate noise or light." Others saw a breakdown of social relationships such as a divorce, loss of friends, getting fired at work, etc. 1211
ME/CFS Science @mecfsscience.org · 23/04/20266) Many entries also highlighted disbelief towards ME/CFS by social acquaintances. People didn't fully understand the impact of the disease. Sometimes the family was unsupportive and dismissed them as not really being ill. 1221
ME/CFS Science @mecfsscience.org · 23/04/20267) One entry stated: "He was in his early 40s and had lost his job, wife, and family due to his illness” Others mention the sigma caused by ME/CFS: “The guilt, shame, and suggestion of others that there was nothing wrong were destroying me more than the illness." 1211
