ME/CFS Science @mecfsscience.org · 23/04/20264) Patients were told that the illness was all in their head and some doctors were not willing to prescribe the necessary pain medication. Some said that medications or treatment with graded exercise therapy worsened their condition. 1191
ME/CFS Science @mecfsscience.org · 23/04/20265) Another recurring theme is isolation by the illness. Some were "confined to one room and could not tolerate noise or light." Others saw a breakdown of social relationships such as a divorce, loss of friends, getting fired at work, etc. 1211
ME/CFS Science @mecfsscience.org · 23/04/20266) Many entries also highlighted disbelief towards ME/CFS by social acquaintances. People didn't fully understand the impact of the disease. Sometimes the family was unsupportive and dismissed them as not really being ill. 1221
