ME/CFS Science @mecfsscience.org · 02/12/20251) No new research papers today, so we wanted to share some info from the big PAIS protest in the Netherlands on Sunday. It had a big turnout and reached the national press. 1388
ME/CFS Science @mecfsscience.org · 02/12/20252) PAIS stands for post-acute infectious syndromes and groups neglected illnesses such as ME/CFS, Long Covid, Q-fever fatigue syndrome, chronic Lyme disease, Post-sepsis, etc. Patients got an infection and never fully recovered. 2100
Carl @carlf.bsky.social · 02/12/2025PAIS excludes a bunch of us with non infectious triggers. Wish we could move towards a term that included all. 010
ME/CFS Science @mecfsscience.org · 02/12/20253) The collaboration between these different but similar patient groups seems to have been a big success. Multiple articles and interviews appeared in the national press and TV broadcasts, highlighting the need for improved care and research. 170
