ME/CFS Science @mecfsscience.org · 11/08/20251) There's a new document with care advice for patients with (very) severe ME/CFS. It was published by the Austrian Society for ME/CFS and the Center for Public Health at the Medical University of Vienna. 37730
ME/CFS Science @mecfsscience.org · 11/08/20252) There's a lack of evidence in this area so the document is mostly based on the (many years of) experience of carers. They highlight that the care for severely affected is often counterintuitive. Communication, for example, must often be reduced to avoid over-exertion. 1121
ME/CFS Science @mecfsscience.org · 11/08/20253) The document is full of practical advise such as on pacing and using fixed care times and routines to create a structure. It discusses problems with eating, drinking, toileting, washing, dental care and offers tips and suggestions on how to manage these. 1101
