iiinova — where your digital self keeps evolving

Replies

ME/CFS Science @mecfsscience.org · 27/03/2025

2) There are already several good factsheets on ME/CFS (the one by the World ME Alliance is nice) but they usually focus on advocacy and overstate biomedical findings. They often reiterate theories or findings of researchers that have not been replicated or confirmed yet.

170

ME/CFS Science @mecfsscience.org · 27/03/2025

3) There are also decent info pages on ME/CFS by official health agencies (e.g. by the CDC, NHS). These are more neutral but tend to miss the patient experience. They often use words (fatigue, unrefreshing sleep, etc.) that minimise the illness.

140

ME/CFS Science @mecfsscience.org · 27/03/2025

4) The S4ME factsheet, we've tried to get the best of both worlds, and distill the essence of what is known about ME/CFS. It was a good exercise in focus on the core facts and separate the wheat from the chaff. (which is more difficult than one might think).

160