ME/CFS Science @mecfsscience.org · 27/03/20251) In the past weeks I’ve helped to develop the first factsheet for the Science for ME forum. The goal was to summarise what is known about ME/CFS in a brief text and in easy to understand language. 13014
ME/CFS Science @mecfsscience.org · 27/03/20252) There are already several good factsheets on ME/CFS (the one by the World ME Alliance is nice) but they usually focus on advocacy and overstate biomedical findings. They often reiterate theories or findings of researchers that have not been replicated or confirmed yet. 170
ME/CFS Science @mecfsscience.org · 27/03/20253) There are also decent info pages on ME/CFS by official health agencies (e.g. by the CDC, NHS). These are more neutral but tend to miss the patient experience. They often use words (fatigue, unrefreshing sleep, etc.) that minimise the illness. 140
