A powerful piece by my brave, brilliant friend. Please read and donate if you can.
www.theguardian.com/lifeandstyle...
theguardian.com
The girl with a will to live: the love, hope and pain of raising Elsie – my one in 163 million daughter
She was born with an ultra-rare genetic disorder. After my decades working in film PR, I now face the biggest campaign of all: the fight for her life