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Wales Gene Park @walesgenepark.bsky.social · 25/09/2026

🧬 Exciting to see genomics in the news! A new rapid test is transforming brain tumour diagnosis, potentially reducing waiting times from weeks to hours. It's an amazing example of genomics improving patient care. 📰 Read more here - www.bbc.co.uk/news/article... #Genomics

bbc.co.uk

Brain tumour diagnosis cut from weeks to hours with rapid new NHS test

The test means patients can start treatment sooner and are spared weeks of uncertainty.

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Wales Gene Park @walesgenepark.bsky.social · 17/09/2026

We’re at the @atwales.bsky.social Symposium 2026, alongside #GenomicsPartnershipWales. The theme for this year’s symposium is “Branching Out – Growing through Collaboration”, and it’s been fantastic to highlight the range of collaborations taking place across genomics in Wales. #Genomics #Cymru

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Wales Gene Park @walesgenepark.bsky.social · 09/09/2026

We’re delighted to be at the #FutureforRare Summit 2026. Today’s event brings together the #RareDisease community to explore what a successor policy to the UK Rare Disease Framework should look like. It’s set to be an exciting day, and we’re pleased to be here with @lifearc.bsky.social. #Genomics

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Wales Gene Park @walesgenepark.bsky.social · 23/07/2026

It's been a busy day today engaging communities in genetics and genomics in Wales! We've been at Day 2 of the Connect CACNA1C Global Network Conference 2026 at Cardiff Uni and also out delivering a community talk on genetic ancestry to Bridgend Probus! #RareDisease #CommunityEngagement

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Wales Gene Park @walesgenepark.bsky.social · 22/07/2026

We're at the Connect CACNA1C Global Network Conference 2026 at Cardiff Uni alongside our #AWMGS colleagues. Today is all about the latest research it's a great opportunity to connect with researchers, people living with these conditions, and their families! #Genomics #TimothySyndrome #CACNA1C

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Wales Gene Park @walesgenepark.bsky.social · 07/07/2026

It was a pleasure to take part in the #UniversitiesWales Civic Mission Symposium today at the #walesmillenniumcentre. It was a great opportunity to discuss the community engagement work we're doing across Wales to help mainstream genomics. #Genomics #Mainstreaming #CivicEngagement

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Wales Gene Park @walesgenepark.bsky.social · 06/07/2026

It was fantastic to meet some of the new members of #GenomicsPartnershipWales’ Patient and Public Sounding Board. They heard from our Genomic Consent Manager, Rhys Vaughan, on genomics, and our Patient and Public Involvement Lead, Emma Hughes, on co-production. #Genomics #PatientInvolvement #Cymru

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Wales Gene Park @walesgenepark.bsky.social · 02/07/2026

Bookings are open for the first-ever Genomics Showcase in North Wales! 🧬 Join us at Venue Cymru, Llandudno, on 19 November 2026 for a day of: 🧬 Inspiring talks 💬 Expert panel discussions 🏢 Networking opportunities Find out more and book here: bit.ly/4aNLfL9 #GenomicsShowcaseNW2026 #Genomics

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Wales Gene Park @walesgenepark.bsky.social · 22/06/2026

Thank you to all who joined us for our Future for Rare workshop and shared their thoughts and experiences. It was great to hear so many perspectives! We’re excited to see what comes next with the Future for Rare Campaign! Sign up for updates - lnkd.in/eX64KBuD. #RareDisease #FutureforRareCampaign

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Wales Gene Park @walesgenepark.bsky.social · 17/06/2026

We are here at #GOFOD3! Come and find us today on the second floor in the Exchange where we are talking all things genomics. It should be an exciting day of talks and networking! #GOFOD3 #Genomics #Cymru

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Wales Gene Park @walesgenepark.bsky.social · 10/06/2026

Join us tomorrow for our next Genomics Café 🧬🫖 Hear from Dr John Lewis and PPI representative Jemin Popat, who will be covering some of the advanced therapy highlights from the Genomics Showcase 2026. 🗓️ 11 June 🕚 11:00 Book now - www.ticketsource.com/wales-gene-p... #GenomicsShowcase2026 #Wales

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Wales Gene Park @walesgenepark.bsky.social · 08/06/2026

This Thursday is our next Public Genomics Café. Join us to revisit talks from the Genomics Showcase, including Dr Rebecca Simms, from Cardiff Uni, exploring genes in dementia. 🗓️ 11 June 2026 🕚 11:00–12:45 Book now - www.ticketsource.com/wales-gene-p... #GenomicsShowcase2026 #Cymru #Wales

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Wales Gene Park @walesgenepark.bsky.social · 05/06/2026

⏳ Less than a week to go until the Public Genomics Café Join us as we revisit some talks from the Genomics Showcase including Dr Maninder Ahluwalia on the genomics of intermittent fasting. 🗓️ 11 June 🕚 11:00am Book now - www.ticketsource.com/wales-gene-p... #GenomicsShowcase2026 #Cymru #Wales

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Wales Gene Park @walesgenepark.bsky.social · 04/06/2026

📢 Help shape the future for Rare in Wales! Join the Welsh Future for Rare workshop online on 22.06.226 to discuss priorities for the rare condition community. A range of insights are crucial for recommendations to all four UK governments. Registration open now - loom.ly/ijJTwBs #FutureForRare

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Wales Gene Park @walesgenepark.bsky.social · 26/05/2026

We’re working with Genetic Alliance UK to host Future for Rare Workshop 2026 – Your Views Matter. An online workshop giving the rare disease community in Wales a chance to shape the UK Rare Diseases Framework. 📅 22 June 26 📍 Teams ✨Register here✨- lnkd.in/eQcvtEra #FutureForRare #PatientVoice

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Wales Gene Park @walesgenepark.bsky.social · 22/05/2026

Applications are open to join Genomic Partnership Wales' Patient and Public Sounding Board in 2026 until 31 May. Find out more about the role of the Sounding Board, who can get involved and how to apply here - lnkd.in/ebHQYqyq #Genomics #PublicEngagement #Cymru #PatientVoice

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Wales Gene Park @walesgenepark.bsky.social · 13/05/2026

Missed the Genomics Showcase? 📢 Join us for a special Public Genomics Café 🧬🫖 to revisit showcase talks and explore key themes in an accessible format. 🗓️11 June 2026 🕰️11:00 – 12:45 📍Microsoft Teams Book your place here - www.ticketsource.com/wales-gene-park #GenomicsShowcase2026 #Cymru

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Wales Gene Park @walesgenepark.bsky.social · 27/04/2026

A huge thank you to all who joined us at #GenomicsShowcase2026 in Cardiff. It was an inspiring day of talks, posters, networking and collaboration across Wales’ genomics community. Register your interest for our North Wales Genomics Showcase here - forms.office.com/e/wjYUBdMc2j #Genomics #Cymru

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Wales Gene Park @walesgenepark.bsky.social · 24/04/2026

40+ stands made the Genomics Showcase 2026 in Cardiff 🧬 a brilliant success. From patient groups to industry, research, healthcare & universities, there was something for everyone. Huge thanks to all exhibitors & industry sponsors for making it so engaging. #Genomics #Wales #Cymru

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Wales Gene Park @walesgenepark.bsky.social · 24/04/2026

What a day at #GenomicsShowcase2026 🧬 From personalised prescribing to cancer advances and rare disease diagnosis, the range of topics was incredible with a strong focus on public & patient involvement. Thank you to all the speakers shaping the future of genomics across Wales. #Genomics #Cymru

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Wales Gene Park @walesgenepark.bsky.social · 23/04/2026

It’s been incredible to see so many inspiring speakers at today’s Genomics Showcase. With talks covering a huge range of topics. It’s been really positive to see how far genomics in Wales has come. We’re looking forward to more sessions after lunch! #GenomicsShowcase2026 #Genomics #Cymru

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Wales Gene Park @walesgenepark.bsky.social · 23/04/2026

And we’re live at the #GenomicsShowcase2026. Check out the huge range of talks and panels across 4 different spaces, explore 30 posters, take time to network, come find us on floor 4 and and let's celebrate genomics in Wales! #GenomicsShowcase2026 #Genomics #Cymru #Genomicspartnershipwales

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Wales Gene Park @walesgenepark.bsky.social · 22/04/2026

We’re delighted to welcome AstraZeneca as a Gold Sponsor of the Genomics Showcase at Cardiff City Stadium. Their support has made the event possible. Visit their stand on the 4th floor to learn more about their work in genomics. #GenomicsShowcase2026 #Cymru

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Wales Gene Park @walesgenepark.bsky.social · 15/04/2026

Just over a week to go until the first-of-its-kind Genomics Showcase — and there are a few extra spaces! 🎉 It’s a packed day featuring: 🧬 Inspiring talks 💬 Expert panels 🎯 Interactive activities 🏢 Informative stands Don’t miss out - book your place now: bit.ly/3QbfMuG #GenomicsShowcase2026 #Cymru

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Wales Gene Park @walesgenepark.bsky.social · 23/03/2026

It's fantastic to have some of the team at the Wales Cancer Research Conference 2026. It's a brilliant opportunity to explore how Wales and genomics is improving our understanding of cancer through talks, posters, and networking. Looking forward to further informative talks. #Genomics #WCRC2026

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Wales Gene Park @walesgenepark.bsky.social · 11/03/2026

Brilliant to be out at #SIHLive talking to year 12s from across South Wales. Thanks to @cumedicengage.bsky.social for putting the event together! Exciting to meet some of the potential health professionals of the future and introduce them to genomics and genetics. #Genomics #Healthcare #engagement

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Wales Gene Park @walesgenepark.bsky.social · 11/03/2026

Great to attend the launch of the QuicDNA Max liquid biopsy programme for cancer care, at the #Senedd last night. Wonderful to see the collaboration between those affected by cancer, NHS scientists and clinicians, researchers and industry partners. #Healthcare #Research #Genomics

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Wales Gene Park @walesgenepark.bsky.social · 27/02/2026

Ahead of #RareDiseaseDay tomorrow, we are in Swansea raising awareness and shining a spotlight on genomics and rare conditions at the Royal College of Midwifery St David's Day Conference. Great to meet colleagues from across the field of midwifery. #Genomics

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Wales Gene Park @walesgenepark.bsky.social · 26/02/2026

Great to see the Welsh rare disease community yesterday at the Rare Disease Day reception in Cardiff. We heard insights on Behçet’s, the Welsh Rare Disease Plan, the 'Equity for Rare' report from @geneticallianceuk.bsky.social, and the new NICE Quality Standards. #RareDiseaseDay #Cymru #Senedd

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Reposted by Wales Gene Park

geneticallianceuk.bsky.social @geneticallianceuk.bsky.social · 26/02/2026

Join the community in coming together to raise awareness for #RareDiseaseDay2026 at our Joint Nation online event on Thursday 5 March, at 10.00 - 12.00. Register your place now: www.eventbrite.co.uk/e/rare-disea... #RareDiseaseDay #RDD2026 #Rarequity

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Wales Gene Park @walesgenepark.bsky.social · 25/02/2026

Some absolutely fantastic talks at the #RareDiseaseDay2026 reception in Cardiff. Hearing from John Griffiths MS, Rachael Humphreys on Behçets Disease, Dr Jamie Duckers on the Welsh Rare Disease Plan, Nick Meade CEO of @geneticallianceuk.bsky.social and Dr Graham Shortland! Thank you all!

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Wales Gene Park @walesgenepark.bsky.social · 25/02/2026

We're kicking things off at the #RareDiseaseDay2026 reception with John Griffiths MS speaking on the importance of building rare disease services into the NHS in Wales.

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Wales Gene Park @walesgenepark.bsky.social · 25/02/2026

We have some amazing speakers at the #RareDiseaseDay2026 reception in the #NorwegianChurch. Looking forward to hearing from them all. @geneticallianceuk.bsky.social

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Wales Gene Park @walesgenepark.bsky.social · 25/02/2026

The #SWAN bike is here at the Rare Disease Day Reception in the Norwegian Church! @geneticallianceuk.bsky.social #Senedd #RareDisease

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Wales Gene Park @walesgenepark.bsky.social · 25/02/2026

The Norwegian Church is coming together for the #RareDiseaseDay reception. It's going to be great to see some amazing speakers tonight. @geneticallianceuk.bsky.social. #Senedd #RareDisease

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Wales Gene Park @walesgenepark.bsky.social · 24/02/2026

Today's Senedd Drop-In session provided an opportunity to highlight @geneticallianceuk.bsky.social's Equity for Rare Report around delivering fair healthcare systems for people affected by rare conditions. Link in the bio! #RareDiseaseDay2026 #Senedd

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Wales Gene Park @walesgenepark.bsky.social · 23/02/2026

A great way to start Rare Disease Day week with coverage in the Guardian featuring research raising awareness of the challenges affecting the rare condition community. We're at events throughout the week to raise further awareness of challenges to the community in Wales. #RareDiseaseDay #RDD2026

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Wales Gene Park @walesgenepark.bsky.social · 11/02/2026

Tomorrow is a #FOG2026 Genomics Café special! We’ll be joined by Alice Frenken, GPW, and Jennifer Griffiths, who are sharing how patient involvement is embedded in genomics in Wales. 📅 12 Feb 2026 | ⏰ 11:00–12:45 | 📌 Teams 🔗 Book here: bit.ly/4o3a3Dg #PPIE #Cymru #GenomicsPartnershipWales

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Wales Gene Park @walesgenepark.bsky.social · 09/02/2026

We are less than a week from our Genomics Café🧬 As well as hearing Welsh highlights from #FOG2026, you can find out how to get involved with Rare Disease Day 2026 with Genetic Alliance UK. 📅 12 Feb 2026 | ⏰ 11:00–12:45 | 📌 Microsoft Teams 🔗 Book here - bit.ly/4o3a3Dg #RareDisease #GAUK

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Wales Gene Park @walesgenepark.bsky.social · 06/02/2026

We’re kicking off the new year with a Virtual Public Genomics Café special!🧬 Hear from Rhys Vaughan, on how Welsh genomic data is used today and future consent models for NHS Wales. 📅 12 Feb 2026 | ⏰ 11:00–12:45 | 📌Teams 🔗 Book a free spot here - bit.ly/4o3a3Dg #GenomicsData #Cymru #GPW #FOG2026

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Wales Gene Park @walesgenepark.bsky.social · 03/02/2026

Join our Genomics Café for Welsh highlights from #FOG2026. Hear from Sian Morgan, Consultant Clinical Scientist at the All Wales Medical Genomics Service, on how NHS Wales–industry partnerships are driving innovation in Wales. 🔗 Book here - bit.ly/4o3a3Dg #GenomicsData #AWMGS #GPW

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Wales Gene Park @walesgenepark.bsky.social · 28/01/2026

We are ready to go at #FOG2026 Come and find us at the #GenomicsPartnershipWales booth 164 along with the All Wales Medical Genomics Service, and Public Health Wales' Pathogen Genomics Unit. It's going to be a fantastic two days highlighting Welsh Genomics. #Cymru #Conference #AWMGS #PenGU

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Wales Gene Park @walesgenepark.bsky.social · 22/01/2026

The FOG 2026 is coming, and we’ll be there helping to highlight Welsh genomics! 🧬 Rhys Vaughan, our Genomic Consent Manager, will be speaking on the Biodata Stage on Thurs 29 Jan, focusing on a new consent model for NHS Wales genomic data for the future. 📊🔬 #FOG2026 #Genomics #Biodata #Research

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Wales Gene Park @walesgenepark.bsky.social · 19/01/2026

🎉 The Festival of Genomics and Biodata 2026 is coming🧬 📌 Catch WGP posters about: • Our PPIE work • New pipelines for genomic data in Wales • Work from the UK’s first SWAN clinic See the breadth of genomics happening across Wales! #FOG2026 #Genomics #GenomicsData #SWAN #WelshGenomics

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Wales Gene Park @walesgenepark.bsky.social · 16/01/2026

🎉 #FOG2026 is coming and we’ll be there showcasing Welsh genomics!🧬 📍Find us alongside GPW at Booth 164, with partners, AWMGS and PenGU. Find out about 🔬 Research | 🤝 Patient engagement |🏥 NHS Wales services | 🦠 Pathogen genomics in Wales #FestivalofGenomics2026 #Cymru #GenomicsPartnershipWales

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Wales Gene Park @walesgenepark.bsky.social · 14/01/2026

We’re heading to #FOG2026 🧬 Hear from Rhys Vaughan, on plans for genomic data in research. Explore posters on our PPIE work, the UK’s first SWAN Clinic, and creating pipelines for genomic data in Wales. Plus! Find us at booth 164 with #GPW, #AWMGS, and the #PathogenGenomicsUnit. #Genomics #Cymru

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Wales Gene Park @walesgenepark.bsky.social · 08/01/2026

🎉 Happy New Year! We’re kicking off 2026 with a Virtual Genomics Café, bringing Welsh highlights from #FOG2026 straight to you. Hear about the future of sharing patient data in Wales, NHS Wales partnerships with industry, and how to get involved with Rare Disease Day 2026. Book now: bit.ly/4o3a3Dg

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Wales Gene Park @walesgenepark.bsky.social · 06/01/2026

Incredibly exciting to see such a positive story to start the new year - www.bbc.co.uk/news/article... It really highlights the importance of gene therapy as a treatment option as well as the investment being made in rare diseases. #Genomics #RareDiseases #GeneTherapy

bbc.co.uk

Boy with SMA given £1.8m drug has new lease of life

Five-year-old Edward can walk independently, his mum says, and she hopes he will lead a happy life.

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Wales Gene Park @walesgenepark.bsky.social · 23/12/2025

Season’s Greetings from all at Wales Gene Park🎄. 2025 has been an exciting year for genomics across Wales and we look forward to more progress in 2026! We wish you a peaceful festive season and a healthy, hopeful New Year. Nadolig Llawen a Blwyddyn Newydd Dda ✨

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Wales Gene Park @walesgenepark.bsky.social · 19/12/2025

It’s been a busy 2025 for our Education and Engagement team as we have taken genomics🧬 to people all over Wales and beyond. Check out what we have been up to! #Genomics #CommunityEngagement #Cymru #Wales

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