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Unremarkable Me

@unremarkableme.bsky.social
569 followers 1.3K following 339 posts

Health and Wellness EDS & hEDS Awareness Chiari Malformation Awareness Chronic Illness Awareness Mass Cell Activation Syndrome POTS I have been fighting EDS, Chiari Malformation, Mass Cell Activation Syndrome, Scoliosis & POTS for 15 years.

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Unremarkable Me @unremarkableme.bsky.social · 31/07/2026
When your body has sounded the alarm before, “just relax” is not a reset button. A personal look at chronic illness, dismissal, perimenopause and living in fight-or-flight. Read at #UnremarkableMe #ChronicIllness #Perimenopause #HealthAnxiety www.unremarkableme.com/post/living-...
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Living In Fight Or Flight.
When chronic illness, medical dismissal and perimenopause turn your nervous system into a one-woman surveillance departmentPublished 27 July 2026By Antonia @Unremarkable MeThere is a very specific mom...
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Unremarkable Me @unremarkableme.bsky.social · 31/07/2026
Chronic illness changes us. We adapt, compensate and keep moving. So why does healthcare still treat us like a frozen screenshot? A new post on the hidden cost of coping. Read at #UnremarkableMe. #ChronicIllness #PatientVoices #NHS www.unremarkableme.com/post/evolved...
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Evolved Enough to Know Better, But Not Enough to Do Better
Chronic illness changes. Patients adapt. Why does healthcare keep treating us like a frozen screenshot?Published June 2026By Antonia @Unremarkable MeLet us begin with a confession.I find it baffling h...
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Unremarkable Me @unremarkableme.bsky.social · 13/05/2026
Not the Patient, Not Okay: when the person holding it together starts quietly falling apart. A raw look at carer shock, crisis fatigue and medical PTSD. #UnremarkableMe #CarerLife #EDS #chiarimalformation #ChronicIllness #MedicalPTSD #NHS www.unremarkableme.com/post/not-the...
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Not the Patient, Not Okay
Published 9 May 2026By Antonia @Unremarkable MeThere is a particular kind of dread that arrives when someone you love says, “It’s not that bad.”Especially when that someone is Sam.Sam could, hypotheti...
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Unremarkable Me @unremarkableme.bsky.social · 12/05/2026
The Crisis Diaries: Five Months of Not Quite Falling Apart When life became hospitals, panic, survival, and somehow still needing to do the washing up. #UnremarkableMe #ChronicIllness #EDSintheuk #MedicalPTSD #NHS #EDSAwareness www.unremarkableme.com/post/the-cri...
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The Crisis Diaries: Five Months of Not QuiteFalling Apart
Published 8 May 2026By Antonia @Unremarkable MeThere are many respectable ways to return to writing after a long and deeply inconvenient absence.You might make a plan.You might light a candle.You migh...
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Unremarkable Me @unremarkableme.bsky.social · 30/04/2026
bsky.app/profile/achr...
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Unremarkable Me @unremarkableme.bsky.social · 07/04/2026
www.unremarkableme.com/post/the-chr...
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The Chronic Illness Paradox
By Antonia @ Unremarkable Me | Published June 2025 I’ve had more experience justifying my mascara than some people have explaining their taxes. Because if you’re chronically ill and dare to look prese...
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Unremarkable Me @unremarkableme.bsky.social · 07/04/2026
bsky.app/profile/unre...
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Unremarkable Me @unremarkableme.bsky.social · 07/04/2026
www.unremarkableme.com/post/i-didn-...
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I Didn’t Disappear. I Was Busy Surviving
23 December 2025Author: Antonia @UnremarkableMeFor the last six months, Unremarkable Me went quiet.Not in a dramatic, flounce off stage kind of way. There was no announcement, no carefully worded post...
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Unremarkable Me @unremarkableme.bsky.social · 05/04/2026
www.unremarkableme.com/post/when-th...
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Unremarkable Me @unremarkableme.bsky.social · 05/04/2026
www.unremarkableme.com/post/when-th...
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When the Ghost Is You: Why People with Chronic Illness Disappear (And How We Can Show Up in Our Own Way)
By Antonia at Unremarkable MeConfession time: I ghost people.I ghost friends, family, chat groups, even the pizza delivery guy once because I couldn’t cope with the doorbell. But before you slap a “ba...
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Unremarkable Me @unremarkableme.bsky.social · 19/01/2026
Still waiting on the new hEDS and HSD criteria? You’re not imagining the delay.Here’s what’s happening, why it matters, and what to hold onto meanwhile. #EDS #hEDS #HSD #ChronicIllness #InvisibleIllness #PatientVoices #UnremarkableMe www.unremarkableme.com/post/waiting...
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Waiting for the 2026 Ehlers–Danlos Society Criteria”
By Antonia @Unremarkable MePublished January 2026How people with hypermobility and connective-tissue mysteries sit through science’s intermission, and why the next act mattersWhen you’ve spent years t...
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Unremarkable Me @unremarkableme.bsky.social · 16/01/2026
Talking to children about chronic illness doesn’t have to be heavy or frightening. Calm truth, gentle language, and a reminder that love doesn’t disappear when bodies get complicated. #ChronicIllness #KidsAndHealth #UnremarkableMe #hEDS #EDS #ChiariMalformation www.unremarkableme.com/post/explain...
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Explaining Chronic Illness to Kids
Or: How Not to Accidentally Terrify a Nine-Year-Old January 2026 By Antonia @Unremarkable MeThere comes a moment, usually quiet and slightly sideways, when you realise a child has noticed.Not in the d...
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Unremarkable Me @unremarkableme.bsky.social · 06/01/2026
Chronic illness isn’t a journey. It’s a roller coaster with no seatbelt, no exit, and a very tired goblin holding on anyway. #ChronicIllness #InvisibleIllness #SpoonieLife #UnremarkableMe #StillHere #ChronicPain #EDS #DisabilityVoices #hEDS www.unremarkableme.com/post/the-emo...
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The Emotional Roller Coaster of Chronic Illness
By Antonia @ Unremarkable Me | Published January 2026Living with chronic illness is not a gentle cruise down a lazy river with a straw hat and a soundtrack. It is a non-consensual roller coaster built...
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Unremarkable Me @unremarkableme.bsky.social · 06/01/2026
Doctors and patients are not opponents. We are allies inside a system under strain. Saving the NHS means standing together, telling the truth, and backing each other when it matters most. #SaveTheNHS #EveryDoctor#chronic-illness #StrongerTogether#UnremarkableMe www.unremarkableme.com/post/saving-...
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Saving the NHS Is Not a Slogan. It’s a Relationship
Why doctors and patients working together might be the most radical idea we have leftBy Antonia @Unremarkable Me Published: 6 January 2026Scroll Instagram for long enough and you will see it.Save the ...
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Unremarkable Me @unremarkableme.bsky.social · 05/01/2026
Chronic illness doesn’t come with neat story arcs. Sometimes there’s no crisis. No recovery. Just the long middle where staying alive takes everything you have. #EDS #NHS #ChiariMalformation #ChronicIllness #InvisibleDisability #UnremarkableMe www.unremarkableme.com/post/i-didn-...
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I Didn’t Disappear. I Was Busy Surviving
23 December 2025Author: Antonia @UnremarkableMeFor the last six months, Unremarkable Me went quiet.Not in a dramatic, flounce off stage kind of way. There was no announcement, no carefully worded post...
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A Chronic Voice @achronicvoice.com · 04/12/2025
"I stopped trying to fit in. I stopped apologizing for being ill. & equally important, I learned to #AskForHelp. I learned there are many ways to be seen & heard in the world. I learned the most important lesson of all: #trusting my own goodness.": buff.ly/lRtIwku #spoonie #ChronicIllness #SelfLove
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The Stories We Tell Ourselves: Prisons or Paths to Freedom
The stories we tell ourselves about chronic illness can make a difference in our lives. Here's how Rose reclaimed her freedom through narrative.
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Unremarkable Me @unremarkableme.bsky.social · 03/06/2025
#UnremarkableMe #Chronicillness #EhlersDanlos #ChiariMalformation #hEDS #EDS www.unremarkableMe.com www.UnremarkableMe.com/Music
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Unremarkable Me @unremarkableme.bsky.social · 09/06/2025
#UnremarkableMe #chronicillness #EDS&Chiari #hEDS
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Unremarkable Me @unremarkableme.bsky.social · 11/06/2025
#UnremarkableMe #EDS&Chiari #EDS #ChronicIllness #hEDS #ChiariMalformation
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Unremarkable Me @unremarkableme.bsky.social · 16/06/2025
#Unremarkableme.com #EDS #ChronicIllness #UnremarkableMe #EDS&Chiari #hEDS #ChiariMalformation
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Unremarkable Me @unremarkableme.bsky.social · 16/06/2025
UnremarkableMe.com #hEDS #EDS&Chiari #ChronicIllness #EDS #POTS #DisabilityAwareness #UnremarkableMe #StillHere #ChiariMalformation
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Unremarkable Me @unremarkableme.bsky.social · 16/06/2025
UnremarkableMe.com #hEDS #EDS&Chiari #ChronicIllness #EDS #POTS #DisabilityAwareness #UnremarkableMe #StillHere #ChiariMalformation
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Unremarkable Me @unremarkableme.bsky.social · 17/06/2025
#UnremarkableMe #hEDS #EDS #EDS&Chiari
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Unremarkable Me @unremarkableme.bsky.social · 18/04/2025
Beauty tips, chaos, and chronic illness—because glam doesn’t stop just ’cause your joints do. #ChronicIllness #BeautyWithEDS #EDS #hEDS #DisabilityStyle #SpoonieBeauty #UnremarkableMe www.unremarkableme.com/post/beauty-...
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Beauty Survival Tips from a Chronically Ill Dreadful Hippy
By Antonia@UnremarkableMe, your local dreadful hippy and professional fashle enthusiastThere’s a particular kind of magic in learning to care for yourself when your body has stopped playing fair. It’s...
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Unremarkable Me @unremarkableme.bsky.social · 30/04/2025
Wobbly spine? Brain too low? Same. 💀 Here’s my journey with Ehlers-Danlos Syndrome and Chiari Malformation—because one weird diagnosis clearly wasn’t enough. #EDS #ChiariMalformation #ChronicIllness #UnremarkableMe #hEDS #Chiari #Chronicillnessawareness www.unremarkableme.com/post/my-jour...
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My Journey: Ehlers-Danlos Syndrome & Chiari Malformation
The Brain That Moved House (and Other Chronic Illness Shenanigans)By Antonia at Unremarkable Me I wouldn’t call myself an expert—but I’ve read, researched, interrogated specialists, double-checked stu...
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Unremarkable Me @unremarkableme.bsky.social · 06/06/2025
Denial: The worst timeshare you’ll ever inherit. Comes with guilt, excuses, and a complimentary minibar of lies. No beach. Just burnout. #ChronicIllness #DisabilityHumour #UnremarkableMe #SpoonieLife #EDS #MCAS #POTS #InvisibleIllness #Chiari #hEDS www.unremarkableme.com/post/denial-...
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Denial: The Worst Timeshare You’ll Ever Inherit
By Antonia @UnremarkableMePublished: June 2025Let’s Talk About DenialNot the cool, off-grid kind of denial where you bin your WiFi, raise goats, and learn the banjo. No—we’re talking about the chronic...
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Unremarkable Me @unremarkableme.bsky.social · 09/06/2025
#UnremarkableMe #chronicillness #EDS #hEDS #EDS&Chiari #Ehlersdanlos
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Unremarkable Me @unremarkableme.bsky.social · 10/06/2025
#Unremarkableme #EDS&Chiari #EDS #hEDS #ChiariMalformation #Chronicillness
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Unremarkable Me @unremarkableme.bsky.social · 11/06/2025
#UnremarkableMe #EDS&Chiari #chronicIllness #EDS #hEDS #Chiarimalformation
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Unremarkable Me @unremarkableme.bsky.social · 18/06/2025
#Unremarkableme #EDS #hEDS #EDS&Chiari
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Unremarkable Me @unremarkableme.bsky.social · 12/06/2025
When inpatient and outpatient teams stop working together, patients get caught in the crossfire. It’s not just miscommunication—it’s system failure. #ChronicIllness #HospitalCare ##EDS&Chiari #EDS #hEDS #UnremarkableMe #NHS #chiariMalformation www.unremarkableme.com/post/the-bat...
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The Battle of the Wards: How Outpatient and Inpatient Care Became a Tug of War (and Why We’re the Ones Getting Rope Burn)
By Antonia at Unremarkable MeWhere the System Ends and We BeginI’ve always said that navigating chronic illness is like being forced to play a game you don’t understand, where the rules change halfway...
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Unremarkable Me @unremarkableme.bsky.social · 16/06/2025
UnremarkableMe.com #hEDS #EDS&Chiari #ChronicIllness #EDS #POTS #DisabilityAwareness #UnremarkableMe #StillHere #ChiariMalformation
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Unremarkable Me @unremarkableme.bsky.social · 24/06/2025
You can laugh, cry, cope, collapse—and still get told you “look well.” That’s the chronic illness paradox in action. #ChronicIllness #EDS #hEDS #EDS&Chiari #SpoonieTruth #InvisibleDisability #Chiari #UnremarkableMe www.unremarkableme.com/post/the-chr...
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The Chronic Illness Paradox
By Antonia @ Unremarkable Me | Published June 2025 I’ve had more experience justifying my mascara than some people have explaining their taxes. Because if you’re chronically ill and dare to look prese...
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Unremarkable Me @unremarkableme.bsky.social · 19/06/2025
#UnremarkableMe #EDS #hEDS #EDS&Chiari
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A Chronic Voice @achronicvoice.com · 18/05/2025
“The current system isn’t just inefficient—it’s actively harmful..We fall between departments. We get sent home from A&E with a leaflet & the subtle suggestion that it might all be in our heads.”: buff.ly/znjIYy2 #healthcare #disability #PatientCare #ChronicIllness by @unremarkableme.bsky.social
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“Whose Problem Is It Anyway?”: Why We Desperately Need a Safety Net for Complex and Undiagnosed Patients
By Toni, writer, professional lip-reader, medical maze-runner, and reluctant NHS ninjaPicture this: You’ve bounced around the NHS for years. You’ve seen so many specialists that your medical history…
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Ciara 🇳🇿🏴󠁧󠁢󠁳󠁣󠁴󠁿🇮🇪 @ciaraarmstrong.bsky.social · 25/05/2025
My sister has one, my cousin has one, I have almost identical symptoms as them, but I can’t get a diagnostic MRI. Would love a wealth tax to pump $ into health so we have access to more resources…. It’s about $3.5 thousand dollars for an MRI privately, so that’s a no. #Kikorangi #nzpol
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A Chronic Voice @achronicvoice.com · 03/09/2025
“ #Curiosity is Power. The more you learn, the more control you reclaim. #Knowledge won’t cure you, but it will help you make sense of the chaos.": buff.ly/9SRfgQy #ChronicIllness #ChronicPain #disability by @unremarkableme.bsky.social
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Disability Guilt:Losing, Finding, and Learning to Live Again: The Emotional Journey of Chronic Illness
Imagine this. You’re walking through life, minding your own business, maybe even humming your favorite song, when suddenly—bam!—the ground gives way beneath your feet.One minute, everything is…
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Unremarkable Me @unremarkableme.bsky.social · 27/03/2025
#NHS #NHSENGLAND #UnremarkableMe
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Unremarkable Me @unremarkableme.bsky.social · 19/04/2025
Living with EDS, a rebellious collarbone, and a brain that just won’t sit still. Join me on this bendy, bony, brain-squishing ride. #EDS #ChiariMalformation #ChronicIllness #SpoonieLife #hEDS #zebrastrong #UnremarkableMe #BeKindToYourself www.unremarkableme.com/post/living-...
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My Journey: EDS, Clavicle Chaos, and Chiari Malformation.
By Antonia@UnremarkableMe, Professional Human Pretzel and Part-Time Chaos Coordinator.If my life were a symphony, my connective tissue would be playing out of tune while the conductor stares blankly a...
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Unremarkable Me @unremarkableme.bsky.social · 23/04/2025
You’ve got a diagnosis! Now what? Oh… right. The hope, the heartbreak, the “fix it” fantasy. Let’s talk cruel optimism and what really comes next. #ChronicIllness #DiagnosisJourney #NHS #EDS #hEDS #UnremarkableMe #UnremarkableMe #BeKindToYourself www.unremarkableme.com/post/so-what...
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“So… What Now?” The Cruel Optimism of Diagnosis
By Antonia at Unremarkable Me – who once genuinely believed that getting a diagnosis would mean getting a solution. There’s this story we’re all sold—the idea that once you’re diagnosed, the hard part...
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Unremarkable Me @unremarkableme.bsky.social · 19/05/2025
Ghosting and Chronic illness. 👻 Here’s why we fade, and how we reclaim space on our own terms. #ChronicIllness #InvisibleDisability #EDSLife #MCAS #POTS #UnremarkableMe #Ehlersdanlos #ChiariMalformation www.unremarkableme.com/post/when-th...
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When the Ghost Is You: Why People with Chronic Illness Disappear (And How We Can Show Up in Our Own Way)
By Antonia at Unremarkable MeConfession time: I ghost people.I ghost friends, family, chat groups, even the pizza delivery guy once because I couldn’t cope with the doorbell. But before you slap a “ba...
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Unremarkable Me @unremarkableme.bsky.social · 09/06/2025
When your bowels stage a French Revolution mid-hospital stay and your enema feels like it lied on its CV… this one’s for you. #ChronicIllness #EDS #hEDS #ChiariMalformation #ConstipationChronicles #EDS&Chiari #UnremarkableMe #ToiletTrauma www.unremarkableme.com/post/the-gre...
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The Great Bowel Rebellion
By Antonia at Unremarkable Me(Chronically ill, hilariously constipated, and just trying to poop in peace.)Some people bond over cocktails or concerts. I bonded with my best friend Shilpa over bum clea...
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Unremarkable Me @unremarkableme.bsky.social · 17/06/2025
#UnremarkableMe #hEDS #EDS #EDS&Chiari
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Unremarkable Me @unremarkableme.bsky.social · 20/06/2025
Floating ribs and EDS are a match made in chaos. Ever felt that stabby pop under your ribs? You’re not alone. UnremarkableMe.com #EDS #SlippingRibSyndrome #Hypermobility #ChronicPain #UnremarkableMe #InvisibleIllness #ChronicIllness #EDS #hEDS #EDS&Chiari www.unremarkableme.com/post/the-rib...
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The Rib That Slipped: When Your Floating Ribs Go Rogue
By Antonia | Unremarkable MeLet’s be honest—ribs aren’t high on the list of things most people worry about. They’re just... there. Doing their ribby duties. Holding in organs. Being vaguely supportive...
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Unremarkable Me @unremarkableme.bsky.social · 20/06/2025
#UnremarkableMe #EDS #hEDS #EDS&Chiari
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Unremarkable Me @unremarkableme.bsky.social · 10/06/2025
Tired of hearing “There’s no research on that”? Same. So I wrote a guide for becoming your own research detective—without losing your mind #unremarkableme.com #ChiariMalformation #EDS #EDS&Chiari #ChronicIllness #ChiariMalformation #BeYourOwnAdvocate #hEDS www.unremarkableme.com/post/how-to-...
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How to Hunt Medical Research Without Losing the Plot
By Antonia @ Unremarkable Me(Chronically ill, hilariously tired, and powered by sarcasm and sheer spite.)Let’s be brutally honest for a second.If you live with conditions like Chiari Malformation, Ehl...
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Unremarkable Me @unremarkableme.bsky.social · 13/06/2025
#UnremarkableMe #EDS&Chiari #EDSUK #NHS #EDS #hEDS #ChronicIllness #Chiari
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Unremarkable Me @unremarkableme.bsky.social · 16/06/2025
Chronic illness took a lot from me. But it also gave me something I never had before: time—to reflect, to reconnect, to be. UnremarkableMe.com #hEDS #EDS&Chiari #ChronicIllness #EDS #POTS #DisabilityAwareness #UnremarkableMe #StillHere #ChiariMalformation www.unremarkableme.com/post/the-goo...
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The Good That Chronic Illness Gave Me (No, Really.)
By Antonia @ Unremarkable Me Published June 2025Let’s start with something that feels… weirdly hopeful.I’ve spent years reading, researching and writing about how chronic illness dismantles a life—bec...
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Unremarkable Me @unremarkableme.bsky.social · 19/06/2025
#UnremarkableMe #EDS #hEDS #EDS&Chiari
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Unremarkable Me @unremarkableme.bsky.social · 27/06/2025
#UnremarkableMe #EDS #hEDS #EDS&Chiari #Chronicillness
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