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United2EndMND

@united2endmnd.bsky.social
7 followers 1 following 3 posts
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United2EndMND @united2endmnd.bsky.social · 16/04/2025
Novel gene therapies, funding for promising projects, earlier diagnosis through biopsy, ways to accelerate research, addressing heartbreaking trial failures, communications, frustrations with government agencies - all discussed at @lifearc.bsky.social summit united2endmnd.org/2025/04/09/l...
united2endmnd.org
LifeArc Translational Science Summit MND & Rare Dementias
LifeArc Translational Science Summit on MND and Rare Dementias – a patient view Collaboration is vital in research for complicated neurodegenerative diseases, especially with MND.
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United2EndMND @united2endmnd.bsky.social · 16/04/2025
For obvious reasons, we are, sadly, part of an ever-changing community. See our post to find out more about our aims/who we work with/what we've done together/what we're doing to help accelerate progress @mndresearch.bsky.social @ukmndri.bsky.social #United2EndMND united2endmnd.org/2025/03/31/m...
united2endmnd.org
United2EndMND – committed to the acceleration of MND research
United2EndMND Committed to the acceleration of MND research United2EndMND is committed to promoting the acceleration of MND research towards meaningful treatments and, ultimately, a cure through a …
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United2EndMND @united2endmnd.bsky.social · 08/02/2025
@ukmndri.bsky.social post on ellorarxine. "There is currently no evidence that (it) is safe in humans. However, if… evidence becomes available, we would be delighted to work with the company…to advise on…fastest way to assess it in clinical trials" ukmndri.org/2025/02/07/a...
ukmndri.org
An update on Ellorarxine - UKMNDRI
Why this statement? As neurologists specialising in the care of people living with motor neuron disease, we are receiving increasing enquiries about a drug called ellorarxine. Many of our patients are...
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