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UK Organ Donation and Transplantation Research Network

@ukodtrn.bsky.social
65 followers 51 following 51 posts

A collaboration between clinical, patient, public, and scientific representatives to support research in organ donation and transplantation for patient benefit ukodtrn.org

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UK Organ Donation and Transplantation Research Network @ukodtrn.bsky.social · 13/03/2026
Could new research help to reduce the need for immunosuppression after a kidney transplant? You can now watch the recording from our recent webinar here: www.ukodtrn.org/rs-webinars/...
ukodtrn.org
Could new research help to reduce the need for immunosuppression after a kidney transplant? | Webinars
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UK Organ Donation and Transplantation Research Network @ukodtrn.bsky.social · 11/03/2026
Last week we attended the @btstransplant.bsky.social Annual Congress and had a great time catching up with some familiar faces and raising awareness of our work. If you would like to find out more about what we do, you can visit our website and sign up to our newsletter at www.ukodtrn.org
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UK Organ Donation and Transplantation Research Network @ukodtrn.bsky.social · 10/03/2026
🎉Today we're celebrating the fourth anniversary of the Shared Commitment to Public Involvement in health and social care research. Find out what we've been doing to help drive up standards in research: www.ukodtrn.org/au-news/cele... @hralatest.bsky.social #SharedCommitment #PublicInvolvement
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Reposted by UK Organ Donation and Transplantation Research Network
Adnan Sharif @adnan-sharif.bsky.social · 05/03/2026
Jim Fallow from Donor Family Network presenting a sample survey of donor family attitudes to research done in collaboration with @ukodtrn.bsky.social at #BTS2026 Very important that we embed discussion of research on donor family approaches. @btstransplant.bsky.social
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UK Organ Donation and Transplantation Research Network @ukodtrn.bsky.social · 25/02/2026
✨One week to go until BTS Congress 2026✨ You can find us at Stand 1 with @kidneyresearchuk.org from 4th-6th March. Come and talk to us about how we can support your research at every stage for patient benefit. We look forward to seeing you there! #BTSCongress
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UK Organ Donation and Transplantation Research Network @ukodtrn.bsky.social · 20/02/2026
Less than one week to go until our next webinar for patients and the public! Join us on Thursday 26th February at 6pm to hear about a new treatment that could reduce the need for life long immunosuppression after a kidney transplant. Register here: events.teams.microsoft.com/event/9b283b...
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UK Organ Donation and Transplantation Research Network @ukodtrn.bsky.social · 23/01/2026
❗Only 2 weeks remaining to share your experience of psychological support throughout your liver transplant journey. Find out more here: www.ukodtrn.org/au-news/help...
ukodtrn.org
News
Stay updated with the latest news and research developments from the UK Organ Donation and Transplantation Research Network (UKODTRN).
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UK Organ Donation and Transplantation Research Network @ukodtrn.bsky.social · 12/01/2026
We invite you to take part in a crucial survey about your experience of psychological support throughout your liver transplant journey. Find out more: www.ukodtrn.org/au-news/help... #LiverTransplant #MentalHealthSupport #PatientSupport
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UK Organ Donation and Transplantation Research Network @ukodtrn.bsky.social · 22/12/2025
💡Medical research is powerful, but only if it can be understood. This is why we have just launched a new free resource that breaks down the latest organ donation and transplantation research into plain language. Find out more: www.ukodtrn.org/au-news/new-...
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UK Organ Donation and Transplantation Research Network @ukodtrn.bsky.social · 11/12/2025
Monica is a Public Contributor for the UKODTRN. She received a life-saving liver transplant after being diagnosed with liver cancer and now gets involved in research to help improve outcomes for others. Read her story: www.ukodtrn.org/au-news/shap...
ukodtrn.org
News
Shaping Research: Monica's Story
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UK Organ Donation and Transplantation Research Network @ukodtrn.bsky.social · 07/11/2025
📅Only a few days until our webinar about AI in transplantation. Join us to find out how AI can be used as a force for good to expand access to life-saving transplants.
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UK Organ Donation and Transplantation Research Network @ukodtrn.bsky.social · 23/10/2025
How can AI be used in organ transplantation? Join our free webinar for patients, carers and healthcare professionals with guest speaker Georgios Kourounis to find out more. Register here: www.ukodtrn.org/gi-events-fo...
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UK Organ Donation and Transplantation Research Network @ukodtrn.bsky.social · 17/10/2025
Christian is a Public Contributor for the UKODTRN. He received a life-saving liver transplant in 2018 and now gets involved in research to give back to the medical community. Read his story: www.ukodtrn.org/au-news/publ...
ukodtrn.org
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Public Contributor Spotlight: Christian's Story
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UK Organ Donation and Transplantation Research Network @ukodtrn.bsky.social · 15/10/2025
Today we are celebrating the first ever International Patient Engagement Day, launched by ISPEP. This year's theme is #CarryTheChange as we acknowledge the impact that good quality patient engagement has on research and outcomes for patients. #InternationalPatientEngagementDay2025
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UK Organ Donation and Transplantation Research Network @ukodtrn.bsky.social · 09/10/2025
📰Have you read our latest newsletter for organ donation and transplantation professionals? Catch up on ongoing research, useful resources, and upcoming events here: www.ukodtrn.org/au-news/read...
ukodtrn.org
News
Read the latest edition of our newsletter for professionals
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UK Organ Donation and Transplantation Research Network @ukodtrn.bsky.social · 08/10/2025
Telling the Story: Parenting, Transplant & Talking to Children The World Transplant Games Federation are hosting a webinar sharing how storytelling can help families talk to children about transplantation. Register here: us02web.zoom.us/meeting/regi...
us02web.zoom.us
Welcome! You are invited to join a meeting: Telling the Story: Parenting, Transplant & Talking to Children. After registering, you will receive a confirmation email about joining the meeting.
Speaker: Esther Sceide, Supersprookje.nl - When Esther Scheide couldn’t find a picture book to help parents talk to their children about her upcoming organ transplantation, she created one herself. ...
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UK Organ Donation and Transplantation Research Network @ukodtrn.bsky.social · 07/10/2025
The INTEGRITY Project: Consultation on the draft guidelines. Provide your feedback on draft ethical guidelines for research involving deceased donors. Find out more: redcap.link/integrity
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UK Organ Donation and Transplantation Research Network @ukodtrn.bsky.social · 03/10/2025
Have you read the latest edition of our newsletter for patients and the public? Catch up on the latest research and opportunities to get involved here: www.ukodtrn.org/au-news/read...
ukodtrn.org
News
Read the latest edition of our newsletter for patients and the public
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UK Organ Donation and Transplantation Research Network @ukodtrn.bsky.social · 26/09/2025
Researchers from Newcastle University and Bradford University are testing if a new artificial intelligence (AI) app could help surgeons to judge if donated livers are suitable for transplant. Read more: fundingawards.nihr.ac.uk/award/NIHR20... #OrganDonationWeek @nihr.bsky.social
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UK Organ Donation and Transplantation Research Network @ukodtrn.bsky.social · 25/09/2025
New research could help make organ donation quicker and less stressful for families. Researchers at Nottingham University and City St George's University are looking into delays in organ donation and how they can be resolved. Read more: fundingawards.nihr.ac.uk/award/NIHR20... #OrganDonationWeek
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UK Organ Donation and Transplantation Research Network @ukodtrn.bsky.social · 25/09/2025
Current research by the University of Bristol could help to improve access to kidney transplants from living donors. They are testing a new support service, which combines approaches used in other countries. Read more: fundingawards.nihr.ac.uk/award/NIHR16... #OrganDonationWeek @nihr.bsky.social
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UK Organ Donation and Transplantation Research Network @ukodtrn.bsky.social · 22/09/2025
This week is Organ Donation Week 2025, and it is time to shine a light on the incredible gift of organ donation. Throughout the week, we will be sharing some of the important research that is happening right now in the field of organ donation. #OrganDonationWeek #OrganDonation
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UK Organ Donation and Transplantation Research Network @ukodtrn.bsky.social · 19/09/2025
❗Closing soon If you are currently working at a UK liver transplant centre, please take 10 minutes to complete and share this anonymous survey about psychological support for liver transplant patients. #livertransplant Complete the survey: forms.cloud.microsoft/e/1PMNDvmHmN
forms.cloud.microsoft
Microsoft Forms
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UK Organ Donation and Transplantation Research Network @ukodtrn.bsky.social · 04/09/2025
If you are a consultant kidney clinician with an interest in transplantation, don't miss this opportunity to join the @nhsbt.bsky.social Kidney Advisory Group! Find out more: www.odt.nhs.uk/transplantat...
odt.nhs.uk
Expressions of interest
Non-surgical transplant renal units: expressions of interest invited for consultant members for NHSBT Kidney Advisory Group
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UK Organ Donation and Transplantation Research Network @ukodtrn.bsky.social · 20/08/2025
Join our new Facebook group 'Public Voices in Transplantation Research' to learn about the latest opportunities to use your lived experience to shape the future through research. Join here: www.facebook.com/groups/57147... #transplant #patientvoice
facebook.com
Redirecting...
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UK Organ Donation and Transplantation Research Network @ukodtrn.bsky.social · 14/08/2025
🫀New Heart, New Horizons: Exercise in the journey after heart transplant Learn about the heart transplant recipients’ journey through rehabilitation and optimizing exercise capacity at an event run by @thebhf.bsky.social and Coventry University. Find out more: www.eventsforce.net/cugroup/fron...
eventsforce.net
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Reposted by UK Organ Donation and Transplantation Research Network
The British Transplantation Society @btstransplant.bsky.social · 14/08/2025
🫀 Register now for our BTS Autumn Symposia! Join leading experts, innovators, and clinicians for a powerful one-day programme exploring the next era in cardiothoracic transplant care. 📅 14 November 2025 📍Wellcome Collection, London bit.ly/3JxrZX7 #BTS2025 #CardiothoracicTransplant
bit.ly
BTS Autumn Symposia - British Transplantation Society
The Fundamentals of Transplantation: A Joint Educational Event by The Herrick Society of Trainees in Transplant Surgery & The British Transplant Physician Trainees
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UK Organ Donation and Transplantation Research Network @ukodtrn.bsky.social · 13/08/2025
Today is World Organ Donation Day 💙 We are honouring the organ donors and their families that have helped to save and transform the lives of thousands of people living with organ failure. Read Sue's story: www.ukodtrn.org/au-news/publ... #WorldOrganDonationDay
ukodtrn.org
News
Sue's Story
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UK Organ Donation and Transplantation Research Network @ukodtrn.bsky.social · 06/08/2025
Shape the future of AI in organ transplantation by sharing your insights in a 5-minute survey by @esottransplant.bsky.social
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UK Organ Donation and Transplantation Research Network @ukodtrn.bsky.social · 04/08/2025
📅One week remaining to share the questions you think research should answer about organ donation and transplantation. Your questions will help us to identify what future research should focus on for the benefit of patients. Extended closing date: Monday 11th August.
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UK Organ Donation and Transplantation Research Network @ukodtrn.bsky.social · 01/08/2025
📰Read the latest edition of our newsletter for patients and the public📰 Catch up with the latest opportunities to get involved in research and read about the work we've been doing to transform transplantation research together. www.ukodtrn.org/au-news/read...
ukodtrn.org
News
Read the latest edition of our newsletter for patients and the public
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UK Organ Donation and Transplantation Research Network @ukodtrn.bsky.social · 24/07/2025
UKODTRN Executive Committee member and Consultant Nephrologist Dr Sunil Daga shares his research story and discusses the importance of reducing health inequalities in live kidney donation. Read the full article here: www.leedshospitalscharity.org.uk/dr-sunil-dag...
leedshospitalscharity.org.uk
Dr Sunil Daga - Our Research Story
Sunil led a ground-breaking collaborative research study to reduce health inequalities around live organ donation, part funded by Leeds Hospitals Charity.
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UK Organ Donation and Transplantation Research Network @ukodtrn.bsky.social · 18/07/2025
On Tuesday 15th July, we hosted a webinar with guest speaker @adnan-sharif.bsky.social about the ongoing study ‘Epidemiology of Cancer after solid Organ Transplantation (EpCOT)’. You can read more about this here: www.ukodtrn.org/au-news/usin...
ukodtrn.org
News
Using patient data to look at cancer after transplantation: The EpCOT Study
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Reposted by UK Organ Donation and Transplantation Research Network
UK Organ Donation and Transplantation Research Network @ukodtrn.bsky.social · 03/07/2025
📣Join our next public webinar 'Using patient data to look at cancer after transplantation: The EpCOT Study' with guest speaker @adnan-sharif.bsky.social Find out more here: www.ukodtrn.org/gi-events-fo...
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UK Organ Donation and Transplantation Research Network @ukodtrn.bsky.social · 03/07/2025
📣Join our next public webinar 'Using patient data to look at cancer after transplantation: The EpCOT Study' with guest speaker @adnan-sharif.bsky.social Find out more here: www.ukodtrn.org/gi-events-fo...
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Reposted by UK Organ Donation and Transplantation Research Network
Kidney Research UK @kidneyresearchuk.org · 23/06/2025
We are delighted to announce, for the first time at our annual Driving Discoveries conference, three named presentations. If you’re passionate about making a change in renal research, then this is an event you do not want to miss. Find out more here: www.kidneyresearchuk.org/research/inf...
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UK Organ Donation and Transplantation Research Network @ukodtrn.bsky.social · 27/06/2025
🔬What questions do you think research should answer about organ donation and transplantation? One week remaining for those with lived experience to share their views and help shape the future of research! Find out more: www.ukodtrn.org/au-news/shap... #transplantation #research
ukodtrn.org
News
Shape the future of research: What questions do you think research should answer about organ donation and transplantation?
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UK Organ Donation and Transplantation Research Network @ukodtrn.bsky.social · 27/06/2025
🎤 The UKODTRN at @esottransplant.bsky.social Congress 2025. Join UKODTRN Executive Committee member Sian Griffin at ESOT Congress 2025 for her discussion on ‘The highly sensitised kidney retransplant candidate’. 📅 Date: Tuesday 1st July 🕐 Time: 09:00-10:30 BST
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UK Organ Donation and Transplantation Research Network @ukodtrn.bsky.social · 27/06/2025
🎤 The UKODTRN at @esottransplant.bsky.social Congress 2025. Join UKODTRN Co-director @adnan-sharif.bsky.social at ESOT Congress 2025 for his discussion on ‘Transplantation in the elderly’. 📅 Date: Monday 30th June 🕐 Time: 09:00-10:30 BST
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UK Organ Donation and Transplantation Research Network @ukodtrn.bsky.social · 27/06/2025
🎤 The UKODTRN at @esottransplant.bsky.social Congress 2025. Join UKODTRN Co-director @adnan-sharif.bsky.social at ESOT Congress 2025 as he chairs an important discussion on ‘The family voice in deceased donation'. 📅 Date: Sunday 29th June 🕐 Time: 09:00-10:30 BST
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UK Organ Donation and Transplantation Research Network @ukodtrn.bsky.social · 26/06/2025
🎤 The UKODTRN at @esottransplant.bsky.social Congress. Join UKODTRN Co-director Karen Rockell at ESOT Congress 2025 as she judges a Dragon’s Den style session alongside Liset Pengel, Luke Yates, and Rutger Ploeg. 📅 Date: Saturday 28th June 🕐 Time: 17:00-18:30
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UK Organ Donation and Transplantation Research Network @ukodtrn.bsky.social · 20/06/2025
What questions do you think research should answer about organ donation and transplantation? We are running a survey for anyone affected by organ donation and transplantation that will help shape research priorities and funding. Find out more here: www.ukodtrn.org/au-news/shap...
ukodtrn.org
News
Shape the future of research: What questions do you think research should answer about organ donation and transplantation?
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UK Organ Donation and Transplantation Research Network @ukodtrn.bsky.social · 18/06/2025
Share your experience of symptoms after a kidney transplant Researchers from Kings College London want to find out how common symptoms might cluster together in kidney transplant recipients. Find out how you can get involved here: www.ukodtrn.org/gi-events-fo...
ukodtrn.org
Events for patients and the public
Share your experience of symptoms after a kidney transplant
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UK Organ Donation and Transplantation Research Network @ukodtrn.bsky.social · 04/06/2025
Read the latest edition of our newsletter for patients and the public to find out about the latest network news, upcoming events, and research updates. www.ukodtrn.org/au-news/read...
ukodtrn.org
News
Stay updated with the latest news and research developments from the UK Organ Donation and Transplantation Research Network (UKODTRN).
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UK Organ Donation and Transplantation Research Network @ukodtrn.bsky.social · 22/05/2025
📅Less than one week to go until our webinar on the ExaLT Trial - a study about whether exercise and support can improve quality of life for liver transplant recipients. Find out more and register here: ukodtrn.org/event/nihr-b...
ukodtrn.org
Can an exercise and motivational programme improve quality of life for liver transplant recipients? An update from the ExaLT Trial – UKODTRN
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UK Organ Donation and Transplantation Research Network @ukodtrn.bsky.social · 22/05/2025
Thank you to all who attended this week's event and joined the discourse on maximising the research potential of the UK Transplant Registry (UKTR) at The Exchange in Birmingham. It was a truly collaborative day to discuss current uses of the UKTR and what we want from the future.
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UK Organ Donation and Transplantation Research Network @ukodtrn.bsky.social · 15/05/2025
📅Less than one week to go! We look forward to joining you next week for a stimulating discussion about maximising the research potential of the UK Transplant Registry. View the programme and find out more: ukodtrn.org/event/nihr-b...
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UK Organ Donation and Transplantation Research Network @ukodtrn.bsky.social · 14/05/2025
📣Join our next public webinar 'Can an exercise and motivational programme improve quality of life for liver transplant recipients? An update from the ExaLT Trial' Find out more and register here: ukodtrn.org/event/nihr-b...
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UK Organ Donation and Transplantation Research Network @ukodtrn.bsky.social · 08/05/2025
We are proud to be a partner of the @hralatest.bsky.social Shared Commitment to Public Involvement in health and social care research. Excellent public involvement is an essential part of research and improves its quality and impact. #sharedcommitment #publicinvolvement
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