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The LAM Foundation @thelamfoundation.bsky.social · 02/10/2026

It's World Oxygen Day! Participate by learning more WorldOxygenDay.org, taking action Thelamfoundation.org/soar, and sharing this post. Advocate for better oxygen access for all. #WorldOxygenDay

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The LAM Foundation @thelamfoundation.bsky.social · 25/09/2026

Join The LAM Foundation Community today! Sign up to become a part of our supportive network of women with LAM, their loved ones, scientists, and clinicians. Receive valuable resources and stay informed on the latest LAM-related news and events. Visit Thelamfoundation.org/join

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The LAM Foundation @thelamfoundation.bsky.social · 10/09/2026

#ICYMI Watch last week's Day of Giving live event recording for inspiring LAM updates and help us reach our $300,000 goal! www.thelamfoundation.org/videos/202… #CureLAM

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The LAM Foundation @thelamfoundation.bsky.social · 04/09/2026

We’re close to our $300,000 goal! Thanks for supporting LAM cure efforts. Donate by Sept 30: thelamfoundation.org/donate #DayOfGiving

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The LAM Foundation @thelamfoundation.bsky.social · 03/09/2026

BREAKING NEWS: Every gift matched up to $10,000! Donate now to help us reach $300,000 and fund a cure. www.thelamfoundation.org/donate #CureLAM #IbelieveinaworldwithoutLAM

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The LAM Foundation @thelamfoundation.bsky.social · 03/09/2026

Countdown to our Day of Giving live event! RSVP: thelamfoundation.org/celebrate LAM updates, contests, special announcement, and match grant: www.thelamfoundation.org/donate #CureLAM #IbelieveinaworldwithoutLAM

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The LAM Foundation @thelamfoundation.bsky.social · 03/09/2026

UPDATE: We still need: 7 gifts of $5,000, 6 of $2,500, 15 of $1,000 & 9 of $500 to hit our matching challenges. Every gift is doubled — help us reach our $300,000 goal. Donate now: www.thelamfoundation.org/donate #CureLAM #IbelieveinaworldwithoutLAM

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The LAM Foundation @thelamfoundation.bsky.social · 03/09/2026

Today's the day! It's our Day of Giving. Donations at $500, $1,000, $2,500 & $5,000 are being matched by generous LAM families — doubling your impact toward our $300,000 goal. Every gift counts. Donate now: [link]

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The LAM Foundation @thelamfoundation.bsky.social · 02/09/2026

We can't wait! Join us TOMORROW for 2026 Day of Giving: virtual event, research, stories & special announcements! RSVP www.thelamfoundation.org/event/day-… #cureLAM

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The LAM Foundation @thelamfoundation.bsky.social · 01/09/2026

The LAM Foundation celebrates new publication by Mary Beth Brown, PT, PhD, and collaborators at the University of Washington. Read More: www.thelamfoundation.org/new-discov… #CureLAM

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The LAM Foundation @thelamfoundation.bsky.social · 30/08/2026

Excited to share progress from Dr. Roya Babaei Jadidi's Foundation-funded study at University of Nottingham on IL-6 signaling's role in lung repair in LAM. Read more: ow.ly/WavA50ZFT4q #CureLAM

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The LAM Foundation @thelamfoundation.bsky.social · 28/08/2026

It was great to see our rare disease friends at the TSC World Conference in Aurora, CO earlier this month. Thank you for allowing us to advance research on behalf of our communities. @TSCALLIANCE

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The LAM Foundation @thelamfoundation.bsky.social · 27/08/2026

Every gift brings us closer to $350K for the people, programs and progress that will lead us to a cure. What does a world without LAM mean to you? Make a gift today that reflects your answer. thelamfoundation.org/donate #CureLAM

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The LAM Foundation @thelamfoundation.bsky.social · 26/08/2026

The LAM Foundation and advocates met Congress to push the SOAR Act, connecting lived LAM experience to policy. Learn more: www.thelamfoundation.org/soar #SOARAct #RareDiseaseAdvocacy

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The LAM Foundation @thelamfoundation.bsky.social · 25/08/2026

1.5 million Americans rely on supplemental oxygen. Cindy is one of them — and even she couldn't get the equipment her doctor prescribed. Here's why the SOAR Act matters: ow.ly/c2zY50ZFnnk #SOARAct #SupplementalOxygen #PatientAdvocacy

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The LAM Foundation @thelamfoundation.bsky.social · 22/08/2026

A gift on September 3rd will support the people programs and progress that will lead to a cure for LAM. Swipe through the graphics to see three examples of the impact your gift will make. Give now: thelamfoundation.org/donate

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The LAM Foundation @thelamfoundation.bsky.social · 21/08/2026

For more than 25 years, Dr. Marina Holz  has been looking for answers as a scientist. For the past 15 years, she has dedicated that curiosity to the LAM community. Read more about Dr. Holz: ow.ly/FWOZ50ZCuAB #CureLAM #RareDisease #WomenInScience #LAMResearch

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The LAM Foundation @thelamfoundation.bsky.social · 20/08/2026

Support Ally Venugopal's Pampered Chef Fundraiser! Shop via her link; 20-30% goes to The LAM Foundation. Ends Aug 31! table.pamperedchef.com/party/373573… Photo Credit: @breathestronger on Instagram

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The LAM Foundation @thelamfoundation.bsky.social · 14/08/2026

Bonnie Wang, MD, is a Clinical Associate Professor in the Division of Pulmonary and Critical Care at University of Michigan For the past 7 years, she has cared for people with lung disease and has become a strong supporter of the LAM community. ow.ly/KH9t50ZzTGe #PulmonaryCare

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The LAM Foundation @thelamfoundation.bsky.social · 13/08/2026

A special note from Day of Giving Chair Kaela Varberg, PhD: Join our live virtual event Sept 3 to celebrate the people, programs, and progress that will lead to a cure. #curelam #dayofgiving2026

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The LAM Foundation @thelamfoundation.bsky.social · 10/08/2026

Join our supportive network of scientists, clinicians, and LAM patients. Receive valuable resources and stay informed on the latest LAM-related news and events. ow.ly/uchF50Znpef #Curelam #LAM #lymphangioleiomyomatosis

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The LAM Foundation @thelamfoundation.bsky.social · 31/07/2026

Join The LAM Foundation's Cruise for a Cure! Donate $100 to fund a cure and be one step closer to a Holland America Line Caribbean cruise. Limited to first 100 donors. Donate: ow.ly/kJuW50Zv6UH #curelam #cruiseforacure #CruiseForACause #CharityCruise #HollandAmericaCruise

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The LAM Foundation @thelamfoundation.bsky.social · 21/07/2026

The LAM Foundation welcomes Kenjiro Shima, MD, PhD, as Director of the LAM Clinic at Niigata University Medical and Dental Hospital in Japan succeeding Toshinori Takada, MD, PhD. Thank you to Dr. Takada for his years of leadership and contributions to advancing LAM care in Japan.

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The LAM Foundation @thelamfoundation.bsky.social · 17/07/2026

Congrats to Dr. Göksel Altınışık Ergur & LAM Clinic-Türkiye on releasing My Words to My Sisters, a free ebook uniting LAM patients' voices. ow.ly/laae50ZnZGX #LAMCommunity

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The LAM Foundation @thelamfoundation.bsky.social · 15/07/2026

Join our supportive network of scientists, clinicians, and LAM patients. Receive valuable resources and stay informed on the latest LAM-related news and events. ow.ly/n90l50Znpeb #Curelam #LAM #lymphangioleiomyomatosis

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The LAM Foundation @thelamfoundation.bsky.social · 14/07/2026

Curious about what an NIH visit is really like? Read a firsthand account from our Director of Patient Services, Cindy Beasley as she reflects on participating in the LAM research protocol and the hope that research brings to our community. Read More: ow.ly/RNQO50ZnopX

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The LAM Foundation @thelamfoundation.bsky.social · 06/07/2026

Your support for Worldwide LAM Awareness Month was incredible! Thanks to Amy, fundraisers, and our #WLAM partners TrilliumBiO for inspiring hope. Together, a cure is possible. #WLAM2026 #CureLAM

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The LAM Foundation @thelamfoundation.bsky.social · 03/07/2026

Are you a loved one looking for someone to help and relate to on your journey alongside of a woman with LAM? Denise Grassi and Lauren Grassi know this experience firsthand and wish to offer their support to you. You can contact them at dgrassi0201@optonline.net #Curelam #Gratitude #Support

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The LAM Foundation @thelamfoundation.bsky.social · 01/07/2026

We’re thrilled to announce Lyndsay Hoy, MD, is a semifinalist in the BeWellPhilly Health Hero Challenge! If she wins, $15K goes to The LAM Foundation. Vote daily all month long to support Lyndsay and raise awareness! Vote here: ow.ly/WENT50ZjqZA #HealthHero #VoteForLAM

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The LAM Foundation @thelamfoundation.bsky.social · 01/07/2026

Thank you, LAM community! Last chance to join the challenge—our donor will match gifts until midnight! Help us raise $5,000 to support women with LAM. #CURELAM #WLAM2026 give.thelamfoundation.org/give/7782…

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The LAM Foundation @thelamfoundation.bsky.social · 30/06/2026

Thank you! Your gift today doubles up to $5,000 for Worldwide LAM Awareness Month. Last chance—match ends at midnight! #WLAM2026 #CURELAM give.thelamfoundation.org/give/7782…

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The LAM Foundation @thelamfoundation.bsky.social · 30/06/2026

Amazing news! An anonymous donor will match all gifts up to $5,000 today only. Double your impact for #LAM awareness! give.thelamfoundation.org/give/7782… #DoubleYourImpact #LAMAwareness #LAMResearch #WLAM2026 #cureLAM

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The LAM Foundation @thelamfoundation.bsky.social · 29/06/2026

🫁What is a Pneumothorax? 60% with LAM face lung collapse. Tomorrow's last day of #WLAM2026—share to raise awareness! #LAM #CureLAM #RareDisease

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The LAM Foundation @thelamfoundation.bsky.social · 27/06/2026

Today, we celebrate our community's power: $38M raised, breakthroughs made, and hope fueled! #WLAM2026 #LAM #CureLAM #LAMAwareness #RareDisease #Spreadtheword

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The LAM Foundation @thelamfoundation.bsky.social · 26/06/2026

Did you know only 5% of rare diseases have treatments? LAM is one! mTORC1 inhibitors like sirolimus stabilize lung function. #WLAM2026 #RareDisease #LAMAwareness #ResearchMatters #ChronicIllness #PatientAdvocacy #RareDiseaseAwareness #cureLAM

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The LAM Foundation @thelamfoundation.bsky.social · 21/06/2026

Hope for those with LAM grows: median survival now 20+ years thanks to Rapamune, awareness, and early diagnosis. Share to support and empower! #WLAM2026 #LAM #CureLAM #LAMAwareness #RareDisease #Spreadtheword

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The LAM Foundation @thelamfoundation.bsky.social · 19/06/2026

Did You Know? 70% of those living with LAM suffer fatigue. Share to raise awareness and support the LAM community! #WLAM2026 #LAM #CureLAM #LAMAwareness #RareDisease #Spreadtheword

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The LAM Foundation @thelamfoundation.bsky.social · 17/06/2026

🔎Understanding Pleural Effusions (Chylothorax): In LAM, chyle leaks into the chest, causing breathlessness and discomfort, visible on x-rays. Share to raise awareness and support those with this rare disease! #WLAM26 #LAM #CureLAM #LAMAwareness #RareDisease #Spreadtheword

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The LAM Foundation @thelamfoundation.bsky.social · 16/06/2026

Dr. Daniel Dilling has spent decades helping people with rare lung disease find a path forward. Discover how he's making a difference for those living with LAM. www.thelamfoundation.org/leading-wi… #pulmonology

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The LAM Foundation @thelamfoundation.bsky.social · 13/06/2026

Over 12 rides, the Easy Breathers have raised more than $1 million to move us closer to better treatments and ultimately a cure for LAM. This year, they're aiming to raise $30,000. Can you help them cross the finish line? ow.ly/UpP950Z9Tzn #mdbr #curelam #WLAM2026

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The LAM Foundation @thelamfoundation.bsky.social · 11/06/2026

Team Easy Breathers is over half way to their goal of raising $30,000 to fuel better treatments and ultimately a cure for LAM. With the Million Dollar Bike Ride just days away, can you help them cross the finish line? Donate Now: ow.ly/5RJ450Z9SSI #cureLAM #MDBR #WLAM2026

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The LAM Foundation @thelamfoundation.bsky.social · 10/06/2026

While the average age at diagnosis for LAM is 35, the disease can affect people of all ages, from teenagers to older adults. Share this post to help educate others about LAM and make a difference in the lives of those living with this disease! #WLAM2026

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The LAM Foundation @thelamfoundation.bsky.social · 09/06/2026

Last week's LAMposium in Your Living Room LAM 101 recording is now available. Watch this two minute clip to hear what Dr. Gupta tells every newly diagnosed individual with LAM. Watch the full video on YouTube or at ow.ly/4KbV50Z91UJ. #RareDisease #WomensHealth #WLAM2026 #curelam

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Reposted by The LAM Foundation

The LAM Foundation @thelamfoundation.bsky.social · 15/05/2026

Due in 1 month! 2026 Fall LAM Grant Funding Cycle. Scientists who wish to apply for Foundation funding must submit a Letter of Intent (LOI) by June 15th. Learn More: Thelamfoundation.org/grants #MedicalResearch #WomenInScience #ResearchFunding #ScienceGrants #FundingOpportunity

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The LAM Foundation @thelamfoundation.bsky.social · 06/06/2026

A special thank you to our Worldwide LAM Awareness Month partner, @Trillium.Bio, for helping spark conversations, raise awareness, and strengthen connections throughout June. #WLAM2026 #thelamfoundation #lymphangioleiomyomatosis #CureLAM

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The LAM Foundation @thelamfoundation.bsky.social · 04/06/2026

Race day is almost here! Help Team Easy Breathers reach their $30,000 goal for LAM research. Every gift fuels the search for better treatments and brings us closer to a cure for LAM. Donate today and help us cross the finish line strong. ow.ly/Frf550Z6HQW #CureLAM

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The LAM Foundation @thelamfoundation.bsky.social · 03/06/2026

What is LAM? LAM is a rare and progressive lung disease that mostly affects women. This condition involves the abnormal growth of smooth muscle cells, particularly in the lungs, lymphatic system, and kidneys. #LAM #CureLAM #LAMAwareness #RareDisease #Spreadtheword

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