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Tilly Rose

@thattillyrose.bsky.social
343 followers 714 following 19 posts

🩺 Snippets from my chapters of 20 years of life as the #patient #chronicillness #eds 📲 Full chapters on Instagram @thattillyrose 🌼Founder @thatpatientcollective 📖 Pre-order ‘Be Patient’ : linktr.ee/bepatientbook

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Tilly Rose @thattillyrose.bsky.social · 02/05/2025
Amazing to have my story and BE PATIENT featured in @goodhousekeeping.bsky.social Thank you for shining a light on patient care! 💡🩺 Read the full article here: www.goodhousekeeping.com/uk/lifestyle...
goodhousekeeping.com
“I spent 20 years in hospital - here are the horrifying things I saw”: A medical mystery patient on what life's really like on NHS wards
Tilly Rose was a ‘medical mystery’ patient and spent two decades in and out of medical care. Here, she tells Bethan Rose Jenkins what she experienced and how she’s now advocating for others
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Curtis Brown Creative @cbcreative.bsky.social · 17/04/2025
Happy publication day to CBC alumna @thattillyrose.bsky.social 🌼✨ Tilly's memoir #BePatient is an extraordinary memoir on resilience, hope and finding strength in the face of adversity, and it's out now from Octopus! Get your hands on a copy: uk.bookshop.org/a/11853/9781780726229
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Tilly Rose @thattillyrose.bsky.social · 08/04/2025
So delighted that @cbcreative.bsky.social have shared my author interview today! So grateful for the opportunity I had to hone my writing on their courses 📖✨
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Tilly Rose @thattillyrose.bsky.social · 06/03/2025
On #WorldBookDay2025 I am so excited to share these incredible endorsements for my upcoming book ‘Be Patient - life, loss and laughter from behind the hospital curtain’ Out 17th April, available to pre-order NOW: linktr.ee/bepatientboo...
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Tilly Rose @thattillyrose.bsky.social · 06/03/2025
Delighted to be collaborating with @addisonsdisease.bsky.social to share my upcoming book ‘Be Patient’ for World Book Day 2025! Part 2 of ‘Be Patient’ covers my experience or living with adrenal insufficiency. This book is part of my wider mission to impact patient care 🌼📖💪
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Tilly Rose @thattillyrose.bsky.social · 27/02/2025
I learnt so much on my @cbcreative.bsky.social memoir course and seeing how many successful authors had gone onto receive publishing deals after these courses, made me keep believing I could do it! Curtis Brown are now offering a scholarship for a low income writer ⬇️
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Curtis Brown Creative @cbcreative.bsky.social · 17/02/2025
📚 Tilly Rose – @thattillyrose.bsky.social has signed a deal with Monoray to publish Be Patient, a deeply moving and funny memoir about life, loss and finding humour behind the hospital curtain. Read more here:
thebookseller.com
Monoray to publish Be Patient by Tilly Rose
Monoray (part of the Octopus Publishing Group) has acquired the rights to publish Be Patient by “medical mystery” Tilly Rose.
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Tilly Rose @thattillyrose.bsky.social · 15/02/2025
From Ig chapter 494: Scroll Hole #scrollhole #chronicillness #chronicallyill #raredisease #diagnosis #pots #eds #ehlersdanlos #vascularcompressions #medicine #chronicillnessawareness
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Tilly Rose @thattillyrose.bsky.social · 13/02/2025
When you meet another #patient who actually knows what you are going through 💛. From Ig Chapter 485: Patient Pals #chronicillness #chronicallyill #raredisease #medicine #eds #pots #vascularcompressions #chronicpain #patientlife
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Tilly Rose @thattillyrose.bsky.social · 10/02/2025
From Ig chapter 4️⃣6️⃣9️⃣ Bicycle: #chronicillness #raredisease #rarediseaseuk #chronicillnessrs #chronicallyill #eds #eherlsdanlos #pots #me #cfs #undiganosed #belief #chronicillnessmemes #motitvationalquotes
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Tilly Rose @thattillyrose.bsky.social · 09/02/2025
From Ig chapter 497: Heal #healing #healingmantras #reiki #reikihealer #energyhealing #chronicillness #heavymetal #nutrition #motivationalquotes #chronicallyill
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Tilly Rose @thattillyrose.bsky.social · 08/02/2025
From Ig chapter 4️⃣8️⃣2️⃣: Belief #chronicillness #chronicallyill #nhs #patientlife #diagnosis #medicine #healing #belief #motivationalquotes #healingmantras #book #author #eds #ehlersdanlos #vascularcompressions #avcs #chronicfatigue #pots #ME #firbomylalgia
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Tilly Rose @thattillyrose.bsky.social · 07/02/2025
From Ig chapter 4️⃣9️⃣6️⃣ ‘Comfort’: #chronicillness #chronicallyill #nhs #motivationalquotes #patientlife #pots #eds #ehlersdanlos #vascularcompressions #gastrparesis #bepatient
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Tilly Rose @thattillyrose.bsky.social · 03/02/2025
From Ig chapter 4️⃣9️⃣6️⃣: #chronicillness #pots #eds #chronicallyill #mcas #me #mcas #gastroparesis #ehlersdanlos #vascularcompressions #mum #women #femaleempowerment #motivationalquotes
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Tilly Rose @thattillyrose.bsky.social · 02/02/2025
From Ig chapter 4️⃣9️⃣4️⃣ Nurse: #chronicillness #chronicallyill #nursing #quotes #eds #vascularcompressions #patientlife
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Tilly Rose @thattillyrose.bsky.social · 30/01/2025
From Ig chapter 491: #chronicillness #chronicallyill #chronicillnesswarriors #eds #ehlersdanlos #avcs #raredisease #friendship #kindnessquotes
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Tilly Rose @thattillyrose.bsky.social · 29/01/2025
From Ig Chapter 495 - Cry #chronicillness #eds #ehlersdanlos #vascularcompressions #health #patientlife
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Tilly Rose @thattillyrose.bsky.social · 24/11/2024
💙💙💙
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Tilly Rose @thattillyrose.bsky.social · 24/11/2024
I share chapters on my 20 years of life as the #patient over on my Instagram www.instagram.com/thattillyros... Maybe I’ll start sharing them here too 📖✨
instagram.com
Tilly Rose │ Chronic Illness (@thattillyrose) • Instagram photos and videos
92K Followers, 6,410 Following, 523 Posts - See Instagram photos and videos from Tilly Rose │ Chronic Illness (@thattillyrose)
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