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Thaddeus Mason Pope

@thaddeuspope.bsky.social
716 followers 157 following 2.6K posts

Law professor & bioethicist www.thaddeuspope.com

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Thaddeus Mason Pope @thaddeuspope.bsky.social · 23/07/2026
dlvr.it
VSED in France - Get Ready
Now that France has authorized medical aid in dying, it is appropriate to reexamine VSED for all the terminally ill and seriously ill French patients who want to hasten death but cannot access MAID. Public discussion of VSED in France was prompted six years ago with the Alain Cocq case. Now the geriatrics literature is engaging. This recent article concludes that French healthcare professionals should prepare for this option (called l’arrêt volontaire de la nutrition et de l’hydratation (AVNH) par le patient).   
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Thaddeus Mason Pope @thaddeuspope.bsky.social · 23/07/2026
dlvr.it
The Cheryl Hauser Effect: Story and Conversation about VSED
You are invited to a special gathering introducing The Cheryl Hauser Effect, a documentary now in its final stage of production. Come September 17, 2026 at The Lantern in Portland, Oregon. The film shares the story of Cheryl Hauser, a Minnesota woman who, after being diagnosed with Alzheimer's disease, chose to face the end of her life on her own terms through VSED (Voluntarily Stopping Eating and Drinking). At seventy-six, Cheryl became a thoughtful advocate for end-of-life autonomy, inspiring important conversations about dementia, caregiving, and personal choice. This special preview event offers an early look at The Cheryl Hauser Effect while the film is still in production. Through selected clips and conversation, we'll explore Cheryl's story and the impact this film hopes to make. During this special evening, you will: * View selected, never-before-seen clips from the documentary * Learn more about VSED and end-of-life options * Hear from those directly involved in the story and the work surrounding end-of-life autonomy A conversation will follow with: * Randi Ewing, Palliative Care Director, Eden Health * Dr. Stephanie Kaplan, Naturopathic Physician Specializing in End-of-Life Care * Dr. Pete Regan, First physician to prescribe under Oregon's Death with Dignity Act * Jamie Thrower, End-of-Life Doula and Grief Educator Join us for an evening of storytelling, education, and conversation as we share Cheryl's story and build support for the film's completion. Learn more at thecherylhausereffect.com
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Thaddeus Mason Pope @thaddeuspope.bsky.social · 23/07/2026
dlvr.it
Death, Dying and Disposal Conference 2027
Thee 18th Death, Dying and Disposal Conference (DDD2027) will take place at the University of Antwerp, Belgium, September 2027. The conference theme will be Death Care.
000
Thaddeus Mason Pope @thaddeuspope.bsky.social · 23/07/2026
dlvr.it
Medical Futility in South Africa
This recent webinar nicely illustrated how medical futility conflicts are navigated differently in South Africa. The discussion referenced two sections of this guidance document from the Health Professions Council of South Africa.   "When the patient or the family request continued treatment against health advice that considers such treatment to be futile, the patient or the family must be given guidance and advice why such decision was taken and be advised regarding their choice of transferring to another institution where such treatment is available. If this option is refused and the health team considers treatment to be futile, and this is confirmed by independent health practitioner(s), The health practitioner may nevertheless, implement the decision to withhold or withdraw treatment if such is in the best interest of the patient." "All decisions should be fully and clearly documented in the health records, including the reasons for the decision and the procedure adopted in the decision-making process. Where significant disagreements arise about a patient’s best interests, the health practitioner should seek a clinical and / or ethical review, independent of the health care team. If this fails to resolve the disagreement, they must seek legal advice on whether it is necessary to apply to the court for a ruling."
000
Thaddeus Mason Pope @thaddeuspope.bsky.social · 22/07/2026
dlvr.it
Dead Donor Rule - New Law Prevents Violations
The dead donor rule has been a fixture of organ transplantation for sixty years. But in light of frequent intentional and accidental breaches, some regulators have strengthened protections to mitigate DDR violations.  Notable among these is Kentucky H.B. 510, signed in April. Because the law is now effective, it has been receiving renewed attention. The Kentucky statute requires that "during any organ donation recovery, preservation, or procurement activity for a DCD or DBD, a pause in procedure shall be initiated if any [clinician or family member] reports on any of the following: * Observed or suspected change in neurological status * Observed or suspected indication of life * Uncertainty regarding the accuracy or completeness of neurological status or death declaration assessments" Triggering "indications of life" include but are not limited to: * Spontaneous movement * Vocalization or attempts to vocalize * Purposeful or reflexive responses to stimuli * Observed respiratory effort by a patient-initiated attempt at breath * Changes in heart rate or blood pressure inconsistent with a death declaration * Any neurological or physiological sign suggesting pain perception or neurological activity Reports of any of these require "immediate suspension of any organ donation recovery, preservation, or procurement activity."  
000
Thaddeus Mason Pope @thaddeuspope.bsky.social · 22/07/2026
dlvr.it
The Cheryl Hauser Effect: Story and Conversation about VSED
You are invited to a special gathering introducing The Cheryl Hauser Effect, a documentary now in its final stage of production. Come September 17, 2026 at The Lantern in Portland, Oregon. The film shares the story of Cheryl Hauser, a Minnesota woman who, after being diagnosed with Alzheimer's disease, chose to face the end of her life on her own terms through VSED (Voluntarily Stopping Eating and Drinking). At seventy-six, Cheryl became a thoughtful advocate for end-of-life autonomy, inspiring important conversations about dementia, caregiving, and personal choice. This special preview event offers an early look at The Cheryl Hauser Effect while the film is still in production. Through selected clips and conversation, we'll explore Cheryl's story and the impact this film hopes to make. During this special evening, you will: * View selected, never-before-seen clips from the documentary * Learn more about VSED and end-of-life options * Hear from those directly involved in the story and the work surrounding end-of-life autonomy A conversation will follow with: * Randi Ewing, Palliative Care Director, Eden Health * Dr. Stephanie Kaplan, Naturopathic Physician Specializing in End-of-Life Care * Dr. Pete Regan, First physician to prescribe under Oregon's Death with Dignity Act * Jamie Thrower, End-of-Life Doula and Grief Educator Join us for an evening of storytelling, education, and conversation as we share Cheryl's story and build support for the film's completion. Learn more at thecherylhausereffect.com
000
Thaddeus Mason Pope @thaddeuspope.bsky.social · 22/07/2026
dlvr.it
VSED Bridge to MAID - Blocked in New UK Bill
VSED bridge to MAID is falling down, falling down in London. The new Terminally Ill Adults (End of Life) Bill explicitly excludes VSED as a way to qualify for MAID. In Section 2 (of 59) the Bill provides: Where— (a) a person does not eat or drink, or limits their eating or drinking, either voluntarily or because of a mental disorder, and their not eating or drinking, or limited eating or drinking, causes them to have an illness or disease, the person is not regarded for the purposes of this Act as terminally ill by virtue of the illness or disease. That this language had to be specifically included implies that VSED  otherwise legitimately makes someone terminally ill. In other word, VSED is a bridge to MAID (as in Oregon, New Mexico, and other jurisdictions) unless explicitly excluded. MP Lauren Edwards
000
Thaddeus Mason Pope @thaddeuspope.bsky.social · 22/07/2026
dlvr.it
Reducing Variability in Brain Death Policies & Practices - Interhospital Collaboration
Nearly 20 years ago, I defended multi-institutional ethics committees. So, I was pleased to see this report in Hospital Pediatrics about collaboration among five children's hospitals in southeast Florida.  Through the South Florida Pediatric Bioethics Consortium (SFPBEC), they have reduced variability in policies regarding brain death, potentially inappropriate treatment, and other clinical ethics issues.
000
Thaddeus Mason Pope @thaddeuspope.bsky.social · 22/07/2026
dlvr.it
Medical Futility in South Africa
This recent webinar nicely illustrated how medical futility conflicts are navigated differently in South Africa. The discussion referenced two sections of this guidance document from the Health Professions Council of South Africa.   "When the patient or the family request continued treatment against health advice that considers such treatment to be futile, the patient or the family must be given guidance and advice why such decision was taken and be advised regarding their choice of transferring to another institution where such treatment is available. If this option is refused and the health team considers treatment to be futile, and this is confirmed by independent health practitioner(s), The health practitioner may nevertheless, implement the decision to withhold or withdraw treatment if such is in the best interest of the patient." "All decisions should be fully and clearly documented in the health records, including the reasons for the decision and the procedure adopted in the decision-making process. Where significant disagreements arise about a patient’s best interests, the health practitioner should seek a clinical and / or ethical review, independent of the health care team. If this fails to resolve the disagreement, they must seek legal advice on whether it is necessary to apply to the court for a ruling."
000
Thaddeus Mason Pope @thaddeuspope.bsky.social · 21/07/2026
dlvr.it
DNR Consent Influenced by Selective Phrasing
Even subtle differences in clinician phrasing meaningfully shape people's attitudes toward DNR.  A new study shows that selective phrasing functions as a form of nudging. The researchers also examine the ethical boundaries of linguistic selectivity in medical communication.
000
Thaddeus Mason Pope @thaddeuspope.bsky.social · 21/07/2026
dlvr.it
Minimal Comfort Feeding in Advanced Dementia: Attitudes of Hospice and Palliative Care Professional
Here is a Share Link for free access to our recent article "Minimal Comfort Feeding in Advanced Dementia: Attitudes of Hospice and Palliative Care Professional" in the Journal of Pain & Symptom Management.   Context. Minimal Comfort Feeding (MCF) is a new approach to providing nutrition and hydration to persons with advanced dementia who have previously indicated (or whose surrogate believes) they would not want to live with advanced dementia. The acceptability of MCF has not been studied. Objectives. To assess perceptions of hospice and palliative care (HPC) professionals toward MCF. Methods. This cross-sectional exploratory survey study of a convenience sample was conducted at a national conference of HPC professionals in February 2025. During a presentation on MCF’s definition and ethical basis, attendees engaged in audience response polling and an optional electronic survey. Descriptive results are presented. Results. Fifty-one people attended the presentation. Forty-five attendees (88%) participated in audience polling, and 22 (43%) participated in both polling and the survey. The mean age of survey respondents was 50 (standard deviation 9.58),19 (86%) identified as White, and 18 (82%) identified as women. Thirty-five of 42 respondents (83%) agreed or strongly agreed that MCF is an acceptable option for persons with advanced dementia (PWAD), and 93% (39/42) agreed or strongly agreed they would be comfortable discussing MCF with persons with early dementia or who are at risk for dementia as a potential future option. Sixty-nine percent (29/42) anticipated MCF would be somewhat or completely acceptable to families of PWAD, but respondents were divided regarding the ease of implementing MCF in clinical practice. Conclusion. While MCF was highly acceptable in this study, the sample size was small and the risk of bias was high. Further research is needed. 
000
Thaddeus Mason Pope @thaddeuspope.bsky.social · 21/07/2026
dlvr.it
California Hospital Lawsuit after Using NBT/PIT Policy
In June 2025, 39-year-old Jessica Elizabeth Quijano suffered an anoxic brain injury at Providence Mission Hospital in Mission Viejo, California. On June 23, 2025, at the specific request of Quijano's attending clinician, "the Ethics Committee recommended activation of the non-beneficial treatment treatment policy and placed a DNR (Do Not Resuscitate) on JESSICA’s chart." Her husband objected but "was given 5 days to agree to turning off life support" or Quijano's  "treating doctors would disconnect the ventilator over" his objection. While Quijano was ultimately transferred to another hospital, the family is pursuing a medical malpractice action in Orange County Superior Court. 
000
Thaddeus Mason Pope @thaddeuspope.bsky.social · 21/07/2026
dlvr.it
VSED Bridge to MAID - Blocked in New UK Bill
VSED bridge to MAID is falling down, falling down in London. The new Terminally Ill Adults (End of Life) Bill explicitly excludes VSED as a way to qualify for MAID. In Section 2 (of 59) the Bill provides: Where— (a) a person does not eat or drink, or limits their eating or drinking, either voluntarily or because of a mental disorder, and their not eating or drinking, or limited eating or drinking, causes them to have an illness or disease, the person is not regarded for the purposes of this Act as terminally ill by virtue of the illness or disease. That this language had to be specifically included implies that VSED  otherwise legitimately makes someone terminally ill. In other word, VSED is a bridge to MAID (as in Oregon, New Mexico, and other jurisdictions) unless explicitly excluded. MP Lauren Edwards
000
Thaddeus Mason Pope @thaddeuspope.bsky.social · 21/07/2026
dlvr.it
Death, Dying and Disposal Conference 2027
Thee 18th Death, Dying and Disposal Conference (DDD2027) will take place at the University of Antwerp, Belgium, September 2027. The conference theme will be Death Care.
000
Thaddeus Mason Pope @thaddeuspope.bsky.social · 20/07/2026
dlvr.it
DNR Consent Influenced by Selective Phrasing
Even subtle differences in clinician phrasing meaningfully shape people's attitudes toward DNR.  A new study shows that selective phrasing functions as a form of nudging. The researchers also examine the ethical boundaries of linguistic selectivity in medical communication.
000
Thaddeus Mason Pope @thaddeuspope.bsky.social · 20/07/2026
dlvr.it
Dead Donor Rule - New Law Prevents Violations
The dead donor rule has been a fixture of organ transplantation for sixty years. But in light of frequent intentional and accidental breaches, some regulators have strengthened protections to mitigate DDR violations.  Notable among these is Kentucky H.B. 510, signed in April. Because the law is now effective, it has been receiving renewed attention. The Kentucky statute requires that "during any organ donation recovery, preservation, or procurement activity for a DCD or DBD, a pause in procedure shall be initiated if any [clinician or family member] reports on any of the following: * Observed or suspected change in neurological status * Observed or suspected indication of life * Uncertainty regarding the accuracy or completeness of neurological status or death declaration assessments" Triggering "indications of life" include but are not limited to: * Spontaneous movement * Vocalization or attempts to vocalize * Purposeful or reflexive responses to stimuli * Observed respiratory effort by a patient-initiated attempt at breath * Changes in heart rate or blood pressure inconsistent with a death declaration * Any neurological or physiological sign suggesting pain perception or neurological activity Reports of any of these require "immediate suspension of any organ donation recovery, preservation, or procurement activity."  
000
Thaddeus Mason Pope @thaddeuspope.bsky.social · 20/07/2026
dlvr.it
VSED - New Book "As She Chose"
More than a dozen authors have published books about their  family member's using VSED to hasten death. The latest by Oliver Christen is As She Chose: A Memoir about his 86-year-old mother. He has been discussing the book in radio and podcast interviews. 
000
Thaddeus Mason Pope @thaddeuspope.bsky.social · 20/07/2026
dlvr.it
Reducing Variability in Brain Death Policies & Practices - Interhospital Collaboration
Nearly 20 years ago, I defended multi-institutional ethics committees. So, I was pleased to see this report in Hospital Pediatrics about collaboration among five children's hospitals in southeast Florida.  Through the South Florida Pediatric Bioethics Consortium (SFPBEC), they have reduced variability in policies regarding brain death, potentially inappropriate treatment, and other clinical ethics issues.
000
Thaddeus Mason Pope @thaddeuspope.bsky.social · 20/07/2026
dlvr.it
Death, Dying and Disposal Conference 2027
Thee 18th Death, Dying and Disposal Conference (DDD2027) will take place at the University of Antwerp, Belgium, September 2027. The conference theme will be Death Care.
000
Thaddeus Mason Pope @thaddeuspope.bsky.social · 19/07/2026
dlvr.it
Midwestern Medical Humanities Conference
The 16th Annual Midwestern Medical Humanities Conference will be on Friday, October 2, 2026. The theme of this year’s meeting is Medical Technologies. Abstracts are accepted until August 1, 2026. 
000
Thaddeus Mason Pope @thaddeuspope.bsky.social · 19/07/2026
dlvr.it
Dead Donor Rule - New Law Prevents Violations
The dead donor rule has been a fixture of organ transplantation for sixty years. But in light of frequent intentional and accidental breaches, some regulators have strengthened protections to mitigate DDR violations.  Notable among these is Kentucky H.B. 510, signed in April. Because the law is now effective, it has been receiving renewed attention. The Kentucky statute requires that "during any organ donation recovery, preservation, or procurement activity for a DCD or DBD, a pause in procedure shall be initiated if any [clinician or family member] reports on any of the following: * Observed or suspected change in neurological status * Observed or suspected indication of life * Uncertainty regarding the accuracy or completeness of neurological status or death declaration assessments" Triggering "indications of life" include but are not limited to: * Spontaneous movement * Vocalization or attempts to vocalize * Purposeful or reflexive responses to stimuli * Observed respiratory effort by a patient-initiated attempt at breath * Changes in heart rate or blood pressure inconsistent with a death declaration * Any neurological or physiological sign suggesting pain perception or neurological activity Reports of any of these require "immediate suspension of any organ donation recovery, preservation, or procurement activity."  
000
Thaddeus Mason Pope @thaddeuspope.bsky.social · 19/07/2026
dlvr.it
Minimal Comfort Feeding in Advanced Dementia: Attitudes of Hospice and Palliative Care Professional
Here is a Share Link for free access to our recent article "Minimal Comfort Feeding in Advanced Dementia: Attitudes of Hospice and Palliative Care Professional" in the Journal of Pain & Symptom Management.   Context. Minimal Comfort Feeding (MCF) is a new approach to providing nutrition and hydration to persons with advanced dementia who have previously indicated (or whose surrogate believes) they would not want to live with advanced dementia. The acceptability of MCF has not been studied. Objectives. To assess perceptions of hospice and palliative care (HPC) professionals toward MCF. Methods. This cross-sectional exploratory survey study of a convenience sample was conducted at a national conference of HPC professionals in February 2025. During a presentation on MCF’s definition and ethical basis, attendees engaged in audience response polling and an optional electronic survey. Descriptive results are presented. Results. Fifty-one people attended the presentation. Forty-five attendees (88%) participated in audience polling, and 22 (43%) participated in both polling and the survey. The mean age of survey respondents was 50 (standard deviation 9.58),19 (86%) identified as White, and 18 (82%) identified as women. Thirty-five of 42 respondents (83%) agreed or strongly agreed that MCF is an acceptable option for persons with advanced dementia (PWAD), and 93% (39/42) agreed or strongly agreed they would be comfortable discussing MCF with persons with early dementia or who are at risk for dementia as a potential future option. Sixty-nine percent (29/42) anticipated MCF would be somewhat or completely acceptable to families of PWAD, but respondents were divided regarding the ease of implementing MCF in clinical practice. Conclusion. While MCF was highly acceptable in this study, the sample size was small and the risk of bias was high. Further research is needed. 
000
Thaddeus Mason Pope @thaddeuspope.bsky.social · 19/07/2026
dlvr.it
Understanding VSED (webinar)
Could you choose to stop eating and drinking at the end of life? For many people, the answer is yes—but few understand how Voluntary Stopping Eating and Drinking (VSED) works, when it is appropriate, or how it can be made as comfortable as possible. Join the Hemlock Society of San Diego for a thoughtful discussion featuring three unique perspectives. Guest Speakers:   * Laura Carroll shares her story of assisting her 86-year-old father's VSED end-of-life choice. With support of a doctor, hospice, and concierge nursing care he was able to end his life on his own terms. * Dr. Brian Graham, Medical Director of Topkare Hospice * Nicole Soares, founder of EcoLove Transitions, who works with Dr. Graham to guide patients and families through the VSED process. They'll explain the medical, practical, and emotional support that can help ensure a peaceful and dignified end-of-life experience. Whether you're planning ahead for yourself, supporting a loved one, or simply want to understand all of the legal end-of-life options available, this program will provide practical information, compassionate guidance, and an opportunity to ask questions.
000
Thaddeus Mason Pope @thaddeuspope.bsky.social · 19/07/2026
dlvr.it
ASBH-St. Jude Bioethics Tournament 2026
ASBH has announced a new Bioethics Tournament at the 2026 Annual Conference, in partnership with St. Jude Children's Research Hospital. This tournament will feature two teams in a debate style format on Friday, October 16, 4:00–5:15 PM ET.    The aim of the event is to bring together ethics professionals, trainees, and students with diverse interests and backgrounds in friendly competition. ASBH strongly encourages participation across the career spectrum from students, trainees, early career, and late career professionals.  ASBH is currently recruiting teams, case writers, and judges. Teams will have the opportunity to highlight their argumentation and speaking skills; case writers will have the opportunity to contribute fresh ideas for public engagement, and judges will have the opportunity to foster responsive and critical thinking while moderating a session.  Teams: ASBH is recruiting two teams. Teams may consist of 3-5 members and must include at least one student or trainee. The interest form includes a statement of commitment and space to include team structure. ASBH is accepting applications for entire teams and for individuals who wish to be placed on a team. If you are applying on behalf of a team, please include the credentials, role, and institution for all team members.  Case Writers: ASBH uis recruiting up to 4 case writers to write a one-page case and questions to be used in competition. Teams will receive cases in advance and use them to prepare their arguments for use in the tournament. The interest form includes a statement of commitment and a summary of your proposed case, including background and questions for team consideration.  Judges: ASBH is recruiting up to 3 judges to evaluate the session. As part of the application, judges will be asked to include relevant experience in ethics or in participation of similar events. 
010
Thaddeus Mason Pope @thaddeuspope.bsky.social · 19/07/2026
dlvr.it
California Hospital Lawsuit after Using NBT/PIT Policy
In June 2025, 39-year-old Jessica Elizabeth Quijano suffered an anoxic brain injury at Providence Mission Hospital in Mission Viejo, California. On June 23, 2025, at the specific request of Quijano's attending clinician, "the Ethics Committee recommended activation of the non-beneficial treatment treatment policy and placed a DNR (Do Not Resuscitate) on JESSICA’s chart." Her husband objected but "was given 5 days to agree to turning off life support" or Quijano's  "treating doctors would disconnect the ventilator over" his objection. While Quijano was ultimately transferred to another hospital, the family is pursuing a medical malpractice action in Orange County Superior Court. 
000
Thaddeus Mason Pope @thaddeuspope.bsky.social · 19/07/2026
dlvr.it
Reducing Variability in Brain Death Policies & Practices - Interhospital Collaboration
Nearly 20 years ago, I defended multi-institutional ethics committees. So, I was pleased to see this report in Hospital Pediatrics about collaboration among five children's hospitals in southeast Florida.  Through the South Florida Pediatric Bioethics Consortium (SFPBEC), they have reduced variability in policies regarding brain death, potentially inappropriate treatment, and other clinical ethics issues.
000
Thaddeus Mason Pope @thaddeuspope.bsky.social · 19/07/2026
dlvr.it
France Authorizes Assisted Dying
Today, France enacted a law authorizing assisted dying (loi relative au droit à l'aide à mourir).  Like most Australian states, the medication must be self-administered. But clinician administration is permitted when the patient cannot self-administer. France joins nearly 20 other countries:   * Australia (all states and territories but NT) * Austria * Belgium * Canada * Colombia  * Cuba * Ecuador * Estonia * Italy * Germany * Luxembourg * Netherlands * New Zealand * Portugal * Spain * Switzerland * United States (14 states)  
000
Thaddeus Mason Pope @thaddeuspope.bsky.social · 18/07/2026
dlvr.it
Minimal Comfort Feeding in Advanced Dementia: Attitudes of Hospice and Palliative Care Professional
Here is a Share Link for free access to our recent article "Minimal Comfort Feeding in Advanced Dementia: Attitudes of Hospice and Palliative Care Professional" in the Journal of Pain & Symptom Management.   Context. Minimal Comfort Feeding (MCF) is a new approach to providing nutrition and hydration to persons with advanced dementia who have previously indicated (or whose surrogate believes) they would not want to live with advanced dementia. The acceptability of MCF has not been studied. Objectives. To assess perceptions of hospice and palliative care (HPC) professionals toward MCF. Methods. This cross-sectional exploratory survey study of a convenience sample was conducted at a national conference of HPC professionals in February 2025. During a presentation on MCF’s definition and ethical basis, attendees engaged in audience response polling and an optional electronic survey. Descriptive results are presented. Results. Fifty-one people attended the presentation. Forty-five attendees (88%) participated in audience polling, and 22 (43%) participated in both polling and the survey. The mean age of survey respondents was 50 (standard deviation 9.58),19 (86%) identified as White, and 18 (82%) identified as women. Thirty-five of 42 respondents (83%) agreed or strongly agreed that MCF is an acceptable option for persons with advanced dementia (PWAD), and 93% (39/42) agreed or strongly agreed they would be comfortable discussing MCF with persons with early dementia or who are at risk for dementia as a potential future option. Sixty-nine percent (29/42) anticipated MCF would be somewhat or completely acceptable to families of PWAD, but respondents were divided regarding the ease of implementing MCF in clinical practice. Conclusion. While MCF was highly acceptable in this study, the sample size was small and the risk of bias was high. Further research is needed. 
010
Thaddeus Mason Pope @thaddeuspope.bsky.social · 18/07/2026
dlvr.it
Texas Republicans Oppose Brain Death & TADA
Last month, the Texas Republicans voted on legislative agenda items, including on "life-affirming patient protection." This is a material expansion of opposition to dispute resolution of brain death and medical futility disputes. Here is the full text of proposal 163:   We call for the Texas Legislature to secure due process and the rights of vulnerable Texas patients by continuing to reform Chapter 166 of the Health and Safety Code (Texas Advance Directives Act) by: a) Repealing the unethical, unconstitutional, unprecedented, and anti-life 25-Day Rule in Section 166.046, Health and Safety Code, and replacing it with a truly life-affirming law that requires physicians to adhere to a patient’s or surrogate’s medical decision about life-sustaining treatment, and that provides for physicians who disagree with the patient’s decision to transfer the patient to another physician or facility that will honor the decision to continue life-sustaining treatment. b) Improving language that protects Texas patients with disabilities to clarify and strengthen that disability should not be a considered factor. c) Guaranteeing judicial review, ensuring the ability to appeal a hospital committee’s decision and provide impartial legal recourse over life and death medical decisions. d) Protecting patients' rights to opt out of the dangerous apnea test to declare brain death, receive an independent second opinion and to have their beliefs about brain death to be respected.
001
Thaddeus Mason Pope @thaddeuspope.bsky.social · 18/07/2026
dlvr.it
VSED - New Book "As She Chose"
More than a dozen authors have published books about their  family member's using VSED to hasten death. The latest by Oliver Christen is As She Chose: A Memoir about his 86-year-old mother. He has been discussing the book in radio and podcast interviews. 
000
Thaddeus Mason Pope @thaddeuspope.bsky.social · 18/07/2026
dlvr.it
California Hospital Lawsuit after Using NBT/PIT Policy
In June 2025, 39-year-old Jessica Elizabeth Quijano suffered an anoxic brain injury at Providence Mission Hospital in Mission Viejo, California. On June 23, 2025, at the specific request of Quijano's attending clinician, "the Ethics Committee recommended activation of the non-beneficial treatment treatment policy and placed a DNR (Do Not Resuscitate) on JESSICA’s chart." Her husband objected but "was given 5 days to agree to turning off life support" or Quijano's  "treating doctors would disconnect the ventilator over" his objection. While Quijano was ultimately transferred to another hospital, the family is pursuing a medical malpractice action in Orange County Superior Court. 
000
Thaddeus Mason Pope @thaddeuspope.bsky.social · 17/07/2026
dlvr.it
Midwestern Medical Humanities Conference
The 16th Annual Midwestern Medical Humanities Conference will be on Friday, October 2, 2026. The theme of this year’s meeting is Medical Technologies. Abstracts are accepted until August 1, 2026. 
000
Thaddeus Mason Pope @thaddeuspope.bsky.social · 17/07/2026
dlvr.it
European Union Petition to Recognize Assisted Dying as Fundamental Right
Consider signing this petition to have the EU recognize assisted dying as a fundamental right. The Petition seeks four measures to make a dignified death a right across the Union — not a lottery of geography. * Include the right to voluntary assisted dying in the Charter of Fundamental Rights of the European Union. * EU legislation to enforce “the individual’s right to decide by what means and at what point their life will end, provided this person is capable of freely reaching a decision on this question and acting in consequence” — which the European Court of Human Rights considers one of the aspects of the right to respect for private life. Proper professional assistance for end-of-life decisions must be provided across the EU. * Mutual recognition of living-will declarations and advance directives within the EU, for arrangements compatible with the law of the member state where the person is at the moment of need. A secure EU database will connect national living-will depositories so they can be reached when needed — in full compliance with the fundamental right to privacy. * Convene a European Citizens’ Assembly, chosen by sortition, to debate and propose European measures on the right to die in a dignified way.
000
Thaddeus Mason Pope @thaddeuspope.bsky.social · 17/07/2026
dlvr.it
VSED - New Book "As She Chose"
More than a dozen authors have published books about their  family member's using VSED to hasten death. The latest by Oliver Christen is As She Chose: A Memoir about his 86-year-old mother. He has been discussing the book in radio and podcast interviews. 
000
Thaddeus Mason Pope @thaddeuspope.bsky.social · 17/07/2026
dlvr.it
Understanding VSED (webinar)
Could you choose to stop eating and drinking at the end of life? For many people, the answer is yes—but few understand how Voluntary Stopping Eating and Drinking (VSED) works, when it is appropriate, or how it can be made as comfortable as possible. Join the Hemlock Society of San Diego for a thoughtful discussion featuring three unique perspectives. Guest Speakers:   * Laura Carroll shares her story of assisting her 86-year-old father's VSED end-of-life choice. With support of a doctor, hospice, and concierge nursing care he was able to end his life on his own terms. * Dr. Brian Graham, Medical Director of Topkare Hospice * Nicole Soares, founder of EcoLove Transitions, who works with Dr. Graham to guide patients and families through the VSED process. They'll explain the medical, practical, and emotional support that can help ensure a peaceful and dignified end-of-life experience. Whether you're planning ahead for yourself, supporting a loved one, or simply want to understand all of the legal end-of-life options available, this program will provide practical information, compassionate guidance, and an opportunity to ask questions.
010
Thaddeus Mason Pope @thaddeuspope.bsky.social · 17/07/2026
dlvr.it
ASBH-St. Jude Bioethics Tournament 2026
ASBH has announced a new Bioethics Tournament at the 2026 Annual Conference, in partnership with St. Jude Children's Research Hospital. This tournament will feature two teams in a debate style format on Friday, October 16, 4:00–5:15 PM ET.    The aim of the event is to bring together ethics professionals, trainees, and students with diverse interests and backgrounds in friendly competition. ASBH strongly encourages participation across the career spectrum from students, trainees, early career, and late career professionals.  ASBH is currently recruiting teams, case writers, and judges. Teams will have the opportunity to highlight their argumentation and speaking skills; case writers will have the opportunity to contribute fresh ideas for public engagement, and judges will have the opportunity to foster responsive and critical thinking while moderating a session.  Teams: ASBH is recruiting two teams. Teams may consist of 3-5 members and must include at least one student or trainee. The interest form includes a statement of commitment and space to include team structure. ASBH is accepting applications for entire teams and for individuals who wish to be placed on a team. If you are applying on behalf of a team, please include the credentials, role, and institution for all team members.  Case Writers: ASBH uis recruiting up to 4 case writers to write a one-page case and questions to be used in competition. Teams will receive cases in advance and use them to prepare their arguments for use in the tournament. The interest form includes a statement of commitment and a summary of your proposed case, including background and questions for team consideration.  Judges: ASBH is recruiting up to 3 judges to evaluate the session. As part of the application, judges will be asked to include relevant experience in ethics or in participation of similar events. 
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Thaddeus Mason Pope @thaddeuspope.bsky.social · 17/07/2026
dlvr.it
Baby Liam - Medical Futility Conflict in Australia
On June 17, 2026, Sydney Children's Hospital informed the parents of 7-month-old Baby Liam that it would discontinue ventilation and all life-sustaining therapies on June 22, 2026. That has been delayed because of court action. As in several high-profile UK cases involving babies with rare neuro-muscular atrophy, the NSW hospital determine the burdens of treatment outweigh the benefits. Note the 5 days of notice the hospital offered to permit the parents to seek transfer or initiate court action. 
010
Thaddeus Mason Pope @thaddeuspope.bsky.social · 17/07/2026
dlvr.it
France Authorizes Assisted Dying
Today, France enacted a law authorizing assisted dying (loi relative au droit à l'aide à mourir).  Like most Australian states, the medication must be self-administered. But clinician administration is permitted when the patient cannot self-administer. France joins nearly 20 other countries:   * Australia (all states and territories but NT) * Austria * Belgium * Canada * Colombia  * Cuba * Ecuador * Estonia * Italy * Germany * Luxembourg * Netherlands * New Zealand * Portugal * Spain * Switzerland * United States (14 states)  
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Thaddeus Mason Pope @thaddeuspope.bsky.social · 17/07/2026
dlvr.it
Illegal Resuscitation of Patients - More Penalties
This video clip from Chicago Med Season 1 Episode 9 shows Dr. Halstead's career in jeopardy after he revives a terminally ill patient, despite a do not resuscitate order. My recent article in the University of Illinois Chicago Law Review collects dozens of recent lawsuits, judgments, and settlements when clinicians fail to follow advance directives.
000
Thaddeus Mason Pope @thaddeuspope.bsky.social · 16/07/2026
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Midwestern Medical Humanities Conference
The 16th Annual Midwestern Medical Humanities Conference will be on Friday, October 2, 2026. The theme of this year’s meeting is Medical Technologies. Abstracts are accepted until August 1, 2026. 
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Thaddeus Mason Pope @thaddeuspope.bsky.social · 16/07/2026
dlvr.it
Texas Republicans Oppose Brain Death & TADA
Last month, the Texas Republicans voted on legislative agenda items, including on "life-affirming patient protection." This is a material expansion of opposition to dispute resolution of brain death and medical futility disputes. Here is the full text of proposal 163:   We call for the Texas Legislature to secure due process and the rights of vulnerable Texas patients by continuing to reform Chapter 166 of the Health and Safety Code (Texas Advance Directives Act) by: a) Repealing the unethical, unconstitutional, unprecedented, and anti-life 25-Day Rule in Section 166.046, Health and Safety Code, and replacing it with a truly life-affirming law that requires physicians to adhere to a patient’s or surrogate’s medical decision about life-sustaining treatment, and that provides for physicians who disagree with the patient’s decision to transfer the patient to another physician or facility that will honor the decision to continue life-sustaining treatment. b) Improving language that protects Texas patients with disabilities to clarify and strengthen that disability should not be a considered factor. c) Guaranteeing judicial review, ensuring the ability to appeal a hospital committee’s decision and provide impartial legal recourse over life and death medical decisions. d) Protecting patients' rights to opt out of the dangerous apnea test to declare brain death, receive an independent second opinion and to have their beliefs about brain death to be respected.
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Thaddeus Mason Pope @thaddeuspope.bsky.social · 16/07/2026
dlvr.it
Understanding VSED (webinar)
Could you choose to stop eating and drinking at the end of life? For many people, the answer is yes—but few understand how Voluntary Stopping Eating and Drinking (VSED) works, when it is appropriate, or how it can be made as comfortable as possible. Join the Hemlock Society of San Diego for a thoughtful discussion featuring three unique perspectives. Guest Speakers:   * Laura Carroll shares her story of assisting her 86-year-old father's VSED end-of-life choice. With support of a doctor, hospice, and concierge nursing care he was able to end his life on his own terms. * Dr. Brian Graham, Medical Director of Topkare Hospice * Nicole Soares, founder of EcoLove Transitions, who works with Dr. Graham to guide patients and families through the VSED process. They'll explain the medical, practical, and emotional support that can help ensure a peaceful and dignified end-of-life experience. Whether you're planning ahead for yourself, supporting a loved one, or simply want to understand all of the legal end-of-life options available, this program will provide practical information, compassionate guidance, and an opportunity to ask questions.
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Thaddeus Mason Pope @thaddeuspope.bsky.social · 16/07/2026
dlvr.it
ASBH-St. Jude Bioethics Tournament 2026
ASBH has announced a new Bioethics Tournament at the 2026 Annual Conference, in partnership with St. Jude Children's Research Hospital. This tournament will feature two teams in a debate style format on Friday, October 16, 4:00–5:15 PM ET.    The aim of the event is to bring together ethics professionals, trainees, and students with diverse interests and backgrounds in friendly competition. ASBH strongly encourages participation across the career spectrum from students, trainees, early career, and late career professionals.  ASBH is currently recruiting teams, case writers, and judges. Teams will have the opportunity to highlight their argumentation and speaking skills; case writers will have the opportunity to contribute fresh ideas for public engagement, and judges will have the opportunity to foster responsive and critical thinking while moderating a session.  Teams: ASBH is recruiting two teams. Teams may consist of 3-5 members and must include at least one student or trainee. The interest form includes a statement of commitment and space to include team structure. ASBH is accepting applications for entire teams and for individuals who wish to be placed on a team. If you are applying on behalf of a team, please include the credentials, role, and institution for all team members.  Case Writers: ASBH uis recruiting up to 4 case writers to write a one-page case and questions to be used in competition. Teams will receive cases in advance and use them to prepare their arguments for use in the tournament. The interest form includes a statement of commitment and a summary of your proposed case, including background and questions for team consideration.  Judges: ASBH is recruiting up to 3 judges to evaluate the session. As part of the application, judges will be asked to include relevant experience in ethics or in participation of similar events. 
000
Thaddeus Mason Pope @thaddeuspope.bsky.social · 16/07/2026
dlvr.it
Must Intractable NBT/PIT Conflicts Go to Court - UK Supreme Court to Decide
The UK Supreme Court has granted permission to appeal in Townsend v. Epsom and St Helier University Hospitals NHS Trust. I blogged about this case when it was before the Court of Appeal. That court clarified that all decisions about incapacitated adults must be made in the patient’s best interests. If all parties agree that it is not in the patient’s best interests to continue life-sustaining treatment, then LST can be withdrawn without application to court.  But if there is disagreement between any of the parties that cannot be resolved by discussion and/or mediation, then the matter should be referred to the Court of Protection. The Court of Appeal held there is no carve out for “clinical decisions.”   In short, the Supreme Court will review whether hospitals can pre-empt court proceedings by unilaterally withholding or withdrawing treatment on “clinical” grounds. It will determine whether decisions to withdraw treatment must be always a best interests decision. 
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Thaddeus Mason Pope @thaddeuspope.bsky.social · 16/07/2026
dlvr.it
France Authorizes Assisted Dying
Today, France enacted a law authorizing assisted dying (loi relative au droit à l'aide à mourir).  Like most Australian states, the medication must be self-administered. But clinician administration is permitted when the patient cannot self-administer. France joins nearly 20 other countries:   * Australia (all states and territories but NT) * Austria * Belgium * Canada * Colombia  * Cuba * Ecuador * Estonia * Italy * Germany * Luxembourg * Netherlands * New Zealand * Portugal * Spain * Switzerland * United States (14 states)  
000
Thaddeus Mason Pope @thaddeuspope.bsky.social · 15/07/2026
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European Union Petition to Recognize Assisted Dying as Fundamental Right
Consider signing this petition to have the EU recognize assisted dying as a fundamental right. The Petition seeks four measures to make a dignified death a right across the Union — not a lottery of geography. * Include the right to voluntary assisted dying in the Charter of Fundamental Rights of the European Union. * EU legislation to enforce “the individual’s right to decide by what means and at what point their life will end, provided this person is capable of freely reaching a decision on this question and acting in consequence” — which the European Court of Human Rights considers one of the aspects of the right to respect for private life. Proper professional assistance for end-of-life decisions must be provided across the EU. * Mutual recognition of living-will declarations and advance directives within the EU, for arrangements compatible with the law of the member state where the person is at the moment of need. A secure EU database will connect national living-will depositories so they can be reached when needed — in full compliance with the fundamental right to privacy. * Convene a European Citizens’ Assembly, chosen by sortition, to debate and propose European measures on the right to die in a dignified way.
000
Thaddeus Mason Pope @thaddeuspope.bsky.social · 15/07/2026
dlvr.it
Texas Republicans Oppose Brain Death & TADA
Last month, the Texas Republicans voted on legislative agenda items, including on "life-affirming patient protection." This is a material expansion of opposition to dispute resolution of brain death and medical futility disputes. Here is the full text of proposal 163:   We call for the Texas Legislature to secure due process and the rights of vulnerable Texas patients by continuing to reform Chapter 166 of the Health and Safety Code (Texas Advance Directives Act) by: a) Repealing the unethical, unconstitutional, unprecedented, and anti-life 25-Day Rule in Section 166.046, Health and Safety Code, and replacing it with a truly life-affirming law that requires physicians to adhere to a patient’s or surrogate’s medical decision about life-sustaining treatment, and that provides for physicians who disagree with the patient’s decision to transfer the patient to another physician or facility that will honor the decision to continue life-sustaining treatment. b) Improving language that protects Texas patients with disabilities to clarify and strengthen that disability should not be a considered factor. c) Guaranteeing judicial review, ensuring the ability to appeal a hospital committee’s decision and provide impartial legal recourse over life and death medical decisions. d) Protecting patients' rights to opt out of the dangerous apnea test to declare brain death, receive an independent second opinion and to have their beliefs about brain death to be respected.
000
Thaddeus Mason Pope @thaddeuspope.bsky.social · 15/07/2026
dlvr.it
Decision-Making Approaches Used to Limit Potentially Nonbeneficial Life-Prolonging Interventions
This publication in JAMA is one of the most important articles on NBT/PIT conflicts in the ICU. And authors Liz Dzeng, Jason Batten, and Teva Brender were recently on the GeriPal podcast to discuss it.   They distinguish six separate approaches:1. Providing an informed choice regarding interventions2. Making a recommendation to limit interventions3. Stating a plan to limit interventions4. Explicitly not offering interventions5. Silently withholding interventions6. Initiating an institutional process to limit interventions Approaches 4 and 5 seems ethically suspect unless they are limited to what the Five Society Statement identifies as futile, proscribed, or discretionary treatment. In any case, these seem limited to withholding decisions because they would be difficult to deploy in withdrawal situations.
000
Thaddeus Mason Pope @thaddeuspope.bsky.social · 15/07/2026
dlvr.it
Baby Liam - Medical Futility Conflict in Australia
On June 17, 2026, Sydney Children's Hospital informed the parents of 7-month-old Baby Liam that it would discontinue ventilation and all life-sustaining therapies on June 22, 2026. That has been delayed because of court action. As in several high-profile UK cases involving babies with rare neuro-muscular atrophy, the NSW hospital determine the burdens of treatment outweigh the benefits. Note the 5 days of notice the hospital offered to permit the parents to seek transfer or initiate court action. 
000
Thaddeus Mason Pope @thaddeuspope.bsky.social · 15/07/2026
dlvr.it
Illegal Resuscitation of Patients - More Penalties
This video clip from Chicago Med Season 1 Episode 9 shows Dr. Halstead's career in jeopardy after he revives a terminally ill patient, despite a do not resuscitate order. My recent article in the University of Illinois Chicago Law Review collects dozens of recent lawsuits, judgments, and settlements when clinicians fail to follow advance directives.
000