iiinova — where your digital self keeps evolving

Q6: How has living with lupus shaped the way you move through the world today? Use #LupusTaughtMe to shout out the lessons, shifts, and strength you've gained along the way. #LupusChat

113

Reposted by Carly by Nature

Q6: Cómo ha influido vivir con lupus en la forma que tu vives hoy? Usa #LupusMeEnseño para destacar las lecciones, los cambios y la fortaleza que has adquirido a lo largo del camino. #LupusChat

Reposted by Carly by Nature

Stay tuned, our last question is up next! #LupusChat

Reposted by Carly by Nature

Estén atentos, nuestra última pregunta es la siguiente! #LupusChat

Reposted by Carly by Nature

A5: El lupus me enseñó que las amistades reales no se desvanecen cuando las cosas se ponen difíciles. Los verdaderos se quedan, hacen preguntas y hacen espacio para mis límites. He aprendido que perder a personas que no respetan mi realidad no es realmente una pérdida. #LupusChat

Reposted by Carly by Nature

A5: Lupus taught me that real friendships don’t fade when things get hard. The true ones stuck around, asked questions, and made space for my limits. And as for the “thank u, next” kind, I’ve learned that losing people who don’t respect my reality isn’t really a loss. #LupusChat

032

Reposted by Carly by Nature

Carly by Nature @syncenerdcarly.bsky.social · 25/05/2025

A5. I learned to discern who I can trust to understand how complicated my life is but still want to be here anyway. #LupusChat

023

A5: Aprendí que no todos tienen la capacidad de ser el amigo que necesitas. Es importante tener diferentes personas para diferentes cosas. Y está bien eliminar a personas de tu vida. #LupusChat

112

Carly by Nature @syncenerdcarly.bsky.social · 25/05/2025

A5: I learned that not everyone has the capacity to be the friend you need. It’s important to have different people for different things. And it’s ok to remove people from your life. #LupusChat

022

Reposted by Carly by Nature

Q5: What did lupus teach you about friendships, the good, the tough, or the “thank u, next” kind? #LupusChat

123

Reposted by Carly by Nature

Q5: Qué te enseñó el lupus sobre las amistades: las buenas, las fuertes o las que te dan las gracias, tipos? #LupusChat

Reposted by Carly by Nature

A4: El lupus me ayudó a descubrir mi tenacidad: Poner un pie delante del otro, incluso cuando cada paso se siente pesado. Me ha demostrado que la fuerza no se trata de empujar a través de todo, sino de presentarme por mí mismo día tras día, incluso en las formas más pequeñas. #LupusChat

022

Reposted by Carly by Nature

Gracias por compartir estos datos inspiradores sobre ti. En la pregunta 5, hablaremos sobre los cambios en nuestras relaciones y lo que hemos aprendido. #LupusChat

Reposted by Carly by Nature

A4: El lupus me obligó a reducir la velocidad y realmente escuchar a mi cuerpo, lo cual no fue fácil al principio. Pero a través de esa lucha, encontré fuerza para establecer límites, hablar por mí mismo, y no disculparme por poner mi salud primero. #LupusChat

Reposted by Carly by Nature

Thank you for sharing these empowering details about yourself. In Question 5 we’ll discuss changes in our relationships and what we’ve learned. #LupusChat

021

Reposted by Carly by Nature

A4: Lupus helped me discover my tenacity—to keep putting one foot in front of the other, even when every step feels heavy or painful. It’s shown me that strength isn’t about pushing through everything, but about showing up for myself day after day, even in the smallest ways. #LupusChat

042

Reposted by Carly by Nature

A4: Lupus forced me to slow down and really listen to my body, which wasn’t easy at first. But through that struggle, I found strength in setting boundaries, speaking up for myself, and not apologizing for putting my health first. #LupusChat

042

Reposted by Carly by Nature

A4. Having Lupus and having to slow life down also gave me space to realize the creative side I have and engage with it more. #LupusChat

023

Reposted by Carly by Nature

A4. Lupus taught me to shift my focus on societal expectations, and to not comparing other people's timelines to my own. #LupusChat

124

Reposted by Carly by Nature

Q4: What’s one way lupus has helped you discover a stronger, more self-empowered version of yourself, even if it came through struggle? #LupusChat

133

Reposted by Carly by Nature

Q4: De qué manera el lupus te ha ayudado a descubrir una versión más fuerte y empoderada de ti mismo, incluso tras muchas dificultades? #LupusChat

021

Reposted by Carly by Nature

Junto con los cambios en nuestra salud física, cambiamos y crecemos de otras maneras. Para la pregunta 4, exploremos cómo hemos cambiado mental, emocional y otros aspectos prácticos desde el diagnóstico. #LupusChat

021

Reposted by Carly by Nature

Along with changes to our physical health, we change and grow in other ways. For Question 4, let’s explore the mental, emotional, and other practical ways we’ve changed since diagnosis. #LupusChat

Reposted by Carly by Nature

A3: Puede parecer pequeño para otros, pero el lupus me enseñó el poder de la auto-preservación. He aprendido a priorizar mis necesidades, decir un “no” firme cuando es necesario, y alejarme de situaciones tóxicas, todas las cuales han marcado una diferencia real en el manejo de mi salud. #LupusChat

Reposted by Carly by Nature

A3: It might seem small to others, but lupus taught me the power of self-preservation. I’ve learned to prioritize my needs, say a firm “no” when needed, and walk away from toxic situations—all of which have made a real difference in managing my health. #LupusChat

Reposted by Carly by Nature

A3. When I slowly started getting better, I could celebrate small things like being able to walk one block (after I couldn't walk at all without help), or like not needing my mom’s help showering, or having the energy to hold down a part-time job. #LupusChat

Carly by Nature @syncenerdcarly.bsky.social · 25/05/2025

A3: #LupusMeEnseño la importancia de tomarme pequeños momentos de alegría y elegirme en momentos en los que normalmente elegiría a otros. Esfuérzate tanto por Carly como por los demás. #LupusChat

Carly by Nature @syncenerdcarly.bsky.social · 25/05/2025

A3: #LupusTaughtMe the importance of taking small pockets of joy for myself and choosing me in moments that I would ordinarily choose others. Go as hard for Carly as I would for others. #LupusChat

022

Reposted by Carly by Nature

A3. Lupus has helped me give bigger importance to baby steps and small gradual improvements. #LupusChat

Reposted by Carly by Nature

Q3: What has lupus taught you that some may consider minor, but still matters to you? #LupusChat

113

Reposted by Carly by Nature

Q3: Qué te ha enseñado el lupus que algunos podrían considerar insignificante, pero que aun así es importante para ti? #LupusChat

Reposted by Carly by Nature

As we go through our journey, some things begin to outweigh others in our lives. For Question 3, we’ll discuss any changes to how we set priorities. #LupusChat

Reposted by Carly by Nature

A medida que avanzamos en nuestra vida, algunas cosas empiezan a predominar sobre otras. En la pregunta 3, hablaremos sobre cualquier cambio en nuestra forma de establecer prioridades. #LupusChat

001

Reposted by Carly by Nature

Remember to add #LupusChat to each of your tweets & use A1, A2, etc to answer each question.

Reposted by Carly by Nature

Carly by Nature @syncenerdcarly.bsky.social · 25/05/2025

Recuerda añadir #LupusChat a cada uno de tus tweets y usa A1, A2, etc. para responder a cada pregunta.

001

A2: También estoy un poco hastiada y ahora veo la vida desde esa perspectiva, para bien o para mal. #LupusChat

Carly by Nature @syncenerdcarly.bsky.social · 25/05/2025

A2: Cuando me diagnosticaron por primera vez, nada cambió. Estaba tan sumida en la negación que no permití que ninguna perspectiva cambiara. Ahora entiendo que la vida y las metas no siempre son lineales. #LupusChat

Carly by Nature @syncenerdcarly.bsky.social · 25/05/2025

A2: When I was first diagnosed, nothing changed. I was so deep into denial I didn’t allow any views to change. Now, I understand life and goals aren’t always linear. I also am a bit jaded and I see life through that lens now, for better or worse. #LupusChat

Reposted by Carly by Nature

Q2: Cómo cambió tu perspectiva sobre la vida o sobre el lupus desde que te diagnosticaron hasta dónde estás ahora? Qué ha cambiado mentalmente, emocionalmente o de otra manera? #LupusChat

Reposted by Carly by Nature

Q2: How did your outlook on life or lupus shift from when you were first diagnosed to where you are now? What’s changed mentally, emotionally, or otherwise? #LupusChat

113

Reposted by Carly by Nature

Thank you for sharing your newly discovered hobbies with us! For Question 2, let’s examine our adjusted world view! #LupusChat

Reposted by Carly by Nature

Carly by Nature @syncenerdcarly.bsky.social · 25/05/2025

¡Gracias por compartir tus nuevos pasatiempos con nosotros! Para la pregunta 2, ¡examinemos nuestra nueva visión del mundo! #LupusChat

001

A1: Últimamente disfruto mucho fotografiando flores. Me gustaría hacerlo más a menudo, pero cuando empecé fue porque el lupus me obligaba a estar quieta y supongo que empecé a apreciar más la belleza que me rodeaba. #LupusChat

Carly by Nature @syncenerdcarly.bsky.social · 25/05/2025

A1: I really enjoy photographing flowers these days. I’d like to do it more often, but when I started it was because Lupus had forced me to be “still” and I suppose I started noticing the beauty around me a bit more. #LupusChat

Reposted by Carly by Nature

Hi Michelle, welcome to today's #LupusChat. So good to have you join us!

121

Reposted by Carly by Nature

A1: He estado probando nuevas actividades a lo largo de los años en una búsqueda para recoger nuevos hobbies como Pokémon! Hasta ahora he descubierto que realmente me gusta la acuarela y la pintura acrílica, así como la cerámica lanzadora de ruedas. #LupusChat

Michelle @elleonsound.bsky.social · 25/05/2025

Reposted by Carly by Nature

A1: many of my existing hobbies were not physical so 😅 more road trips rather than camping I suppose. #LupusChat

Reposted by Carly by Nature

A1. These are not “hobbies” and “passions” exactly, but my journey with lupus caused me to have the exact life detours that lead to me running into my friends and chosen family. And I love them more than anything. #LupusChat