iiinova — where your digital self keeps evolving

Sumaira 🤍 @sumairaflower.bsky.social · 30/03/2025

We don’t let our diagnoses stop us from doing what we love - DANCING! 💃🏽🕺🏼 Happy #NMOSD & #MOGAD awareness months

Sumaira 🤍 @sumairaflower.bsky.social · 16/02/2025

Reunited with my Saudi brothers & collaborators, @drsaljarallah.bsky.social and Dr. Ahmad AlMutlaq. Excited for all of what we will achieve in KSA & beyond! 🇸🇦🌍 #INIC25

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The Sumaira Foundation (TSF) @thesumairafdn.bsky.social · 29/01/2025

阖家平安，巳巳如意。蛇🐍年兴旺，幸福绵长！🧧 🇨🇳❣️#lunarnewyear #springfestival

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Sumaira 🤍 @sumairaflower.bsky.social · 29/01/2025

#NeuroSky / #MedSky - follow @neurotutto.bsky.social from Roma 🇮🇹! Dr. Raffaele Iorio is a neurologist with great expertise in autoimmune neurological diseases including #NMOSD, #MOGAD, #myastheniagravis and more. Welcome Raffaele! 🦋

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The Sumaira Foundation (TSF) @thesumairafdn.bsky.social · 22/01/2025

“Like many with illnesses, I mourned the life I knew, my abilities and my body. After years of struggle with #NMOSD and now in remission, I am dancing again—differently but miraculously. Never give up, believe in yourself—endless possibilities await.” - Sumaira #TSF_moveforNMOG

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The Sumaira Foundation (TSF) @thesumairafdn.bsky.social · 08/01/2025

🌎 How common is #MOGAD worldwide? This study in evaluated prior medical literature to determine how commonly MOGAD occurs and how widespread it is worldwide 🦄 For more research summaries, visit www.sumairafoundation.org/research-summaries

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The Sumaira Foundation (TSF) @thesumairafdn.bsky.social · 11/12/2024

TSF is pleased to welcome Dr. Eoin Flanagan from Mayo Clinic to join TSF’s international Medical Advisory Board. He has expertise in #AE, myelitis, #MS, #NMOSD, #MOGAD & paraneoplastic neurologic disorders. To learn more about Dr. Flanagan: www.sumairafoundation.org/welcome-dr-e... #NeuroSky

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Sumaira 🤍 @sumairaflower.bsky.social · 08/12/2024

#NeuroSky / #MedSky - please join me in welcoming 🇧🇪 @drbwillekens.bsky.social, neurologist and researcher passionate about #MS and CNS rare neuroimmunological disorders from the Antwerp University Hospital! Welcome to Bluesky, Barbie 🩷🦋

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Sumaira 🤍 @sumairaflower.bsky.social · 07/12/2024

Beautiful artwork from the children of TSF Italia (and Elia Sechi 😝) from our Patient Day in Verona! 🇮🇹🌺🖍️ #NMOSD #MOGAD

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Anastasia Zekeridou @anastasiaz.bsky.social · 07/12/2024

What a great day organized today in Verona by @saramariotto.bsky.social ! All about central and peripheral nervous system autoimmunity! Learned so much! eolocongressi.it/wp-content/u...

eolocongressi.it

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The Sumaira Foundation (TSF) @thesumairafdn.bsky.social · 07/12/2024

🇮🇹 🌺 Il 2° Giornata per pazienti dedicata a #NMOSD e #MOGAD a Verona di TSF Italia è in corso 🩷🧡💛

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The Sumaira Foundation (TSF) @thesumairafdn.bsky.social · 06/12/2024

T 💚 S 🤍 F ❤️

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Sumaira 🤍 @sumairaflower.bsky.social · 06/12/2024

What a gift to work with people you love 💗 congratulations @saramariotto.bsky.social on another successful meeting! 🧪 🇮🇹 🧬 🧫 #NeuroSky #NMOSD #MOGAD

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Sumaira 🤍 @sumairaflower.bsky.social · 06/12/2024

#NeuroSky / #MedSky follow @amykunchok.bsky.social; she has entered the chat! Dr. Kunchok is a neuroimmunologist at the Cleveland Clinic Mellen Center focusing on #NMOSD and #MOGAD. I also did my first CME with Amy 🤗 Welcome to Bluesky, Amy! 🦋

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The Sumaira Foundation (TSF) @thesumairafdn.bsky.social · 06/12/2024

We’re thrilled to be in📍 Verona, Italy 🇮🇹 for the Update on Neuroimmunological Disorders meeting organized by @saramariotto.bsky.social & Dr. Sergio Ferrrari! As expected, a packed auditorium for a great program with a fantastic lineup of international speakers 👏🏽 👏🏽 #NeuroSky

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The Sumaira Foundation (TSF) @thesumairafdn.bsky.social · 04/12/2024

Sumaira's 10-year journey living with #NMOSD is featured in @iheartradio.bsky.social's "Symptomatic: A Medical Mystery Podcast" newest episode - Case #24: Sumaira. Check it out: podcasts.apple.com/us/podcast/c... #NeuroSky #neuromyelitisoptica

podcasts.apple.com

Case #24: Sumaira

Podcast Episode · Symptomatic: A Medical Mystery Podcast · S3 E6 · 44m

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The Sumaira Foundation (TSF) @thesumairafdn.bsky.social · 28/11/2024

🏃🏿‍♀️ This #Thanksgiving, we're spotlighting Marion, #NMOSD patient, TSF Ambassador of Illinois, marathoner & believer. Read "One Diagnosis, Three Marathons, Infinite Strength" - Marion's testimonial about how she will NEVER let #NMO defeat her: sumairafoundation.org/one-diagnosi... #NeuroSky

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Sumaira 🤍 @sumairaflower.bsky.social · 25/11/2024

Leaving Paris feeling proud of @thesumairafdn.bsky.social France 🇫🇷 for organizing another impactful weekend for the #NMOSD / #MOGAD community. Grateful for TSF’s French team, MIRCEM & the doctors, ECTRIMS and our sponsors 🙏🏾 May we continue to listen & learn to improve health outcomes & QoL 🩷🧡💛

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Sumaira 🤍 @sumairaflower.bsky.social · 25/11/2024

#MedSky / #NeuroSky, follow @drsaljarallah.bsky.social ! 🇸🇦Dr. Aljarallah is a neuroimmunologist (trained at Hopkins) + an Assistant Professor at King Saud University in Riyadh in the Kingdom of Saudi Arabia focused on #NMOSD, #MOGAD, #AE, #MS & other rare neuroimmune conditions. مرحبا سلمان! 🙌🏽

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Sumaira 🤍 @sumairaflower.bsky.social · 25/11/2024

#MedSky / #NeuroSky, follow @antojm.bsky.social ! 🇫🇷Antony is the Head of Association Management (Congrex) & #ECTRIMS Executive Manager. ECTRIMS is the largest global annual meeting dedicated to #MS, #NMOSD, #MOGAD & other demyelinating conditions. See you in Barcelona 🇪🇸 September 24-26, 2025 🧠

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Sumaira 🤍 @sumairaflower.bsky.social · 25/11/2024

#MedSky / #NeuroSky, follow @saramariotto.bsky.social! 🇮🇹Dr. Sara Mariotto is an internationally-recognized neuroimmunologist + researcher, leading the most prominent research lab in Italy dedicated to diagnosing #NMOSD, #MOGAD, #AE & other rare neuroimmune disorders at the University of Verona 🧪 🧫 🥼

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Sumaira 🤍 @sumairaflower.bsky.social · 24/11/2024

#MedSky / #NeuroSky, follow @marignierro.bsky.social! 🇫🇷Prof. Marignier is a globally-recognized neuroimmunologist, specializing in #MOGAD & #NMOSD, and head of the French adult referral center for rare inflammatory diseases of the spinal cord & brain 🧠 Welcome to the bright (and right) side, Romain!

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The Sumaira Foundation (TSF) @thesumairafdn.bsky.social · 24/11/2024

🌺 Merci à tous ceux qui ont soutenu et participé au 2ème week-end des patients et aidants de la #NMOSD & de la #MOGAD à Paris. Ce fut un week-end magnifique, marquantet émouvant, d'apprentissage et de connexion. A l'année prochaine à Lyon !

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appsbymarcie.bsky.social @appsbymarcie.bsky.social · 23/11/2024

I’m so happy to find you on here! I’ve followed your story since my own diagnosis in January. ♥️

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Stacey L. Clardy @staceylclardy.bsky.social · 20/11/2024

Time to strike the label “Lupus Myelitis” … Forever ✅ What say you, #MedSky #RheumSky #NeuroSky? 🧠🎙️ Neurology Podcast: Dr. @esotirchos.bsky.social discusses the underlying etiologies of myelitis in patients with rheumatologic disease. Listen now: bit.ly/48VRPwC

bit.ly

Myelitis Associated With Rheumatologic Disease

Dr. Stacey Clardy talks with Dr. Elias Sotirchos about the underlying etiologies of myelitis in patients with rheumatologic disease. Read the related article in . Disclosures can be found at Neurology...

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The Sumaira Foundation (TSF) @thesumairafdn.bsky.social · 12/11/2024

It's great to be on #Bluesky. We're The Sumaira Foundation aka TSF🌺 dedicated to #NMOSD, #MOGAD and related conditions. We raise awareness, build community, support research/fellowships/publications and advocate on behalf of patients. Looking forward to illuminating our diseases with you all!

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Stacey L. Clardy @staceylclardy.bsky.social · 14/11/2024

Ever wonder how to set your home assistant (Alexa, Echo, etc) or car to automatically play the Neurology Podcast 🧠🎙️or the Neurology Minute Daily Briefing 🧠⏱️? Wonder no more 👇 Practical, Useful, Relevant - and what you learn may just save a patient’s life 🧪🩺💊❤️ youtu.be/sH8jmp0dt6M?...

youtu.be

AAN Podcasts - Using Voice Control - American Academy of Neurology

YouTube video by AANChannel

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Stacey L. Clardy @staceylclardy.bsky.social · 11/11/2024

We need the science-medicine-patient communicators/liaisons to complete the translational science circle - Essential! 🧬 💃🏻🕺🏼👩🏽‍🦼‍➡️👨‍🦼🏃🏽‍♀️‍➡️🪢

media.tenor.com

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ALT: a black and white drawing of two people pulling a rope with the words " tin cans might work better "

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Sumaira 🤍 @sumairaflower.bsky.social · 11/11/2024

Hi #MedSky / #NeuroSky! 👋🏾 My name is Sumaira and I have been living with #NMOSD / #neuromyelitisoptica for 10 years. I started The Sumaira Foundation (TSF) 2 months after my DX & really excited to connect and collaborate with while learning from experts around the world on this platform! 🌏 🌎 🌍

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Stacey L. Clardy @staceylclardy.bsky.social · 11/11/2024

#Medsky It must be official - Patient Advocate Extraordinaire @sumairaflower.bsky.social is here… Bring the Patients to this better place, Sumaira - Make it so! ❤️🧠💪 #Neurology #NMOSD #MOGAD

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