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Suja Somanadhan

@sujas.bsky.social

Associate Dean of Global Engagement| Associate Professor #UCDSNMHS #UCD # Dublin #Ireland #Researcher #Paediatric Nursing #Rare Diseases #PCOM #PREM #Child Health #Family Health

Posts Replies Media

Reposted by Suja Somanadhan

Health Research Charities Ireland @hrci.bsky.social · 30/05/2025

There's great momentum around patient registries right now! The FoRT report, Sustaining Patient Registries in Ireland, calls for a bold, Dept of Health-backed vision for their future. A vital roadmap for care, research & policy. Worth a read 👉 cfri.ie/wp-content/u... #HealthResearchMatters

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Suja Somanadhan @sujas.bsky.social · 23/04/2025

Assessing the supportive care needs of parents of children with rare diseases in Ireland -This descriptive quantitative study employed survey techniques to assess parental support needs @rarediseasectn.bsky.social @rarediseasesint.bsky.social @eurordis.bsky.social pubmed.ncbi.nlm.nih.gov/39837019/

pubmed.ncbi.nlm.nih.gov

Assessing the supportive care needs of parents of children with rare diseases in Ireland - PubMed

This study underscores the urgent need for comprehensive support systems to alleviate these burdens, advocating for tailored healthcare and social support interventions to meet the diverse needs of th...

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Suja Somanadhan @sujas.bsky.social · 22/04/2025

Please share this with others who may be eligible — every story matters. #RareDisorders #Rarediseases @rarediseasesint.bsky.social @hrci.bsky.social @rareireland.bsky.social

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Suja Somanadhan @sujas.bsky.social · 22/04/2025

Caring for a child with a #RareDisease comes with #financial, #social, and #emotional challenges. We want to understand your experience to create positive change. Share your voice! 🎥 Watch short video shorturl.at/3zmru 👉Take part in the SURVEY tinyurl.com/bdhwd2az

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