iiinova — where your digital self keeps evolving

Stripy Lightbulb CIC @stripylightcic.bsky.social · 03/11/2025

We're closing this Bluesky social media account at the end of the week, thank you for your support🌟 To keep supporting Stripy Lightbulb CIC’s educational work and campaigns, follow us on X, Facebook, YouTube, or subscribe to our e-newsletter via our website footer. #pwME #MEcfs #SocialEnterprise

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Stripy Lightbulb CIC @stripylightcic.bsky.social · 27/10/2025

🩺 Calling all #healthcare professionals! Share your anonymous insights on remote care for severe ME/CFS in our 4-min survey. Help shape safer, more equitable care. Deadline: Tues 29 Oct, 12pm. 👉 Take part now: www.stripylightbulb.com/2025/10/16/c... #SevereME #RemoteCare #NHS

stripylightbulb.com

Call for Input: Reconciling Safety in Remote Care for Severe M.E. | Stripy Lightbulb CIC

Reconciling Safety in Remote Care for Severe ME We are inviting healthcare professionals to anonymously share their insights via a short survey.

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Stripy Lightbulb CIC @stripylightcic.bsky.social · 24/10/2025

Are you a clinician working with ME/CFS patients? Your anonymous reflections could help shape national guidance on remote care. Please take 4 mins to complete our survey & share it with colleagues 👉 www.stripylightbulb.com/2025/10/16/c... #SevereME #RemoteCare #HCPSurvey #NHS #Medical

stripylightbulb.com

Call for Input: Reconciling Safety in Remote Care for Severe M.E. | Stripy Lightbulb CIC

Reconciling Safety in Remote Care for Severe ME We are inviting healthcare professionals to anonymously share their insights via a short survey.

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Stripy Lightbulb CIC @stripylightcic.bsky.social · 21/10/2025

stripylightbulb.com

Call for Input: Reconciling Safety in Remote Care for Severe M.E. | Stripy Lightbulb CIC

Reconciling Safety in Remote Care for Severe ME We are inviting healthcare professionals to anonymously share their insights via a short survey.

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Stripy Lightbulb CIC @stripylightcic.bsky.social · 16/10/2025

Remote care for severe M.E patients is vital, but clinicians face real challenges. Help shape safer, more equitable care by sharing your anonymous insights in our 4-min survey. Deadline: Tues 29 Oct, 12pm. More info - www.stripylightbulb.com/2025/10/16/c... #NHS #HCP #Healthcare

stripylightbulb.com

Call for Input: Reconciling Safety in Remote Care for Severe M.E. | Stripy Lightbulb CIC

Reconciling Safety in Remote Care for Severe ME We are inviting healthcare professionals to anonymously share their insights via a short survey.

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Stripy Lightbulb CIC @stripylightcic.bsky.social · 15/10/2025

📣 This year, as part of our BED for Severe ME campaign, Stripy Lightbulb CIC won’t be hosting an educational webinar. Instead, we’re inviting healthcare professionals to help shape solutions to a real-world problem affecting the care of those with severe ME. #pwME 1/2

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Stripy Lightbulb CIC @stripylightcic.bsky.social · 07/10/2025

M.E./C.F.S. means cognitive dysfunction, exhaustion & often pain, but it’s often misunderstood. Teachers who learn about it can spot the signs, adapt lessons & change lives. Knowledge is power. Compassion is impact. #Teachers

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Stripy Lightbulb CIC @stripylightcic.bsky.social · 06/10/2025

We are thrilled to announce..... 👇 See our Board of Directors here - www.stripylightbulb.com/about/people/ #pwME #SocialEnterprise #Governance

Statement written on a white square background with pale yellow brush marks across the centre. Statement says - We’re delighted to welcome John Miller to the Board of Directors at Stripy Lightbulb CIC.

John brings a wealth of experience in governance, risk management, and organisational culture, with a career spanning operational leadership, compliance, and digital transformation. From serving in the British Army’s Royal Tank Regiment to leading large-scale NHS projects at Synertec and overseeing operations at Quiddity Health, John’s track record of stakeholder engagement and business transformation is second to none.

His belief that 'health, support, and opportunity should be accessible to all, without exception' aligns powerfully with our mission.

At Stripy Lightbulb CIC, we work to improve understanding and support for the M.E./C.F.S. community through industry-specific online training for professionals in hashtag#healthcare and hashtag#education, and hashtag#employers. Our goal is to reduce stigma, improve care, and fund desperately needed research.
John’s expertise will help us strengthen our impact, scale our reach, and ensure our governance remains as robust as our purpose.

💡 Welcome aboard, John, we’re thrilled to have you with us as we continue to challenge misconceptions and drive change for the M.E./C.F.S. community.

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Stripy Lightbulb CIC @stripylightcic.bsky.social · 05/10/2025

Stripy Lightbulb CIC offers e-learning for professionals supporting M.E./C.F.S. and Long Covid patients. Same symptoms, same needs, same responsibility to care. 💬 #CPD

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Stripy Lightbulb CIC @stripylightcic.bsky.social · 03/10/2025

M.E./C.F.S. and Long Covid share symptoms, and support needs. Stripy Lightbulb CIC’s e-learning helps #healthcare, #education & #employers provide informed care and support. Let’s stop the struggle. Start learning. 🌟 #CPD

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Stripy Lightbulb CIC @stripylightcic.bsky.social · 02/10/2025

Stripy Lightbulb CIC stands with those left behind. No treatment, no support, no recognition. M.E./C.F.S. patients deserve better. Let’s fight stigma with education. 💡 #CPD

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Stripy Lightbulb CIC @stripylightcic.bsky.social · 02/10/2025

M.E./C.F.S. patients feel abandoned. No treatment, little support, suicide risk is much higher than national average. NICE guidelines exist, but NHS adherence is minimal. We must do better. #MEcfs #Healthcare

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Stripy Lightbulb CIC @stripylightcic.bsky.social · 01/10/2025

The economic impact of M.E./C.F.S. is huge, but ignored. People are dropping out of work & school, wrongly denied benefits, and left to struggle. Education on the illness isn’t optional, it’s survival. #Disability

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Stripy Lightbulb CIC @stripylightcic.bsky.social · 01/10/2025

Students with M.E./C.F.S. are dropping out. Why? Educators don’t know how to support them. It’s not ‘just tiredness’, it’s a disabling condition. #InclusiveEducation

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Stripy Lightbulb CIC @stripylightcic.bsky.social · 30/09/2025

Professionals with a duty of care, learn how to support those with M.E./C.F.S.(and Long Covid). Stripy Lightbulb CIC’s e-learning gives you the tools to do better. Improved knowledge saves energy. Literally. 💡 #ELearning #Training #CPD

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Stripy Lightbulb CIC @stripylightcic.bsky.social · 30/09/2025

Many with ‘mild’ M.E./C.F.S. could work, if workplaces were flexible. Instead, they’re forced out, denied disability support & left in financial crisis. #Disability #WorkplaceInclusion

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Stripy Lightbulb CIC @stripylightcic.bsky.social · 29/09/2025

Teachers: understanding M.E./C.F.S. isn’t optional, it’s essential. One of your students may be silently battling this condition. Your improved knowledgebase = empathy, support & better outcomes. Let’s make classrooms inclusive for all 💡 #Education #Learning

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Stripy Lightbulb CIC @stripylightcic.bsky.social · 29/09/2025

Behind every M.E./C.F.S. diagnosis is a person fighting to be believed. Stigma isolates. Education empowers. Join Stripy Lightbulb CIC in changing the narrative. 💬 #MEcfs #EndTheStigma #CPD stripylightbulb.com

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Stripy Lightbulb CIC @stripylightcic.bsky.social · 23/09/2025

Get posting #pwME. 👀 youtube.com/shorts/ERPYv... Copious amounts of private emails/letters are not working. Constructive responses from DWP and/or DHSC would be very welcome. Blog with info - stripylightbulb.com/2025/07/21/c... FYI @georgemonbiot.bsky.social #pwME #MEcfs #Politics

youtube.com

Get Posting pwME!

YouTube video by Stripy Lightbulb CIC

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Stripy Lightbulb CIC @stripylightcic.bsky.social · 18/09/2025

Teachers, employers, HR leaders - ME/CFS affects your people too. Stripy Lightbulb CIC’s training isn’t just for doctors. It’s for anyone with a duty of care. 💡 Learn how to adapt, support, and lead with empathy. 🔗 stripylightbulb.com #Learn #Training

stripylightbulb.com

M.E./C.F.S. Training for Professionals - Stripy Lightbulb CIC

We offer CPD Accredited courses about Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) to professionals. Our training is also Long Covid Relevant.

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Stripy Lightbulb CIC @stripylightcic.bsky.social · 17/09/2025

Healthcare professionals: Would you treat a heart condition without training? Then why guess with ME/CFS? Stripy Lightbulb CIC offers a CPD-accredited course designed to help you support patients with dignity and honesty. 💬 Sign up. Make a difference. 📲 stripylightbulb.com

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Stripy Lightbulb CIC @stripylightcic.bsky.social · 16/09/2025

ME/CFS is NOT “just tiredness.” It’s a global health crisis, a neurological condition, and one of the most misunderstood illnesses in healthcare. Stripy Lightbulb CIC’s training helps professionals get it right. 🎓 Learn. Understand. Support. 🔗 stripylightbulb.com

stripylightbulb.com

M.E./C.F.S. Training for Professionals - Stripy Lightbulb CIC

We offer CPD Accredited courses about Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) to professionals. Our training is also Long Covid Relevant.

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Stripy Lightbulb CIC @stripylightcic.bsky.social · 16/09/2025

Stripy Lightbulb CIC is campaigning for people living with ME/CFS who are too often ignored. 🛏️ #BEDforSevereME highlights the 25% who are bedbound. 📢 #DWPCampaigns fight for fairer support. Be part of the change: stripylightbulb.com #MEcfs #DisabilityRights #InvisibleIllness

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Stripy Lightbulb CIC @stripylightcic.bsky.social · 15/09/2025

Professionals: Are you equipped to support people with ME/CFS? There is a knowledge gap. Stripy Lightbulb CIC’s CPD-accredited course fills that gap, with real insight, practical solutions, and compassion. 👉 Sign up today and earn your badge of understanding: stripylightbulb.com

stripylightbulb.com

M.E./C.F.S. Training for Professionals - Stripy Lightbulb CIC

We offer CPD Accredited courses about Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) to professionals. Our training is also Long Covid Relevant.

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Stripy Lightbulb CIC @stripylightcic.bsky.social · 15/09/2025

ME/CFS patients deserve better. Better understanding. Better care. Better outcomes. Stripy Lightbulb CIC’s training empowers professionals to be part of that change. 💪 Be the ally patients need. 🎓 Enroll now: stripylightbulb.com

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Stripy Lightbulb CIC @stripylightcic.bsky.social · 15/09/2025

Healthwatch is being scrapped. For the M.E. community, that means one less way to be heard. “In house” solutions won’t work unless the NHS becomes truly patient-centred, before the closure Don’t silence the patient voice. 📢 localdemocracyandhealth.com/2025/09/14/d... #Healthwatch #PatientVoice #PwME

localdemocracyandhealth.com

Don’t Silence the Patient Voice: Why Abolishing Healthwatch is a Mistake

Abolishing local Healthwatch is NOT a foregone conclusion – now is the time for MPs and national and local allies to defend independent public voice in health and care The NHS 10 year plan fl…

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Stripy Lightbulb CIC @stripylightcic.bsky.social · 11/09/2025

'Stripy Lightbulb CIC exists to educate, advocate, and innovate. If we were in Government, we’d lead with compassion, science, and pragmatism. Because investing in health is investing in the future.' www.stripylightbulb.com/2025/09/09/c... #Politics #UK

stripylightbulb.com

Confronting the Cost of Chronic Illness and Rebuilding a Healthier, Fairer UK | Stripy Lightbulb CIC

Confronting the cost of chronic illness is key to rebuilding a healthier, fairer UK. The nation's crisis is a symptom of systemic failure post-COVID.

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Stripy Lightbulb CIC @stripylightcic.bsky.social · 09/09/2025

M.E./C.F.S. is the no.1 health cause for long-term school absence in the #UK. Are you equipped to support your students? Our CPD-accredited course gives you the tools to help them thrive. Enrol today. #MECFS #CPD #EdChat #InclusiveEducation www.stripylightbulb.com/training/edu...

Empty white chair is pushed underneath a brown wooden desk. Photo from Pexels - Cottonbro Studio

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Stripy Lightbulb CIC @stripylightcic.bsky.social · 08/09/2025

We posted an update on our WCA / DWP work on Friday. In case you missed it, the whole video can be found here - www.youtube.com/live/g7CoGRU... #PwME #MEcfs #Politics #DWP

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Stripy Lightbulb CIC @stripylightcic.bsky.social · 03/09/2025

🛏️ Wear Pyjamas to Work: In Support of BED for Severe M.E. On Wednesday 29th October, join us in raising awareness for Severe M.E., a condition that leaves many bedbound and medically unsupported. 👚 Swap workwear for sleepwear 💷 Donate £2 per participant 1/2 #Business

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Stripy Lightbulb CIC @stripylightcic.bsky.social · 03/09/2025

📢 We've been waiting since 18 July for a response to our urgent letter/covering email @wesstreeting . The DWP's ME/CFS WCA training contradicts NICE NG206 and is causing harm. This demands immediate cross-departmental action. Lives are being impacted. #MEcfs 1/3

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Stripy Lightbulb CIC @stripylightcic.bsky.social · 28/08/2025

“When you get ME, you kind of realise that all of your skills, your knowledge, your qualifications don’t mean anything, because you can’t put them towards a full-time job anymore, your career’s gone.” (severity dependent)" serenichron.com/articles/whe... #pwME #SocEnt

serenichron.com

When energy is limited, systems matter more

Discover how Sally Callow builds Stripy Lightbulb CIC while living with ME/CFS using systems, AI, and resilience to create sustainable impact

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Stripy Lightbulb CIC @stripylightcic.bsky.social · 23/07/2025

🚨 Nearly £2M stolen by DWP staff in benefit fraud, while disabled people face stigma and scrutiny just to access support. The real fraud? It’s inside the system. Time to shift the narrative from blame to accountability. #Disability #pwME #WelfareSystem www.stripylightbulb.com/2025/07/23/d...

stripylightbulb.com

DWP Staff Caught in £2M Benefit Fraud Scandal Amid Harmful Disability Rhetoric | Stripy Lightbulb CIC

For months now, disabled people across the UK have been subjected to an increasingly hostile narrative driven by the DWP. One built on stigma, stereotypes,

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Stripy Lightbulb CIC @stripylightcic.bsky.social · 23/07/2025

The M.E Delivery Plan was published yesterday. We haven't read it yet because our expectations were/have always been low. We were founded nearly 7 years ago, after a year of talking to #pwME about our plans, doing teacher training, and crowdfunding. So, we identified 1/

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Stripy Lightbulb CIC @stripylightcic.bsky.social · 21/07/2025

Watch the full video here - www.youtube.com/live/tyR6Ny7... #pwME #MEcfs #Welfare

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Stripy Lightbulb CIC @stripylightcic.bsky.social · 21/07/2025

Sat in on the APPG on Disability's session on the welfare system. Knowing what we now know about WCA training for assessors... We have a whole new perspective. #MEcfs

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Stripy Lightbulb CIC @stripylightcic.bsky.social · 21/07/2025

Our blog on the #DWP WCA training. 'This situation creates a damaging policy conflict where one government department (the DWP) is actively undermining the expert clinical guidance championed by the Department of Health and Social Care (DHSC).' www.stripylightbulb.com/2025/07/21/c... #PwME

stripylightbulb.com

Challenging Harmful and Out-of-Date DWP Training on M.E./C.F.S. | Stripy Lightbulb CIC

A series of FOI requests have lead to the discovery of the DWP's training materials for WCA assessors. It's not good.

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Stripy Lightbulb CIC @stripylightcic.bsky.social · 20/07/2025

This is as a result of a series of FOI requests sent to DWP by us. Wes Streeting was told last week. APPG for Disability has been emailed with concerns. DWP not being guided by up to date clinical guidelines. Using out of date harmful BPS methods in training. #UK #MEcfs #TakingThePIP

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Stripy Lightbulb CIC @stripylightcic.bsky.social · 20/07/2025

Excellent article from Hannah Sharland and @thecanaryuk.bsky.social We were shocked and angry, though not surprised, to see the contents of the FOI documents. Page 15 is particularly bad...... (link to doc is on article). #pwME #MEcfs #Politics #TakingThePIP #WelfareCuts

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Stripy Lightbulb CIC @stripylightcic.bsky.social · 20/07/2025

Three of four concerns raised by Stripy Lightbulb CIC about the Universal Credit Bill will be voiced in the Lords on Tuesday. But as a Money Bill, no debate or amendments are allowed. Read more on what this means www.stripylightbulb.com/2025/07/20/u... #pwME #TakingThePIP #Disability

stripylightbulb.com

Universal Credit Bill: Key Concerns to Be Raised in House of Lords Debate | Stripy Lightbulb CIC

Members of the House of Lords will debate the Universal Credit Bill, a piece of legislation that has generated significant concern.

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Stripy Lightbulb CIC @stripylightcic.bsky.social · 18/07/2025

As of next Friday, we are on holiday for the first time since Stripy Lightbulb CIC was founded in 2018! We will be stepping away completely for 2 whole weeks 😬 Don't worry, answers to 'commonly asked questions' about accessing training will be on our out of office reply 😊 #SocEnt

media.tenor.com

a young man wearing a headband says " i am a little " in white letters

ALT: a young man wearing a headband says " i am a little " in white letters

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