iiinova — where your digital self keeps evolving

Statistical Oddity @statisticaloddity.bsky.social · 16/04/2025

Why was Pink Pony Club the song stuck in my head all throughout my oncology appointment yesterday?

Statistical Oddity @statisticaloddity.bsky.social · 14/04/2025

The SHARON clinical trial is stem cell rescue for metastatic pancreatic & HER2-negative breast cancers w/ BRCA1/2 or PALB2 mutations. My stem cell rescue in 1999 is looking like it was worth it. Maybe it has been my “secret” all along #BRCA #MetastaticCancer #ClinicalTrials #StemCellRescue #mbc

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Statistical Oddity @statisticaloddity.bsky.social · 12/04/2025

In other news, my tumor markers are slowly dropping, PET scan looks okay to my layman’s eyes, but I’ll get the Dr view on Tuesday. Which happens to be my last appointment with her bcuz she is effing leaving! 😩 I’m a sad oddity

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Statistical Oddity @statisticaloddity.bsky.social · 12/04/2025

More GrokAi summary of clinical trials: ”DESTINY-Breast06 trial results are in! Trastuzumab deruxtecan (Enhertu) outperformed chemo in HR+, HER2-low metastatic breast cancer, delaying growth by 13.2 vs. 8.1 months. Final data expected 2025.” #breastcancer #mbc #stage4 #clinicaltrials

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Statistical Oddity @statisticaloddity.bsky.social · 11/04/2025

Asked GROKai for a BlueSky post on MBC tings “TROPION-Breast01 trial just wrapped up! Datopotamab deruxtecan (IV ADC) beat chemo in HR+, HER2- metastatic breast cancer, delaying growth by 6.9 vs. 4.9 months. Better quality of life too! Final survival data coming in 2025.Big step for MBC treatment!”

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Statistical Oddity @statisticaloddity.bsky.social · 07/04/2025

I’m having a salad for lunch. Wish me luck 😳 (For reference I’m on Verzenio, main side effect diarrhea proceeded by intense abdominal cramps, the kind that make you rock and uncontrollably say “ow ow ow fucking ow” out loud. This happens approximately 4-5 days a week. Sometimes at 2am.)

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Statistical Oddity @statisticaloddity.bsky.social · 26/02/2025

Yes, it will definitely help with communicating what you want if the doctors aren’t being helpful.

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Statistical Oddity @statisticaloddity.bsky.social · 25/02/2025

In case you don’t about it already, there is a website called Not Putting On A Shirt that has tons of info, including a list of flat friendly surgeons (I think it all US based, I’m not sure where you are)

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Statistical Oddity @statisticaloddity.bsky.social · 11/02/2025

I’ve found that it hurts less if I stand (because I’ve got other physical issues), so I’ve got a tall table I use. But it means I can only do short sessions which is extremely frustrating. 😭

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Statistical Oddity @statisticaloddity.bsky.social · 11/02/2025

Thanks! I stopped for a long time due to degenerative disc’s in my neck and shoulder dysfunction. But I’m carefully starting again. I even won 2nd in the little art show I entered that piece in, so that was an unexpected surprise 😊

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Statistical Oddity @statisticaloddity.bsky.social · 11/02/2025

Yeah, it’s as if I don’t realize every day of my life that I’m living on borrowed time and there is a huge list of people I’ve met over the past 26 years who are now dead and I’m not.

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Rachel Bitecofer @rachelbitecofer.bsky.social · 05/02/2025

“Shingles doesn’t care” was my fave public health messaging until Ashley coined: “Mumps makes your ball shrivel.”⭐️

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Statistical Oddity @statisticaloddity.bsky.social · 05/02/2025

I can’t TELL you how much I LOVE being told how lucky I am to have lived this long because so many others die from breast cancer. bESt peP TaLk eVeR 😐

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Statistical Oddity @statisticaloddity.bsky.social · 25/01/2025

I was joking (?) about the timing of it starting oh…around the 20th. 😏

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Statistical Oddity @statisticaloddity.bsky.social · 24/01/2025

I started Verzenio on January 1st, and was encouraged that I wasn’t having too many side effects. Fast forward and starting this week I have been plagued with the worst GI gut cramping, 2am bathroom sprints, eating Imodium like they’re Pez candies side effects. The timing makes me go hmmmmm 🤨

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Shiloh Blue @shicblue.bsky.social · 21/01/2025

Because it is needed right now. #lgbtq

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Statistical Oddity @statisticaloddity.bsky.social · 19/01/2025

If they think this stunt is going to endear him to us…they made a big mistake. Big. Huge. This has stirred up a deeper and wider level of disgust in me than ever before.

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Statistical Oddity @statisticaloddity.bsky.social · 19/01/2025

Trump was the one who started with the whole ban thing back in 2020. Now he’s going to be the hero for saving it? Yuck 🤮

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Statistical Oddity @statisticaloddity.bsky.social · 08/01/2025

At least I’m stable 😏 . . . . As per latest PET scan, at least 👍

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God @thegodshow.com · 29/12/2024

Jimmy refused to put one toe in 2025. Can you blame him?

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Statistical Oddity @statisticaloddity.bsky.social · 30/12/2024

Does anyone else resist getting out of bed in the morning because they don’t want to acknowledge what their life has in store for them? Or is that just me? It can’t be just me.

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Statistical Oddity @statisticaloddity.bsky.social · 28/12/2024

Boy do they! And it’s my fault for not keeping up with the PT exercises that help keep things in their place 😬

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Statistical Oddity @statisticaloddity.bsky.social · 28/12/2024

Next scan is in abt 10 days. It’s was a regular 3 month scan, so the dr still wants to see what’s what. Little scared since I’ve had a total of 7weeks of no pills. At least the injections keep happening 😂

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Statistical Oddity @statisticaloddity.bsky.social · 28/12/2024

Enzymes just back into normal range. The new med is being delivered next week. I’m just hoping I haven’t grown anything new while I’ve been off meds 😬

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Statistical Oddity @statisticaloddity.bsky.social · 28/12/2024

Random reminder while I was flying on muscle relaxants for back spasms (and hopefully not new spinal mets) Music by Ummet Ozcan #breastcancer #mastectomy #flatclosure #stage4 #cansky #knowledgeispower #brca

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Statistical Oddity @statisticaloddity.bsky.social · 27/12/2024

Thank you 🧡 I hope things are going well for you at the moment, and into the new year we go

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Statistical Oddity @statisticaloddity.bsky.social · 15/12/2024

There are two more meds (same type) I can try. Apparently it’s not unusual for ppl to have to switch them up. The one I’m on is know for being hard on the liver. ☹️

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Statistical Oddity @statisticaloddity.bsky.social · 15/12/2024

The life of a MBC patient: it looks like my liver can’t tolerate Kisqali. This is the first time my body has said “nope” with its full chest (pun intended) While other treatments have been difficult, none of them have been a serious threat to my well being/life if continued. TBC tomorrow…

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Statistical Oddity @statisticaloddity.bsky.social · 11/12/2024

My niece is trying it at the moment. I’ll repost back any interesting bits (because I’m thinking of looking into it , too)

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Kelly Shanahan @stage4kelly.bsky.social · 11/12/2024

Elacestrant (Orserdu) monotherapy has people with ESR1 mutation who do really well and some who have rapid progression. Why?? IDK but we need biomarkers to figure this out!! #SABCS24

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Statistical Oddity @statisticaloddity.bsky.social · 11/12/2024

All I care about is that ALL post mastectomy options are presented in an equally valid way. What each person wants/needs will vary according to the individual and informed decisions are crucial.

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Statistical Oddity @statisticaloddity.bsky.social · 11/12/2024

Apparently some people have no issue with other people removing *some* healthy breast tissue (breast reduction) but removing the entire breast is tsk-tsked over. Key phrase: OTHER PEOPLE The point? You are not the one living in that meat suit, *they* are.

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Statistical Oddity @statisticaloddity.bsky.social · 11/12/2024

I didn’t say implants were the only option, but it’s not uncommon for there to be issues. Not everyone wants or is a candidate for tissue flap. There are many ppl who’ve had a single mastectomy that don’t like the asymmetry, so they want a bilateral. I think that is a valid reason.

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Statistical Oddity @statisticaloddity.bsky.social · 11/12/2024

How can you “not support flat closure”? Many women’s bodies reject implants and they go flat not by choice but by need.Or do you not support flat closure if someone prefers it?Or do you not support surgery as a treatment for breast cancer in general?I’m honestly curious why you wouldn’t “support” it

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Statistical Oddity @statisticaloddity.bsky.social · 11/12/2024

Fellow flattie here! If you’re ever on TikTok, I’ve got a lot of posts about clothing. And there’s a FB group called Fantastic Flat Fashions (if you’re not already on it) where people with all different shapes and styles and ages post their outfits.

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Statistical Oddity @statisticaloddity.bsky.social · 11/12/2024

I’m new to alt text, I will definitely do my best to learn the correct way to include that, thank you 👍

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Statistical Oddity @statisticaloddity.bsky.social · 11/12/2024

That’s definitely an issue I’ve heard other people talk about. I’m not sure how it works with insurance these days, hopefully your doctors can work with you on your choice. If you have lobular, it’s more likely to be approved, but ductal is the more common type of breast cancer.

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Statistical Oddity @statisticaloddity.bsky.social · 11/12/2024

True, but it’s still hard to sit on the other side of that silence after revealing something so vulnerable. Even an “oh no, that’s awful” type of response is enough to acknowledge it.

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Statistical Oddity @statisticaloddity.bsky.social · 11/12/2024

Thank you 😊 I hope you are doing well 🧡

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Statistical Oddity @statisticaloddity.bsky.social · 05/12/2024

Retested today, everything back into normal range 😮‍💨

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Statistical Oddity @statisticaloddity.bsky.social · 03/12/2024

Managed to get thru last week with minimal stress and moderate fatigue. Here’s the question: is it the actual social interaction or my anxiety leading up to it that is the most fatigue inducing? Or just a fine mixture of both… 🥺

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