Soheb @sohebm.com · 22/08/2026Priority must be given to pregnant women or people with really long fingernails. 000
Soheb @sohebm.com · 10/06/2026New book haul! Fun fact, I've accidentally bought Tender is the Flesh *twice*. I need to give away my second copy... 120
Soheb @sohebm.com · 23/05/2026I also got a whole shelf of Karin Slaughter books. My bookshelves are filling up quite nicely... #books #booksky 010
Soheb @sohebm.com · 23/05/2026Went to MCM Comic Con today in London, and I GOT TO MEET JOHN ROMERO!! My mind is BLOWN!! Such a great day today, got so much as well - my bank account and my body needs a rest from all the spending and walking! 😂 #MCMComicCon 030
Soheb @sohebm.com · 01/03/2026Had to do it to 'em (Resident Evil Requiem on the Steam Deck with Lady Dimitrescu costume 020
Soheb @sohebm.com · 01/03/2026To all PKU folks - Share your story! Pauline O'Connor has got some great PKU stories on her blog - one from yours truly 🧐 - and you can add your story into the mix as well! Visit this link to find out more: www. pigpen.page/share-your-story-2/ #phenylketonuria #phenylcetonurie #pcu #pku 020
Soheb @sohebm.com · 24/02/2026Check out my Waterstones haul! (Forgot to use my Waterstones card, so I didn't manage to collect the £10 I could've got from all these books 😭). I also need to expand my romance and thriller book collection... Fun fact - I now need a new bookshelf to fit all my books... #book #books #booksky 240
Soheb @sohebm.com · 07/02/2026The strangest thing happened today. At Starbucks, I ordered a double espresso. I gave the cashier my name but shortened down to make it easier to write. She wrote the shorthand and then crossed it out and wrote my name CORRECTLY. Have I... Have I hacked the matrix?!?!? 110
Soheb @sohebm.com · 06/02/2026Watched Primate in the cinemas. I enjoyed it. Not exactly an award-winning masterpiece, but I had fun. Very, very gory though! return to monke/10 #movies #film #cinema 100
Soheb @sohebm.com · 01/02/2026@emmavardy2.bsky.social found this at the second hand bookshop. Had to buy it! 120
Soheb @sohebm.com · 24/01/2026I love my new Kobo Libra Colour! It's so wonderfully wide! The buttons are super useful for turning pages without tapping the screen, and it can detect how it is rotated and will adjust accordingly (this is upside down, and it handled it like a pro) 010
Soheb @sohebm.com · 24/01/2026With that said, I now have a new Kobo Libra Colour from my old Kobo Clara Colour (the one with stickers is my new device). Maybe its worth seeing who distributes to Kobo and others and seeing if you can publish there? 110
Soheb @sohebm.com · 11/01/2026Recently I got 277umol/L for my blood test results for my PKU!! And can you guess what the blood spots looked like? (C'mon, it's me we're talking about here) 341
Soheb @sohebm.com · 01/11/2025It's been a while, but I've finished my Magnus Opus #blood #bloodspot #bloodtest #nhs #health #pku #phenylketonuria #pcu #phenylcetonurie 020
Soheb @sohebm.com · 27/07/2025Just tried using the Mevalia rice and it's the one for me (an old photo of the rice with veggies). For one I have freedom in cooking the rice (I cook it in water with vegetable stock cube mixed for added flavour). Another reason is I can taste each rice grain. 120
Soheb @sohebm.com · 26/07/2025So I gave the rice a shot (with spicy kimchi) Pros: it's rice, alright. Tastes just like the real thing (kinda missing something, but better than PKU imitation rice) Cons: look at the rice. It's pretty painful to take out of the packet, and is so tightly packed it comes out in lumps. 131
Soheb @sohebm.com · 26/07/2025Finally - an actual PKU post! I got an email from Promin saying they've got this new low protein rice - rice which is pretty much "normal rice" but has gone through some process to make it only half an exchange. As someone who loves rice, I'm going to give this a try later on! 100
Soheb @sohebm.com · 18/07/2025Just bought the vinyl two days ago, it arrived brand new. I was still trying to get the plastic wrapping off when I walked into the door. Creased the edge of the vinyl... 😡🤬 021
Soheb @sohebm.com · 09/05/2025I recently got a bad result and I shared it with the PKU community. Good thing I did as I was feeling pretty rubbish about it until I read this post. The PKU community is awesome 😎 - you can find these lot on Mastodon. Original post: mastodon.online/@caoimhin/11... #pku #phenylketonuria 030
Soheb @sohebm.com · 03/05/2025Did my blood test but completely forgot to take pictures of the sheet. Just imagine a complete disarray of blood spots. Meanwhile, you'll have to settle on my finger instead. #blood #bloodtest #pku #phebylketonuria #pcu #phenylcetonurie 120
Soheb @sohebm.com · 05/04/2025Honestly, what did you expect? #bloodtest #phenylketonuria #pku #phenylcetonurie #pcu #blood 221
Soheb @sohebm.com · 01/03/2025Did a blood test this morning. Added more blood spots as it was starting to get a lil too serious in here 😤🥴😎 #phenylketonuria #phenylxetonurie #pku #pcu #lowprotein #raredisease #nhs #blood 000
Soheb @sohebm.com · 04/02/2025Mogo chips with normal chips and vegan mayonnaise. 2 PKU exchanges and utterly delicious 😋 #pku #phenyketonuria #pcu #phenylcetonurie #lowprotein #lowproteinfood 010
Soheb @sohebm.com · 01/02/2025Did my blood test this morning! Nearly forgot as well 🤦♂️ It was absolutely freezing this morning so I had to use two fingers to do the blood test (oops) - I hope it still counts! #pku #phenylketonuria #pcu #phenylcetonurie 121
Soheb @sohebm.com · 04/01/2025I'm back, folks 😎 #bloodspot #blood #health #pku #phenylketonuria #pcu #phenylcetonurie 000
Soheb @sohebm.com · 21/12/2024Stir fry rice with mushrooms and onions... 🤤 Used Mevalia rice as it's the closest I can get to tasting normal rice, and frozen garlic and ginger, mushrooms and onions for quicker prep. #pku #phenylketonuria 000
Soheb @sohebm.com · 18/12/2024Saw the review and it was super interesting! Definitely giving the audiobook a listen! 111
Soheb @sohebm.com · 14/12/2024Got my #nspku news and views magazine! I haven't managed to have a full read of it yet, but I briefly read about sepiapterin and JNT-517, and both seem to be extremely exciting developments in the world of #pku #phenylketonuria 110
Soheb @sohebm.com · 09/12/2024Playing Silent Hill 2 on PS5, and good lord it makes Resident Evil 7 seem childish by comparison. I think I'm going to need a shower after completing this game, I swear... 000
