Sari M @smauro1622.bsky.social · 10/07/2026[food, medical diet] Last night I cooked off some previously-frozen tuna medallions and then made fresh, lower histamine, tuna salad. I'm very pleased with the result. 020
Sari M @smauro1622.bsky.social · 24/04/2026I don't want to circle back. I don't even want to follow up. I'm tired. I want to sleep. 000
Sari M @smauro1622.bsky.social · 16/04/2026"Everything in me is screaming 'hot pants'" -- overheard at work 000
Sari M @smauro1622.bsky.social · 15/04/2026It appears that the house continued to not be on fire through the night, so I'm pretty sure it's not on fire. Someone please tell my anxiety. 100
Sari M @smauro1622.bsky.social · 14/04/2026Good news! I DON'T think the house is on fire! (It's been a long and wild morning...) 130
Sari M @smauro1622.bsky.social · 10/04/2026I was Influenced and got one of those double papasan chairs. Circumstances have aligned to now test the theory that it will be great when my resting heart rate is being obnoxious 010
Sari M @smauro1622.bsky.social · 20/03/2026My alma mater finally got me to give (generally I prefer my money to go to places without a multiple-thousand donor pool). Dirty pool sending me an appeal from one of my two fave poli sci profs. *And* I can give to a scholarship in his name? Damn. Anyway: here's to you, Fletch. 000
Sari M @smauro1622.bsky.social · 03/03/2026I'm sure it says something (probably multiple somethings) that I can identify a Hozier song from the bass line coming through the floor from the gym below my apartment. 000
Sari M @smauro1622.bsky.social · 24/11/2025Why have a "request an appointment" form on your website if the only response you are going to give is "call us!" 😫 000
Sari M @smauro1622.bsky.social · 21/11/2025My Thursday DND group has been on voice chat for 45 minutes and and so far have: Lamented the lack of year-round peppermint ice cream Taunted someone about our access to peppermint ice cream Discussed the origin of the term "hoagie" Discussed vaguely homoerotic 1920s college traditions 110
Sari M @smauro1622.bsky.social · 13/11/2025It is November 13 and I have decided just today to sew holiday gifts. This can only end well, right? 000
Sari M @smauro1622.bsky.social · 30/10/2025In my day job I'm a manager for a university repository and, genuinely: A, this happens a lot and B, I am never upset when I see it 150
Sari M @smauro1622.bsky.social · 28/10/2025|What follows is incoherent yelling about [redacted] work thing| YOUR SURVEY IS VERY BAD AND YOU SHOULD FEEL BADmedia.tenor.coma man in a suit and tie is making a faceAlt: a man in a suit and tie (Steve Carell with slick combed hair and glasses) is making a face like he is wordlessly yelling at someone 020
Sari M @smauro1622.bsky.social · 06/10/2025[tone: joking] I love it when my sweet potatoes are swapped for The Unknown 🤔 110
Sari M @smauro1622.bsky.social · 27/07/2025Nothing like lying down in public with your legs elevated to find other dysautonomia/POTS folks 😆 020
Sari M @smauro1622.bsky.social · 26/07/2025Newly finished bag! Fabric from Spoonflower. Pattern: www.etsy.com/listing/1672... 020
Sari M @smauro1622.bsky.social · 15/07/2025Craft-cation day 1: We are hand sewing and listening to Rebecca (Du Maurier) on audiobook and sipping cold brew. 000
Sari M @smauro1622.bsky.social · 11/07/2025more like dysauto-NO-NO-NO-GOD-NO-mia, amiright?* *typed from my office floor where I am currently gasping for air and willing my HR lower 110
Sari M @smauro1622.bsky.social · 03/07/2025Okay, #MigraineChat -- Theoretically I have started preventative Nurtec. I say theoretically because I CAN'T FREAKING REMEMBER to take it every other day. If you have pro tips, suggestions, etc for remember meds with an every-other-day cadence, please drop 'em below! 622
Sari M @smauro1622.bsky.social · 26/06/2025"self-yeeted" is a phrase I just used in a work communication... 000
Sari M @smauro1622.bsky.social · 26/06/2025I took yesterday off (use it or loose it PTO) and this morning I'm pretty sure my entire body is rebelling against this commute into work: Tachycardia. Nausea. Shortness of breath. Fatigue and micro sleeps. My right ankle gave out as I climbed onto the trolley causing me to fall into the driver. 000
Sari M @smauro1622.bsky.social · 12/06/2025POTS and dysautonomia folks -- Any recs for comfortable abdominal compression? I'm looking for options that won't roll down as I move, won't dig in at pressure points, and won't be a complete hassle to go to the bathroom in. Thanks in advance!! #NEISVoid #MigraineChat 61810
Sari M @smauro1622.bsky.social · 11/06/2025My (A+) provider gently suggested I get back into an electrolyte routine, so the triple beverage juggling has returned 110
Sari M @smauro1622.bsky.social · 28/05/2025oh, wow. I don't remember ordering that many gummy worms, but apparently I did... oops 110
Sari M @smauro1622.bsky.social · 27/05/2025(overheard in what is clearly a business meeting): "you have the most amazing eyes. I'm sure you get told that a lot. What would you call them?" Maybe starting my day sitting outside was a mistake. 000
Sari M @smauro1622.bsky.social · 15/05/2025When you didn't feel well enough to make a proper packed lunch the night before... 000
Sari M @smauro1622.bsky.social · 05/05/2025My boss approved my blog post with no notes, so clearly I've gotten an A in Blog Posts (a thing that is both normal to want and possible to achieve). 010
Sari M @smauro1622.bsky.social · 01/05/2025"Let me finish what I was saying before the sewage email." -- Things said in a work meeting this morning. This week is particularly cursed. 000
Sari M @smauro1622.bsky.social · 30/04/2025Genuinely can't recommend enough hiring Alex to help you choose colors for your space! Not only are all of my spaces perfect, having a color story to build from made doing my own decorating so much more delightful! 021
Sari M @smauro1622.bsky.social · 21/04/2025More like dysautoNO! God, please! NO!mia, amiright?media.tenor.comNo God Please No No GIFAlt: Michael Scott from the office yelling No God Please No 010
Sari M @smauro1622.bsky.social · 07/04/2025I have a cat in my lap. But I also have cake in the kitchen. Truly the thorniest of conundrums. 010
Sari M @smauro1622.bsky.social · 28/03/2025I'm sitting here trying desperately to figure out who has been in my office, heavily perfumed, since I left to get water. Turns out it's the hand soap in the staff kitchen that I used 😭 130
Sari M @smauro1622.bsky.social · 24/03/2025So this past Saturday I had a severe (contemplating going to the ER severe) MCAS* flare. And now I have an appointment with Allergy & Immunology tomorrow morning. Trying not to panic?? (*Not officially diagnosed, but 3 providers familiar enough to suspect but not diagnose all agree it's MCAS) 100
Sari M @smauro1622.bsky.social · 16/03/2025My mast cells woke up and chose violence. I'm reacting to my morning black tea 😭 230
Sari M @smauro1622.bsky.social · 07/03/2025I would like my body/autonomic nervous system to PICK A G-D STRUGGLE. Sari, surely it can't be that bad? Yesterday it was TACHYCARDIA. Today it is BRADYCARDIA. OMFG 220
Sari M @smauro1622.bsky.social · 03/03/2025[medically restricted diet] 1: nope, still can't eat apples. Even if I avoid the skin. 2: Love how they've added a ! to the liquid benadryl flavor "Cherry!" so that you know what you're getting is not actual cherry flavor 120
Sari M @smauro1622.bsky.social · 26/02/2025What if I did some kind of fiber arts visualization of my crip tax? Like a temperature blanket, but for $$$ spent on keeping me as functional as possible.... (this question brought to you by the utter f--ckery that is going down in my health insurance claims right now) 240
Sari M @smauro1622.bsky.social · 26/02/2025Spending my morning writing documentation on how to digitize old video formats for an audience which includes people who may have never played a VHS before. It's like solving a particularly weird logic puzzle... 000
Sari M @smauro1622.bsky.social · 22/02/2025Don't underestimate the loveliness of a curated color palette for your spaces!! Working with Alex was easy and lovely and, a year and a half later, I'm still so in love with the color choices for my whole condo! 111
Sari M @smauro1622.bsky.social · 21/02/2025Very grateful to have friends and friendships where we speak candidly and take action to keep each other safe. Currently sitting here masked waiting for my COVID test to run 💜 010
Sari M @smauro1622.bsky.social · 10/02/2025When the 'first available' follow up with autonomic is August 😭 010
Sari M @smauro1622.bsky.social · 08/02/2025Me, several times in the last week when the dysautonomia was flared and uncontrolled: a pace points budget of 9 is unrealistic! I'm literally sitting still and about to go over! It's impossible! Me today, with the dysautonomia controlled: it - it's 7:30pm and I've only used... 2 pace points... Oh 120
