iiinova — where your digital self keeps evolving

Sickle Cell Society @sicklecelluk.bsky.social · 23h

October is Black History Month. This year's theme: Honouring Our Communities. Ours was built by parents, nurses, volunteers and donors. This month we're honouring them. #BlackHistoryMonth #HonouringOurCommunities

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Sickle Cell Society @sicklecelluk.bsky.social · 30/09/2026

🩸 Just 3% of current blood donors are of Black heritage, yet Black heritage donors are more likely to have the Ro blood type needed by many people living with sickle cell. This #SickleCellAwarenessMonth, could you become a donor? #SickleCell #GiveBlood #GiveBloodSpreadLove

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Sickle Cell Society @sicklecelluk.bsky.social · 28/09/2026

⏰ 2 DAYS TO GO The APPG on Sickle Cell and Thalassaemia’s Call for Evidence closes 30 September. Your experiences and expertise can help inform its inquiry into improving sickle cell and thalassaemia services. Find out more via our website. #SickleCell #Thalassaemia #APPG

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Sickle Cell Society @sicklecelluk.bsky.social · 25/09/2026

🩸 For Portia, donated blood means more time feeling healthy and spending time with her family. This #SickleCellAwarenessMonth, we’re highlighting the difference blood donors can make to people living with sickle cell. Could you become a donor? #SickleCell #GiveBlood #GiveBloodSpreadLove

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Sickle Cell Society @sicklecelluk.bsky.social · 23/09/2026

🧡 Knowing your status matters. Taiwo lives with sickle cell disorder, while her twin sister does not – despite both parents having sickle cell trait. This #SickleCellAwarenessMonth, know your status and make informed choices about your health and future. #SickleCell #SickleCellTrait #KnowYourStatus

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Sickle Cell Society @sicklecelluk.bsky.social · 21/09/2026

Teachers, support staff and educators are invited to an NHS England webinar on 29 September on new school resources for sickle cell. Join to find out more, explore the resources and ask questions. Register for the webinar here: buff.ly/RXbla1j. #SickleCellAwarenessMonth

eventbrite.co.uk

Sickle Cell: A guide for schools and educators

Webinar on sickle cell education support, national e-learning resources & care plans, with specialist speakers and live Q&A.

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Sickle Cell Society @sicklecelluk.bsky.social · 18/09/2026

🧡This #SickleCellAwarenessMonth, we’re shining a light on our Youth Mentoring Programme. With 300+ referrals, the programme has grown beyond London to Liverpool, Manchester & Sheffield, connecting young people with mentors who understand. Find out more: buff.ly/XEzQ83Q #YoungVoicesRising #SickleCell

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Sickle Cell Society @sicklecelluk.bsky.social · 16/09/2026

This #SickleCellAwarenessMonth, we’re working towards a better future for young voices. 🧡 The Sickle Cell APPG is up and running again, bringing our community together to continue important conversations and drive change. 📢 Call for Evidence closes 30 September. Swipe for details. #SickleCellAPPG

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Sickle Cell Society @sicklecelluk.bsky.social · 14/09/2026

For #SickleCellAwarenessMonth, we’re encouraging young people living with sickle cell to take an active role in their health. 🧡 Know your condition. Use your voice. Build your support network. And remember, owning your health doesn’t mean doing it alone. #YoungVoicesRising #OwnYourHealth

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Sickle Cell Society @sicklecelluk.bsky.social · 11/09/2026

🧡 Do you know your sickle cell status? You can find out through newborn screening, during pregnancy or by asking your GP for a blood test. This #SickleCellAwarenessMonth, get informed, ask questions and #KnowYourStatus. #SickleCell #SickleCellTrait

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Sickle Cell Society @sicklecelluk.bsky.social · 10/09/2026

📢 We’re recruiting our next Chief Executive. Our CEO John James will be retiring in 2027, and we’re looking for an inspiring leader to take the Sickle Cell Society into its next chapter.📅 Apply by 11 October 2026. Find out more & apply: buff.ly/BWCLdxK #SickleCellSociety #CharityJobs #Leadership

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Sickle Cell Society @sicklecelluk.bsky.social · 09/09/2026

📢 Last chance to get your AGM tickets! Join us this Saturday 12 September at 10:30am for the Sickle Cell Society Annual General Meeting in London. 🎟️ Registration fee includes lunch. Secure your place today! #SickleCellSociety #AGM2026 #SickleCellAwarenessMonth

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Sickle Cell Society @sicklecelluk.bsky.social · 09/09/2026

🧡 Do you know the difference between sickle cell trait and sickle cell disorder? This #SickleCellAwarenessMonth, we’re breaking down the difference and how sickle cell is inherited. 👉 Swipe to learn more. Knowledge matters. Know your status. #SickleCell #SickleCellTrait

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Sickle Cell Society @sicklecelluk.bsky.social · 08/09/2026

🧡 Join us for Living Well With Sickle Cell, a community drop-in event this #SickleCellAwarenessMonth. 📅 22 September | 11am–2pm 📍 Sickle Cell & Thalassaemia Centre, East Ham Come along to learn about sickle cell, treatments and local support. #SickleCell

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Sickle Cell Society @sicklecelluk.bsky.social · 07/09/2026

🧡 This #SickleCellAwarenessMonth, we’re looking back at some special moments from Family Retreat 2026! A chance for children, young people and families to connect, have fun and make lasting memories. 🐰 A special shout-out to Miffy for joining us again this year! #FamilyRetreat2026 #SickleCell

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Sickle Cell Society @sicklecelluk.bsky.social · 05/09/2026

📢 Join us for the Sickle Cell Society AGM 2026! 📅 12 September | 10:30am 📍 De Vere Grand Connaught Rooms, London Please note, there is a registration fee this year, which covers lunch. Scan the QR code to secure your place! 🧡 #SickleCell #AGM2026

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Sickle Cell Society @sicklecelluk.bsky.social · 04/09/2026

🩸 This #SickleCellAwarenessMonth, we’re teaming up with Give Blood Spread Love to encourage more people to give blood. You can donate from 17, and if you have sickle cell trait, you may still be able to donate. 👉 Swipe to learn more and join the Give Blood Squad. #GiveBloodSpreadLove #SickleCell

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Sickle Cell Society @sicklecelluk.bsky.social · 03/09/2026

📢 Join the SELSE HCC Sickle Cell Patient & Staff Education Day on 23 September, 10am–4pm via MS Teams. Our Sickle Cell Society Mentoring Team will be presenting, alongside sessions for patients, families and healthcare professionals. Scan the QR code to join! #SickleCell #SickleCellAwarenessMonth

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Sickle Cell Society @sicklecelluk.bsky.social · 02/09/2026

🧡 September is #SickleCellAwarenessMonth. We’re raising awareness, sharing the facts and amplifying the voices of people living with sickle cell. 👉 Swipe through for key facts and figures and help us spread awareness by sharing. #SickleCell #YoungVoicesRising #OwnYourHealth

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Sickle Cell Society @sicklecelluk.bsky.social · 01/09/2026

September is Sickle Cell Awareness Month. We're staying with Young Voices Rising. Young people with sickle cell aren't waiting for their lives to start — they're managing their own care right now. Own your health now. 🔴 #YoungVoicesRising

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Sickle Cell Society @sicklecelluk.bsky.social · 27/08/2026

📢 Five years on from No One's Listening — what's actually changed? The APPG and Sickle Cell Society wants your evidence on #sicklecell and #thalassaemia service improvement. Deadline: Wed 30 September. Questions + how to submit ⬇️ buff.ly/6UjytGC #HealthEquity

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Sickle Cell Society @sicklecelluk.bsky.social · 13/08/2026

Where do you go for information about your condition? NHS England wants to hear from people living with sickle cell or thalassaemia. Complete the short survey to help improve patient information and resources. 📱 Scan the QR code to take part and share with friends and family. #SickleCell

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Sickle Cell Society @sicklecelluk.bsky.social · 11/08/2026

⛳ A huge thank you to everyone involved in the Windrush Trophy Charity Golf Day at Woolston Manor Golf Club, which raised an incredible £2,000 for the Sickle Cell Society. Special thanks to Charles Sam, Windrush Trophy and Woolston Manor for making it such a success. 💙 #SickleCell #Fundraising

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Sickle Cell Society @sicklecelluk.bsky.social · 05/08/2026

Are you a young person (13-24) living with sickle cell? Or a parent/caregiver of someone who is? We want to hear about your experiences of healthcare transition from children's to adult services. For more information follow the link: buff.ly/SkZ3hRN

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Sickle Cell Society @sicklecelluk.bsky.social · 06/07/2026

🏺✨ Join us for The Ancestral Spine – Intro to Coil Pottery on 18 July at Bay20 Community Centre, Ladbroke Grove. 🎟️ Free to attend, but spaces are limited. 👉 Scan the QR code on the next slide to book your place. #SickleCell #CreativeWorkshop #CoilPottery #ArtAndWellbeing

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Sickle Cell Society @sicklecelluk.bsky.social · 29/06/2026

🎨🌿 Join us for Colours of the Earth – Pigment to Paint, the next session in our Creative Workshop Series. 📅 4 July 2026 📍 Bay20 Community Centre, Ladbroke Grove ✨ Free to attend 👉 Scan the QR code on the next slide to book your place. #SickleCell #CreativeWorkshop #ArtAndWellbeing #CommunityArts

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Sickle Cell Society @sicklecelluk.bsky.social · 22/06/2026

☀️A red heat health alert has been issued for parts of England this week. Hot weather can increase the risk of dehydration, which may trigger a #sicklecell crisis. Stay hydrated, keep cool and listen to your body. More information can be on our website buff.ly/gzYV8TH

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Sickle Cell Society @sicklecelluk.bsky.social · 21/06/2026

💙 Happy Father's Day to all the dads, grandads and father figures in our community. Thank you for your love, strength and support. Today, we celebrate everything you do for your families and loved ones. #FathersDay #HappyFathersDay #SickleCellCommunity

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Sickle Cell Society @sicklecelluk.bsky.social · 19/06/2026

💃💙 As part of #WorldSickleCellDay2026, Isabelle Prempeh shares an uplifting message with the sickle cell community about finding an outlet that helps you breathe, feel fulfilled and pursue your passions.🔗 buff.ly/mgM8VdC #YoungVoicesRising #OwnYourHealth

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Sickle Cell Society @sicklecelluk.bsky.social · 19/06/2026

What would you say to your younger self? Older members of the sickle cell community have shared powerful Letters to My Younger Self, reflecting on their experiences, challenges and lessons learned over the years. Read the full letters here: www.sicklecellsociety.org/wscd26/ #WorldSickleCellDay2026

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Sickle Cell Society @sicklecelluk.bsky.social · 19/06/2026

As part of #WorldSickleCellDay2026, Marilen shares a powerful spoken-word piece reflecting on her experiences of living with sickle cell. Watch, listen and learn more about the campaign: www.sicklecellsociety.org/wscd26/ #YoungVoicesRising #OwnYourHealth

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Sickle Cell Society @sicklecelluk.bsky.social · 19/06/2026

🩸 Today is #WorldSickleCellDay2026. This year's theme, #YoungVoicesRising, celebrates the strength and experiences of young people living with sickle cell. Around 19,000 people live with sickle cell in the UK. Together, let's ensure every voice is heard. #OwnYourHealth

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Sickle Cell Society @sicklecelluk.bsky.social · 16/06/2026

📣 Reminder: The Sickle Cell Engagement Event has been rescheduled, and the new date has now been confirmed. 📅 25 July 2026 | ⏰ 12–3pm 📍 Guy's Hospital or join online We hope to see you there as we continue conversations to improve sickle cell care. #SickleCell #PatientVoice

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Sickle Cell Society @sicklecelluk.bsky.social · 15/06/2026

💛 Thank you to Core Sports for another fantastic fundraising match in support of the Sickle Cell Society. Congratulations to DR Congo on their win over Jamaica, and to Core Sports on celebrating their 1-year anniversary. We look forward to future collaborations! #SickleCell

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Sickle Cell Society @sicklecelluk.bsky.social · 11/06/2026

Join us this #WorldSickleCellDay2026 as we celebrate #VoicesOfResilience and amplify the stories of those living with sickle cell. 📅 19 June | ⏰ 10am–5pm 📍 Camden Town Hall, London ❤️ Wear red. Share your story. Be part of the change. #SickleCell #SickleCellAwareness

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Sickle Cell Society @sicklecelluk.bsky.social · 10/06/2026

"Delighted to be presenting at #FSCDR and sharing ideas and developments shaping the future of sickle cell care. It was also a pleasure to connect with colleagues, including Cassandra Trimmell from Sickle Cell 101." – John James, CEO, Sickle Cell Society. #SickleCell #HealthEquity #PatientAdvocacy

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Sickle Cell Society @sicklecelluk.bsky.social · 09/06/2026

Creative Saturdays for the Sickle Cell Community. Free workshops • Free lunch • Free to join ❤️Friends and family welcome! Bay20 Community Centre, Ladbroke Grove🕐 Saturdays, 1–5 PM📅 13 Jun – 25 Jul | Final showcase 01 Aug 👉 Limited tickets book now buff.ly/JvhD6jn

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Sickle Cell Society @sicklecelluk.bsky.social · 05/06/2026

🎨 Join us for Workshop 1: All About Me – the first in our Sickle Cell Hope Creative Art Workshop Series. 📅 13 June | ⏰ 1–5pm 📍 Bay20 Community Centre, Ladbroke Grove 🎟️ Free tickets: www.eventbrite.co.uk/e/make-share... #SickleCell #CreativeWorkshop #CommunityArts

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Sickle Cell Society @sicklecelluk.bsky.social · 01/06/2026

Join us for the South East London Sickle Cell Community Picnic! 📅 20 June 2026 | ⏰ 11am–3pm 📍 Crystal Palace Park Cricket Pitch A free day of food, activities, support and community for people living with sickle cell, their families and the wider community.🔗 bit.ly/sickle-cell-picnic #SickleCell

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Sickle Cell Society @sicklecelluk.bsky.social · 29/05/2026

We're proud to launch our World Sickle Cell Day 2026 theme: Young Voices Rising. Young people living with sickle cell are rising to the challenge of their condition, and we're spotlighting their voices. Join us on 19 June. See our website for more. #YoungVoicesRising #WorldSickleCellDay2026

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Sickle Cell Society @sicklecelluk.bsky.social · 26/05/2026

📣 Are you living with both sickle cell & learning disabilities, or support someone who is? Researchers want to hear your experiences to help shape future research and improve healthcare outcomes. 📲 Scan the QR code or contact details on the flyer to get involved. #SickleCell #LearningDisabilities

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Sickle Cell Society @sicklecelluk.bsky.social · 22/05/2026

📣 Our CEO John James will be speaking at the 49th National Sickle Cell Disease Scientific Meeting & Research Symposium. Proud to see the Sickle Cell Society contributing to global conversations shaping the future of sickle cell care and research. 🔗 www.fscdr.org #SickleCell #Research #HealthEquity

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Sickle Cell Society @sicklecelluk.bsky.social · 20/05/2026

📢 We’re hiring: Fundraising Database Officer Help strengthen supporter engagement and fundraising impact at the Sickle Cell Society. 📅 Apply by 7 June 2026 🔗 www.sicklecellsociety.org/fundraising-... #SickleCell #Hiring #FundraisingJobs

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Sickle Cell Society @sicklecelluk.bsky.social · 19/05/2026

🏃‍♂️ Great to meet some of our amazing Hackney Half runners on Sunday, including Jordan & Elom, running for the Sickle Cell Society. Shoutout to Emancipated Run Crew for showing out for #GiveBloodSpreadLove too 💛 Thank you to everyone who ran & fundraised! #HackneyHalf #TeamSickleCell #Fundraising

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Sickle Cell Society @sicklecelluk.bsky.social · 18/05/2026

📢 We’re hiring: Prison Estate Training & Development Lead (London) Help lead an NHS England pilot project improving care and reducing health inequalities for people living with sickle cell in custody.📅 Apply by 22 June 2026🔗 www.sicklecellsociety.org/fundraising/... #Hiring #SickleCell #HealthEquity

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Sickle Cell Society @sicklecelluk.bsky.social · 15/05/2026

🏃‍♀️ Hackney Half 2026 – Come cheer with us! Join Team Sickle Cell at Mile 5, then help us cheer runners through to the finish 🏁 📅 17 May 2026 ⏰ 10:30am–12pm 🚆 Hackney Central #HackneyHalf #TeamSickleCell #CheerZone

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Sickle Cell Society @sicklecelluk.bsky.social · 08/05/2026

Men aged 35+ attending KCH Hospital are invited to the final Ageing Well with Sickle Cell focus group. 28 May | ⏰ 6–8pm 🎟 £50 Love2shop voucher for attendees. Can’t attend? Share your thoughts here: www.menti.com/alnt2nxu4bwu 🔗 Book now: events.bookitbee.com/kings-colleg... #SickleCell

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Sickle Cell Society @sicklecelluk.bsky.social · 27/04/2026

POV: London Marathon 2026 A huge thank you to everyone who ran for the Sickle Cell Society — your dedication, energy and commitment means so much 💛 It was incredible to have our team at Mile 16.3, cheering you on every step of the way. We’re so proud of you all! #LondonMarathon #TeamSickleCell

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Sickle Cell Society @sicklecelluk.bsky.social · 20/04/2026

🏃‍♂️ London Marathon 2026 Join us & Emancipated Run Crew at Mile 16.3 to cheer on our runners! 📍 New Balance Cheer Zone 2 ⏰ 11:30–12pm 🚆 Mudchute (DLR) Bring the energy and support Team Sickle Cell 💪 #LondonMarathon #TeamSickleCell #CheerZone

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Sickle Cell Society @sicklecelluk.bsky.social · 17/04/2026

🎭 Crescent Cell, Sickle Moon A powerful and imaginative new play exploring care, pain and trust for people experiencing sickle cell crises — co-created with the community. 🔗 buff.ly/qANBQUn #SickleCell #Theatre #HealthEquity #PatientVoice

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