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Sharon F. Terry

@sharonterry.bsky.social
66 followers 49 following 7 posts

Passionate about justice. Crusader for recognizing that people have power, and don't need to be empowered. President and CEO, Genetic Alliance President and CEO, PXE International President, EspeRare Tufts CTSI

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Reposted by Sharon F. Terry
Liz (or Lizzie) Kim 김혜성 💫 @lizzielizliz.bsky.social · 15/03/2025
We would like a new law passed.
We should pass a woman’s heartbeat law: if a woman has a heartbeat, you can’t tell her what to do with her body, ever.
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Sharon F. Terry @sharonterry.bsky.social · 14/03/2025
Please send this far and wide to federal workers who are still serving us, and those who were let go or fired: drive.google.com/file/d/10_pH...
drive.google.com
An Open Letter of Appreciation to Federal Employees.pdf
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Sharon F. Terry @sharonterry.bsky.social · 14/03/2025
Thanks to all who signed this letter thanking Federal workers - drive.google.com/.../10.../vi.... Please share it with your favorite federal staff! #silenceiscomplicity
drive.google.com
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Sharon F. Terry @sharonterry.bsky.social · 10/03/2025
YES!
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Sharon F. Terry @sharonterry.bsky.social · 29/11/2024
Black Friday. Do we have a deal for you! For just $99.99 (OK, actually $100) you can enable a baby or child from an under-resourced community (LMIC) to receive clinical genomic testing and get on their way to a diagnosis. This is a phenomenal deal. Act now! www.zeffy.com/fundraising/...
zeffy.com
Donate to Cover Testing for a Family
We’re thrilled to share the incredible progress of the iHope Genetic Health program—and to let you know how urgently your help is needed to make an even bigger impact right now! With three top labs al...
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