iiinova — where your digital self keeps evolving

Reposted by Ricky Chotai

Lupus Europe @lupuseurope.bsky.social · 12/06/2025

🚨 Do men with #lupus receive the support they need? 😃 Join us today at room C3, as @rickychotai.co.uk, Special Advisor to the Board & Co-leader of our Men's network, presents data from our Swiss Knife Survey on stigma, #depression & unmet needs of men living with #SLE. #EULAR2025

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Reposted by Ricky Chotai

Lupus Europe @lupuseurope.bsky.social · 27/05/2025

🦋Lupus Europe’s 2024 Swiss Knife Survey is now published in Autoimmunity Reviews! With 4525 responses from 36 countries, it’s a🔝step forward in understanding the real burden of SLE from the patient’s perspective. f.mtr.cool/xrvljwnsvd

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Lupus Europe @lupuseurope.bsky.social · 29/05/2025

🌟 Being a finalist in the 2025 Made with Patients Awards is recognition of LupusGPT’s mission to empower the #lupus community with: ✅ Reliable, evidence-based information about lupus ✅ Free access ✅ Multilingual support to break language & literacy barriers

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Reposted by Ricky Chotai

Lupus Europe @lupuseurope.bsky.social · 04/04/2025

😃Our Board & Extended Board met last week for2️⃣exciting days of work on the strategic plan. Joined by NVLE to kick off the planning of our 2025 Convention, which will take place in the Netherlands! 👥Also hosted an engaging Industry Roundtable, with updates, workshops and more!

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Ricky Chotai @rickychotai.co.uk · 27/03/2025

Big news! 🎉 My abstract, “Living with lupus as a man – a major challenge to image of self”, has been selected for an Oral Presentation at #EULAR2025 in Barcelona! 💜 Grateful for @lupuseurope.bsky.social support & excited to share this important topic. #LupusAwareness #Rheumatology

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Ricky Chotai @rickychotai.co.uk · 20/03/2025

Off to Amsterdam for my first @LupusEurope board meeting !

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Ricky Chotai @rickychotai.co.uk · 12/03/2025

Amazing show loving sterling

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Reposted by Ricky Chotai

RAIRDA @rairda.bsky.social · 12/03/2025

@lupusuk.bsky.social is conducting a survey to understand what is important to you as someone living with lupus, or caring for someone with #lupus, and what you think the charity should be focusing on to better support your needs. For more information, visit: www.lupusuk.org.uk/2025/03/04/survey

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Ricky Chotai @rickychotai.co.uk · 04/03/2025

UK healthcare pros & lupus researchers: Your input is crucial! 🏥🔬 Help @lupusuk.bsky.social shape support for lupus patients. Quick, anonymous survey closing May 1st, 4PM BST. Your expertise can make a difference! Survey link: bit.ly/Lupussurveyhcp #Lupus #UKHealthcare #LupusResearch

bit.ly

The needs of the lupus community

Take this survey powered by surveymonkey.com. Create your own surveys for free.

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Ricky Chotai @rickychotai.co.uk · 28/02/2025

Today I think is very much a moment in history and sadly for the world it feels even more scary. The Ukrainian people have fought hard for their freedom and it is not up to Trump if and when they should compromise.

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Ricky Chotai @rickychotai.co.uk · 28/02/2025

Wendy is an amazing advocate and campaigner for #lupus and volunteers significantly for @lupusuk.bsky.social. We the #lupus community are lucky to have her!

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Reposted by Ricky Chotai

University of Oxford @ox.ac.uk · 28/02/2025

Last night, the chapel facade of Magdalen College was lit up ahead of #RareDiseaseDay. A disease is classed as rare when it affects fewer than 1 in 2000 people and there are over 3.5 million people living with a rare condition in the UK alone. 📷 | @oxfordpaediatrics.bsky.social

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Ricky Chotai @rickychotai.co.uk · 27/02/2025

✨ *Breaking News!* ✨ The latest issue of *New Scientist* highlights amazing progress in autoimmune disease research (lupus, rheumatoid arthritis, Type 1 diabetes). Hope is on the horizon! 💜 Read about CAR-T cell therapy for lupus via @lupusuk.bsky.social : lupusuk.org.uk/2024/11/08/c...

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Ricky Chotai @rickychotai.co.uk · 22/02/2025

Just wrapped up our virtual trustee board meeting at @lupusuk.bsky.social 📊💻! Exciting plans ahead for our 35th year 🎉 and a fresh strategy on the horizon 🚀. Let's make it a year to remember! 💜 Follow @lupusuk.bsky.social for more updates 📱 #LupusUK #Lupus

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Ricky Chotai @rickychotai.co.uk · 17/02/2025

Wrapped up my final onboarding meeting with @lupuseurope.bsky.social today! Excited to dive into impactful projects for the European Lupus Community, including exploring the intersection of #sex and #lupus. Thrilled to work alongside such an inspiring team!

media.tenor.com

a cat is dancing in front of a mirror with its paws up

ALT: a cat is dancing in front of a mirror with its paws up

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Reposted by Ricky Chotai

Lupus Europe @lupuseurope.bsky.social · 17/02/2025

🦋 Lupus Europe, Prof Arnaud, and Dr @go-daniel.bsky.social are thrilled to unveil LUPUS-ALERT! 🌍 A groundbreaking global project to transform SLE care: 𝐋𝐔𝐏𝐔𝐒 erythematosus glob𝑨L cont𝐄xt sc𝐑eening 𝐓ool. Thank you to all the Doctors & patients driving this key project forward!

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Ricky Chotai @rickychotai.co.uk · 05/02/2025

I have not seen this sort of innovation in the Health Charities or non profits. Great to see AI being used to improve the patient experience. #lupus #ai #innovation

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Ricky Chotai @rickychotai.co.uk · 05/02/2025

Ooo welcome to Bluesky @lupuseurope.bsky.social if you are interested in #Lupus things check them out. If you are UK based check out @lupusuk.bsky.social

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Ricky Chotai @rickychotai.co.uk · 03/02/2025

I'm Ricky, based in Manchester. Living with #Lupus and doing some volunteer work with two brilliant organisations - @lupusuk.bsky.social and Lupus Europe. When I'm not going on about #lupus, you'll probably see me posting about #LoveSUs and #realitytv.

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Ricky Chotai @rickychotai.co.uk · 03/02/2025

An excellent meeting with the #LupusEurope team. So many exciting projects going on. Looking forward to the next few months. #Lupus

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Ricky Chotai @rickychotai.co.uk · 03/02/2025

Stark facts about health care inequality for lupus patients in the UK. @lupusuk.bsky.social #lupus

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Ricky Chotai @rickychotai.co.uk · 15/01/2025

The team at the charity are amazing as well as so many volunteers!

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Ricky Chotai @rickychotai.co.uk · 14/01/2025

A bit more of my story is here and I volunteer for Lupus UK. lupusuk.org.uk/trustees/

lupusuk.org.uk

Trustees of LUPUS UK | Lupus UK

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Ricky Chotai @rickychotai.co.uk · 14/01/2025

Hi Harry. I'm Ricky from the UK and I also have Lupus. 👋🏽

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Ricky Chotai @rickychotai.co.uk · 12/01/2025

I am not sure maybe the wonderful @chriswincup.bsky.social knows?

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Ricky Chotai @rickychotai.co.uk · 12/01/2025

🤯 Never thought I'd be co-authoring an abstract for submission to the European Alliance of Associations for Rheumatology (@EULAR)! Stepping outside my comfort zone has been an incredible learning experience. ✨ Fingers crossed for acceptance! #Research #Teamwork #lupus

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Reposted by Ricky Chotai

ethan in the ether @ethanlmp.bsky.social · 03/01/2025

okay I love this diva 💅 #TheTraitors

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Reposted by Ricky Chotai

Scott Bryan @scottygb.bsky.social · 03/01/2025

i'm sorry to hear that your grandma passed away yeah i actually am like obviously i'm i'm going to be upset about that ... and I don’t wanna be mates with you alright’ #TheTraitors

contestant on the traitors saying "obviously, I feel sorry for her. it's your sister, but, come on."

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Ricky Chotai @rickychotai.co.uk · 07/12/2024

🦋 Important #Lupus debate in Westminster Hall - Tues 10th Dec, 9:30am!Jim Shannon MP is raising rare autoimmune rheumatic diseases. This is our chance to be heard!📝 Want your MP to attend?https://bit.ly/lupus-template .Let's make our voices count! 💜#LupusAwaness #RareDisease #lupus

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Ricky Chotai @rickychotai.co.uk · 06/12/2024

Hi Anna 👋🏽 sadly I am part of the #lupus club!

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Ricky Chotai @rickychotai.co.uk · 03/12/2024

Stuck on an awful rammed @crosscountryuk.bsky.social train luckily I have a seat. This track is making the journey manageable. Such a Tune! M83- Midnight City (Eric Prydz Private Remix) youtu.be/iE7dy6NQzxM?... #ClassicDanceAnthems

youtu.be

M83 - Midnight City (Eric Prydz Private Remix)

YouTube video by Erol Kaplan

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Ricky Chotai @rickychotai.co.uk · 02/12/2024

Also how do brands not know how to use @bsky.app . Like @crosscountryuk.bsky.social @vodafonegroup.bsky.social @northernassist.bsky.social surely you would self verify to show you are legitimate. Takes 2 mins with a txt file on your domain.

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Ricky Chotai @rickychotai.co.uk · 02/12/2024

Time to pray to the gods that I will actually get a seat on my @crosscountryuk.bsky.social train tomorrow. In peak times

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Ricky Chotai @rickychotai.co.uk · 02/12/2024

This is worrying and shows that supermarkets need to take procurement / supply chain more seriously. BBC News - ‘Italian’ purees likely to contain Chinese forced-labour tomatoes - BBC News www.bbc.co.uk/news/article...

bbc.co.uk

‘Italian’ purees likely to contain Chinese forced-labour tomatoes

Some products described as “Italian” appear to contain Chinese tomatoes, BBC investigation suggests.

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Ricky Chotai @rickychotai.co.uk · 24/11/2024

Simple ideas, often overlooked in HE, can be stifled by complex governance. This is a shame, as students ultimately pay the price. #HEreform #innovation

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Ricky Chotai @rickychotai.co.uk · 24/11/2024

The last time I looked into this 10 + years ago there was issues with VAT and shared services such as HR and Finance. I wonder if this is the case ? 🤔

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Reposted by Ricky Chotai

Gwen @gwenp0ol.bsky.social · 21/11/2024

This was me yesterday. WHY ARE YOU LIKE THIS, BODY? WHO HURT YOU, CAUSE IT WASN’T ME! #lupus #POTS #MALS #spoonie #chronicallyill #funny

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Ricky Chotai @rickychotai.co.uk · 21/11/2024

@c-flurey.bsky.social Are you interested in the topic of lupus in men? I would love to connect with you. I am involved with Lupus UK and Lupus Europe, and this is a passion of mine. I would be delighted to speak with you if this is an area of interest for you.

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Ricky Chotai @rickychotai.co.uk · 21/11/2024

Thanks so much for your research into this awful disease! I will complete this now.

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Reposted by Ricky Chotai

Dr Caroline Flurey @c-flurey.bsky.social · 21/11/2024

‼️Are you a health professional in the UK who works with people with #lupus ? Please complete our survey study funded by Lupus UK to help find out how to best support you to support these patients: uwe.eu.qualtrics.com/jfe/form/SV_... #medsky #rheumsky #rheumatology

uwe.eu.qualtrics.com

Qualtrics Survey | Qualtrics Experience Management

The most powerful, simple and trusted way to gather experience data. Start your journey to experience management and try a free account today.

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Ricky Chotai @rickychotai.co.uk · 21/11/2024

Lupus is a tough disease to deal with, and I truly understand your struggles as someone who also lives with it.

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Ricky Chotai @rickychotai.co.uk · 21/11/2024

I found sharing on linked in helped and also hash tags. There is also a chrome extension that tries to find your x followers. Does not work 100% of the time but still useful

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Ricky Chotai @rickychotai.co.uk · 21/11/2024

It is so easy to do and it annoys me that brands and not doing this.

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Ricky Chotai @rickychotai.co.uk · 19/11/2024

Honoured to join the "Building Inclusive Boards" panel with Association of Chairs and Action for Trustee Racial Diversity . Inspiring discussion on creating diverse and inclusive boards. Let's work together for a more equitable future. #inclusivity #diversity #charity #trustees #boardgovernance

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Ricky Chotai @rickychotai.co.uk · 18/11/2024

🌟 Exciting news! I’ve moved to Bluesky Social as my new go-to platform. 🚀 It’s growing fast with 1M new sign-ups post-US election. 🔄 No algorithm tinkering here: Bluesky shows posts based on genuine engagement. Let’s connect!

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