iiinova — where your digital self keeps evolving

Rare Disease Research Network_RDRN @rd-rn.bsky.social · 14/03/2025

Why join RDRN as a healthcare professional? • Empower rare diseases patients to get involved in research • Share your expertise • Become an ambassador for the patient-driven research movement Learn more here: rd-rn.org/why-join/hea... #RareDisease #RareDiseaseResearch #HealthcareProfessionals

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Rare Disease Research Network_RDRN @rd-rn.bsky.social · 10/03/2025

Did you know we currently have over 205 members signed up to RDRN? Our community is constantly growing, with 47 connections made and 10 research ideas shared! We welcome anyone who is interested in rare disease research. Find out more here: rd-rn.org #RareDisease #RareDiseaseResearch #RDRN

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Rare Disease Research Network_RDRN @rd-rn.bsky.social · 25/02/2025

The Rare Disease Research Network is an inclusive, supportive networking hub for anyone interested in rare disease research. Find out more on how it works by clicking here: rd-rn.org/how-it-works/ #RareDisease #RareDiseaseResearch #RareDiseaseResearchNetwork

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Rare Disease Research Network_RDRN @rd-rn.bsky.social · 11/02/2025

Join RDRN so you’ll also have the opportunity to include patient groups into your research, building impactful studies enriched with insights from lived experience, ensuring your work is more ethical, responsive, and grounded in real-world needs #RareDisease #RareDiseaseResearch

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Rare Disease Research Network_RDRN @rd-rn.bsky.social · 10/02/2025

Join RDRN to enhance your organisation's impact and visibility; access a network dedicated to rare diseases to strengthen PPI; gather insights into cutting-edge developments, network with engaged community members, and learn from peer organisations. #RareDisease #RareDiseaseResearch

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Rare Disease Research Network_RDRN @rd-rn.bsky.social · 06/02/2025

RDRN supports individuals in forming teams that provide opportunities to collaborate, innovate, and drive meaningful change. Find out more about joining RDRN as an individual here: rd-rn.org/why-join/ind... #RareDisease #RareDiseaseResearch #RareDiseaseCommunity

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Rare Disease Research Network_RDRN @rd-rn.bsky.social · 31/01/2025

Can’t wait to celebrate #RareDiseaseDay2025 with the community at @camrare.bsky.social Rare-I-Tea Party! 🎈 🥳

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Rare Disease Research Network_RDRN @rd-rn.bsky.social · 30/01/2025

We’re hosting lunchtime webinars to further patient collaborative research! We’re interested to understand more about the motivations (and challenges) when trying to conduct patient collaborative research. To share your insights or to learn more, click here: lnkd.in/e_bQdMrW

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Rare Disease Research Network_RDRN @rd-rn.bsky.social · 28/01/2025

Are you a patient, researcher, healthcare professional, or industry leader with ideas to improve the lives of those with rare conditions? Or a funder interested in patient-centred research? RDRN connects you to support, resources, and research priorities. Join RDRN now: rd-rn.org #RareDisease

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Rare Disease Research Network_RDRN @rd-rn.bsky.social · 23/01/2025

We are the new inclusive, supportive networking hub for everyone interested in rare disease research. Our patient-centred approach is turning research on its head, where we want to be part of the future of rare disease research. Find us at: rd-rn.org #RareDiseaseResearch #RareDiseaseCommunity

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