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Oregon RDAC Coalition @rarediseaseoregon.bsky.social · 20/02/2025

Calls & real-time meetings (constituents can visit a rep's town hall or schedule an appointment) are the most effective ways to contact your reps. Have questions? Need help contacting your rep? Need help figuring out what to say? If we have energy we're happy to help. #NothingAboutUsWithoutUs 7/7

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Oregon RDAC Coalition @rarediseaseoregon.bsky.social · 20/02/2025

If your rep isn't on the committee, they can still propose amendments to HB 2457, but some reps may refuse to discuss it unless a floor vote is scheduled. Whenever you make contact, explain that Oregon needs this legislation but it must be made more equitable, transparent, & patient-oriented. 6/

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Oregon RDAC Coalition @rarediseaseoregon.bsky.social · 20/02/2025

Calling ahead of the work session may not have much impact on HB 2457, but IF your rep is on the BH&HC committee AND you have the energy, it's a decent time to start calling and asking them to propose changes. You can check your rep & find tips for civic engagement @ gov.oregonlive.com/engage 5/

gov.oregonlive.com

Welcome to The Oregonian's guide to civic engagement. Here you can find out who the legislators and lobbyists are, where to find them, and the tricks that help you get heard.

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Oregon RDAC Coalition @rarediseaseoregon.bsky.social · 20/02/2025

Any rep. can propose amendments but if your rep. is a republican they're probably not movable on this issue, since our goal is to increase diversity & equity. W/the exception of Rep Conrad (now Ind), Oregon republicans have consistently opposed the interests of the most marginalized Oregonians. 4/

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Oregon RDAC Coalition @rarediseaseoregon.bsky.social · 20/02/2025

HB 2457 is @ the Committee for Behavioral Health & Health Care. 2025 members: Nosse (D-42-PDX) Nelson (D-44-PDX) Isadore (D-33-PDX) Pham (D-36-Hillsboro) Muñoz (D-22 Marion Co) McIntire (R-56-Eagle Pt) Diehl (R-17-Dexter) Javadi (R-32-Tillamook) Harbick (R-12-Lane Co) Name (Party-District-Area) 3/

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Oregon RDAC Coalition @rarediseaseoregon.bsky.social · 20/02/2025

The legislative process can be long. A bill might travel through multiple committees & have many public hearings, but each step gives the public an opportunity to tell legislators when a bill doesn't meet our needs. Oregon needs a commission on #RareDisease but HB 2457 doesn't meet that need. 2/

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Oregon RDAC Coalition @rarediseaseoregon.bsky.social · 20/02/2025

RDAC Bill (HB 2457) update: Work session scheduled for tomorrow (the 20th) @ 3:00pm. A "work session" generally means the committee will discuss one or more pieces of proposed legislation, but won't adopt changes during the session. 1/ #ORLeg #ORPol #DisabilityJustice #RareDisease #CripTheVote

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Oregon RDAC Coalition @rarediseaseoregon.bsky.social · 18/02/2025

Some of these bills have companions (bills in the other chamber) that aren't mentioned in this thread because I'm the only coalition member currently able to make these threads, but I'm very limited in spoons by my own disability. There are plans to publish more housing legislation threads soon.

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Oregon RDAC Coalition @rarediseaseoregon.bsky.social · 18/02/2025

Legiscan pages for these bills: 1. legiscan.com/OR/bill/SB64... 2. legiscan.com/OR/bill/HB23... 3 legiscan.com/OR/bill/SB58... 4. legiscan.com/OR/bill/HB22... 5. legiscan.com/OR/bill/SB10... legiscan.com/OR/bill/HB35... 6. legiscan.com/OR/bill/HB31...

legiscan.com

Oregon HB3111 | 2025 | Regular Session

Summary (2025-01-17) Relating to evictions; prescribing an effective date. [Referred to Housing and Homelessness with subsequent referral to Ways and Means.]

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Oregon RDAC Coalition @rarediseaseoregon.bsky.social · 18/02/2025

6. HB 3111 would require Housing and Community Services Dept. to develop a mandatory mediation program for evictions. It's a good idea; mediation is likely to slow the eviction process, but it must be amended. As-is, it places unreasonable burden on disabled ppl & ppl who work 9-5. No hearing yet.

olis.oregonlegislature.gov

HB3111 2025 Regular Session - Oregon Legislative Information System

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Oregon RDAC Coalition @rarediseaseoregon.bsky.social · 18/02/2025

5. SB 1002 and HB 3522. Companion bills that make it easier to evict "squatters." Also allows LL to double-evict you if they claim you left then returned. When they get hearings, you should oppose both. SB: olis.oregonlegislature.gov/liz/2025R1/M... HB: olis.oregonlegislature.gov/liz/2025R1/M...

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Oregon RDAC Coalition @rarediseaseoregon.bsky.social · 18/02/2025

4. HB 2297 "deters tenants from waiting until eviction process to pay rent." What it does: If you owe LL any money WHEN your case goes to trial (before you could even be found guilty), you would be forced to pay thousands in LL's attorney fees. Backdated to take effect 1/1/2025. No hearings yet.

olis.oregonlegislature.gov

HB2297 2025 Regular Session - Oregon Legislative Information System

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Oregon RDAC Coalition @rarediseaseoregon.bsky.social · 18/02/2025

3. SB 586. would allow landlords to evict you 45 days SOONER if they've sold the house. A Democrat (Meek) sponsored this one, so don't assume that your democrat senator isn't in the landlord lobby pocket. No hearings yet. In Housing & Development Committee.

olis.oregonlegislature.gov

SB586 2025 Regular Session - Oregon Legislative Information System

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Oregon RDAC Coalition @rarediseaseoregon.bsky.social · 18/02/2025

2. HB 2305. If passed, will expand landlords' powers to evict and "upon 3rd [...] violation or late payment" removes tenants' right to cure (LL can evict without allowing you to solve the source of their complaint). @ Housing & Homelessness Committee. 1st hearing was TODAY. 2nd hearing is the 19th

olis.oregonlegislature.gov

HB2305 2025 Regular Session - Oregon Legislative Information System

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Oregon RDAC Coalition @rarediseaseoregon.bsky.social · 18/02/2025

1. SB 643. Allows landlords to end tenancies and raise rents without limit. Also would expand "no cause" evictions. "No cause" sounds good on paper, but it has the same effect on background checks, because "eviction" shows up as "eviction." No hearings yet. Referred to "Housing and Development."

olis.oregonlegislature.gov

SB643 2025 Regular Session - Oregon Legislative Information System

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Oregon RDAC Coalition @rarediseaseoregon.bsky.social · 18/02/2025

#ORPol #ORLeg: A Thread of 2025 bills affecting Housing, Eviction, & #TenantRights in Oregon Please scroll through. You can use legiscan.com to track bills you want to testify for/against. In this🧵: A few bills that would affect evictions, &/or housing opportunities. Most will harm tenants. 1/9

legiscan.com

LegiScan | Bringing People To The Process

LegiScan national legislative monitoring, reporting and API data services. Tracking legislation in all 50 states, DC Council and US Congress. Free public service and professional support accounts.

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Oregon RDAC Coalition @rarediseaseoregon.bsky.social · 18/02/2025

#Oregon, This hearing was today, but you can submit written testimony for 48 hours following the posted start time for hearings. Please take a moment to support HB2967 (bans rental application fees) and check out some of the other proposed bills that will affect tenants in OR. #ORLeg #CriptheVote

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Oregon RDAC Coalition @rarediseaseoregon.bsky.social · 14/02/2025

Disabled people have been warning about this since 2020. We've now got tons of scientific articles about post-covid illness/disability and the relationship between repeat covid infections and other health conditions. I hope you'll take a minute to follow some PWD and ask your friends to wear masks.

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Oregon RDAC Coalition @rarediseaseoregon.bsky.social · 14/02/2025

PLEASE spread awareness that this bill exists and encourage your loved ones to testify. Housing is a human right and landlords don't deserve to charge you extra fees. #ORPol #ORLeg #CripTheVote Again, you can testify (online, in person, or in writing) at: olis.oregonlegislature.gov/liz/2025R1/M...

olis.oregonlegislature.gov

HB2967 2025 Regular Session - Oregon Legislative Information System

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Oregon RDAC Coalition @rarediseaseoregon.bsky.social · 14/02/2025

So far, ALL written testimony is from landlords. If LL can afford multiple houses, they can afford screening fees. Please go to this url & click the tab marked "Register To Testify" if you can testify live, or the "Submit Testimony" tab to write in support of HB 2967. You may do either or both.

olis.oregonlegislature.gov

HB2967 2025 Regular Session - Oregon Legislative Information System

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Oregon RDAC Coalition @rarediseaseoregon.bsky.social · 14/02/2025

HB 2967 is currently in the House Committee on Housing & Homelessness. Its first public hearing is Feb 17 @ 1:00 PM. Greedy Landlords are mobilizing against it. But you can help: SIGN UP to testify. Submit written testimony online. Tell #ORPol that abolishing application fees will improve your life

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Oregon RDAC Coalition @rarediseaseoregon.bsky.social · 14/02/2025

Landlords must also provide written documentation of any screening criteria and the application process. If a landlord charges a screening fee, you can recover double the amount charged + $250 from the landlord. Rents are too high here. If this passes, they can't nickel and dime you on top of that

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Oregon RDAC Coalition @rarediseaseoregon.bsky.social · 14/02/2025

#Oregon #ORLeg🧵 Let me draw your attention to another local bill! If passed, HB 2967 will impact EVERYONE who rents or hopes to rent in Oregon & increase housing equity by banning application fees. What does that mean? A landlord can't charge for background checks or to "process your application."

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Briana Mills, LMFT ♿️🏳️‍🌈 @brianamillslmft.bsky.social · 13/02/2025

Disabled people have been sounding the alarm about fascism for five years now. Pandemics lead to fascism. They excuse the deaths of the most vulnerable first. How do you not become vulnerable like us? Wear a mask! If you become disabled from Covid, they’ll excuse your death too.

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Oregon RDAC Coalition @rarediseaseoregon.bsky.social · 13/02/2025

Response to attacks on marginalized residents' rights. Midwest West Coast

Bluesky post by Governor JB Pritzker of Illinois, dated February 6th, 2025 at 9:53AM: "On the day after the election, I made a promise to the people of Illinois: when it comes to threats to our freedom, health, or security, if you come for my people, you come through me."

Screenshot showing that Oregon governor Tina Kotek has no Bluesky posts. Additional context: After the 2024 election, Governor Kotek made a statement about looking forward to working with the incoming administration.

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Oregon RDAC Coalition @rarediseaseoregon.bsky.social · 11/02/2025

Alt-text for the political cartoon posted by Whitehouse (who voted against his constituents' interests): Two people in front of a fenced off white building. A banner flying from the roof says, "We are stealing everything!" One person asks the other, "Why can't democrats have such clear messaging?"

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Oregon RDAC Coalition @rarediseaseoregon.bsky.social · 10/02/2025

FYI, anyone can check politicians' voting history, bill sponsorships, financial ties, and known positions with Legiscan For example, here you can view the bill sponsors for HB 2457 and navigate to Sponsorships, Donors (FollowtheMoney), and Positions (VoteSmart) #USPol legiscan.com/OR/sponsors/...

legiscan.com

LegiScan | Bringing People To The Process

LegiScan national legislative monitoring, reporting and API data services. Tracking legislation in all 50 states, DC Council and US Congress. Free public service and professional support accounts.

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Oregon RDAC Coalition @rarediseaseoregon.bsky.social · 10/02/2025

The rep discussed in this thread is also sponsoring an anti-transgender "biological sex" sports and bathroom bill this year and actually wants to secede from Oregon to join Idaho. It won't pass, but no civil rights movement needs "help" from someone like that. #ORPol #CripTheVote #ProtectTransKids

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Oregon RDAC Coalition @rarediseaseoregon.bsky.social · 10/02/2025

So, you and your colleagues have stopped trying to obstruct the confirmation of people who want to loot and disenfranchise your constituents, and now you're lowering the bar to "answers?" If broke #disabled people could do more in 1977, so can you. #PWD - 25 days Democratic senators - overnight(?)

Black text on a white background: "The 504 Sit-in was a disability rights protest that began on April 5, 1977. People with disabilities and the disability community occupied federal buildings in the United States in order to push the issuance of long-delayed regulations regarding Section 504 of the Rehabilitation Act of 1973. Prior to the 1990 enactment of the Americans with Disabilities Act, the Rehabilitation Act was the most important disability rights legislation in the United States."

"The more successful sit-in occurred in San Francisco, planned by Judith Heumann, Kitty Cone, and Mary Jane Owen, lasted until May 4, 1977, a total of 25 days, with more than 150 people refusing to leave. It is the longest sit-in at a federal building to date. Close to 120 disability activists and protesters occupied the HEW building."

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Oregon RDAC Coalition @rarediseaseoregon.bsky.social · 08/02/2025

Finally, HRC4 legitimizes the #EDS Society. Countless #Disability advocates have shown that the EDS Society serves its own interests, not those of #RareDisease pts. Patients don't need performative "awareness" or bigots posing as "advocates." We need #DisabilityJustice. #ORLeg #ORPol #CripTheVote

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Oregon RDAC Coalition @rarediseaseoregon.bsky.social · 08/02/2025

The Jacksonville #EDS Clinic found in 2021 that #Ehlers-DanlosSyndrome is diagnosed in about 10 times as many women as men (but women wait longer for diagnosis). You simply cannot vote against healthcare for #transgender #Oregonians and cis #women and claim to care about #RareDisease patients. 4/

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Oregon RDAC Coalition @rarediseaseoregon.bsky.social · 08/02/2025

all genders and cis #women are more likely to be diagnosed with #Ehlers-DanlosSyndrome than cis men. A 2022 OHSU study found that, although #EDS is unde-rdiagnosed in every group (and OHSU works to keep EDS under-diagnosed), it is at least 132 times more common in the #transgender population. 3/

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Oregon RDAC Coalition @rarediseaseoregon.bsky.social · 08/02/2025

The #RareDisease and #Disability communities are not a place for bigots to launder their reputations. If you hate trans people and autonomous women (and Representative McIntire voted against essential healthcare for #transgender Oregonians and cis #women), you hate #EDS patients. Trans people of 2/

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Oregon RDAC Coalition @rarediseaseoregon.bsky.social · 08/02/2025

Statement on House Concurrent Resolution 4 (establishing "Ehlers-Danlos Awareness Month" in #Oregon) OR HRC4 is a performative proposal put forth by a transphobic, anti-choice bigot. "Raising awareness" without action does nothing for the thousands of Oregonians who live with #EDS or other #CTD 1/

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Oregon RDAC Coalition @rarediseaseoregon.bsky.social · 07/02/2025

trying to undo the harm you've helped cause and protecting us from future harm (from any source). Senate dems voted to unanimously confirm somebody who immediately stripped a marginalized group of their human rights. You couldn't have all been oblivious. One night doesn't begin to atone for that.

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Oregon RDAC Coalition @rarediseaseoregon.bsky.social · 07/02/2025

Thanks for finally doing something. It's a start, but these shifts must continue until there's no danger to the American people, including our #transgender, #BIPOC, #unhoused, #disabled, and #undocumented siblings. We need to see that our representatives are willing to do your jobs, which means

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Oregon RDAC Coalition @rarediseaseoregon.bsky.social · 04/02/2025

The #Oregon #Medicaid budget hearing is tomorrow! Please sign up to testify, if you can. If you can't, please submit written testimony. Details (including a sample letter) in this thread: #CripTheVote #ORLeg #NEISVoid #DisabilityJustice #DisCo #DisabilityCommunity #NothingAboutUsWithoutUs

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october "pre-order The Struggle Is Always Worth It now!" krausch @octoberk.bsky.social · 29/01/2025

Are you a healthcare worker that is still masking? Is it a struggle in your workplace (i.e. does your employer oppose covid precautions)? I want to hear from you for a story I'm writing! DM or email drmegkrausch@gmail.com #journorequest

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Oregon RDAC Coalition @rarediseaseoregon.bsky.social · 04/02/2025

Matthew Cortland is very good at what they do! Their patreon has a free tier & frequently posts spoon-friendlier calls to action. #ORLeg #Medicaid hearings start tomorrow but regardless of local outcomes, it is imperative that we also do everything possible to protect Medicaid at the national level

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Senator Ron Wyden @wyden.senate.gov · 04/02/2025

My staff is hearing reports from Head Start programs in Oregon that they're still locked out of federal funds. My office is doing everything it can to get more info and get funds flowing before providers have to start closing their doors.

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Oregon RDAC Coalition @rarediseaseoregon.bsky.social · 04/02/2025

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Oregon RDAC Coalition @rarediseaseoregon.bsky.social · 04/02/2025

referrals, or other questions which should be handled by the doctor, medical assistant, billing department, or other clinic staff. Medicaid patients are technically able to access out-of-network providers BUT you have to have a specialist document the need to access the specialist you don't have.

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Oregon RDAC Coalition @rarediseaseoregon.bsky.social · 04/02/2025

providers don't give patients their prescriptions, test orders, or medical records for months or even years. The doctor blames clinic staff and staff blames the doctor. It's also shockingly common for doctors to expect patients to call insurance (or call other providers) to ask about coverage,

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Oregon RDAC Coalition @rarediseaseoregon.bsky.social · 04/02/2025

wait-lists for these specialists often close, except for referrals from secret, unpublicized lists of providers which vary from specialist to specialist. Some departments have stopped taking referrals from any provider outside their hospital system. Some providers won't take medicaid patients. Some

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Oregon RDAC Coalition @rarediseaseoregon.bsky.social · 04/02/2025

buy up many local competitors and has policies of refusing care of any type to patients with certain genetic diagnoses. It's nearly impossible to find specialists for certain neurological conditions, in Oregon. Specialists for rare or chronic illnesses often have wait-lists up to a decade long. The

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Oregon RDAC Coalition @rarediseaseoregon.bsky.social · 04/02/2025

Unfortunately, I don't expect to notice differences in access (for most of my care), because we've been experiencing an ongoing shortage of local specialists, combined with deliberate discriminatory institutional barriers, for years. For example, the largest local hospital system has been allowed

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Julia Métraux @juliametraux.bsky.social · 02/02/2025

Hi, I am @motherjones.com' disability reporter. In the following weeks, I am very interested in hearing how tariff nonsense impacts getting your meds and medical equipment. My email to get in touch is jmetraux@motherjones.com. Reposts appreciated.

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Oregon RDAC Coalition @rarediseaseoregon.bsky.social · 04/02/2025

#Oregon #Medicaid (Also known as Oregon Health Plan or #OHP) -Pays rents -Buys groceries -Provides air conditioners during heat waves -Covers all reproductive healthcare -Covers all gender-affirming care -Covers mental health services -Exempts members from all medical bills and prescription costs

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stillpressinon.bsky.social @stillpressinon.bsky.social · 04/02/2025

The Oregon Legislature is hearing testimony this week regarding the Medicaid Budget for 2025. Please submit testimony by Feb 5th at 1pm Sharing a personal story about how Medicaid has helped and we need expansion of coverage. Link to HB5025 olis.oregonlegislature.gov/.../Overview...

olis.oregonlegislature.gov

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stillpressinon.bsky.social @stillpressinon.bsky.social · 04/02/2025

Please take 30 min to watch this video to understand what's at risk with Medicaid right now. We need people to speak out beyond social media. Use your spoons to take action- reach out if you need help thearc.org/resource/cal...

thearc.org

Watch the Webinar: Medicaid Advocacy in 2025

Learn about the growing concern of potential cuts to Medicaid and what you can do to help protect it.

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