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ramyisback1989.bsky.social

@ramyisback1989.bsky.social
505 followers 590 following 51 posts

Long covid and mecfs warrior

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ramyisback1989.bsky.social @ramyisback1989.bsky.social · 11/04/2026
Something I thought would be interesting to share. My naive T cell are depleted Low CD4 Anchor CD45RA-CD62L+ — Low CD4 Anchor CD45RA-CD62L- — Low CD8 naive (CD45RA+CD62L+) — Low CD8 Anchor CD45RA-CD62L+ — Low CD8 Anchor CD45RA-CD62L- — Low CD8 Anchor CD45RA+CD62L- — Low CD2+CD26
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ramyisback1989.bsky.social @ramyisback1989.bsky.social · 11/04/2026
To be honest even if I had a mild improvement, my life remains severely limited. I get crazy Pots. Mostly in bed all day
Pulse oxymeter showing pulse of 145
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ramyisback1989.bsky.social @ramyisback1989.bsky.social · 10/04/2026
How is everyone on here doing? I rarely visit bluesky anymore. I now have moderate mecfs. I can manage two short walks a day. I am currently in my 6th year of illness. Made the small improvement of severe to moderate. Hope everyone is well
A picture of a man in a park
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ramyisback1989.bsky.social @ramyisback1989.bsky.social · 07/01/2026
Oh wow! I hadn't looked at this place in a long time. Hi everyone lol
Person with curly hair and dark brown eyes
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ramyisback1989.bsky.social @ramyisback1989.bsky.social · 31/01/2025
I am taking part in a new clinical trial. There is no drug involved. But they collected a lot of blood from me, they did cognitive tests, a lung test etc. I might qualify later on for the monoclonal study hopefully.
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ramyisback1989.bsky.social @ramyisback1989.bsky.social · 15/12/2024
Lol
A picture of bugs bunny sitting with a golden crown and thinking "me knowing I didn't do shit today but at least I avoided PEM"
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ramyisback1989.bsky.social @ramyisback1989.bsky.social · 11/12/2024
Please everyone consider participating in this
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ramyisback1989.bsky.social @ramyisback1989.bsky.social · 24/11/2024
🥲
Bart Simpson says: This is the worst PEM I've ever had 

Homer who represents MECFS then replies:  The worst PEM so far
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ramyisback1989.bsky.social @ramyisback1989.bsky.social · 24/11/2024
Lol
Child asks "is it a monster?"

Adult replies "No, it is PEM"

Child says "That's even worse"
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Reposted by @ramyisback1989.bsky.social
Janet Dafoe @janetdafoe.bsky.social · 23/11/2024
Hello blue sky people! I have 16,000 Twitter followers to whom I am dedicated to helping with MECFS. How will I ever reach that over here? Do I need to post on both places? ❤️
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ramyisback1989.bsky.social @ramyisback1989.bsky.social · 23/11/2024
Only in Miami can it be cold and sunny at the same time 😂
A picture of me wearing a sweater outside
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ramyisback1989.bsky.social @ramyisback1989.bsky.social · 18/11/2024
So my covid antibody titter increased from last time I took the test a few months ago, interesting
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ramyisback1989.bsky.social @ramyisback1989.bsky.social · 13/11/2024
I am only at 81 followers 🥲 Can you guys re-post this so I can reconnect with more people here. It's me, Ramy 👋
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ramyisback1989.bsky.social @ramyisback1989.bsky.social · 13/11/2024
My life
A car choosing a sign that says PEM over another sign that says get better. The car represent "my body"
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ramyisback1989.bsky.social @ramyisback1989.bsky.social · 12/11/2024
youtu.be/PxFxowCoL_A?... This had me dying!!! The part where it says "She considers what to do with him, then pees on him instead" 😂😂😂
youtu.be
Robotic Wolf hangs out with Wolf Cubs at Den
YouTube video by John Downer Productions
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ramyisback1989.bsky.social @ramyisback1989.bsky.social · 11/11/2024
True story
Meme where guy who represents the NIH shoots a man with the caption "ignoring long covid and mecfs patients" 

And then the man who shoots says "why are patients mad at us?"
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ramyisback1989.bsky.social @ramyisback1989.bsky.social · 11/11/2024
I am extremely worried about the part of project 2025 that calls for firing federal employees and filling them with Trump loyalists. Imagine having a bunch of incompetent people at the FDA, FBI, EPA, CIA, NSA, you name it. National security, health, environment all at the hands of idiots 🤦‍♂️
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ramyisback1989.bsky.social @ramyisback1989.bsky.social · 11/11/2024
Life with mecfs
Here is where I would put all my energy

If I had some!
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ramyisback1989.bsky.social @ramyisback1989.bsky.social · 10/11/2024
😂 True story
A woman yells at a cat meme.
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ramyisback1989.bsky.social @ramyisback1989.bsky.social · 10/11/2024
Lol
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ramyisback1989.bsky.social @ramyisback1989.bsky.social · 10/11/2024
My first meme here
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ramyisback1989.bsky.social @ramyisback1989.bsky.social · 10/11/2024
Hi everyone! 👋
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