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Phil P

@pprydderch.bsky.social

Posts Replies Media

Phil P @pprydderch.bsky.social · 01/02/2025

Well done today @Wrexham_AFC v @crawleytown. 🙌 I had away tickets (thanks Kerry 🙏) for me, kids & wife as we live local, but unfortunately was too ill to go. I hate chronic illness #MECFS. 😢 Great to see the new forwards in action & nick an important Away win! ⚽️ 🏴󠁧󠁢󠁷󠁬󠁳󠁿 #WrexhamAFC @WrexhamFX

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Phil P @pprydderch.bsky.social · 27/11/2024

Gov petition website is open again. Thinking of creating petition for public inquiry into the scandal of ME/CFS treatment. Whether it does anything is another matter I want to try to get the wording right to give it a chance Here’s a first draft (will likely have mistakes!) /1

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Phil P @pprydderch.bsky.social · 18/11/2024

This is truly shocking from one of, if not the, leading UK #MECFS charity I’ve been a supporter of @MEAssociation since I became ill in 2018/2019. My wife and eldest son fund raised for them, raising £2k on a charity walk. This from their chairman is totally tone deaf… /1

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Phil P @pprydderch.bsky.social · 11/11/2024

Being mod/severe chronically ill feels like we’re on pause, but life is carrying on around us. I’ve often felt if I miraculously got well, and tried to “rejoin” life, go back to my job (not that I could - had to ill health retire), my mind would be expecting to see all the people who were there../1

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Phil P @pprydderch.bsky.social · 11/11/2024

Finally opened my BlueSky account. Twitter/X has become a cesspit since Musk took over and is getting worse. But it’s a good place for #MECFS & #chronicillness community, so it’s such a shame. Hoping we can slowly recreate that here. #pwME #MyalgicEncephamylitis

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