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Reposted by Primary Progressive Aphasia Awareness

FRONTIER Research Group @frontier-usyd.bsky.social · 27/08/2025

Are you living with or supporting someone with #primaryprogressiveaphasia? Join leading neuroscientists and speech pathologists on 25th September for a FREE webinar exploring the latest research on PPA and how speech pathology can make a difference. @ppaphasiaawareness.bsky.social

https://www.speechpathologyaustralia.org.au/EventDetail?EventKey=25PEV2&fbclid=IwY2xjawMbNNJleHRuA2FlbQIxMABicmlkETFNZG0wZGRxazhmSThsVEdIAR54NiPQB5YxM-EeKjrmi3BvefiiEJpvRiS7F1bYc2YRH4jY0OFX9i3qM9c1-Q_aem_RBbxpUy9e2Im0c7AM9g3sw

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Dr Anna Volkmer @annavolkmer.bsky.social · 17/04/2025

We are doing a survey to understand why other professionals do/don't refer people with Primary Progressive Aphasia for speech-language support We want Drs, nurses, psychologists, social workers, OTs, PTs & any other profession. The survey can be accessed here: qualtrics.ucl.ac.uk/jfe/form/SV_...

qualtrics.ucl.ac.uk

Qualtrics Survey | Qualtrics Experience Management

The most powerful, simple and trusted way to gather experience data. Start your journey to experience management and try a free account today.

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Primary Progressive Aphasia Awareness @ppaphasiaawareness.bsky.social · 08/04/2025

The 1st ever PPA awareness day was Friday 4 April 2025 We had webinars in the UK, Greece, Italy, Canada, France & USA. Recordings will be available soon speechtherapyppa.com/ppa-awarenes... Give us your views forms.office.com/e/ARRes9j9bV PPA awareness day 2026 will be Friday 10th April!

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Reposted by Primary Progressive Aphasia Awareness

Dr Anna Volkmer @annavolkmer.bsky.social · 04/04/2025

What an amazing day! Webinars in UK, USA, France, Greece, Italy & Canada to celebrate the 1st PPA awareness day Thank u to all contributors! @mayalhenry.bsky.social @jgallee.bsky.social @smgrasso.bsky.social @sharonmantonucci.bsky.social @ppaphasiaawareness.bsky.social

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Reposted by Primary Progressive Aphasia Awareness

Dr Anna Volkmer @annavolkmer.bsky.social · 04/04/2025

Onwards and upwards! The work is not over- if you are a researcher working in the field of PPA we have started a PPA journal club with @dementiaresearcher.bsky.social Sign up & enhance your PPA research network! www.dementiaresearcher.nihr.ac.uk/primary-prog... @ppaphasiaawareness.bsky.social

dementiaresearcher.nihr.ac.uk

New Primary Progressive Aphasia Online Journal Club

Join our new Primary Progressive Aphasia Journal Club—connecting researchers & clinicians to explore diagnostics, clinical management & patient-focused advances

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Reposted by Primary Progressive Aphasia Awareness

Rosemary Townsend @rosemary-townsend.bsky.social · 04/04/2025

#PPAawareness day is here! 🙌🏻 motivated,inspired & shaped by people living with #PrimaryProgressiveAphasia & driven by a community of international #SLT #SLP s who believe in better access to therapy support & resources. Huge thx to the amazing @annavolkmer@bsky.social & @dyscoveraphasia

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Reposted by Primary Progressive Aphasia Awareness

St James's Hospital, Dublin @sjhdublin.bsky.social · 04/04/2025

Meet Jessica Molloy, Clinical Specialist Speech and Language Therapists. Jessica is marking Primary Progressive Aphasia Awareness Day 🗣 “SLT can help people with PPA to find their voice again, even when the words are gone, people with PPA still have a lot to say” @ppaphasiaawareness.bsky.social

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Reposted by Primary Progressive Aphasia Awareness

Dr Anna Volkmer @annavolkmer.bsky.social · 04/04/2025

Interest in the PPA awareness day event has exceeded our expectations! If you are coming to our webinar - come along early 2 guarantee a place! speechtherapyppa.com/ppa-awarenes... We will record the event & pop it on our website @rosemary-townsend.bsky.social @ppaphasiaawareness.bsky.social

speechtherapyppa.com

Primary Progressive Aphasia (PPA) Awareness Day | 4th April 2025

Primary Progressive Aphasia (PPA) Awareness Day is an event to raise awareness of the condition and the work of the International Speech and Language Therapy / Pathology Primary Progressive Aphasia Ne...

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Primary Progressive Aphasia Awareness @ppaphasiaawareness.bsky.social · 04/04/2025

Today, 4 April 2025, is the 1st ever Primary Progressive Aphasia (PPA) awareness day! Free UK webinar today: speechtherapyppa.com/ppa-awarenes... Missed it? A recording will be on our website: speechtherapyppa.com/ppa-awarenes... @annavolkmer.bsky.social @rosemary-townsend.bsky.social

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Primary Progressive Aphasia Awareness @ppaphasiaawareness.bsky.social · 28/03/2025

1-week till PPA awareness day 4 April! Webinar: speechtherapyppa.com/ppa-awarenes... This wk we were raising awareness at the highest level asking MPs for their support at Westminster with Dyscover & the Royal College of Speech & Language Therapists #PPAawareness @ppaphasiaawareness.bsky.social

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Primary Progressive Aphasia Awareness @ppaphasiaawareness.bsky.social · 21/03/2025

2-weeks till PPA awareness day 4 April! Webinar link: speechtherapyppa.com/ppa-awarenes... This wk we are sharing another podcast, this time created with student speech & language therapists abt the UCL PPA clinic: podcasts.apple.com/gb/podcast/e... #PPAawareness @ppaphasiaawareness.bsky.social

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Reposted by Primary Progressive Aphasia Awareness

Dr Anna Volkmer @annavolkmer.bsky.social · 14/03/2025

3-weeks till PPA Awareness day 4 April! Webinar link: speechtherapyppa.com/ppa-awarenes... Living with PPA can be difficult. Rory's beautiful poetry captures this youtu.be/8K363W-XzWI?... Book sale proceeds to Rare Dementia Support - available soon: shop.nationalbrainappeal.org?gad_source=1...

youtu.be

Rory Barnes poetry for PPA awareness

YouTube video by BetterConversations

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Reposted by Primary Progressive Aphasia Awareness

Dr Anna Volkmer @annavolkmer.bsky.social · 07/03/2025

4-weeks till PPA awareness day 4 April! Webinar link: speechtherapyppa.com/ppa-awarenes... Why is speech and language therapy important for people living with PPA? We asked people with PPA, families and professionals. Watch our video abt it! #PPAawareness @ppaphasiaawareness.bsky.social

youtu.be

PPA awareness

YouTube video by BetterConversations

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Primary Progressive Aphasia Awareness @ppaphasiaawareness.bsky.social · 28/02/2025

5-weeks till PPA awareness day 4 April! Webinar link: speechtherapyppa.com/ppa-awarenes... Book launch at UCL for the 2nd Ed of our book - 16 international co-authors writing about PPA! 15% off J&R Press NOW at: www.jr-press.co.uk/product/asse... #PPAawareness @ppaphasiaawareness.bsky.social

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Primary Progressive Aphasia Awareness @ppaphasiaawareness.bsky.social · 21/02/2025

6-weeks till PPA awareness day 4 April! Webinar link: speechtherapyppa.com/ppa-awarenes... Listen in 2 @rosemary-townsend.bsky.social chatting to Helen from The Brainy Speech Therapy Podcast about PPA early next wk: open.spotify.com/show/7FY6mec... #PPAawareness @ppaphasiaawareness.bsky.social

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Primary Progressive Aphasia Awareness @ppaphasiaawareness.bsky.social · 07/02/2025

8-weeks to go till PPA awareness day: 4th April 2025! Speech & language therapy can help join up ppl with PPA. Rare Dementia Support also connects people with PPA like Helen. Sign up for PPA awareness day webinar: speechtherapyppa.com/ppa-awarenes... #PPAawareness

youtu.be

Primary progressive aphasia support group webinar - 27th October 2020

YouTube video by Rare Dementia Support

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Reposted by Primary Progressive Aphasia Awareness

Dementia Researcher @dementiaresearcher.bsky.social · 04/02/2025

We’re pleased to help spread the word about the official launch of the first-ever Primary Progressive Aphasia (PPA) Awareness Day - 4th April 2025! #PPAawareness @ppaphasiaawareness.bsky.social www.dementiaresearcher.nihr.ac.uk/primary-prog...

dementiaresearcher.nihr.ac.uk

Primary Progressive Aphasia awareness day – 4th April 2025 - DEMENTIA RESEARCHER

We’re pleased to help spread the word about the official launch of the first-ever Primary Progressive Aphasia (PPA) Awareness Day - 4th April 2025!

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Reposted by Primary Progressive Aphasia Awareness

Jeanne Gallée, PhD CCC-SLP @jgallee.bsky.social · 31/01/2025

A tremendous endeavor: sign up today! I am very much looking forward to being in the virtual audience!

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Reposted by Primary Progressive Aphasia Awareness

Rosemary Townsend @rosemary-townsend.bsky.social · 31/01/2025

It’s been a busy time, planning #PPAawareness together with @annavolkmer.bsky.social & all our collaborators! 9 weeks of content coming in the lead up to 4 April ! Please share

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Primary Progressive Aphasia Awareness @ppaphasiaawareness.bsky.social · 31/01/2025

Announcing the launch of the 1st ever Primary Progressive Aphasia (PPA) awareness day 4th April 2025! Webinar sign up: speechtherapyppa.com/ppa-awarenes... Follow for updates: @ppaphasiaawareness.bsky.social @annavolkmer.bsky.social @rosemary-townsend.bsky.social #PPAawareness

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