Positively Rheumatoid @positivelyrheum.bsky.social · 25/09/2026Barometric pressure really said : let’s make these joints extra haunted. 000
Positively Rheumatoid @positivelyrheum.bsky.social · 06/09/2026Somebody in this body is having a great time and it isn't me. 010
Positively Rheumatoid @positivelyrheum.bsky.social · 05/09/2026Honestly surprised they haven't made a Netflix series out of it yet. 010
Positively Rheumatoid @positivelyrheum.bsky.social · 03/09/2026Currently under attack by my immune system. Send help. #chronicillness 020
Positively Rheumatoid @positivelyrheum.bsky.social · 27/08/2026Me after my diagnosis: “This is the worst day of my life.” Doctor: “The worst day of your life, so far.” 020
Positively Rheumatoid @positivelyrheum.bsky.social · 09/08/2026When you’ve reached the point in your chronic illness journey that you stop talking about it because nothing ever changes or gets better so what’s the point? Anyone else? #chronicillness 020
Positively Rheumatoid @positivelyrheum.bsky.social · 28/07/2026It’s nice because my meds cost a ton of money and maybe sometimes work. So that’s nice. #chronicillness 020
Positively Rheumatoid @positivelyrheum.bsky.social · 04/07/2026There's no story. There's no incident. My body runs on it's own ideas and own schedule and doesn't check with me first. #chronicillness 141
Positively Rheumatoid @positivelyrheum.bsky.social · 28/06/2026When someone asks how you are and you have to decide whether to give the 30 second version or the truth which could take 3 business days to explain. 010
Positively Rheumatoid @positivelyrheum.bsky.social · 27/06/2026Nobody gets it like someone who's living it. 40k+ of us are already in there comparing notes. Comment GROUP and I'll send you the link. #chronicillness #autoimmunedisease 010
Positively Rheumatoid @positivelyrheum.bsky.social · 27/06/2026Nobody gets it like someone who's living it. 40k+ of us are already in there comparing notes. Comment GROUP and I'll send you the link. #chronicillness #autoimmunedisease 010
Positively Rheumatoid @positivelyrheum.bsky.social · 23/06/2026They call me weather app because I can predict flares with better accuracy than a meteorologist. 010
Positively Rheumatoid @positivelyrheum.bsky.social · 20/06/2026My immune system doesn’t know what the threat is or why I have plans but it’s gonna be suspicious no matter what 010
Positively Rheumatoid @positivelyrheum.bsky.social · 17/06/2026The minute people find out you’re sick it becomes a race for them to grab your money. What crazy product has someone tried to sell you to “cure” your chronic illness? 010
Positively Rheumatoid @positivelyrheum.bsky.social · 15/06/2026If my chronic illness was an animal… it would honestly be a whole zoo. Some days I’m juggling everything. Some days I forget what I was saying mid sentence. Some days I fully shut down. Some days I hibernate. Some days I move slow and carry way more than anyone can see. 020
Positively Rheumatoid @positivelyrheum.bsky.social · 14/06/2026Sorry my organs didn’t coordinate an outfit you could recognize. shocking, really. 010
Positively Rheumatoid @positivelyrheum.bsky.social · 08/06/2026The wildest part of chronic illness is thinking you got away with it. You went to the thing. You did the errands. You felt almost normal. And then you woke up the next morning and your body said: lol no. 010
Positively Rheumatoid @positivelyrheum.bsky.social · 06/06/2026If given the option, would you rather be free from pain or from fatigue? Everyone I know picks differently. What's yours? 010
Positively Rheumatoid @positivelyrheum.bsky.social · 05/06/2026Hello law? Is it illegal for my immune system to be this mean to me? 020
Positively Rheumatoid @positivelyrheum.bsky.social · 01/06/2026Nobody warned me that losing my voice would become a regular part of having an autoimmune disease. Not losing it from a cold. Regularly. Randomly. Your body attacks the small joints in your larynx. It inflames your vocal cords. It damages the nerves that control your voice. 010
Positively Rheumatoid @positivelyrheum.bsky.social · 30/05/2026Every morning I perform a full body slam just trying to get up. The bed usually wins. #chronicillness 010
Positively Rheumatoid @positivelyrheum.bsky.social · 28/05/2026Just mention you're having a bad day, and suddenly five people will materialize to tell you about their cousin's neighbor who cured their chronic illness with positive thinking and celery juice. 010
Positively Rheumatoid @positivelyrheum.bsky.social · 27/05/2026drank the water. took the meds. got 8 hours. avoided gluten, stress, and apparently joy. still flaring. your body is not broken because it flared. it's sick. those are different things. 🤍 if you're in a flare right now and doing your best anyway. 020
Positively Rheumatoid @positivelyrheum.bsky.social · 24/05/2026Yes, young people can develop arthritis. While arthritis is commonly associated with older adults, it can affect individuals of all ages, including children and adolescents. The term "arthritis" refers to a group of conditions that cause inflammation and pain in the joints. #spoonie 030
Positively Rheumatoid @positivelyrheum.bsky.social · 23/05/2026Up to $225. For talking about your life. Just answering questions about what it's actually like to live in your body, and getting paid for it. rarepatientvoice.com/rp/positivel... 010
Positively Rheumatoid @positivelyrheum.bsky.social · 21/05/2026Me pretending to be ‘just tired’ so I don’t have to explain my entire medical history to a stranger again. Comment GROUP to join our private community of people who get it. 050
Positively Rheumatoid @positivelyrheum.bsky.social · 16/05/2026I walked into the kitchen for something. Stood there. Opened the fridge. Closed the fridge. Stood some more. Went back to the couch. Remembered why I went in the kitchen. This is brain fog. 010
Positively Rheumatoid @positivelyrheum.bsky.social · 11/05/2026In the words of Michael Jackson, OW. 010
Positively Rheumatoid @positivelyrheum.bsky.social · 10/05/2026Motherhood is hard. Motherhood with a body that fights you every single day is a whole different level. You are not a bad mom because you're sick. You're an incredible mom despite being sick. We see you. What's the hardest part of being a mom with chronic illness? 010
Positively Rheumatoid @positivelyrheum.bsky.social · 09/05/2026When your body acts like you just signed up for the Ironman because you made two plans this weekend. Comment GROUP to join our private online support community. 010
Positively Rheumatoid @positivelyrheum.bsky.social · 07/05/2026Day 1 of the steroid pack and I cleaned the entire house, reorganized my pantry by color, started three new hobbies, and texted people I haven’t spoken to since 2016. 010
Positively Rheumatoid @positivelyrheum.bsky.social · 02/05/2026To the Mom in Pain I see the way you keep showing up, even when your body is screaming. I see the love you pour into your kids, even when your cup feels empty. I see the strength it takes just to get through the day. You are not alone. You are not failing. You are a warrior. 000
Positively Rheumatoid @positivelyrheum.bsky.social · 01/05/2026Why does my immune system love being argumentative and annoying 010
Positively Rheumatoid @positivelyrheum.bsky.social · 30/04/2026Sometimes it’s just easier to smile than to explain the whole story. Comment group to join our private support community. 020
Positively Rheumatoid @positivelyrheum.bsky.social · 29/04/2026Ever had chest pain so sharp you thought, “Welp, this is it…” but it turned out to be costochondritis? RA isn’t just joint pain, costochondritis is a real and painful thing. It’s when the cartilage in your ribs gets inflamed and sends sharp, stabby chest pains your way. 010
Positively Rheumatoid @positivelyrheum.bsky.social · 28/04/2026sir. my immune system is literally attacking me. my medication has more side effects than my actual symptoms. i'll just tell my immune system to chill out. i'm sure it'll listen this time. "have you tried relaxing" is not a treatment plan. 020
Positively Rheumatoid @positivelyrheum.bsky.social · 27/04/2026My immune system is always keeping me on my toes 010
Positively Rheumatoid @positivelyrheum.bsky.social · 25/04/2026You didn't let anyone down. Your body let you down first. The people who call you unreliable have never had to negotiate with their own body just to keep a plan. Comment GROUP to join our online support community. 010
Positively Rheumatoid @positivelyrheum.bsky.social · 22/04/2026Up to $225. For talking about your life. Just answering questions about what it's actually like to live in your body, and getting paid for it. rarepatientvoice.com/rp/positivel... 010
Positively Rheumatoid @positivelyrheum.bsky.social · 20/04/2026Everyone has a cure. Nobody has a clue. Here's the full list of things that did not fix my autoimmune disease and a list of what actually helps. 010
Positively Rheumatoid @positivelyrheum.bsky.social · 18/04/2026The audacity of having chronic illness, a job, a family, chores and having a personality is too much. My immune system has to constantly humble me. 010
Positively Rheumatoid @positivelyrheum.bsky.social · 17/04/2026If you have Lupus, Rheumatoid Arthritis, Axial Spondylarthritis, or Sjogren's Syndrome, and are interested in donating blood or plasma for research, comment PLASMA Or you can fill out this donor form www.psgdonors.com/donor-form or call Mike Delahanty of @psgdonors at 215-355-1288 x6. 010
Positively Rheumatoid @positivelyrheum.bsky.social · 16/04/2026Chronic illness teaches you who shows up. I'm sending a little thank you to everyone who has ever loved someone through the invisible stuff. ⬇ 041
Positively Rheumatoid @positivelyrheum.bsky.social · 15/04/2026Drop yours in the comments. My favorite is “Have you tried losing weight?” or “Everyone feels tired” 010
Positively Rheumatoid @positivelyrheum.bsky.social · 13/04/2026You're headed into a flare. You can only bring 3 things from the kit. What are you choosing? 120
Positively Rheumatoid @positivelyrheum.bsky.social · 11/04/2026Living with chronic illness means we spend a lot of time explaining ourselves, usually for free. Rare Patient Voice connects people with chronic and autoimmune conditions to medical research that focuses on listening to patient experiences. Comment “STUDY” and I’ll send the sign-up link. 020
Positively Rheumatoid @positivelyrheum.bsky.social · 10/04/2026If you need me I’ll be resting until Monday. #chronicillness 020
Positively Rheumatoid @positivelyrheum.bsky.social · 10/04/2026My immune system is doing complex math to solve a problem that doesn’t exist. 🤷🏻♀️ 091
