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Courtney Waller

@policyservedrare.bsky.social
369 followers 286 following 497 posts

Policy guru specializing in Rare Disease Policy. Writer and Political Commentator Mom to Theodora, who lost her battle with Timothy Syndrome on 2/16/2024 courtneyexplainsitall.substack.com

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Reposted by Courtney Waller
Juke Slytalker @blackskyeddie.blacksky.app · 30/06/2025
If I could define my disdain for mainstream media in one way it would be this: no one gets smarter or more informed about policy/history/procedures from watching CNN. If you forced someone to watch CNN cover a bill for a month, 99% of viewers wouldn't be able to answer basic questions about the bill
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Courtney Waller @policyservedrare.bsky.social · 17/05/2025
Every single American will pay more across several sectors if Medicare/Medicaid is cut. It won't just be healthcare. It will mean increased taxes, reduced property values and staggering unemployment. open.substack.com/pub/courtney...
open.substack.com
The Reality Of Medicare Cuts (Even If You Don't Use It)
Even if you aren't enrolled in Medicare or Medicaid, cutting those programs will lead to an increased financial burden for us all.
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Courtney Waller @policyservedrare.bsky.social · 09/05/2025
And yet somehow they both will continue to be usurped by the insufferability of Chicago Catholics as a whole. 🤣
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Max Kozlov @maxkozlov.bsky.social · 08/05/2025
A US judge to govt lawyers defending the NIH's grant terminations: "I understand the administration is against DEI. Respectfully, I just don't know what you mean. This isn't a teasing question. There has to be some working definition. This is research to advance healthcare for all our citizens."
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Anthony Christian @antwestcoast.bsky.social · 01/05/2025
@kenmartin.bsky.social 🚨 You said we need to “land the right punch.”I am asking you to rally the troops and fight, now. We are losing crucial time.
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Courtney Waller @policyservedrare.bsky.social · 29/04/2025
The EO on policing is even worse than imagined. courtneyexplainsitall.substack.com/p/is-this-th...
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Courtney Waller @policyservedrare.bsky.social · 27/04/2025
We need to take the focus off Trump and start looking at the people around him. Rubio is more complicit and has been dreaming of what’s happening since 2018. He didn’t sell his soul. He saw an opening and took it. open.substack.com/pub/courtney...
open.substack.com
Lil' Marco Finally Gets His Chance
Marco Rubio has long been at the forefront of rhetoric against both China and Maduro. Bukele offered him a chance to hurt both.
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Courtney Waller @policyservedrare.bsky.social · 26/04/2025
Scott Walker is the most embarrassing thing to ever happen to WI.
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Eye Of The Idol @eyeoftheidol.bsky.social · 26/04/2025
The Wisconsin GOP tonight have already started talking about impeaching and removing Judge Hannah Dugan. Our piece of shit former governor Scott Walker is already asking for a special session of the legislature to take up the matter. #Maddow
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Courtney Waller @policyservedrare.bsky.social · 21/04/2025
When asked if there was dysfunction at the Pentagon, Trump said to “ask the Houthis” Why? Did Hegseth include them in a Signal chat of classified information too? It would not surprise me at the rate this is going
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Courtney Waller @policyservedrare.bsky.social · 19/04/2025
It seems like Boasberg isn’t convinced he has jurisdiction to rule on the ACLU’s petition.
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Courtney Waller @policyservedrare.bsky.social · 18/04/2025
Currently waiting for the Boasberg hearing to start.
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Sheryl Weikal says Prosecute ICE @leftistlawyer.com · 15/04/2025
I know you aren't going to want to hear this but the reason the system can deport Mahmoud Khalil and send Kilmar Abrego Garcia to El Salvador is that for years we've been executing factually innocent people like Marcellus Williams and sending legally innocent people to places like Riker's Island.
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Courtney Waller @policyservedrare.bsky.social · 15/04/2025
The delusion....
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Courtney Waller @policyservedrare.bsky.social · 14/04/2025
Tariffs on pharmaceuticals does not just mean prescription medication. But it does mean that people who need prescription medication will be in life and death situations. Not all of them will survive.
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Courtney Waller @policyservedrare.bsky.social · 14/04/2025
Rubio has confirmed today that 10 more immigrants were sent to El Salvador last night per the NYT
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Courtney Waller @policyservedrare.bsky.social · 11/04/2025
Timothy Syndrome can cause autism. The mutation on the CAC1NAC gene is the cause for those kids. I know of at least 4 other mutations on other genes....all rare mutations. I'm sure that's not being considered at all
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Courtney Waller @policyservedrare.bsky.social · 11/04/2025
This is absolutely ridiculous
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Tristan Snell @tristansnell.bsky.social · 10/04/2025
Forcing people to pay $130 for a passport in order to vote is just a Jim Crow poll tax by another name. It is blatantly unconstitutional.
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Courtney Waller @policyservedrare.bsky.social · 09/04/2025
They would be in 2011 with the National Defense Authorization Act.
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Courtney Waller @policyservedrare.bsky.social · 06/04/2025
Everyone is talking about the huge crowds in DC, Boston, NYC ect. But you know what makes me heart sing….the videos of protests from small towns in really conservative areas. It’s harder to get people to care in places like that. And to see even 100 people-200 people—500 people is truly magical.
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Courtney Waller @policyservedrare.bsky.social · 25/03/2025
I’m more concerned it gives DOGE access to voter registrations.
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Courtney Waller @policyservedrare.bsky.social · 25/03/2025
I liked Jasmine Crockett. I did. I was horrified by the comment she made about Greg Abbott. Even if she did not mean it as a remark on disability, it was a gaffe all the same, and instead of apologizing, she got defensive, and attacked anyone who was offended was a "political rival" It's not ok
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Courtney Waller @policyservedrare.bsky.social · 21/03/2025
In Tempe waiting for @aoc.bsky.social and @sanders.senate.gov to take the stage!
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PeriodicTweet @periodictweet.bsky.social · 20/03/2025
Note that this means that other than the declaration due tomorrow (that they are actually considering state secrets), they'll get to rail against Boasberg to the D.C. Cir on Monday 3/24 before having to show cause why they violated his TRO by Tuesday 3/25.
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Courtney Waller @policyservedrare.bsky.social · 14/03/2025
Ketamine is a hell of a drug
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Courtney Waller @policyservedrare.bsky.social · 14/03/2025
I canceled my monthly contribution to the DNC and I will be changing my voter registration..this really was the final straw. I know I’m not the only one.
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Alexandria Ocasio-Cortez @aoc.bsky.social · 14/03/2025
I think some in the Senate have convinced themselves that the backlash to folding will be limited to “the left” and therefore ignorable. Those people are deeply and profoundly misreading the moment and the stakes. Virtually every swing district House Dem walked the plank to vote NO for a reason.
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Courtney Waller @policyservedrare.bsky.social · 05/03/2025
I’m not even surprised by things anymore.
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Courtney Waller @policyservedrare.bsky.social · 05/03/2025
Did we watch the same rebuttal?
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Kyle Cheney @kyledcheney.bsky.social · 05/03/2025
THAT DIDN'T TAKE LONG: Plaintiffs in one lawsuit against DOGE have alerted the court to President Trump's remarks tonight calling Elon Musk the "head" of the office.
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Pearlmania500 @pearlmania500.bsky.social · 05/03/2025
78 year old dementia patient shouts for two hours that Transgender Joe Biden needs to be stopped at the border.
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Wajahat Ali @wajali.bsky.social · 05/03/2025
Using a Black child with brain cancer as a prop...and to promote law enforcement. By far the most vile moment of this hideous evening. The same MAGA that tries to ban DEI and says black people come from "shithole countries" and promotes white supremacist conspiracies. Vile. #StateOfTheUnion
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Anthony Michael Kreis @anthonymkreis.bsky.social · 05/03/2025
Don’t tell me democracy is at risk and a constitutional crisis is unfolding and the best you got is a modified ping pong paddle.
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Courtney Waller @policyservedrare.bsky.social · 05/03/2025
I’m pretty annoyed with the Dems. They started strong. Then once Rep Green got removed, they stopped. They should have kept it up and been removed one by one. This is why we think Dems are weak. Seriously. I had very high hopes when all the noise started. Once again, the Dems fizzled out.
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Courtney Waller @policyservedrare.bsky.social · 05/03/2025
"Biden let the price of eggs get out of control" What the fuck? Seriously.
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Dr. Jack Brown @drjackbrown.bsky.social · 05/03/2025
"This is NOT normal." #SOTU Thank you for speaking truth to power.
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Courtney Waller @policyservedrare.bsky.social · 05/03/2025
Well, this is even more chaotic than I thought it would be. I don't know if I can listen to this whole thing.
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Courtney Waller @policyservedrare.bsky.social · 05/03/2025
This is exactly what I mean when I say that Divestment > Boycots. It will hurt them more. This cancelled contract in 1 day, = every American user of Starlink cancelled their service. Trying to get 1.4 million people to give up a company? Or push for larger contracts to be cancelled? Ideally both
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Courtney Waller @policyservedrare.bsky.social · 01/03/2025
I sincerely think Joe Exotic would make a better president than we have now…Maybe that’s why Trump won’t pardon him. 🤣🤣🤣
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Courtney Waller @policyservedrare.bsky.social · 01/03/2025
Watching Marco Rubio in the Oval Office today…yikes. He looked like a little kid in trouble who just wanted the couch to swallow him up.
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Ron Filipkowski @ronfilipkowski.bsky.social · 26/02/2025
Every Democrat campaigning for president in the next election should pledge to revoke the citizenship of every person who paid $5 million for it, and to immediately deport every one of them. With no refunds.
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Courtney Waller @policyservedrare.bsky.social · 27/02/2025
I’ve been thinking a lot about the fact that I now live in a country, where when the current president dies..there will be celebrations in the streets. I’ve only seen them on tv before.
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Courtney Waller @policyservedrare.bsky.social · 27/02/2025
It takes less than 5 min. You have 5 minutes to be a menace right?
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Courtney Waller @policyservedrare.bsky.social · 27/02/2025
So we’re doing Red Shirts again.
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Courtney Waller @policyservedrare.bsky.social · 26/02/2025
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Courtney Waller @policyservedrare.bsky.social · 26/02/2025
When do they get their patches to wear in public? That’s what comes next right? “US President Donald Trump's administration has said it will create a national register for undocumented migrants, with those failing to sign up possibly facing criminal prosecution.” www.bbc.com/news/article...
bbc.com
Trump administration to require undocumented migrants to register - BBC News
The Trump administration believes the announcement will encourage mass 'self deportations'.
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Josh Marshall @joshtpm.bsky.social · 26/02/2025
There are rumors swirling around the Social Security Administration today about massive staff cuts. But what isn't a rumor is that the incoming Commissioner wants to turn customer service over to AI bots. So if you're a senior that's their plan.
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Kyle Griffin @kylegriffin1.bsky.social · 26/02/2025
Arizona AG Kris Mayes, New Mexico AG Raul Torrez, and Oregon AG Dan Rayfield will begin holding Community Impact Hearings — a national series of townhalls "to hear from the public about the impact of federal firings and DOGE funding freezes across the country." The first will be in Phoenix March 5.
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Courtney Waller @policyservedrare.bsky.social · 26/02/2025
I don’t want to hear one more older GenX/Boomer woman tell me to stop talking badly about or demanding action from the Dems. At this point; they are not my allies. But beyond that…I have been a registered Dem for most of my life. I donated monthly. I have every right to demand better of the party
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