iiinova — where your digital self keeps evolving

Pheo Para Alliance @pheopara.bsky.social · 02/10/2026

Be a Force for Good. 💚 Jonathan Pascual turned his experience living with metastatic paraganglioma into action through JP’s Backyard Ultra. Together, this incredible community generated $100,000+ in donations and in-kind support for the PPGL community. #PheoParaAlliance #PPGL

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Pheo Para Alliance @pheopara.bsky.social · 02/10/2026

💚 An unforgettable evening of hope, generosity & community. The Circle of Hope Gala brought our community together in support of Pheo Para Alliance, celebrating inspiring stories and extraordinary generosity. Thank you to everyone who made it possible. 💚 #CircleOfHope #PheoParaAlliance #PPGL

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Pheo Para Alliance @pheopara.bsky.social · 30/09/2026

🧬 National Hereditary Cancer Week Genetic testing may help people with PPGL understand inherited risk and guide care for themselves and their families. Talk with your healthcare team or a genetic counselor about whether testing is right for you. #PPGL #HereditaryCancerWeek #GeneticTesting

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Pheo Para Alliance @pheopara.bsky.social · 29/09/2026

❤️ Heart Health Day For people with functional PPGL, elevated catecholamines can affect more than blood pressure—they may also stress the heart. Talk with your healthcare team about monitoring your cardiovascular health. ❤️ #PPGL #PheoParaAlliance #HeartHealth

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Pheo Para Alliance @pheopara.bsky.social · 28/09/2026

💚 You don’t have to navigate the PPGL journey alone. Join our Peer Support Meeting to connect with people who understand. 📅 Oct. 6 🕠 5:30 PM PT | 6:30 MT | 7:30 CT | 8:30 ET #PPGL #PeerSupport

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Pheo Para Alliance @pheopara.bsky.social · 24/09/2026

💚 Peer Support Meeting — Tomorrow! You don’t have to navigate the PPGL journey alone. Connect with others who understand, share experiences, and find support. 🕘 9 AM PT | 10 AM MT | 11 AM CT | 12 PM ET 🔗 Register through the link in our bio. #PPGL #PeerSupport #PheoPara

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Pheo Para Alliance @pheopara.bsky.social · 23/09/2026

On #RareCancerDay, we’re raising awareness of pheochromocytoma and paraganglioma (PPGL). 💚 Share this post to help make rare cancers like PPGL more visible. #PheoParaAlliance #PPGL #RareCancer

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Pheo Para Alliance @pheopara.bsky.social · 23/09/2026

On #RareCancerDay, we stand with everyone affected by rare cancers and the PPGL community working toward better answers, knowledgeable care, stronger support, and greater awareness. Together, we can make rare more visible. #PheoParaAlliance #PPGL #RareCancer #Pheochromocytoma #Paraganglioma

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Pheo Para Alliance @pheopara.bsky.social · 17/09/2026

🌍 On #WorldPatientSafetyDay, remember: knowledge is your strongest safety tool. For people with pheochromocytoma and paraganglioma (PPGL), knowing what to ask, what to expect, and how to advocate for your care matters. Resources: pheopara.org/community/re...

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Pheo Para Alliance @pheopara.bsky.social · 16/09/2026

💚 Join us September 24 for our Bi-Monthly Support Meeting—a space for the PPGL community to connect, share experiences, and support one another. 🕘 9 AM PT / 12 PM ET Register: www.zeffy.com/en-US/ticket... #PheoPara #PPGL #YouAreNotAlone

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Pheo Para Alliance @pheopara.bsky.social · 15/09/2026

💚 What does hope mean to you? This Saturday at the Circle of Hope Gala, we’re creating a Pheo Para Hope Wall featuring messages from our community. 💬 Tell us what hope means to you, and we’ll add your message to the wall. #CircleOfHope #PheoPara #PPGL

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Pheo Para Alliance @pheopara.bsky.social · 15/09/2026

🔬 PPGL Scientific Forum — September 15, 2026 Research, progress and hope for the pheochromocytoma and paraganglioma community. 💚 #PheoPara #PPGL #PPGLResearch

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Pheo Para Alliance @pheopara.bsky.social · 13/09/2026

💚 Our Caregiver Support Meeting is tomorrow! Join fellow caregivers for a supportive space to connect and support one another. 📅 Monday, September 14 🔗 Register: www.zeffy.com/en-US/ticket... #CaregiverSupport #PheoPara #PPGL

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Pheo Para Alliance @pheopara.bsky.social · 10/09/2026

💚 Our next Caregiver Support Meeting is Monday, September 14. Connect with fellow caregivers, share experiences, and find support from people who understand the caregiver journey. Register: www.zeffy.com/en-US/ticket... #PheoPara #CaregiverSupport

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Pheo Para Alliance @pheopara.bsky.social · 09/09/2026

10 days until the Circle of Hope Gala! 🧡 Join the Pheo Para Alliance community in Boston on September 19 for an evening of hope, connection, and impact. 🎟️ Tickets: www.zeffy.com/en-US/ticket... #PheoPara #CircleOfHope #PPGL

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Pheo Para Alliance @pheopara.bsky.social · 08/09/2026

🏁 Missed a Pheo Para Awareness Week webinar? The recordings are now available on demand. Catch up on educational sessions and expert resources on Pheo Para. 🎥 Watch: pheopara.org/clinicians/v... #PheoPara #PPGL

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Pheo Para Alliance @pheopara.bsky.social · 07/09/2026

You don’t have to navigate the Pheo Para journey alone. 💚 Connect with the Pheo Para Alliance community for support, resources, and opportunities to get involved. 💬 What support has meant the most to you? Join us: www.zeffy.com/en-US/newsle... #PheoPara #CommunityOfHope

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Pheo Para Alliance @pheopara.bsky.social · 07/09/2026

Clinical trials aren’t just a “last resort.” They exist across different stages of disease. Jonathan Pascal, NP and PPGL patient, explains clinical trial phases and how patients can explore their options. 🔬 Learn more: pheopara.org/find-clinical-trials #PheoPara #ClinicalTrials #PPGL

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Pheo Para Alliance @pheopara.bsky.social · 19/08/2026

I'll be there. Will you? Register today:https://pheopara.org/2026/08/2026-awareness-week-be-part-of-the-breakthrough-ppgl-research-trials-studies

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Pheo Para Alliance @pheopara.bsky.social · 18/08/2026

Is a pheochromocytoma or paraganglioma clinical trial right for you? Join us on Aug 26 at 12 PM ET for "Take the Wheel," a webinar with researchers. Register today. Spots are limited: pheopara.org/2026/08/2026... #PPGL #ClinicalTrials #RareDisease

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Pheo Para Alliance @pheopara.bsky.social · 10/07/2026

Clinical trials aren't just a last resort. They may be an option at different stages in the care of pheochromocytoma or paraganglioma. Ask your healthcare team: "Could I be a candidate for a clinical trial?" Learn more: pheopara.org #PPGL #ClinicalTrials #RareDisease #Phearless

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Pheo Para Alliance @pheopara.bsky.social · 02/06/2026

We're the Pheo Para Alliance — the only global nonprofit dedicated exclusively to pheochromocytoma and paraganglioma (PPGL). Connecting patients, clinicians, researchers, and industry to close care gaps & advance research. 🦓 #PPGL #RareDisease #RareCancer #DiagnosticDelay #MedEd #PrecisionMedicine

pheopara.org

Pheochromocytoma & Paraganglioma - The Pheo Para Alliance

Learn more about the longest-standing, internationally recognized leader in advocacy for, and awareness of, pheochromocytoma and paraganglioma here!

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