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phaware®

@phaware.bsky.social

56 followers 50 following 181 posts

Help make the 🌎 #phaware. Pulmonary hypertension (PH) is a rare, life-threatening disease of the lungs that can lead to right heart failure. 💜💙💚🧡❤️ Phaware Global Association is a 501c3 info@phaware.global www.phaware.global. www.phawarepodcast.com

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phaware® @phaware.bsky.social · 6h

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phaware® @phaware.bsky.social · 29/09/2026

A Mom of Three, a Hidden Killer, and the Specialist Who Saved Her. Balancing life as a full-time teacher, wife, and mother of three, PAH patient, Wendy Mercado, put herself last until her body forced her to stop. @phaware.bsky.social podcast ep 592 phaware.medium.com/im-aware-tha...

phaware.medium.com

I’m Aware That I’m Rare: Wendy Mercado (592)

the phaware® interview

phaware® @phaware.bsky.social · 24/09/2026

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phaware® @phaware.bsky.social · 22/09/2026

Living with a rare disease can mean depression, isolation, and wondering if you’re even “sick enough.” PH patient Jenn Lalonde discusses imposter syndrome and mental health struggles. @phaware.bsky.social are podcast Ep. 591 @phacanada phaware.medium.com/im-aware-tha...

phaware.medium.com

I’m Aware That I’m Rare: Jenn Lalonde (591)

the phaware® interview

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phaware® @phaware.bsky.social · 17/09/2026

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phaware® @phaware.bsky.social · 15/09/2026

In 1994, before there were any FDA approved treatments for PH, Lynn Bouseman was told to prepare for the end. Lynn said, “No,” she had two small daughters. Survival would require one thing above all else: a refusal to surrender. @phaware podcast ep 590 phaware.medium.com/im-aware-tha...

phaware.medium.com

I’m Aware That I’m Rare: Lynn Bouseman (590)

the phaware® interview

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phaware® @phaware.bsky.social · 10/09/2026

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phaware® @phaware.bsky.social · 08/09/2026

PH Didn't Just Change One Life, It Changed an Entire Family. Sisters Abby and Ari refused to let the PH write their Dad's ending. They turned heartbreak into hope by creating a community "Where is EB?" 5K @phaware.bsky.social interview 589 @teamphhope.bsky.social phaware.medium.com/im-aware-tha...

phaware.medium.com

I’m Aware That I’m Rare: Abby and Ari Borstein (589)

the phaware® interview

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phaware® @phaware.bsky.social · 03/09/2026

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phaware® @phaware.bsky.social · 01/09/2026

PH patient, Donna Wallace Harmon knows tomorrow isn’t guaranteed. But she refuses to live waiting for “someday.” Her motto is simple and defiant: Do the best I can when I can, because nobody knows what tomorrow holds. @phaware.bsky.social podcast ep 588 @phacanada phaware.medium.com/im-aware-tha...

phaware.medium.com

I’m Aware That I’m Rare: Donna Wallace Harmon (588)

the phaware® interview

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phaware® @phaware.bsky.social · 27/08/2026

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phaware® @phaware.bsky.social · 25/08/2026

Out of Breath, Not Out of Dreams: One Woman’s PH Journey to 79 Countries. Carolyn Mathur was told she had only months. Instead of waiting to die, she chose to live. 29 years later, she’s still here, traveling the world. @phaware.bsky.social podcast 587 @phacanada phaware.medium.com/im-aware-tha...

phaware.medium.com

I’m Aware That I’m Rare: Carolyn Mathur (587)

the phaware® interview

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phaware® @phaware.bsky.social · 20/08/2026

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phaware® @phaware.bsky.social · 18/08/2026

Pulmonary Hypertension tried to shrink her world. She made it bigger. Being prescribed oxygen hit Sherri Odusanya harder than her diagnosis: tanks, noise, tears, and fears she’d never fly again. But she refused to stay small. @phaware.bsky.social podcast ep 586 phaware.medium.com/im-aware-tha...

phaware.medium.com

I’m Aware That I’m Rare: Sherri Odusanya (586)

the phaware® interview

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phaware® @phaware.bsky.social · 13/08/2026

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phaware® @phaware.bsky.social · 11/08/2026

Misdiagnosed at 19, Married After Heart Failure and Living Moment to Moment. Pulmonary hypertension patient, Kathy Ilano believed she’d never marry. Until she met her husband at her high school reunion. phaware.medium.com/im-aware-tha... @phaware.bsky.social podcast ep 585 @PHACanada

phaware.medium.com

I’m Aware That I’m Rare: Kathy Ilano (585)

the phaware® interview

phaware® @phaware.bsky.social · 06/08/2026

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phaware® @phaware.bsky.social · 04/08/2026

She Was a Caregiver Until Pulmonary Hypertension Made Her the Patient. For Christine Ryan, being ill wasn’t the hardest part, letting others care for her was. She struggled not with weakness, but with surrender. @phaware podcast ep 584 @phacanada phaware.medium.com/im-aware-tha...

phaware.medium.com

I’m Aware That I’m Rare: Christine Ryan (584)

the phaware® interview

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phaware® @phaware.bsky.social · 29/07/2026

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phaware® @phaware.bsky.social · 28/07/2026

One of the first questions Amanda Chickie asked after her pulmonary hypertension diagnosis wasn’t about life expectancy, it was about motherhood. The answer devastated her. @phaware.bsky.social podcast ep 583 @phacanada medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Amanda Chickie (583)

the phaware® interview

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phaware® @phaware.bsky.social · 22/07/2026

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phaware® @phaware.bsky.social · 21/07/2026

A new mom's greatest fear: "Am I going to see my daughter grow up?" When Lisa Harder became a new mom, she never imagined that shortness of breath would lead to a rare, life-altering diagnosis. @phaware.bsky.social podcast ep 582 @phacanada medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Lisa Harder (582)

the phaware® interview

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phaware® @phaware.bsky.social · 20/07/2026

Thrilled to hear that MillionsPodcast and Feedspot have named the phaware® podcast the #1 PH Podcast of 2026. These rankings are based on Relevancy, Authority, Social Media Followers and Freshness. THANKS to every guest, follower and sponsor) Subscribe: phawarepodcast.libsyn.com/site

phaware® @phaware.bsky.social · 16/07/2026

Join us for our LIVE On Air with phaware® Summer Webinar Series. We explore the remarkable evolution of Pulmonary Arterial Hypertension from its earliest challenges to today's breakthroughs and the promising future of research and care. REGISTER NOW: mailchi.mp/phaware/summerwebinarser…

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phaware® @phaware.bsky.social · 15/07/2026

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phaware® @phaware.bsky.social · 14/07/2026

Cathleen Harrington was newly engaged when pulmonary hypertension changed everything. 21 years later, after surrogacy, clinical trials, a lung transplant, she’s still here, still building a life around gratitude. @phaware.bsky.social podcast ep 581 medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Cathleen Harrington (581)

the phaware® interview

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phaware® @phaware.bsky.social · 09/07/2026

Why a Social Worker Might Be the Most Important Person on a PH Care Team. Evan Holm, LMSW, SWCM discusses why access, advocacy, and compassion can be just as lifesaving as medication. phaware® podcast ep 580 @unmhsc.bsky.social phawarepodcast.libsyn.com/site/epis…

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phaware® @phaware.bsky.social · 08/07/2026

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phaware® @phaware.bsky.social · 07/07/2026

Why a Social Worker Might Be the Most Important Person on a PH Care Team. Evan Holm, LMSW, SWCM discusses why access, advocacy, and compassion can be just as lifesaving as medication. @phaware.bsky.social podcast ep 580 @unmc-chvr.bsky.social phaware.medium.com/im-aware-tha...

phaware.medium.com

I’m Aware That I’m Rare: Even Holm, LMSW, SWCM (580)

the phaware® interview

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phaware® @phaware.bsky.social · 02/07/2026

THIS JULY ON THE phaware® PODCAST. Four Powerful PH Stories. Four Unforgettable Journeys. One Community That Never Stops Fighting. Like | Follow | Subscribe: phawarepodcast.libsyn.com/site

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phaware® @phaware.bsky.social · 01/07/2026

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phaware® @phaware.bsky.social · 30/06/2026

Thank you, @Insmed. Your generous 2026 support allows phaware® to raise global awareness and accelerate research for pulmonary hypertension through innovative technology and storytelling that amplifies the voices of patients worldwide. insmed.com/patients/patient-advocac…

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phaware® @phaware.bsky.social · 30/06/2026

Thank you, Gossamer Bio Your generous 2026 support allows phaware® to raise global awareness and accelerate research for pulmonary hypertension through innovative technology and storytelling that amplifies the voices of patients worldwide. gossamerbio.com

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phaware® @phaware.bsky.social · 30/06/2026

Thank you, Merck. Your generous 2026 support allows phaware® to raise global awareness and accelerate research for pulmonary hypertension through innovative technology and storytelling that amplifies the voices of patients worldwide. outnumberpah.com

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phaware® @phaware.bsky.social · 30/06/2026

Who Cares for the Caregiver When Everyone Else Comes First? Behind every PH patient is someone quietly running on empty. Laura Camponeschi discusses the emotional, mental, and physical toll of caregiver burnout. @phaware.bsky.social podcast ep 579 medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Laura Camponeschi (579)

the phaware® interview

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phaware® @phaware.bsky.social · 29/06/2026

Thank you, Pulmovant. Your 2026 support + continued collaboration allows phaware® to raise global awareness and accelerate research for pulmonary hypertension through innovative technology and storytelling that amplifies the voices of patients worldwide. pulmovant.com/clinical-trials

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phaware® @phaware.bsky.social · 29/06/2026

Thank you, @Liquidia_Corp. Your 2026 support and collaboration allows @phaware to raise global awareness and accelerate research for pulmonary hypertension through innovative technology and storytelling that amplifies the voices of patients worldwide. www.liquidia.com

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phaware® @phaware.bsky.social · 24/06/2026

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phaware® @phaware.bsky.social · 23/06/2026

Dawn Ogden has lived her entire adult life under the shadow of pulmonary hypertension. Dawn learned it was genetic and she carried it. She faced the reality that the same gene could shape her children’s futures. @phaware.bsky.social podcast ep 578 medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Dawn Ogden (578)

the phaware® interview

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phaware® @phaware.bsky.social · 17/06/2026

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phaware® @phaware.bsky.social · 16/06/2026

She Went Looking for Answers but built a Lifeline. Before Zoom and Facebook groups, PH patient, Carla Kinsey, had only a voice on a phone line. That loneliness pushed her to do something terrifying: start a support group herself. @phaware.bsky.social podcast ep 577 medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Carla Kinsey (577)

the phaware® interview

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phaware® @phaware.bsky.social · 10/06/2026

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phaware® @phaware.bsky.social · 09/06/2026

She Turned Loneliness into a Lifeline for others. Pulmonary hypertension nearly stole Karen Sawyer’s sense of self. She rebuilt it through advocacy and education, proving that no one should face a rare disease alone. @phaware.bsky.social podcast ep 576 medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Karen Sawyer (576)

the phaware® interview

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phaware® @phaware.bsky.social · 03/06/2026

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phaware® @phaware.bsky.social · 02/06/2026

Canadian #CTEPH patient, Carol Stokley was healthy, active, and unstoppable until the day she couldn’t breathe. After months of being told nothing was wrong, she collapsed with life-threatening clots in her lungs. @phaware.bsky.social podcast ep 575 @phacanada medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Carol Stokely (575)

the phaware® interview

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phaware® @phaware.bsky.social · 02/06/2026

THIS JUNE ON THE phaware® PODCAST. Like | Follow | Subscribe: phawarepodcast.libsyn.com/site

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phaware® @phaware.bsky.social · 28/05/2026

The New Era of CTEPH Care. Dr. Jenny Yang explains how new testing and team-based care are solving one of pulmonary medicine’s most overlooked mysteries and changing what’s possible for CTEPH patients. Sponsored by Liquidia. phawarepodcast.libsyn.com/site/epis…

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phaware® @phaware.bsky.social · 27/05/2026

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phaware® @phaware.bsky.social · 26/05/2026

Jenny Yang, MD explains how new testing and team-based care are solving one of pulmonary medicine’s most overlooked mysteries and what’s possible for #CTEPH patients. @phaware.bsky.social podcast ep 574 #phawareMD @ucsdhealth.bsky.social @JennyYangMD #Liquidia. phaware.medium.com/im-aware-tha...

phaware.medium.com

I’m Aware That I’m Rare: Jenny Yang, MD (574)

the phaware® interview

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phaware® @phaware.bsky.social · 21/05/2026

It's #MentalHealthAwarenessMonth. Hear why PAH patient, Eric Borstein, started walking as a way to survive medication side effects and how mental health has reshaped his recovery, and has become one of the lifelines. phawarepodcast.libsyn.com/site/epis…

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