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Pulmonary Hypertension Association @phassociation.org · 3h

The Phoenix O2breathe Walk is just one month away! Join us Sunday, Nov. 1, at Granada Park as we walk for a cure. This event is free and open to anyone affected by PH. Register now: buff.ly/0JpgFmL

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Pulmonary Hypertension Association @phassociation.org · 21h

Meet the chair of the PHA Board of Trustees, Mitchell Koppellman. After discovering his family’s connection to PH, Mitch became interested in PH research. He first connected with PHA through his daughter and continues to carry out her passion for PH advocacy today. Learn more: buff.ly/X1ZQMFG

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Pulmonary Hypertension Association @phassociation.org · 30/09/2026

Securing research funding can be difficult for those early in their careers. PHA invests in the next generation of researchers through grant programs that help launch careers dedicated to #PH. Give today to help ensure funding for the next generation of PH researchers. buff.ly/yHz0l2h

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Pulmonary Hypertension Association @phassociation.org · 29/09/2026

Want to make a difference for the #PHcommunity? Join us at the free #PHWellnessExpo on Oct. 10, in San Francisco to learn how to get involved in #PHA advocacy. Register online by Oct. 6. buff.ly/OnhhEDU

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Pulmonary Hypertension Association @phassociation.org · 29/09/2026

Thank you to everyone who attended the Detroit O2breathe Walk on Saturday. Together, we raised over $10,000 to support the PH community and provide vital #resources for those living with #PH.

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Pulmonary Hypertension Association @phassociation.org · 29/09/2026

Last chance: People living with a serious respiratory illness and their caregivers are invited to take a short survey to help researchers better understand the care and support patients and families need most. Take the survey before it closes on Sept. 30: buff.ly/N6DvXr1

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Pulmonary Hypertension Association @phassociation.org · 28/09/2026

Poor air quality can cause health issues for anyone. For those with #PH, it's especially important to notice symptoms such as shortness of breath, lightheadedness and dizziness, to ensure there isn’t something more serious going on. Learn more: buff.ly/kGn0L0e

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Pulmonary Hypertension Association @phassociation.org · 28/09/2026

Join us Wednesday, Sept. 30, at 2 p.m. EDT for the "Transplantation Roadmap: Lung Transplant Referral and Evaluation for Pediatric and Adult PH" webinar. Find answers to questions that will help you better understand the transplant process. Don’t miss out, register now. buff.ly/ukCL1wn

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Pulmonary Hypertension Association @phassociation.org · 27/09/2026

The Cincinnati O2breathe Walk is one month away! Join us on Saturday, Oct. 24, at 10 a.m. EDT to be encouraged by the local community and raise funds for a cure. The event is free to attend and open to anyone affected by #PH. Learn more and register now: buff.ly/oPk8PRV

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Pulmonary Hypertension Association @phassociation.org · 26/09/2026

Do you have a story to share with PHA? We would love to hear from you. We're always looking to highlight the unique experiences of individuals in the #PH community. Sharing your story can help inspire hope and support for others. Use our form to submit your story and photos. buff.ly/5BRsHi5

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Pulmonary Hypertension Association @phassociation.org · 25/09/2026

This September, we’re highlighting the connection between associated conditions and PH. Conditions such as scleroderma and sickle cell disease can increase a person’s risk of developing PH, and PH may occur alongside these conditions. Learn more: buff.ly/Of8wYvd

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Pulmonary Hypertension Association @phassociation.org · 25/09/2026

Today is #WorldLungDay! This year’s observance emphasizes the importance of caring for your lungs at every stage of life. Learning how to care for your lungs is essential to living your best life. Share how you’re supporting your lung health in the comments!

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Pulmonary Hypertension Association @phassociation.org · 24/09/2026

Advocacy doesn’t require a trip to Capitol Hill. It can be as simple as sending a message to your lawmakers about an issue affecting the PH community. Subscribe to PHA's monthly Advocacy Action Alert to learn how your voice can make a difference. buff.ly/DmhBbYe

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Pulmonary Hypertension Association @phassociation.org · 24/09/2026

The Chicago Stride O2breathe walk is quickly approaching! Join us for a morning of #community and #connection in honor of the #PH community. Register now: buff.ly/TquBZ3U

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Pulmonary Hypertension Association @phassociation.org · 23/09/2026

September is Interstitial Lung Disease Awareness Month. Pulmonary fibrosis is a form of ILD that can damage lung tissue, increasing the risk of developing #PH. Learn more about the relationship between ILD and PH: buff.ly/K1XB8tN

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Pulmonary Hypertension Association @phassociation.org · 22/09/2026

Thank you to everyone who joined us at the inaugural Indianapolis O2breathe Walk on Saturday. Together we raised over $17,000 for the PH community. We are grateful to all who made it such an inspiring event.

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Pulmonary Hypertension Association @phassociation.org · 22/09/2026

Curious about the future of #PH care? Join adult and pediatric PH experts at the free #PHWellnessExpo on Oct. 10 in San Francisco for updates on new therapies, clinical trials and more. Register now: buff.ly/aLW8BIR

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Pulmonary Hypertension Association @phassociation.org · 21/09/2026

The Baltimore O2breathe walk will be here before we know it! Join us to celebrate the #PH community, raise awareness and connect with others affected by PH. Register now. buff.ly/kwIOFnu

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Pulmonary Hypertension Association @phassociation.org · 21/09/2026

New on PH Insights, Nicole Creech, a patient advocate, support group leader and PHA board member, reflects on her 18-year PH journey and shares her experience managing PH with pump therapy. Tune in to the episode for insights, advice and encouragement. Watch or listen now: buff.ly/oPXtyQb

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Pulmonary Hypertension Association @phassociation.org · 20/09/2026

After watching her father struggle to breathe, pulmonologist Allison Kole became an advocate for other patients struggling with oxygen access. She urges Congress to support the SOAR Act and improve access to supplemental oxygen. Learn more: buff.ly/Vf65uKy

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Pulmonary Hypertension Association @phassociation.org · 19/09/2026

The Wisconsin O2breathe Walk is just around the corner! Don’t miss out on this opportunity to join the PH community and raise funds for a cure. Register now. buff.ly/XcK0jhC

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Pulmonary Hypertension Association @phassociation.org · 18/09/2026

PHA invests in research because every discovery has the potential to transform the future of PH care. "Without support, we risk losing talented scientists who have dedicated themselves to understanding PH and finding better treatments,” said Karen Fagan, MD. Give today: buff.ly/fWkBKje

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Pulmonary Hypertension Association @phassociation.org · 18/09/2026

“Navigating Pulmonary Hypertension: A Guide for Patients and Families” now has even more to offer. The updated version features information about pediatric PH, updated treatment information, and more. Order now: buff.ly/Gp0yHaQ.

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Reposted by Pulmonary Hypertension Association

PVRI @pvrinstitute.bsky.social · 17/09/2026

❓️ Why do clinical trials matter for patients? In the second video of our 'Understanding clinical trials' PH patient resource collection, Louise Bouman explains why clinical trials matter and how research helps shape the future of PH care. 🎥 Watch the full series: pvrinstitute.org/PH-patient-r...

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Pulmonary Hypertension Association @phassociation.org · 17/09/2026

Researchers at the University of Illinois Chicago identified two potential therapeutic targets for schistosomiasis-associated PAH. A recent study found that blocking one protein involved in inflammation and cell death reduced some signs of PH in mice. Learn more: buff.ly/EB9YApV

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Pulmonary Hypertension Association @phassociation.org · 17/09/2026

The latest issue of Pathlight features three musicians whose journeys with pulmonary hypertension highlight resilience. This issue also looks back at PHA 2026 PH International Conference and shares other compelling stories. Learn more:https://buff.ly/i0UWuzL

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Pulmonary Hypertension Association @phassociation.org · 16/09/2026

Join us Sept. 30 at 2 p.m. EDT for a webinar on lung transplant referral and evaluation for pediatric and adult PH. Learn when a referral may be considered, what to expect during the evaluation and how to prepare and find support. Register: buff.ly/HDzasNF

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Pulmonary Hypertension Association @phassociation.org · 16/09/2026

Less than one month remains until the #PHWellnessExpo. Join us Oct. 10 in San Francisco to connect with the #PHcommunity, access free resources and attend an in-person #supportgroup. Register by Oct. 6: buff.ly/aLW8BIR

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Pulmonary Hypertension Association @phassociation.org · 15/09/2026

Thank you to everyone who attended the Columbus O2breathe Walk on Sunday. The event was a big success. Together we raised over $15,000 for the #PH community. Interested in attending an upcoming fundraising event? Learn more: buff.ly/a3m9qBZ

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Pulmonary Hypertension Association @phassociation.org · 14/09/2026

Join us tomorrow, Sept. 15, at 8 p.m. EDT for the next Women’s PHorum PHOWARD webcast on innovation beyond the clinic. Panelists will share insights on how healthcare professionals can engage in research and advocacy. Register now: buff.ly/eScky0P

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Pulmonary Hypertension Association @phassociation.org · 14/09/2026

Individuals living with a serious respiratory illness and their caregivers are invited to take a short global survey to help researchers understand how to best support patients and their families. Take the survey: buff.ly/1ZTJrPb

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Pulmonary Hypertension Association @phassociation.org · 12/09/2026

The Greater Philadelphia O2breathe Walk is only two weeks away! Don't miss out on this chance to connect with the local #PH community and experience an empowering morning of movement. Register now: buff.ly/dLwQY6x

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Pulmonary Hypertension Association @phassociation.org · 11/09/2026

Myth: PHA Support Line volunteers must be available 24/7. Fact: Volunteers sign up for weeklong shifts and answer calls from their personal phones as they can. They are asked to return missed calls within 12 hours. Learn more: buff.ly/up50h6l

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Pulmonary Hypertension Association @phassociation.org · 10/09/2026

The Greater Detroit O2breathe Walk is right around the corner! Don't miss out on this opportunity to celebrate the local #PH community and walk for a cure. Register now: buff.ly/55fgkd4

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Pulmonary Hypertension Association @phassociation.org · 10/09/2026

Upcoming changes to Medicaid will include a work requirement for most recipients. Work requirements and coverage changes may vary by state. It’s important to know whether these changes will affect your health coverage. Find your state's specific requirements: buff.ly/WGR7174

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Reposted by Pulmonary Hypertension Association

PVRI @pvrinstitute.bsky.social · 09/09/2026

Only one day to go! ⏳️ Imaging of Pulmonary Arterial Hypertension 📅 10 Sept 2026 🕓️ 16:00 - 17:30 BST Join us and explore the latest imaging approaches in PAH, including radiographs, CT, MRI, echocardiography, and the assessment of suspected PAH. ➡️ Register now: pvrinstitute.org/learning-hub...

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Pulmonary Hypertension Association @phassociation.org · 09/09/2026

September is Sickle Cell Disease Awareness Month. Sickle cell disease is an inherited blood disorder that causes abnormally shaped red blood cells and is associated with an increased risk of developing PH. Learn more: buff.ly/pHuIw1c

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Pulmonary Hypertension Association @phassociation.org · 08/09/2026

Join us Oct. 10 in San Francisco for the free #PHWellnessExpo. Kids can enjoy face painting and fall-themed fun while parents explore exhibits, watch demonstrations and connect with local #PH resources. Lunch and parking included. Register now: buff.ly/C3e5b2X

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Pulmonary Hypertension Association @phassociation.org · 08/09/2026

The Wisconsin O2breathe Walk is one month away! Join the local PH community on Sat. Oct 3, at Fox Brook Park in Brookfield to celebrate, spread awareness, and raise funds towards a cure. Learn more and register: buff.ly/tBTrf9s

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Pulmonary Hypertension Association @phassociation.org · 07/09/2026

Wishing you and your families a safe and relaxing Labor Day!

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Pulmonary Hypertension Association @phassociation.org · 06/09/2026

Do you have a heart for helping others? PHA seeks compassionate volunteers to answer calls on its support line. Support line volunteers provide information, resources and encouragement to patients and caregivers. No experience is necessary. Training is provided. Learn more: buff.ly/up50h6l

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Pulmonary Hypertension Association @phassociation.org · 05/09/2026

The Chicago Stride O2breathe Walk is just one month away! Join the local PH community on Sunday, Oct. 4 at Burnham (Daniel) Park in Chicago for a morning of hope and movement. We hope to see you there! Learn more and register: buff.ly/3FBjkCm

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Pulmonary Hypertension Association @phassociation.org · 04/09/2026

September is National Preparedness Month, an opportunity to make sure you and your family have a plan in place for non-medical emergencies and disasters. Learn more: buff.ly/z7qT6UP

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Pulmonary Hypertension Association @phassociation.org · 03/09/2026

The Baltimore O2breathe Walk is one month away! Join us on Saturday, Oct. 3 at Canton Waterfront Park in Baltimore to connect with the local PH community. The event is free to attend and open to anyone affected by #PH. Learn more and register now: buff.ly/76NDvX8

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Pulmonary Hypertension Association @phassociation.org · 03/09/2026

A survey conducted by PHA and its partner organizations found that a shortage of at-home oxygen is contributing to prolonged hospital stays. Most health care professionals surveyed reported at least one oxygen-related discharge delay each month. Learn more: buff.ly/tytfy4P

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Pulmonary Hypertension Association @phassociation.org · 02/09/2026

A recent study found that #PAH patients who completed a three-month rehabilitation program showed significant improvement in their exercise capacity. At 12 months, patients who completed rehab more than doubled their exercise time compared to those who did not. Learn more: buff.ly/BfgSCsC

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Pulmonary Hypertension Association @phassociation.org · 02/09/2026

The Indianapolis O2breathe Walk is just two weeks away! Don't miss out on this opportunity to experience hope and honor the local PH community. The event is free to attend. Register now: buff.ly/oAxvB6m

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Pulmonary Hypertension Association @phassociation.org · 01/09/2026

@pvrinstitute.bsky.social (PVRI) has launched a series of resources designed to equip #PH patients and caregivers to navigate clinical trials. Learn what clinical trials are, how they work, what participation involves and more. Learn more: buff.ly/71XAjsS

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Pulmonary Hypertension Association @phassociation.org · 01/09/2026

Do you live with #PH and an associated condition? Attend the #PHWellnessExpo on Oct. 10! Connect with the Northern California PH community, explore resources and enjoy family-friendly activities. Learn More: buff.ly/C3e5b2X

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Pulmonary Hypertension Association @phassociation.org · 31/08/2026

Thank you to everyone who attended the Northern California O2breathe Walk yesterday. Together, we raised $20,000 to support the #pulmonaryhypertension community and provide vital #resources for those living with #PH.

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