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Pediatric Palliative Care Coalition

@pedpalcc.bsky.social
101 followers 40 following 26 posts

PPCC is a nonprofit coalition that provides education and resources to families and medical professionals caring for children with life limiting illness

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Pediatric Palliative Care Coalition @pedpalcc.bsky.social · 11/08/2026
Register for 8/12 PPCC Firefly Chat: Goals of Care Discussions: More Than a Medical Decision. We will explore decision-making and ongoing conversations in supporting children with serious illness with a Palliative Medicine Physician and two parents. us02web.zoom.us/webinar/regi...
us02web.zoom.us
Welcome! You are invited to join a webinar: PPCC Firefly Chat - Goals of Care Discussions: More than a Medical Decision. After registering, you will receive a confirmation email about joining the web...
In this upcoming Firefly Chat, we will be exploring decision making and the importance of ongoing caring conversations in supporting children with serious illness and their families. We will highlight...
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Pediatric Palliative Care Coalition @pedpalcc.bsky.social · 21/07/2026
August 20 PPC Webinar - Improving Pediatric End of Life Legacy Building at Home. The presenter will discuss Memory Making kits, aimed at independently facilitating legacy activities at home, which allow for the creation of tangible keepsakes. #pedpc #pedspc #hapc #hpm
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Pediatric Palliative Care Coalition @pedpalcc.bsky.social · 12/06/2026
Join us tomorrow for a PPC Webinar - Anti-Racism and Health Equity in Pediatric Serious Illness: Next Steps in Maintaining Commitment. Presenters will discuss health inequalities impacting children facing serious illness and how to address them. #pedpc #pedspc #hapc #hpm
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Pediatric Palliative Care Coalition @pedpalcc.bsky.social · 05/02/2026
Join us Wednesday, 2/11/26 at Noon EST for our first PPCC Firefly Chat of the year. During this Firefly Chat, a parent caregiver and a hospice social worker will discuss the emotional, spiritual, physical and logistical challenges caregivers encounter every day. us02web.zoom.us/webinar/regi...
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Pediatric Palliative Care Coalition @pedpalcc.bsky.social · 20/01/2026
There's still time to register for our first PPC Webinar of 2026! This presentation will utilize an impactful clinical case to demonstrate the importance of ongoing assessment of a family’s understanding & goals of care. Register and learn more at www.ppcwebinars.org #pedpc #pedspc #hapc #hpm
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Pediatric Palliative Care Coalition @pedpalcc.bsky.social · 12/01/2026
Join us January 22nd for our first PPC Webinar of 2026! This presentation will utilize an impactful clinical case to demonstrate the importance of ongoing assessment of a family’s understanding and goals of care. Register and learn more at www.ppcwebinars.org #pedpc #pedspc #hapc #hpm
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Pediatric Palliative Care Coalition @pedpalcc.bsky.social · 31/12/2025
As we say goodbye to 2025, we are deeply grateful for our community. We could not do this work without you! Wishing you a New Year filled with peace, hope and meaningful moments with those you hold dear!
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Pediatric Palliative Care Coalition @pedpalcc.bsky.social · 25/11/2025
Here are 3 different ways you can help: 🧡Make a donation today. ow.ly/Z7xJ50UamOx 💙💙Host your own virtual fundraiser through our donation platform, Give Lively. secure.givelively.org/donate/pedia... 💜💜💜Subscribe to the PPC Webinar Series. www.ppcwebinars.org We are thankful for all you do!
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Pediatric Palliative Care Coalition @pedpalcc.bsky.social · 10/11/2025
Registration for the 2026 PPC Webinar Series Opens December 1! This series is designed to raise the visibility of pediatric palliative care to help families & caregivers & to build clinicians’ competencies & confidence in providing care to children. mailchi.mp/ppcc-pa/2024...
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Pediatric Palliative Care Coalition @pedpalcc.bsky.social · 03/11/2025
Register for the Nov 2025 PPC Webinar - The Father Experience in the Pediatric Healthcare System. Dr. Chrissy Salley, from @CourageousCPN will facilitate a panel discussion among a group of fathers. mailchi.mp/ppcc-pa/regi... #pedpc #pedspc #hapc #hpm
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Pediatric Palliative Care Coalition @pedpalcc.bsky.social · 21/10/2025
Register for today's PPC Webinar - Using Photo-Narratives to Enhance Humanistic Care. In this webinar, presenters will explore what photo-narratives are and how they have been used in serious illness care for children and families. mailchi.mp/ppcc-pa/regi... . #pedpc #pedspc #hapc #hpm
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Pediatric Palliative Care Coalition @pedpalcc.bsky.social · 06/10/2025
October 10 Webinar: Navigating Periviable Birth Explore survival, outcomes, and NICU care for infants at the edge of viability. Learn about ethical challenges, emerging treatments, and the role of palliative care in supporting families and care teams. www.ppcwebinars.org/deeper-dive
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Pediatric Palliative Care Coalition @pedpalcc.bsky.social · 24/09/2025
Join us for a 3-part Deeper Dive into Ethics in Perinatal and Neonatal Care with presenters, Dr. Brian Carter, Dr. Christopher Collura and Dr. Robert Macauley. October 3rd, 10th and 17th, 12pm ET. www.tfaforms.com/5164780 #pedpc #pedspc #hapc #hpm #medicine #neonatal #perinatal
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Pediatric Palliative Care Coalition @pedpalcc.bsky.social · 22/09/2025
PPCC is excited to announce the launch of the LANTERN Initiative, providing peer support to PA families of children with medical complexity and intellectual/developmental disabilities as part of the new Resource Matching Program. Learn more and get involved today! www.ppcc-pa.org/resource-mat...
Woman holding a phone to her ear and engaged in a conversation beside a logo for the Lantern Initiative featuring a lantern with a flame and the acronym spelled out.
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Pediatric Palliative Care Coalition @pedpalcc.bsky.social · 12/09/2025
There is still time to register for the Sept PPC Webinar - Living in the Gray: A Case Series of "Everything But" for the Chronically, Critically Ill Child and Their Families. This webinar will discuss compassionate strategies for aligning with families and overcoming barriers. www.ppcwebinars.org
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Pediatric Palliative Care Coalition @pedpalcc.bsky.social · 26/08/2025
Betsy Hawley was featured on the Remembering a Life podcast. This caring conversation focused on how to help ensure families have the resources and support they need while caring for a child at end of life and honoring that child in meaningful ways. www.rememberingalife.com/blogs/podcas...
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Pediatric Palliative Care Coalition @pedpalcc.bsky.social · 05/08/2025
Our next PPCC Firefly Chat, Managing Pediatric Complex Care, will highlight the importance of communication, collaboration and strategies to support patients and families. Firefly Chats are FREE, but registration is required. Learn more and register at www.ppcc-pa.org/firefly-chat
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Pediatric Palliative Care Coalition @pedpalcc.bsky.social · 18/07/2025
We're excited and honored to be part of this quarter’s Register Round-Up at the East End Food Co-op! Betsy had a great time today connecting with Co-op patrons, sharing the heart behind our mission and the impact of our programs.
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Pediatric Palliative Care Coalition @pedpalcc.bsky.social · 16/06/2025
There is STILL TIME to register for the June 2025 PPC Webinar - Addressing Health Equity and Racism in Pediatric Serious Illness. Presenters will discuss ways health inequalities impact children facing serious illness. mailchi.mp/ppcc-pa/regi...
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Pediatric Palliative Care Coalition @pedpalcc.bsky.social · 20/05/2025
PPCC is excited to announce the launch of the Resource Matching Program! We are looking for Pennsylvania-based participants for our pilot program which will connect families with reliable resources, aiming to reduce the burdens on caregivers. To sign up, visit docs.google.com/forms/d/e/1F...
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Pediatric Palliative Care Coalition @pedpalcc.bsky.social · 24/03/2025
The March 2025 PPCC Newsletter is now available! This edition focuses on pediatric palliative care, hospitalizations and music therapy and features an article by Nicole Steele, MS, MT-BC, NICU-MT. We hope you will take a few minutes to check it out! mailchi.mp/ppcc-pa/ppcc...
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Pediatric Palliative Care Coalition @pedpalcc.bsky.social · 11/03/2025
*NEW* PPC Webinar Series Presents - Deeper Dive Join us for a 3-part series which will take a Deeper Dive into pediatric pain and symptom management with presenter Melissa Hunt, PharmD, BCPPS. This program will take place over 3 consecutive weeks in April. Noon-1:00pm ET www.tfaforms.com/5164780
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Pediatric Palliative Care Coalition @pedpalcc.bsky.social · 03/03/2025
Register now for the March 2025 PPC Webinar - Medical Cannabis Therapy in Pediatric Palliative Care presented by Sarah Friebert, MD. In this presentation, Dr. Friebert will outline the use and monitoring of medical cannabis therapy in a pediatric palliative care clinic. mailchi.mp/chpcc.org/re...
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Pediatric Palliative Care Coalition @pedpalcc.bsky.social · 24/02/2025
The February 2025 PPCC Newsletter is now available! This edition focuses on the role of social work in pediatric palliative care and features an article by Stacy S. Remke, MSW, LICSW, APHSW-C. We hope you will take a few minutes to check it out! mailchi.mp/ppcc-pa/ppcc...
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Pediatric Palliative Care Coalition @pedpalcc.bsky.social · 31/01/2025
Join us for our upcoming PPCC Firefly Chat on Tuesday, February 12th - A Discussion on POLST Forms for the Pediatric Patient in the Home Setting. Firefly Chats are free, but registration is required. For more information and to register, visit mailchi.mp/ppcc-pa/ppcc...
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Pediatric Palliative Care Coalition @pedpalcc.bsky.social · 24/01/2025
The January 2025 PPCC Newsletter is now available! This edition focuses on Communicating with Adolescents and features an article on motivational interviewing by Rachel Kentor, Ph.D. We hope you will take a few minutes to check it out! You can find it here: mailchi.mp/ppcc-pa/ppcc...
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Reposted by Pediatric Palliative Care Coalition
Pitt Palliative Research Center (PaRC) @pittpalcare.bsky.social · 25/11/2024
Now in press at Academic Pediatrics, PaRC's Justin Yu & Pitt Med M3 student Kevin Huynh have published on emotional well-being among family caregivers of children. Kevin used a machine learning approach on data from the National Survey of Children's Health. buff.ly/3VaiDUl
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Reposted by Pediatric Palliative Care Coalition
Palliative Medicine Journal @palliativemedj.bsky.social · 27/05/2024
A scoping review of guidelines and frameworks for advance care planning for adolescents and young adults with life-limiting or life-threatening conditions. #hpm #hapc #palliativecare #pedpc buff.ly/4ccGKrN
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Reposted by Pediatric Palliative Care Coalition
Rachel Thienprayoon, MD, MSCS @rthienprayoon.bsky.social · 25/11/2024
So many thoughts and feelings about this. Their #pedpc #hospice experiences were so poor. Her pain wasn’t controlled. Her mother never heard clearly she wouldn’t be cured. Heart-breaking. What are others thoughts? www.nytimes.com/2024/11/25/o...
nytimes.com
Opinion | If My Dying Daughter Could Face Her Mortality, Why Couldn’t the Rest of Us?
A bereaved mother’s case against our grief-phobic culture.
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Scott Maurer, MD @scottmaurermd.bsky.social · 09/12/2024
Spending the day teaching #Pediactric residents how to support and communicate with families of children who are dying or bereaved. Grateful for our donors, residency program leadership, and @pittpediatrics.bsky.social for gifting us this day! #PedPC #hapc
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