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PRIME Parkinson UK

@pdprime.bsky.social
21 followers 4 following 0 posts

The UK arm of a Gatsby Foundation programme to innovate Parkinson’s care. Run from Bristol University by Professor Emily Henderson In collaboration with Radboud University, NL.

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Reposted by PRIME Parkinson UK
Ageing and Movement Research Group @amrg-bristol.bsky.social · 24/02/2025
How can goal setting be used in clinical trials as an outcome measure, to help focus on what matters most to the people your research is trying to help! This AMRG paper describes how we used goal-setting as our primary outcome in @PdPrime - read it here sciencedirect.com/science/arti...
sciencedirect.com
Operationalizing goal setting as an outcome measure in trials involving patients with frailty, multimorbidity or complexity
In the absence of disease-modifying therapies for Parkinson's disease, much research focuses on improving quality of life, health and wellbeing. It is…
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Reposted by PRIME Parkinson UK
Ageing and Movement Research Group @amrg-bristol.bsky.social · 03/02/2025
We’re delighted to present this new publication by Dr Katie Lloyd in on how we designed the embedded process evaluation for @pdprime.bsky.social trial, given the complexity of this novel intervention. Read it here: bmjopen.bmj.com/content/15/1...
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Reposted by PRIME Parkinson UK
Ageing and Movement Research Group @amrg-bristol.bsky.social · 29/11/2024
It seems right that our first post here is on World Movement Disorders Day ! We're a research group based at the University of Bristol carrying out research in Ageing and Movement Disorders ! We'll be posting a proper introduction to who we are and what we do next week, so make sure to follow!
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