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Ellie

@pdmama.bsky.social
167 followers 19 following 2 posts

From the mighty North East, living in Surrey. Mother of 2. Dx #yopd 2013 aged 29. DBS Jan 2024, removal June 2024. Re-implantation imminent...

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Ellie @pdmama.bsky.social · 06/12/2024
Yes, it is real. I used it as a rescue remedy of sorts when my dyskinesia was particularly bad. It's not a cure or permanent relief, but it worked for me. I've just had DBS...
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Ellie @pdmama.bsky.social · 16/11/2024
40 here, dx at 29. 👋 2 kids post-dx. Had DBS in Jan, had it removed in June (infection, open head wound), having it again soon. Let's hope 3rd brain surgery this year is the last for a while!
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