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Patient Dreams

@patientdreams.bsky.social

Impatient non-patient with #MECFS since 2000. Trying not to get Darwined. Dreaming of becoming a patient with appropriate medical care one day soon.

Posts Replies Media

Patient Dreams @patientdreams.bsky.social · 24/09/2026

"Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed" -George Monbiot #MECFS www.theguardian.com/commentisfre...

theguardian.com

Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George Monbiot

Changes in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot

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Reposted by Patient Dreams

DecodeME @decodemestudy.bsky.social · 06/08/2025

Our initial DNA results! DecodeME have discovered that people with an ME/CFS diagnosis have significant genetic differences compared to the general population. - Summary of our results: shorturl.at/pgsjk Check out our full preprint paper: shorturl.at/VwN3s

DecodeME: The Results announcement post. The graphic has a blue background with a DNA helix. In the centre of the graphic it says ‘We have released our initial DNA results! We have discovered that your genes contribute to your chances of developing ME/CFS.’ At the bottom left of the graphic is an image of a research paper.

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