iiinova — where your digital self keeps evolving

Philip Palermo @palermo.bsky.social · 27/09/2026

Took this video a few weeks ago at Ocean Shores. I love how it looks sped up, but it’s not. That’s just how these birds walk, I guess! (📹: iPhone 16 Pro with 3x teleconverter)

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Philip Palermo @palermo.bsky.social · 26/09/2026

Hummingbird riding out the storm on our feeder. (Side note: I’m glad the iPhone 18 Pro’s camera app includes manual focus controls — finally!)

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Philip Palermo @palermo.bsky.social · 23/09/2026

When our daughter was diagnosed with the rare CLN1 Batten Disease, tests showed I had a genetic mutation of “unknown significance.” Turns out it can lead to Batten Disease. Jokingly suggested they name the defect after me, but it does show how much more there is to learn about this horrible disease.

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Philip Palermo @palermo.bsky.social · 22/09/2026

A couple photos of the Ketron Island ferry at sunset. (📸: iPhone 18 Pro with 3x teleconverter lens)

A photo of the Ketron Island ferry approaching the dock as the sun sets in the background.

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Philip Palermo @palermo.bsky.social · 21/09/2026

I recite his definition of “text-mexting” anytime I see a Chili’s To Go.

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Philip Palermo @palermo.bsky.social · 20/09/2026

We hiked some of the trails around Pt. Defiance today, hit several of the viewpoints, and got an up-close look at the Mountaineer Tree. A cloudy, but lovely, day for a hike!

Jennifer and Philip stand in front of the Mountaineer Tree at Pt. Defiance Park

An ultra wide angle photo of the Mountaineer Tree

A butterfly holding some of Amelia’s ashes with the Tacoma water in the background

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Philip Palermo @palermo.bsky.social · 20/09/2026

I was curious about the iPhone 18 Pro’s variable aperture lens and the difference it would make for depth of field specifically for these types of shots: Where we hold a small butterfly containing some of Amelia’s ashes and take a pic on some of trails. Pretty cool to see!

A photo of Amelia’s butterfly (containing some of her ashes) with the Tacoma water in the background. The water is a bit blurry because of the wider aperture used: f/1.48

A photo of Amelia’s butterfly (containing some of her ashes) with the Tacoma water in the background. The water is a bit sharper because of the narrower aperture used: f/4

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Philip Palermo @palermo.bsky.social · 18/09/2026

Today we visited Ocean Shores for the first time since we lost Amelia. We loved taking her here with her cool beach wheelchair. Of course, we took a little bit of her with us for a lovely afternoon on the sand.

A butterfly made of Amelia’s old clothes is held in front of the ocean at Ocean Shores, Wa.

Jennifer, Philip, and a butterfly holding some of Amelia’s ashes with the ocean in the background

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Philip Palermo @palermo.bsky.social · 16/09/2026

Welp, out of nowhere, I suddenly had an entire story idea (beginning, middle, and most of the end) unfold in my head and all I can think of is: Dangit, now I have to go write the thing, I guess.

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Philip Palermo @palermo.bsky.social · 15/09/2026

I’ve opted to avoid reading obvious engagement bait here and on Threads especially before bed because it tends to make me sad and/or angry. I might have to avoid Mariners game recaps as well. For similar reasons.

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Philip Palermo @palermo.bsky.social · 14/09/2026

I’ve never been to the San Juan Islands, so Jenn and I took a day trip to Anacortes, and a walk-on ferry ride to Friday Harbor. Didn’t see any orcas, but it was a lovely place and I hope we get to visit again soon!

Jennifer and Philip in a selfie on the Friday Harbor ferry with islands in the background

Boats anchored at Friday Harbor on San Juan Island

A view of islands passing by a Washington State ferry

A butterfly containing some of Amelia’s ashes with the San Juan Islands in the background

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Philip Palermo @palermo.bsky.social · 10/09/2026

The last time the Seahawks played a real game (the Super Bowl) was the day we lost our Amelia. Today’s game brings on a wave of conflicting and competing emotions, but we continue to cheer for the Hawks … and cheer for more Batten Disease research funding. We miss our girl so, so much.

Amelia’s Seahawks shirt, bow, bracelet, and scrunchie hang off a set of window blinds

An older photo of Amelia wearing her Seahawks gameday attire next to a Seahawks pillow while she’s wearing a nasal cannula for oxygen support

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Philip Palermo @palermo.bsky.social · 09/09/2026

We had a lovely hike along some of the trails at Mt. Rainier National Park today. We spotted several butterflies, some marmots, a tiny chipmunk, one deer, and a black bear in the distance. That’s when we decided we’d had enough hiking and turned back around. 😉

A photo of Mt. Rainier along the Skyline Trail

A photo of a butterfly containing some of ashes of Amelia with Mt. Rainier in the background

A group photo of Jennifer, her mom, and Philip at Mt. Rainier National Park

A black bear at Mt. Rainier National Park

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Philip Palermo @palermo.bsky.social · 09/09/2026

More to share later, but we did some hiking up at Mt. Rainier this afternoon. Spotted a curious black bear up ahead near the trail we were on and decided that was a good time to turn back!

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Philip Palermo @palermo.bsky.social · 06/09/2026

Birdwatching in the backyard. (📸: iPhone 16 Pro with 3x teleconverter lens)

A photo of a scrub jay on a wooden fence holding a peanut in its beak

A photo of a dove sitting on a wooden fence next to a peanut

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Reposted by Philip Palermo

Philip Palermo @palermo.bsky.social · 04/09/2026

Just reposting my latest project for the Television Critics Association: 5 more shows earned the “TCA Approved” distinction and joined the list of the Best Shows of 2026… So Far. Thanks again, @tvcritics.org !

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Philip Palermo @palermo.bsky.social · 04/09/2026

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Reposted by Philip Palermo

The TCA @tvcritics.org · 03/09/2026

"Widow's Bay" is TCA APPROVED, joining our list of the Best Shows of 2026 (So Far). See what Television Critics Association members have said about the Apple TV horror-comedy.

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Philip Palermo @palermo.bsky.social · 31/08/2026

We spent a lovely Saturday exploring Gig Harbor, Fox Island, and Purdy as we followed a group of orcas, including Jack (T137A). He’s a 24-year-old transient orca and as you can see from his fin, he’s a big, big boy. 🫍 (Photos: iPhone 16 Pro w/ teleconverter lens)

A photo from the Purdy Sand Spit showing the large fin of an adult orca named Jack and the smaller fins of other orcas in the area.

A photo from the Purdy Sand Spit showing the large fin of an adult orca named Jack who was blowing air upward and the smaller fins of other orcas in the area.

A photo from the Purdy Sand Spit showing the large fin of an adult orca named Jack and the smaller fins of other orcas, including one blowing air out, in the area.

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Reposted by Philip Palermo

Meg Rowley @megrowler.fangraphs.com · 29/08/2026

Are the Mariners good? That's the wrong question, I want to know if they're trying to kill me.

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Philip Palermo @palermo.bsky.social · 28/08/2026

Our LG TV just did this. Realized some of the terms are optional, so I only accepted the “necessary” ones. Still annoying though.

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Philip Palermo @palermo.bsky.social · 28/08/2026

Right before the clouds rolled in. (📸: iPhone 16 Pro w/ teleconverter lens)

A photo of the moon during a lunar eclipse on Aug. 27, 2026

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Philip Palermo @palermo.bsky.social · 28/08/2026

Tacoma! Jenn, my amazing wife, is looking to place exchange students in the Tacoma School District. If you’d like to host a boy from Brazil, Spain, Germany or Thailand for 6 wks while a permanent host family is found, let me know! Tacoma has open spots, but they have to secure placement by Friday.

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Philip Palermo @palermo.bsky.social · 27/08/2026

I really hope Jennifer and I can witness Jack doing Jack things someday.

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Reposted by Philip Palermo

Emily Mullin @emilymullin.bsky.social · 26/08/2026

I'm a staff writer at @wired.com and I'm looking to speak with parents of immunocompromised kids, especially those in areas with measles outbreaks, and how you're dealing with back to school with rising cases. emily_mullin@wired.com

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Philip Palermo @palermo.bsky.social · 25/08/2026

Happy to celebrate any major milestones when it comes to CLN1 Batten Disease research! Congrats to @collabchem.bsky.social , the team at Collaborations, and everyone involved in this project. Hopefully, we’re inching closer toward a day when a CLN1 Batten Disease diagnosis is not a death sentence.

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Philip Palermo @palermo.bsky.social · 21/08/2026

Yesterday, we followed a group of transient orcas in Tacoma. The T077s came up close to Chinese Reconciliation Park and then we caught back up with them down the road. Also got a shot of one spy hopping with Mt. Rainier in the background. (📸: iPhone 16 Pro, mostly with a 3x teleconverter)

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Philip Palermo @palermo.bsky.social · 20/08/2026

Big thank to the Television Critics Association for again trusting me to produce 16 video shorts to announce the 2026 #TCAAwards. Tried something fun this year and I like how they came out. Please go follow @tvcritics.org and like/watch each video at least a hundred times!

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Reposted by Philip Palermo

The TCA @tvcritics.org · 20/08/2026

#HeatedRivalry scores, is named the 2026 Program of The Year at the #TCAAwards! EPs Jacob Tierney and Brendan Brady accept the award.

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Philip Palermo @palermo.bsky.social · 15/08/2026

Apparently, if you do enough local freelance photography, sometimes reprints of your marketing work hang off the walls of a local Applebee’s.

A photo of a framed print of a Ferris Wheel at the Washington State Fair taken by Philip Palermo. The reprint is mounted on the wall at the Applebees’s location in Lakewood, WA.

A closeup of a photo reprint credit for Philip Palermo

A photo of a framed print of a nighttime scene at the Washington State Fair taken by Philip Palermo. The reprint is mounted on the wall at the Applebees’s location in Lakewood, WA.

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Philip Palermo @palermo.bsky.social · 11/08/2026

On Saturday, we drove up to Mt. Rainier with my mom and sisters. We had hoped to bring Amelia up here at some point, but as her lungs weakened, the thinner air would’ve been more and more challenging. It was the first time visiting for my mom, so we’re glad they were able to come!

A closeup of Mt Rainier from within Mt Rainier National Park

A butterfly containing some of Amelia’s ashes on a viewpoint in Mt. Rainier National Park

A close-up photo of Mt. Rainier at Mt. Rainier National Park

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Philip Palermo @palermo.bsky.social · 10/08/2026

A couple of quick macro shots. (📸: iPhone 16 Pro with lens attachment)

A closeup of a fly with an iridescent green body and dark reddish eyes.

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Philip Palermo @palermo.bsky.social · 08/08/2026

Six months ago today. Some days, it doesn’t feel real. Other days, it feels like it just happened. We need cures for all types of Batten Disease ASAP. The fewer families that go through what we and others have gone through, the better. Thank you to all the rare disease researchers out there.

A photo of Amelia when she could walk, pushing our dog Oliver in a cart.

Amelia and her dad smiling with sunglasses on in her stroller.

Amelia dressed as Amelia Earhart for Halloween

Amelia with her parents, all wearing sunglasses with the Tacoma waterfront in the background

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Philip Palermo @palermo.bsky.social · 08/08/2026

Jenn and I celebrated our 22nd anniversary at WildFin in Tacoma, where we happened to spot Graphite, a humpback whale, tail slapping in the distance. Then we watched the sunset at Owen Beach. ❤️

A selfie of Jennifer and Philip at Owen Beach

A photo of Graphite, a humpback whale, tail slapping the water north of Tacoma.

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Philip Palermo @palermo.bsky.social · 07/08/2026

Collection of takeout chopsticks of varying quality.

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Philip Palermo @palermo.bsky.social · 03/08/2026

I clearly have deadlines coming up because I had dreams about being way behind in a college class I forgot I signed up for.

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Philip Palermo @palermo.bsky.social · 03/08/2026

Jenn and I spent Saturday in Seattle checking out Christopher Marley’s Exquisite Creatures exhibit (filled with beautiful art and fascinating animals). Then we joined her sister’s family for a tour of the Freedom Plane documents exhibit at the Museum of History and Industry on Lake Union.

A closeup of an arrangement of various beetles with iridescent colors, one of many pieces of art at Christopher Marley’s Exquisite Creatures exhibit in Seattle.

An arrangement of blue and turquoise butterflies at Christopher Marley’s Exquisite Creatures exhibit in Seattle.

Jennifer and Philip take a selfie at the south end of Lake Union with the Space Needle in the background.

A Canada goose walks by a fountain near Lake Union with the Space Needle in the background.

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Reposted by Philip Palermo

Elsbeth Larkin @funtimesmcgee.bsky.social · 29/07/2026

Hi everyone, today me and 22 others at Double Fine were hit by layoffs today. All the people who lost their jobs today care so much about the games they make and the people they work with. If anyone is looking for a tools SE with 7 years of experience and who brings baked goods on Mondays lmk.

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Philip Palermo @palermo.bsky.social · 27/07/2026

Backyard macro shots. That second one is a butterfly wing, by the way. (📸: iPhone 16 Pro with lens attachment)

A macro shot of a flower with lavender leaves

A macro closeup of the underside of a painted lady butterfly wing, showing brown and gray patterns, and small bluish circles

A macro closeup of a raspberry showing detailed bumps and texture

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Philip Palermo @palermo.bsky.social · 22/07/2026

Timeline cleanse: Some ducks we met over the weekend. 🦆

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Philip Palermo @palermo.bsky.social · 22/07/2026

If I could direct more of my taxes to rare disease research this way, I absolutely would.

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Philip Palermo @palermo.bsky.social · 17/07/2026

For music (and shows and movies) I know I’ll enjoy for years to come, I typically buy physical media once instead of paying steamers to rent access month-to-month.

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Philip Palermo @palermo.bsky.social · 16/07/2026

I genuinely appreciate any professional opportunity I get to write about Amelia and spread Batten Disease awareness. But my goodness, crying into my laptop is exhausting.

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Philip Palermo @palermo.bsky.social · 14/07/2026

Not sure if this counts, but: We have rocks! My wife started a rock-painting account to relieve stress and help promote Batten Disease awareness. We lost our 8-year-old daughter to this fatal rare disease in Feb. and we’re still dropping rocks in her honor. FB/IG: AmeliaPalermoRocks

A photo of a painted rock depicting an octopus. The rock is placed atop other rocks near the water.

A rock painted with the word “Hope” on it in honor of Batten Disease research

A rock painted with a scene of an orca breaching from the water. The rock is on some other rocks by the water.

A rock with a painted fox on it, placed among other rocks, some leaves, and a pine cone along a trail.

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Reposted by Philip Palermo

Bethany Brookshire @beebrookshire.bsky.social · 13/07/2026

Good morning. Today is the LAST DAY to comment on the proposed OMB rule that will, honestly, destroy science in the US. And it will do FAR MORE THAN THAT. www.theverge.com/science/9576...

theverge.com

The war against ‘woke’ could end US science as we know it

‘Everyone will be affected, not just scientists. Every community in the country.’

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Reposted by Philip Palermo

Katie Mack @astrokatie.com · 13/07/2026

There is still time to submit your comment and tell the government that you don't want US research to be completely destroyed by politicians meddling in individual grants. You can submit your comments here: www.regulations.gov/commenton/OM...

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Philip Palermo @palermo.bsky.social · 09/07/2026

Amelia’s beach wheelchair enabled us to take her on so many adventures. Now, the amazing Emma’s Exceptional Equipment Exchange has started offering her chair as a loaner for other kids to go on their own adventures. They kindly added a sign to the back of the chair in honor of our girl. 🦋

A sign that reads, “Honoring Amelia’s Adventures” hangs from the back of Amelia’s old beach wheelchair.

A photo of Amelia on the beach sitting in her beach wheelchair

A closeup of Amelia in her beach wheelchair with the ocean in the background

A photo of Amelia smiling on the beach sitting in her beach wheelchair

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