Nystagmus Network @nystagmusnetwork.bsky.social · 06/02/2026Early bird registration and abstract submission are now open for the International Nystagmus Symposium 2026, taking place online on Friday 6 November. www.eventbrite.co.uk/e/internatio... 010
Nystagmus Network @nystagmusnetwork.bsky.social · 19/09/2025International #Nystagmus Symposium 2025 Friday 7 November - online - 13:00 - 17:30 GMT Registration is open Abstract submission deadline 30 September Read more and book here: mailchi.mp/nystagmusnet... #Research #Medicine #Symposium #Ophthalmology #Eyesmailchi.mpInternational Nystagmus Symposium 2025The International Nystagmus Symposium 2025, hosted by the Nystagmus Network, takes place online on Friday 7 November. 020
Nystagmus Network @nystagmusnetwork.bsky.social · 28/08/2025Congratulations to Dr Eloise Keeling who has been awarded a grant by @NystagmusNetwork.bsky.social and Fight for Sight for her research project into potential treatment for Oculocutaneous Albinism (OCA1) Read more about Ellie's research on our website here: nystagmusnetwork.org/ellie-invest... 000
Reposted by Nystagmus NetworkVisionary - Linking sight loss charities @visionaryuk.bsky.social · 21/08/2025Big @nystagmusnetwork.bsky.social Network meet up in Leeds on Saturday 20 September! It's a chance for people living with nystagmus to meet someone else from their local area, to hear from guest speakers and experts and learn how to live well with nystagmus. nystagmusnetwork.org/whats-so-gre...nystagmusnetwork.orgWhat’s so great about big nystagmus meet ups? – Nystagmus Network 011
Nystagmus Network @nystagmusnetwork.bsky.social · 20/08/2025The big nystagmus meet up in Leeds is on Saturday 20 September. Everyone living with #Nystagmus is welcome. Hear from experts, learn how to live well with nystagmus. Full details and the link to book on our website here: nystagmusnetwork.org/whats-so-gre... 000
Nystagmus Network @nystagmusnetwork.bsky.social · 17/07/2025Following the announcement that Vivien Jones, Founder and Hon President of @nystagmusnetwork.bsky.social had been awarded an MBE in His Majesty’s New Year Honours, Vivien and her family travelled to London to receive the honour at Buckingham Palace on 26 June. nystagmusnetwork.org/vivien-recei... 010
Nystagmus Network @nystagmusnetwork.bsky.social · 24/06/2025🎉We've received a JeansforGenesUK grant to create a parent-friendly resource for families navigating a childhood #Nystagmus diagnosis. The project builds on the 2023 "Concise Practice Point for managing nystagmus in childhood", to which we contributed. Our thanks to #JeansForGenes #GeneticConditions 020
Reposted by Nystagmus NetworkVisionary - Linking sight loss charities @visionaryuk.bsky.social · 20/06/2025We’ve been collecting nystagmus stories since 1984. Read them and share them with everyone you know. nystagmusnetwork.org/awareness/yo... #NystagmusAwarenessDay2025 @nystagmusnetwork.bsky.social 131
Reposted by Nystagmus NetworkVisionary - Linking sight loss charities @visionaryuk.bsky.social · 20/06/2025Who are @nystagmusnetwork.bsky.social? We’re all connected with nystagmus. You can meet us on our website here: nystagmusnetwork.org/awareness/wh... #NystagmusAwarenessDay2025 031
Nystagmus Network @nystagmusnetwork.bsky.social · 16/06/2025Nystagmus Awareness Week is HERE! 👁️🗨️ Join @nystagmusnetwork.bsky.social as we raise understanding of this visual impairment. Follow along for facts, stories and how you can support our community. #NystagmusAwarenessWeek #NystagmusNetwork #Nystagmus 011
Nystagmus Network @nystagmusnetwork.bsky.social · 04/06/2025We won! At last night's awards ceremony the charity was announced the winner of our category. This means that we will receive a grant of £6,000. Founder and Honorary President Vivien Jones gave the charity's thanks, accompanied by chair of trustees, Tim Cuddeford. buff.ly/Kwh2gKN #CharityGov2025 010
Nystagmus Network @nystagmusnetwork.bsky.social · 14/05/2025Nystagmus Network shortlisted for UK Charity Governance Awards 2025 for improving impact in small charities. First prize is an unrestricted grant of £6,000. Read our citation on the Charity Governance Awards website here: www.charitygovernanceawards.co.uk/short-list/n... #CharityGov2025 000
Reposted by Nystagmus NetworkVisionary - Linking sight loss charities @visionaryuk.bsky.social · 09/04/2025#Vacancy - Exciting opportunity to join @nystagmusnetwork.bsky.social as Development Coordinator (fundraising, data, volunteers) • Salary: £25k-£30k FTE per year • Hours: 17.5 or 35 hours PW • Contract: Perm • Location: Home based England or Wales • Closing date: 25 Apr visionary.org.uk/vacancies/ 031
Nystagmus Network @nystagmusnetwork.bsky.social · 28/03/2025Have you got what it takes to develop our services to meet the ever growing needs of the nystagmus community? The Nystagmus Network is recruiting a full or part time Development Coordinator (fundraising, data, volunteers) Details of the post on our website here: nystagmusnetwork.org/vacancies/ 000
Reposted by Nystagmus NetworkFaculty of Health | University of Sheffield @fohsheffield.bsky.social · 18/03/2025@sheffielduni.bsky.social researchers Dr Gemma Arblaster and Dr Sonia Toor have been awarded a @nystagmusnetwork.bsky.social legacy grant to study the focusing ability in people with nystagmus, which causes repetitive, uncontrolled eye movement👁️ Find out more 👇 nystagmusnetwork.org/nystagmus-ne... 011
Nystagmus Network @nystagmusnetwork.bsky.social · 18/02/2025We're looking forward to seeing everyone at the #Nystagmus session. Thank you @visionaryuk.bsky.social 130
Reposted by Nystagmus NetworkVisionary - Linking sight loss charities @visionaryuk.bsky.social · 07/02/2025Visionary Online Session - Join NEW, FREE session for Visionary members: Understanding #Nystagmus With Sue Ricketts @nystagmusnetwork.bsky.social 25 Feb, 11AM to 12PM Find out more about Nystagmus and support available to those affected by Nystagmus. Register here: www.visionary.org.uk/events/ 021
Reposted by Nystagmus NetworkVisionary - Linking sight loss charities @visionaryuk.bsky.social · 31/01/2025Visionary Online Session - Join NEW, FREE session for Visionary members: Understanding #Nystagmus With Sue Ricketts @nystagmusnetwork.bsky.social 25 Feb, 11AM to 12PM Find out more about Nystagmus and support available to those affected by Nystagmus. Register here: www.visionary.org.uk/events/ 021
Nystagmus Network @nystagmusnetwork.bsky.social · 08/01/2025We are proud to share the wonderful news that our founder, honorary president and Nystagmus Network trustee, Vivien Jones received the MBE "for services to the #Nystagmus community" in His Majesty's New Year's Honours List. A fitting tribute as the charity marked its Ruby Year. 120
Nystagmus Network @nystagmusnetwork.bsky.social · 13/11/2024Celebrating 40 years since our foundation in 1984 and our first day on Blue Sky. 080