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New York State Alzheimer's Advocacy

@nysalz.bsky.social
25 followers 33 following 83 posts

working for a world without Alzheimer's in New York and everywhere!

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New York State Alzheimer's Advocacy @nysalz.bsky.social · 01/10/2026
Join us for our Northeast Alzheimer’s Advocacy Interest Session on Nov. 18. You'll hear from advocates about their experiences, why your story is so important, and the many ways you can take action. Learn how your voice can make a difference! qr.link/udKCGg
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New York State Alzheimer's Advocacy @nysalz.bsky.social · 08/09/2026
Elena, a physician from Buffalo, explains why early detection of Alzheimer's is crucial and why the #ASAPact (S. 3267) must be passed! Share this video and tag @schumer.senate.gov to let him know you agree! #ENDALZ #SchumerTuesday
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New York State Alzheimer's Advocacy @nysalz.bsky.social · 07/07/2026
Congratulations to Dalma Riquelme, @alzimpact.bsky.social Advocate of the Month for July! She has built great relationships w/elected representatives by sharing her story & talking about the impact of Alzheimer's on the Bronx. @repritchie.bsky.social @alznyc.bsky.social alzimpact.org/Recognizing-...
alzimpact.org
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New York State Alzheimer's Advocacy @nysalz.bsky.social · 27/04/2026
Advocates had a great meeting with staff members from @morelle.house.gov office in Rochester this morning! Hoping he signs on as a cosponsor for the #ASAPAct soon. Blood tests to screen for Alzheimer's will be a game changer and need to be accessible to everyone! #NYSALZAdvocacy #ENDALZ
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New York State Alzheimer's Advocacy @nysalz.bsky.social · 21/04/2026
We are proud to have @meng.house.gov with us in the fight to #ENDALZ! The #ASAPAct will create a pathway for Medicare coverage of blood tests to screen for Alzheimer's, a game changer for management of this terrible disease. #NYSAlzAdvocacy
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New York State Alzheimer's Advocacy @nysalz.bsky.social · 20/04/2026
Nancy from Southold urges @kirstengillibrand.bluesky.social to cosponsor S.3267 to create a pathway for Medicare coverage of FDA-approved blood tests to screen for Alzheimer's. This is the mammogram moment for Alzheimer's! #ASAPAct #NYSAlzAdvocacy suffolktimes.timesreview.com/2026/04/lett...
suffolktimes.timesreview.com
Letters to the Editor: 'Harness the power of the purse' - The Suffolk Times
This week's letters to the editor, featuring your views on local, national and global issues, as well as their effects on our communities.
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New York State Alzheimer's Advocacy @nysalz.bsky.social · 07/04/2026
Join us on May 13th to urge legislators to support New Yorkers with Alzheimer's and dementia! #NYSAlzAdvocacy #ENDALZ Register here by April 22nd: alz-ny.quorum.us/event/29948/
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New York State Alzheimer's Advocacy @nysalz.bsky.social · 06/04/2026
Sam from Clifton Park talks about why Congress should pass the #ASAPAct (S.3267/H.R.6130). @schumer.senate.gov please advance this bipartisan bill! #ENDALZ #NYSAlzAdvocacy
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New York State Alzheimer's Advocacy @nysalz.bsky.social · 03/04/2026
Julie from Cape Vincent explains why early detection and early diagnosis are essential in Alzheimer's care. @schumer.senate.gov please do all you can to pass the #ASAPAct (S. 3267)! #ENDALZ #NYSAlzAdvocacy
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New York State Alzheimer's Advocacy @nysalz.bsky.social · 23/03/2026
Volunteer advocates like Jill are the reason we have made so much progress in the fight to #ENDALZ! We are grateful for her passion and dedication. Want to find out more? Go to alzimpact.org/volunteer
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New York State Alzheimer's Advocacy @nysalz.bsky.social · 19/03/2026
Rasa & Joe attended the inauguration of Manhattan Borough President Brad Hoylman-Sigal last weekend. Hoylman-Sigal mentioned improving the attractiveness of Manhattan for seniors; we hope that includes addressing the Alzheimer's public health crisis! #ENDALZ #NYSAlzAdvocacy
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New York State Alzheimer's Advocacy @nysalz.bsky.social · 18/03/2026
Bill Gustafson spoke in support of biomarker testing at a NYS Senate press conference today, headed by @rjpbrooklyn.bsky.social @pamelahunter128.bsky.social & Senator Jamaal Bailey #NYSAlzAdvocacy #ENDALZ www.instagram.com/p/DWCUlbIDYhh/
instagram.com
NYS Alzheimer’s Advocacy on Instagram: "Director of Government Relations Bill Gustafson spoke in support of access to biomarker testing at a press conference today in the NYS Senate. We are in the age...
0 likes, 0 comments - nysalzadvocacy on March 18, 2026: "Director of Government Relations Bill Gustafson spoke in support of access to biomarker testing at a press conference today in the NYS Senate. ...
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New York State Alzheimer's Advocacy @nysalz.bsky.social · 17/03/2026
Sandy, an advocate from Syracuse, wrote a powerful letter to the editor, urging @congressmannion.bsky.social to cosponsor the #ASAPAct (HR 6130). #ENDALZ #NYSAlzAdvocacy www.romesentinel.com/opinion/mann...
romesentinel.com
Mannion urged to support Alzheimer’s Screening and Prevention Act
Alzheimer’s affects millions of families across the country — thousands right here in our district. Behind every diagnosis is a family navigating fear, uncertainty, and caregiving responsibilities.
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New York State Alzheimer's Advocacy @nysalz.bsky.social · 16/03/2026
Westchester advocates met with @repglatimer.bsky.social Friday to talk about how Alzheimer's has affected their lives. Rep. Latimer has been a partner in the fight to #ENDALZ for many years and we thank him for his cosponsorship of the #ASAPAct! #NYSAlzAdvocacy
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New York State Alzheimer's Advocacy @nysalz.bsky.social · 14/03/2026
Kerri and Liza had the opportunity to attend @congressmannion.bsky.social town hall this week. Unfortunately, their question was not answered. We still want to hear from the Congressman: will you cosponsor the #ASAPAct (HR 6130)? #NYSAlzAdvocacy #ENDALZ
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New York State Alzheimer's Advocacy @nysalz.bsky.social · 04/03/2026
We are grateful for Rep. Nick Langworthy's support of the #ASAPAct! We are in the age of treatment for Alzheimer's and getting an early diagnosis will be a game changer! #ENDALZ #NYSAlzaAdvocacy
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New York State Alzheimer's Advocacy @nysalz.bsky.social · 03/03/2026
Great podcast about living with Alzheimer's, featuring Long Island advocate John Chandler and Connecticut advocate Christine Burnett. Their honesty and openness is inspiring! #ENDALZ #NYSAlzAdvocacy open.spotify.com/episode/2dKY...
open.spotify.com
Life After Diagnosis: A Conversation on Living Well
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New York State Alzheimer's Advocacy @nysalz.bsky.social · 25/02/2026
Emma from Rochester explains how the #ASAPAct will help individuals who have Alzheimer's and their families. @morelle.house.gov please cosponsor HR 6130! @AlzRochesterNY #ENDALZ #NYSAlzAdvocacy
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New York State Alzheimer's Advocacy @nysalz.bsky.social · 24/02/2026
We appreciate @replauragillen.bsky.social support for the Credit for Caring Act, which will help family caregivers deal with the costs of caregiving! #ENDALZ #NYSAlzAdvocacy
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New York State Alzheimer's Advocacy @nysalz.bsky.social · 11/02/2026
Bill made a good case today at the budget hearing for the wisdom of proactively addressing the Alzheimer's epidemic. NY must increase its investment in early detection & diagnosis, care, and support! #ENDALZ #NYSAlzAdvocacy
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New York State Alzheimer's Advocacy @nysalz.bsky.social · 10/02/2026
Govt Relations Director Bill Gustafson is making sure your voice is heard in Albany! He'll be speaking about increasing funding for Alzheimer's care and support services at a budget hearing today. #ENDALZ #NYSAlzAdvocacy
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New York State Alzheimer's Advocacy @nysalz.bsky.social · 04/02/2026
There's still time to register for our Empire State Policy Update tomorrow night! Learn about the issues we're advocating for this year and how you can get involved. #endalz #nysalzadvocacy Register at alz-ny.quorum.us/event/30504/
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New York State Alzheimer's Advocacy @nysalz.bsky.social · 30/01/2026
Stephen from Clifton Park explains how the Credit for Caring Act would help people who are caring for loved ones at home. @reppaultonko.bsky.social we'd love to see your name on the list of cosponsors for HR 2036! #ENDALZ #NYSAlzAdvocacy
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New York State Alzheimer's Advocacy @nysalz.bsky.social · 28/01/2026
You can find helpful tips about advocacy on our YouTube page:! #nysalzadvocacy #endalz www.youtube.com/playlist?lis...
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New York State Alzheimer's Advocacy @nysalz.bsky.social · 22/01/2026
Join us on Feb 5th to learn about our current legislative priorities for the NYS Legislature and Congress! #ENDALZ #NYSAlzAdvocacy Register at alz-ny.quorum.us/event/30504/
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New York State Alzheimer's Advocacy @nysalz.bsky.social · 20/01/2026
As Oneonta advocate Carol Kiehn Kirkey says here, NIH research remains our best hope for treating and ultimately preventing Alzheimer's! @reprileyny.bsky.social please support these Appropriations requests! #ENDALZ #NYSAlzAdvocacy thedailystar-cnhi.newsmemory.com?publink=2d3b...
thedailystar-cnhi.newsmemory.com
LETTERS TO THE EDITOR
Alzheimer’s disease is among the most urgent public health challeng
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New York State Alzheimer's Advocacy @nysalz.bsky.social · 13/01/2026
Ever wondered if your voice can really make a difference? Find out how Thursday night! Register here: bit.ly/4piwCVe #endalz #NYSAlzAdvocacy
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New York State Alzheimer's Advocacy @nysalz.bsky.social · 07/01/2026
Some of our most experienced advocates are sharing why they do what they do! Register at bit.ly/4piwCVe. #ENDALZ #NYSAlzAdvocacy
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New York State Alzheimer's Advocacy @nysalz.bsky.social · 05/01/2026
As we close out the holiday season, Ryiaa from Guilderland shares her appreciation for @reppaultonko.bsky.social leadership on the #ASAPAct. @ALZ_NENY #ENDALZ #NYSAlzAdvocacy
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New York State Alzheimer's Advocacy @nysalz.bsky.social · 31/12/2025
We are looking forward to a new year full of promise in the fight to end Alzheimer's, thanks to all of our dedicated advocates! #ENDALZ #NYSAlzAdvocacy
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New York State Alzheimer's Advocacy @nysalz.bsky.social · 12/12/2025
Lynda from East Syracuse shares her holiday wish that @congressmannion.bsky.social will cosponsor the #ASAPAct. #ENDALZ #NYSAlzAdvocacy
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New York State Alzheimer's Advocacy @nysalz.bsky.social · 05/12/2025
We appreciate @repritchie.bsky.social quick support of the #ASAPAct! He understands what a game-changer it will be to have Medicare coverage for routine dementia blood test screening. #ENDALZ #NYSAlzAdvocacy
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New York State Alzheimer's Advocacy @nysalz.bsky.social · 19/11/2025
Bronx advocate Dalma and @repritchie.bsky.social were featured in this piece about the Credit for Caring Act. Caregiving takes a financial, physical, and emotional toll; this is a way to mitigate the burden for caregivers. #ENDALZ @alznyc.bsky.social #NYSAlzAdvocacy www.cbsnews.com/newyork/news...
cbsnews.com
A bill in Congress would return $5,000 to millions of family caregivers every year, but will it pass?
Millions of family caregivers across the U.S. are providing unpaid care to loved ones with aging illnesses. The Credit for Caring Act could ease the financial burden.
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New York State Alzheimer's Advocacy @nysalz.bsky.social · 17/11/2025
Yesterday was a great day to #ENDALZ in Central Park! Advocates were out in force to urge Congress to increase research funding. If you missed us, go to alzimpact.org/walk. @alzassociation.bsky.social #Walk2EndAlz #NYSAlzAdvocacy
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New York State Alzheimer's Advocacy @nysalz.bsky.social · 13/11/2025
Noa from Highland Mills is thankful for @pkryan.bsky.social support for the #AADAPTAct. Primary care doctors need training to be able to diagnose and treat dementia; AADAPT will help them get it! #ENDALZ #NYSAlzAdvocacy
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New York State Alzheimer's Advocacy @nysalz.bsky.social · 11/11/2025
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New York State Alzheimer's Advocacy @nysalz.bsky.social · 03/11/2025
#Walk2EndAlz season rolled into November over the weekend! Advocates urged Syracuse walkers to send a message to Congress: continue the momentum on Alzheimer's research! If you missed us, go to alzimpact.org/walk to make your voice heard. #ENDALZ #NYSAlzAdvocacy
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New York State Alzheimer's Advocacy @nysalz.bsky.social · 16/10/2025
Psst! Our most experienced volunteer advocates from across New York are sharing their secrets--don't miss it! Learn how your voice can make a difference! bit.ly/3G9DeE1 #NYSAlzAdvocacy
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New York State Alzheimer's Advocacy @nysalz.bsky.social · 08/10/2025
At @repyvetteclarke.bsky.social tele town hall tonight, we'd love to hear her address this pressing issue. The need for people to get an early and accurate diagnosis impacts thousands of Brooklyn residents! #AADAPTAct #ENDALZ #NYSAlzAdvocacy @alznyc.bsky.social
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New York State Alzheimer's Advocacy @nysalz.bsky.social · 15/09/2025
.@repdangoldman.bsky.social, at your tele town hall tomorrow evening, we'd love to hear you address the need to increase Alzheimer's research funding at NIH! #ENDALZ
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New York State Alzheimer's Advocacy @nysalz.bsky.social · 12/09/2025
Long Island advocate Nancy Chandler talks honestly about Alzheimer's and caregiving in this article. It's essential for individuals with the disease and caregivers to get the support they need. #NYSAlzAdvocacy northforksun.com/heartache-an...
northforksun.com
Heartache and hope fuel this month's 'Walk to end Alzheimer's'
After decades of frustrating setbacks, research into Alzheimer’s disease is entering a new era of cautious optimism. At the same time, the number of those living with the disease is beginning to spike...
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New York State Alzheimer's Advocacy @nysalz.bsky.social · 03/09/2025
New York advocates are grateful for Rep. Pat Ryan's support for the #AADAPTAct, which will make dementia training more accessible, especially for doctors in rural areas! #ENDALZ #NYSAlzAdvocacy
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New York State Alzheimer's Advocacy @nysalz.bsky.social · 31/07/2025
Advocates came out to support ⁦the Alzheimer's Association last night at The Tap Room in Rockville Centre. Rep. Laura Gillen, these awesome constituents are looking forward to sharing their stories with you! #ENDALZ #NYSAlzAdvocacy
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New York State Alzheimer's Advocacy @nysalz.bsky.social · 23/07/2025
Thank you, @reprileyny.bsky.social for supporting #AADAPTAct, which will enable doctors, especially in rural and underserved areas, to diagnose and treat people with Alzheimer's. An early & accurate diagnosis is essential in fighting this disease! #ENDALZ #NYSAlzAdvocacy
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New York State Alzheimer's Advocacy @nysalz.bsky.social · 14/07/2025
.@morelle.house.gov, at your town hall tonight, we'd love to hear you address the need for PCPs from underserved areas to be equipped with the knowledge to properly diagnose & treat Alzheimer's! #endalz #nysalzadvocacy
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New York State Alzheimer's Advocacy @nysalz.bsky.social · 14/07/2025
.@pkryan.bsky.social, at your town hall tonight, we'd love to hear you address the need for rural PCPs to be equipped with the knowledge to properly diagnose & treat Alzheimer's! #endalz #nysalzadvocacy
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New York State Alzheimer's Advocacy @nysalz.bsky.social · 10/07/2025
Bronx advocate Dalma attended Senator Rivera's Senior Health Luncheon today and reminded him about the growing need for services & support for people with Alzheimer's and their caregivers, in his district and throughout New York. #endalz #nysalzadvocacy @alznyc.bsky.social @alzimpact.bsky.social
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New York State Alzheimer's Advocacy @nysalz.bsky.social · 02/07/2025
So proud of advocate Nancy Swiston who was recognized as a Woman of Distinction by Assemblyman Bill Conrad for her work for the Alzheimer's Association. #endalz #nysalzadvocacy
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New York State Alzheimer's Advocacy @nysalz.bsky.social · 28/06/2025
Liz from @alznyc.bsky.social Junior Board shares why funding for NIH Alzheimer's research & BOLD programs are important. @schumer.senate.gov we have made amazing progress, we can't stop now! Please do all you can to help #ENDALZ for Liz & every NYer impacted by this cruel disease. #NYSAlzAdvocacy
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New York State Alzheimer's Advocacy @nysalz.bsky.social · 26/06/2025
Hudson Valley advocate Noa wrote a heartfelt letter about the need for doctors to be better equipped to diagnose people with Alzheimer's, especially in rural areas. @pkryan.bsky.social pls cosponsor HR 3747 to facilitate better provider education! www.chroniclenewspaper.com/opinion/lett...
chroniclenewspaper.com
Letter to the Editor: Support for virtual training
To the Editor, As a concerned constituent and advocate for improved healthcare access, I urge Congressman Ryan to support H.R. 3747 – the Accelerating Access to Dementia and Alzheimer’s Provider Train...
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