iiinova — where your digital self keeps evolving

Noelle @nowhalle.bsky.social · 30/06/2026

I’m getting testing soon that involves being off most of my meds for a week. I have been waiting for this appt for months. Now we have a heat wave with temps into the triple digits. I have a hard enough time managing heat waves *with* medication (((: #NEISVoid #Disabled #POTS #EDS #ChronicIllness

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Noelle @nowhalle.bsky.social · 15/06/2026

Snap bracelets are making a comeback??!! Meet Gus! He’s named after Gus the giraffe who used to live at the @phillyzoo.bsky.social! He grips perfectly to my wheelchair frame! Here’s to fun adventures together 🦒🥰 #Disabled #Disability #WheelchairUser #ChronicIllness #EDS #Spoonie #PhiladelphiaZoo

Small plush giraffe snap bracelet wearing a yellow fall risk fall risk bracelet while holding onto a wheelchair frame

Small plush giraffe snap bracelet wearing a yellow fall risk fall risk bracelet while holding onto a wheelchair frame. There is also yellow and orange flame print duct tape on the frame.

Noelle @nowhalle.bsky.social · 14/06/2026

HAPPY PRIDE!! Thrilled to snag an art print and canvas PAINTED BY BEA (the giraffe) AND CINDY (the hippo)!! Also got to see the new bear exhibits 🐻 @phillyzoo.bsky.social If you’re in #Philadelphia for #FIFA #WorldCup #Soccer, going to the #PhillyZoo is a MUST #Pride #Queer #Philly #Zoo

White flag with rainbow brush strokes done by Bea the giraffe

Horizontal red, orange, yellow, green, blue, and purple stripes painted onto a canvas with a black hippo mouth print in black ink by Cindy the hippo

Amur tiger walking by a rainbow pride banner

Happy pride sign in the lion exhibit (lion not pictured)

Noelle @nowhalle.bsky.social · 12/06/2026

#MutualAid keeps #Disabled people alive! #Disability can strike at any time! Pay it forward by donating when you can and sharing when you can’t! #HelpFolksLive2026 #MABoost #NEISVoid #ChronicIllness #Spoonie #QueerSky #LGBTQIA+ #LGBTQ #Queer #Support

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Noelle @nowhalle.bsky.social · 27/05/2026

#RaceToBeatPOTS 👩🏼‍🦽‍➡️🎗️🩵 I will attempt to self-propel the 1 mile course this weekend 👩🏼‍🦽‍➡️ Today I went 1.15 miles in 40 minutes 🌟 I’m awaiting my custom manual chair, so I’ll still be using my standard for the @dysautonomia.bsky.social event! #POTS #Disabled #Disability #WheelchairUser #Dysautonomia

Garmin parasports activity summary from May 26th titled “Afternoon Wheelin, 👩🏼‍🦽‍➡️🌟”

1.15 mile training activity. 40 mins. 1.7mph average speed

Noelle @nowhalle.bsky.social · 27/05/2026

!EXTRA, EXTRA! #BookGiveaway Do you read books? Do you like queer romance? Do you love when the A in #LGBTQIA+ is represented and relatable? Do you like dissociating from The Horrors? Enter @lucymason217.bsky.social’s giveaway!! #BookSky #AmReading #Queer #Sapphic #Fantasy #Romance #Romantasy

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Noelle @nowhalle.bsky.social · 25/05/2026

Month so far (as of EOD on the 24th): 🤕 7/10 average daily pain 🥱 8/10 average daily fatigue 👩🏻‍⚕️ 16 dr appts 📚 30 books completed ☎️ 38 medical phone calls I am so tired 😭 #Disabled #Disability #EhlersDanlosSyndrome #EDS #MECFS #ChronicIllness #AmReading #AmReadingSFF #SFF #SciFi #Fantasy #BookSky

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Lucy Mason @lucymason217.bsky.social · 14/05/2026

Unfriendly reminder that you can deeply, deeply love someone WITHOUT wanting to kiss them, sleep with them, or date them. They can be your whole world without being your romantic or sexual partner. Queerplatonic relationships are so important and under-represented.

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Noelle @nowhalle.bsky.social · 15/05/2026

Don’t tell somebody to “just give it time” bc they “just haven’t met the right person, yet”. Love isn’t inherently sexual or romantic. Platonic relationships are so, so important. People can live great lives with only platonic relationships in their life. #LoveIsLove #QueerSky #AroAce #LGBTQIA+

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Noelle @nowhalle.bsky.social · 12/05/2026

We can do hard things!! Do it scared!! Speak even if your voice shakes. You deserve to take up space 💫

Noelle @nowhalle.bsky.social · 27/04/2026

I *finally* read The Keeper of Lonely Spirits by @elizmanderson.com! I haven’t read many cozy fantasies, but this book was a delight! Fantastic work by the author and the narrator! Can’t believe I left it TBR for so long! #ReaderSky #AmReading #AmReadingFantasy #Fantasy #CozyFantasy #BookSky

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Noelle @nowhalle.bsky.social · 24/04/2026

Wore my “sometimes I stroll, sometimes I roll” shirt to my ortho appt and somebody in the parking garage said they liked my shirt 🥺 #AmbulatoryWheelchairUser #Disability #Disabled #Wheelchair #MobilityAid #AmbulatoryWheelchairUsersExist #ChronicIllness #Spoonie #FND #EDS #HEDS #NEISVoid

Noelle @nowhalle.bsky.social · 22/04/2026

I promise this is an amazing supportive space even if you aren’t a fiber artist! It’s a phenomenal community of humans AND you get to be astonished by the crafts they share 🧶

Noelle @nowhalle.bsky.social · 16/04/2026

A friendly reminder as it gets warmer: don’t tell people with visible medical devices to “cover up”. We deserve comfort, too. Don’t shame us for the medical devices keeping us alive. #Disabled #Disability #ChronicIllness #NEISVoid #EDS #MCAS #POTS #Gastroparesis #Spoonie #Tubie #FeedingTube

Noelle smiling while wearing a crop top. Her surgical abdominal tubes are visible.

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Noelle @nowhalle.bsky.social · 06/04/2026

“You’re lucky you don’t have to work,” is often said to disabled people. My guy,, I have NINE drs appts this week!! 9 appts in 5 days. 6 last week. 4 next week. I wish I could work. I can’t. Being disabled is not a vacation. #NEISVoid #Disabled #Disability #Spoonie #Tubie #Gastroparesis #EDS

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Noelle @nowhalle.bsky.social · 06/04/2026

I have 8 books out right now. A book I placed a hold for is now available. If I check it out, I’ll be at 9 books…. HOWEVER, I’m 61% finished with my current read, so that one basically doesn’t count. So if I accept the book, it’s really only 8… right? #GirlMath #AmReading #BookSky #Libby #Books

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Noelle @nowhalle.bsky.social · 06/04/2026

Today’s choice of Fahlo friends include Plover the whale shark, Bishaaro the giraffe, Foxe the polar bear, and Calypso the sloth 💙💙 🐋 🦒 🐻‍❄️ 🦥

Four Fahlo bracelets on a white person’s arm above a watch band. There is a green bracelet with a whale shark bead, a pink-ish orange bracelet with a giraffe bead, a blue bracelet with a polar bear bead, and a green bracelet with a sloth bead.

Noelle @nowhalle.bsky.social · 05/04/2026

I’ve lived with chronic illnesses my entire life. When I was in elementary school, my mom told me to do all my hw the day it was assigned (even if the deadline was several days away). You never know how you’re gonna feel, tomorrow might be worse… and then your grades suffer, too ): #Disability

Noelle @nowhalle.bsky.social · 04/04/2026

#Painsomnia is at it again 😭 😭 It’s 12:40 in the morning and my #GTube has decided even breathing makes the site pain worse. I wish I could curl into a ball, fall asleep, and wake to my abdomen having done a forced factory reset. Imagine! Functioning organs, no more scar tissue ✨ ✨ #NEISVoid

Noelle @nowhalle.bsky.social · 03/04/2026

I only slept four hours last night, but I’m staying up until 2am so I can take more acetaminophen. I’m in so much pain right now ( #Painsomnia ), but Ik if I don’t stay up, I’ll be in even worse pain come the morning 🤕 #NEISVoid #Disabled #Disability #Insomnia #ChronicPain #EDS #Fibromyalgia

Noelle @nowhalle.bsky.social · 03/04/2026

I’m up to 13 medical phone calls for the week and there’s still one more day to go. Being disabled takes so, so much time and energy… energy that we often lack as a side effect of being, ya know, disabled 🫠 #Disability #Disabled #ChronicIllness #ChronicallyIll #Spoonie #NEISVoid #EDS #TubeFed

Noelle @nowhalle.bsky.social · 02/04/2026

Don’t worry, I only have 7 appts scheduled for this week and another 7 next week 🫠 AND!! Only 6 phone call so far this week…not sure how many portal messages though 😥 At least I have my audiobooks and podcasts 🎧 #NEISVoid #Disabled #Disability #ChronicIllness #Spoonie #Gastroparesis #EDS #POTS

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Noelle @nowhalle.bsky.social · 28/03/2026

It’s rude of my disabilities to disable me, but at least I have my eight (8) library books to keep me company 🙂‍↕️ #NEISVoid #Disabled #Disability #ChronicIllness #Spoonie #Tubie #FeedingTube #WheelchairUser #EDS #EhlersDanlosSyndrome #AmReading #BookSky #LibraryKid #Libby #AmReadingFantasy

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Noelle @nowhalle.bsky.social · 26/03/2026

I’m cold. It’s 11pm. The heat goes down to 64 during the night. I want to curl up in my heated blanket, but I need to do tube care first. Doing tube care means exposing my abdomen to The Cold 🥶 #NEISVoid #Gastroparesis #Spoonie #Tubie #FeedingTube #Disabled #Disability #ChronicIllness #HEDS #MCAS

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Noelle @nowhalle.bsky.social · 26/03/2026

I have to use silver nitrate to treat granulation tissue around my #GTube. I hate doing this because it’s sooo painful and then the tissue keeps coming back 😭 #NEISVoid #FeedingTube #Tubie #Spoonie #ChronicIllness #Disabled #Disability #Gastroparesis #EhlersDanlosSyndrome #HEDS #MCAS

Noelle @nowhalle.bsky.social · 25/03/2026

cw: blood My #GTube site HURTS and I’m so v tired of this #ChronicPain. My #JTube has its own issues, but my G site is /bleeding/ and restricts movement. It feels like I’m being stabbed with an electrified poker 😭 #NEISVoid #Gastroparesis #TubeFed #Tubie #ChronicIllness #Disabled #Spoonie #EDS

Noelle @nowhalle.bsky.social · 25/03/2026

cw: discussion of body size People leave comments wishing for a condition that causes them to be skinny. #Gastroparesis is not fun or worth the pain. A common side effect is weight loss because we can’t get enough nutrition. We’re skinny because we’re starving. We don’t want this. #NEISVoid

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Noelle @nowhalle.bsky.social · 14/03/2026

Soooo many yellows and injuries in this opener between @bostonlegacyfc.com and @gothamfc.bsky.social ⚽️ Gotham pulls it out with a 1-0 win 🏆 #NWSL #GothamFC #BostonLegacy #WomensSoccer #Soccer

Noelle @nowhalle.bsky.social · 14/03/2026

First game of the season for @nwslsoccer.com team @gothamfc.bsky.social ⚽️ I’m excited to go to their home opener next week, but watching them play the new Boston Legacy team is also fun 😁 #NWSL #GothamFC #BostonLegacy #Soccer #RoseLavelle #LillyReale #JaedynShaw #EmilySonnett #MidgePurce

Noelle @nowhalle.bsky.social · 11/03/2026

Finally purchased some finger joint supports and compression gloves for my poor hands 🙌 I can’t invest in Nice Ones yet because ya girl has no money, but I’m hoping even these aids help 🍀 #hEDS #Hypermobility #Arthritis #Fibromyalgia #Disabled #Disability #ChronicPain #ChronicIllness #Spoonie

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Noelle @nowhalle.bsky.social · 11/03/2026

#G-tube replacement #surgery went much better than my #J-tube exchange last month. Abdomen HURTS (but I went from a #PonskyTube to a button). *Really* hoping this change helps me turn a corner for the better in terms of health ❤️‍🩹 #DisabilitySky #Disabled #FeedingTube #Gastroparesis #EDS #Spoonie

Noelle @nowhalle.bsky.social · 10/03/2026

G-tube replacement surgery tm! This tube was placed last year and despite it being good at its job (venting my stomach that won’t digest food),, something from that surgery caused my health to severely decline and has caused A Lot of pain. I’m begging the universe for even a 5% pain reduction 🪄

Noelle @nowhalle.bsky.social · 06/02/2026

Doc: I’ve been here 10 years and never seen that before (Regarding how my feeding tube is broken) Story of my life 😭 #NEISVoid #FeedingTube #Gastroparesis #Disabled #Disability #ChronicIllness #Spoonie #JTube #GTube

Noelle @nowhalle.bsky.social · 04/02/2026

I’m #Disabled and have many #Health #Conditions, #Medications, and #Symptoms. @guavahealth.bsky.social makes tracking easy! My photos show some features from the app! I HIGHLY recommend this for members of the #Disability & #ChronicIllness community ❤️‍🩹 #NEISVoid #GuavaHealth #Spoinie #EDS #POTS

A blurred reminder list showing how many of each medications I logged at once for my afternoon meds

A water intake list from Wed, Feb 4 (today). It has several entries from 7:10am-3:30pm.

Symptoms log from the Guava Health App showing Noelle’s ratings for hip pain (6/10), ankle pain (5/10), knee pain (3/10), back pain (4/10), and anxiety (3/10)

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Noelle @nowhalle.bsky.social · 03/02/2026

We are still working to bring Issue 16 of @wishbonewords.bsky.social to life! If you are #Disabled, #ChronicallyIll, #Neurodivergent, a #Spoonie, or a #CareGiver please consider submitting #Poetry, #Prose, #Hybrid, #Art, or #Photography during our next submission window 💌 #WriterSky #AmWriting

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Wishbone Words @wishbonewords.bsky.social · 30/01/2026

Due to unforeseen health issues impacting our team, the release of Wishbone Words Issue 16 is delayed until May 2026. We fully expect to return to our regular publishing schedule with Issue 17. P.S. The call for Issue 17 cover art submissions is still open! forms.gle/HLSsi8uJC1hh...

The background fades from yellow on the left edge to orange in the center and pink on the right edge, littered with pale white and pale rainbow stars. Black text in the center, slightly tilted to the left, reads "still accepting issue 17 cover art." Above and below the text are graphics of black swirled lines and diamond-shaped stars.

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Noelle @nowhalle.bsky.social · 03/02/2026

#NEISVoid what are your wildness tricks for dealing with #Nausea? I take several meds and have a #G-tube and a #J-Tube for #Gastroparesis. I have #GERD, #MCAS, #FoodAllergies, and #EosinophilicEsophagitis. Liquids are difficult, but small flushes of peppermint tea through my #FeedingTube can help❤️‍🩹

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Noelle @nowhalle.bsky.social · 02/02/2026

To those who live with #Gastroparesis, #GERD, #Reflux, or #Nausea, have you found peppermint tea helpful? I have #FeedingTubes, but I’m curious if putting a little bit of (cooled) peppermint tea through my #G-tube might help with the nausea (I’m maxed out on meds) 🤔 #Disability #Disabled #NEISVoid

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Noelle @nowhalle.bsky.social · 30/01/2026

I am so happy to have books playing in my ears again 🎧 📚 I love reading, but I live with #Depression, #MentalHealth, and neurological conditions. I hadn’t been reading for months even though books bring me joy. Currently making my way through Gregor and the Prophecy of Bane 💛 #BookSky #AmReading