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National Kidney Federation - UK

@nkf-uk.bsky.social
109 followers 123 following 429 posts

UK charity run by kidney patients for kidney patients. The NKF Helpline is free to call on 0800 169 0936 or e-mail helpline@kidney.org.uk

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National Kidney Federation - UK @nkf-uk.bsky.social · 08/10/2026
Fact of the week 📣 - Proteinuria Want to learn more about what proteinuria is, what causes it, and when you should seek advice? Read our guide: 👇 🔗 www.kidney.org.uk/proteinuria Have a question? Our friendly helpline is here to support you. Call 0800 169 09 36 or, email helpline@kidney.org.uk
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National Kidney Federation - UK @nkf-uk.bsky.social · 05/10/2026
Thank you to everyone who joined us for our 2026 Annual Event in Blackpool. It’s our flagship event & we work hard all year to make it informative, inspiring & sociable. We hope you learnt something new, made connections & left feeling inspired. See you next year! #NKFAnnualEvent2026
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National Kidney Federation - UK @nkf-uk.bsky.social · 03/10/2026
That’s a wrap on the main conference day! Thanks to Andrew Barnett, Chris Simpson, Faye Connolly, Karen Nagalingam & Emma Taylor for sharing their expertise & experiences with us #NKFAnnualEvent2026
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National Kidney Federation - UK @nkf-uk.bsky.social · 03/10/2026
This afternoon we’ve heard from Siobhán Freeman on exercise & kidney disease, plus Dominic Summers on making transplantation the first choice treatment in end-stage kidney disease. Another fascinating afternoon at #NKFAnnualEvent2026!
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National Kidney Federation - UK @nkf-uk.bsky.social · 03/10/2026
What a morning at the NKF Annual Event! We’ve heard from patient speakers Harsh Sinha & Nicholas Pape, plus Sunil Daga on the Digital Twin project & the future of kidney care. Not here? Guest speaker videos will be coming to YouTube. #NKFAnnualEvent2026
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National Kidney Federation - UK @nkf-uk.bsky.social · 03/10/2026
#TeamNKF’s Annual Event in Blackpool is our biggest date in the calendar and we’re so excited to be here! Come and meet Stephen, Lucy, Chris, Andrea, Linda, Suzanne & Pete to find out more about NKF support, campaigns, membership and fundraising. Plus, grab some merch! #NKF
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National Kidney Federation - UK @nkf-uk.bsky.social · 03/10/2026
Today’s the day! Our 2026 Annual Event is officially underway at the Grand Hotel in Blackpool. Registration opens at 9am in the Royal Suite, with exhibition stands open too. We’ve got a great day planned. If you’re here, what are you most looking forward to?
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National Kidney Federation - UK @nkf-uk.bsky.social · 02/10/2026
We’re finally here in Blackpool for the NKF Annual Event, which starts tomorrow. Our team is busy unpacking & getting everything ready to welcome people from across the kidney community. If you’re joining us this weekend, welcome! #NKFAnnualEvent2026
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National Kidney Federation - UK @nkf-uk.bsky.social · 01/10/2026
'I had a spare kidney that someone needed to save their life. It was a no-brainer' Read Kate's story here: www.manchestereveningnews.co.uk/news/greater... #organdonationstory #kidneydisease #ckd
manchestereveningnews.co.uk
'I had a spare kidney that someone needed to save their life'
'There have been no negative consequences for me'
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National Kidney Federation - UK @nkf-uk.bsky.social · 01/10/2026
Kick a Habit for Kidney Disease officially starts today! We’re challenging you to choose one habit to kick for 31 days, or to kick-start a positive new one, while raising money to support kidney patients and their families. Learn more: www.kidney.org.uk/kick-a-habit
kidney.org.uk
Kick a Habit for Kidney Disease - 01/10/2026 00:00:00
People living with chronic kidney disease face challenges every single day. This October, you can help make sure they don't have to face them alone. Take on our Kick a Habit for Kidney Disease challen...
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National Kidney Federation - UK @nkf-uk.bsky.social · 28/09/2026
What does a chronic kidney disease diagnosis actually mean, and where can people turn for support? Today we're launching CKD Connect to help answer those questions. Learn more: www.kidney.org.uk/ckd-connect
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National Kidney Federation - UK @nkf-uk.bsky.social · 25/09/2026
After many years of managing her kidney condition, Harefield Hospital nurse Charis Browne was told she needed a transplant. Without telling Charis, her manager Emma Neves decided to find out if she could be her donor. Read her story here: www.bbc.co.uk/news/videos/...
bbc.co.uk
Nurse receives kidney transplant after manager joins donor scheme
Harefield nurse Charis Browne needed a transplant - and her manager Emma Neves tried to help.
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National Kidney Federation - UK @nkf-uk.bsky.social · 23/09/2026
2/2 Their experiences are a powerful reminder that organ donation doesn't just save lives. It helps people continue supporting, inspiring and helping others. Need support? Our Helpline is here for you. 📞 0800 169 09 36 📧 helpline@kidney.org.uk
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National Kidney Federation - UK @nkf-uk.bsky.social · 23/09/2026
Meet two of the voices behind our helpline. Stephen is 15 years on from his second kidney transplant. Fiona is 3½ years on from her fourth kidney transplant. 1/2
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National Kidney Federation - UK @nkf-uk.bsky.social · 23/09/2026
Did you know? Through NHS Blood and Transplant's confidential correspondence process, you can write a letter, card or email to your living donor while protecting both your privacy and theirs. 📖 Find out more and download the leaflet here: www.kidney.org.uk/organ-donati...
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National Kidney Federation - UK @nkf-uk.bsky.social · 22/09/2026
This #OrganDonationWeek, take two minutes to confirm your organ donation decision. More than 700 potential donations have been lost because families didn't know their loved one's wishes. Your decision could help save lives. 💗 Share your decision today: www.organdonation.nhs.uk
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National Kidney Federation - UK @nkf-uk.bsky.social · 22/09/2026
"He's always been by my side. Now he's given me his kidney." For one family, organ donation meant more than a second chance. It meant more time together, more memories to make, and a future that once felt uncertain. www.bbc.co.uk/news/article... #OrganDonationWeek
bbc.co.uk
"I'm giving my wife the gift of life by donating my kidney"
Phil and Fiona Hulbert say they hope the transplant will help them be 'husband and wife' again.
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National Kidney Federation - UK @nkf-uk.bsky.social · 22/09/2026
Meet Louise 🧡 After living with kidney disease for more than 30 years, Louise received the life-saving kidney transplant she never thought she would need. Read Louise's inspiring story and discover the ripple effect of organ donation. www.kidney.org.uk/blogs/louise... #organdonationweek2026
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National Kidney Federation - UK @nkf-uk.bsky.social · 21/09/2026
More than 8,700 people across the UK are currently waiting for a life-saving organ transplant. This week, we're asking one simple question: Would you accept a life-saving organ if you needed one? www.kidney.org.uk/organ-donation-and-transplantation #organdonationweek
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National Kidney Federation - UK @nkf-uk.bsky.social · 20/09/2026
Kick a bad habit, or kickstart a positive one, for 31 days and get sponsored along the way. Your challenge lasts a month. For many kidney patients, the challenges they face can last a lifetime. Take on the challenge: www.kidney.org.uk/kick-a-habit
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National Kidney Federation - UK @nkf-uk.bsky.social · 20/09/2026
We're delighted to welcome Dr Sunil Daga, Clinical Associate Professor and Honorary Consultant Nephrologist, to discuss the groundbreaking Digital Twin Project and how AI-driven technology could help predict, prevent, and personalise future kidney care. www.kidney.org.uk/Event/nkf-an...
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National Kidney Federation - UK @nkf-uk.bsky.social · 20/09/2026
Becoming a member is simple. From just £3 a month - less than the cost of a coffee - you can join the NKF community and help us be there for more kidney patients and families across the UK. Learn more: www.kidney.org.uk/member%F0%9F...
kidney.org.uk
Become a member
Become an NKF member and make a difference today!
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National Kidney Federation - UK @nkf-uk.bsky.social · 19/09/2026
2/2 Long waits for mental health support, a lack of access to job opportunities, and the rising cost of nutritious food are part of the problem. This needs to change. You can explore the campaign and find out how to get involved here: bit.ly/4bGLDLR
bit.ly
Shelf Life | Check Your Postcode's Life Expectancy
Use our life expectancy calculator to check the life expectancy in your postcode and see how social factors affect your shelf life.
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National Kidney Federation - UK @nkf-uk.bsky.social · 19/09/2026
The NKF supports the Health Equals campaign, which is calling for a change in the law to tackle health inequalities. We know that people in parts of the UK are living up to 18 years less than in others. 1/2
bit.ly
Shelf Life | Check Your Postcode's Life Expectancy
Use our life expectancy calculator to check the life expectancy in your postcode and see how social factors affect your shelf life.
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National Kidney Federation - UK @nkf-uk.bsky.social · 18/09/2026
From childhood kidney disease to three transplants, dialysis, motherhood and a nursing career. 🧡 Read Johanna's inspiring journey and discover why she remains hopeful for the future despite the challenges she continues to face. 🔗 Read her story here: www.kidney.org.uk/News/kidney-life
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National Kidney Federation - UK @nkf-uk.bsky.social · 18/09/2026
Only 2 Weeks to Go Until Our Annual Event! The countdown is on, and we can't wait to welcome you to our Annual Event for a weekend filled with support, inspiration, and connection. Book your place today 👇 www.kidney.org.uk/Event/nkf-annual-event-2026
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National Kidney Federation - UK @nkf-uk.bsky.social · 16/09/2026
And that’s not all… tomorrow, NKF Chief Executive Andrea Brown will be chairing Session 3: Life Centric Dialysis at Home, alongside Maddie Warren. We’re looking forward to connecting with colleagues, sharing ideas and being part of the conversations shaping the future of dialysis care.
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National Kidney Federation - UK @nkf-uk.bsky.social · 16/09/2026
The NKF team are at the Lowry Hotel in Manchester today for the Dialysis Society UK Conference. If you’re attending, please be sure to come and say hello! 👋
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National Kidney Federation - UK @nkf-uk.bsky.social · 15/09/2026
📰 Our new e-newsletter look is here! Take a look inside the latest issue for updates on our Annual Event in Blackpool, Organ Donation Week, NKF Helpline guidance on emotional wellbeing, Voices to Vision, Kick a Habit, 2027 events and more. 🧡 👉 Read the latest issue: www.kidney.org.uk/intouch
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National Kidney Federation - UK @nkf-uk.bsky.social · 12/09/2026
We want to hear your story! 🗨 As Organ Donation Week approaches, we're inviting people to share their organ donation experiences, whether you've given the gift of life or received a life-changing transplant. If you'd like to share your experience, please email us at 👉 nkf@kidney.org.uk
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National Kidney Federation - UK @nkf-uk.bsky.social · 11/09/2026
Calling all runners! Our UK running events with @run_charity are now FREE to enter! From events happening in the coming weeks to challenges already open for 2027, there’s a 5K, 10K, half marathon or marathon waiting for you. Find your challenge: bit.ly/4dnYQK5
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National Kidney Federation - UK @nkf-uk.bsky.social · 11/09/2026
⁉ Helpline Fact of the Week ⁉ Acute Kidney Injury (AKI) To order your copies, contact the NKF Helpline on: 📞 Freephone: 0800 169 09 36 📧 Email: helpline@kidney.org.uk You can also find our helpline information library online at: 🌐 www.kidney.org.uk/helpline-leaflets
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National Kidney Federation - UK @nkf-uk.bsky.social · 08/09/2026
📢 With just 2 weeks to go, make sure your voice is heard! Patients, carers & families can help shape the future of kidney care. Join our free virtual listening events: 📅 22 Sept | 18:00–20:00 📅 23 Sept | 12:00–14:00 Find out more: www.kidney.org.uk/msf-update
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National Kidney Federation - UK @nkf-uk.bsky.social · 04/09/2026
In case you missed it... Watch our latest webinar, "Breaking the Boundaries: How Kidney Patients Can Reclaim Their Data in a Hospital-First World", presented by Dr Mohammad Al-Ubaydli, CEO of Patients Know Best. Watch back now: www.kidney.org.uk/nkf-webinar-...
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National Kidney Federation - UK @nkf-uk.bsky.social · 01/09/2026
Primary care professionals 15 September | 12.30-14:30 Register: bit.ly/4zjcHuN Your experience can help shape what comes next for kidney care. Have your say and help us build a strategy that reflects what matters most.
bit.ly
Voices to Vision - Kidney Disease and Primary Care Virtual Listening Event
We aim to bring together the kidney community to co-design a community-informed Kidney Disease Strategy.
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National Kidney Federation - UK @nkf-uk.bsky.social · 01/09/2026
Healthcare professional survey: bit.ly/4c5jlL7 Surveys close 30 September 2026. You can also share your experiences and ideas at one of the free virtual listening events: Patients and carers 22 September | 18:00–20:00 23 September | 12:00–14:00 Register: bit.ly/3SDvSif
bit.ly
Microsoft Forms
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National Kidney Federation - UK @nkf-uk.bsky.social · 01/09/2026
Help shape the future of kidney care What needs to change to improve kidney care and outcomes? What should be prioritised in a new national kidney disease strategy? We want you to take part in the below surveys: Patient & carer survey: bit.ly/45KC3Ek
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National Kidney Federation - UK @nkf-uk.bsky.social · 30/08/2026
⏰Join us at this year's NKF Annual Event! Join Professor Dominic Summers for Making transplantation the first choice treatment in end-stage kidney disease. Learn why pre-emptive transplantation can improve outcomes for patients and healthcare systems. www.kidney.org.uk/Event/nkf-an...
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National Kidney Federation - UK @nkf-uk.bsky.social · 29/08/2026
After experiencing kidney-related health challenges themselves, Elaine and Malcolm raised £250 for the NKF at their coffee morning 🧡 Could you do the same? Find out more: kidney.org.uk/support-us/n...
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National Kidney Federation - UK @nkf-uk.bsky.social · 28/08/2026
Stories like Claire and Glyn's highlight the incredible difference organ donation can make. Whether through living donation or registering your decision to become an organ donor, you could help transform someone's future. Read their inspiring story: people.com/wife-defies-...
people.com
https://people.com/wife-defies-22-million-to-1-odds-to-donate-kidney-husband-12070108
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National Kidney Federation - UK @nkf-uk.bsky.social · 28/08/2026
3/3 The time commitment is minimal, and our team will guide you through the process. Interested? Contact nkf@kidney.org.uk by 7th September for more information.
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National Kidney Federation - UK @nkf-uk.bsky.social · 28/08/2026
2/3 and would be happy to feature in a short social media campaign. We'd love to hear why you're choosing to get vaccinated and what message you'd like to share with others.
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National Kidney Federation - UK @nkf-uk.bsky.social · 28/08/2026
🧵 1/3 Share your flu vaccine story and help others stay well this winter Every year, flu can be particularly serious for people living with long-term health conditions, like kidney disease. We're looking for supporters who are eligible for the winter flu vaccine
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National Kidney Federation - UK @nkf-uk.bsky.social · 25/08/2026
What needs to change to improve kidney care and outcomes? What should be prioritised in a new national kidney disease strategy? Take the survey that’s right for you: Patient & carer survey: bit.ly/45KC3Ek Healthcare professional survey: bit.ly/4c5jlL7 ⌛Survey closes 30 September 2026.
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National Kidney Federation - UK @nkf-uk.bsky.social · 24/08/2026
We know that for some families, these costs can be a real barrier, so we’re delighted that our support helped make it possible for more families to be there, take part and make lasting memories. A huge thank you to everyone involved in making The Games such an inspiring and unforgettable event. 🧡
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National Kidney Federation - UK @nkf-uk.bsky.social · 24/08/2026
We’re still on a high from attending the British Transplant Games earlier this month! We were proud to support @greatormondst.bsky.social with a substantial contribution to help subsidise accommodation costs for families who may otherwise have struggled to attend. 🧡
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National Kidney Federation - UK @nkf-uk.bsky.social · 20/08/2026
Are you an adult living in Scotland, receiving dialysis and taking medication for anaemia? If you would like to share your experience, please email lucy@kidney.org.uk by Tuesday 25th August. #patientopportunity #kidneydisease #anaemia #dialysis
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National Kidney Federation - UK @nkf-uk.bsky.social · 18/08/2026
(2/2) Sign up to the challenge here 👉 www.kidney.org.uk/kick-a-habit Every pound raised helps the National Kidney Federation provide trusted information, advice and support to kidney patients and their families.
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National Kidney Federation - UK @nkf-uk.bsky.social · 18/08/2026
🧵(1/2) This October, kick a habit or kickstart a new one for 31 days and raise money to support people living with kidney disease. 🧡 Give up takeaways, chocolate or online shopping - or start walking, learning a skill or doing a daily act of kindness. Make it personal, get sponsored and have fun!
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National Kidney Federation - UK @nkf-uk.bsky.social · 18/08/2026
(2/2) the study identifies outcomes that matter and can help make future research easier to compare. 📖 Read the full paper here: academic.oup.com/joneph/advan...
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