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NF (Neurofibromatosis) Midwest

@nfmidwest.org

NF Midwest serves people with neurofibromatosis type 1 (NF1), NF2-related schwannomatosis (NF2-SWN), and other schwannomatosis (SWN) in Illinois, Indiana, Iowa, Kentucky, Missouri, and Wisconsin so that No One Fights Alone.

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NF (Neurofibromatosis) Midwest @nfmidwest.org · 20/01/2026

Big news: A bipartisan, bicameral FY26 Defense spending agreement includes $25M for the Neurofibromatosis Research Program. It’s not final yet—full House, Senate, and President still to go—but this is major momentum thanks to NF advocates.

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NF (Neurofibromatosis) Midwest @nfmidwest.org · 15/04/2025

Today, NF orgs joined forces to protect research and drive progress for all affected by NF. We're working together to ensure NF is known and funded. The federal funding cuts were tough. But we are more determined than ever. You’ll be hearing more. This is only the beginning. #UnitedForNF #EndNF

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NF (Neurofibromatosis) Midwest @nfmidwest.org · 09/03/2025

The CR bill they are voting on this Tuesday includes a 57% cut in research funding through the Congressionally Directed Medical Research Program (CDMRP) for NF and may other disorders. Raise your voice, call your Representatives (especially the Republicans) to vote NO.

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NF (Neurofibromatosis) Midwest @nfmidwest.org · 11/02/2025

Last Monday and Tuesday, NF Midwest volunteers joined forces with NF orgs to advocate for critical NF research funding in Washington, D.C. Thank you so much to our passionate advocates who play a big role raising awareness and helping to attain this funding. What are some ways you'd like to help?

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