nationalfasd.bsky.social @nationalfasd.bsky.social · 31/08/2025The FASD community worldwide thanks Prof Larry Burd for helping people with FASD not only to be seen but to be better understood and better supported. His research has given us all solid foundations to continue this life-changing work. With best wishes for a well earned and happy retirement! 011
nationalfasd.bsky.social @nationalfasd.bsky.social · 30/07/2025An article in The Telegraph, 30 July 2025 focuses on a new book by Meryle Secrest that raises questions about whether or not Princess Margaret may have had Fetal Alcohol Spectrum Disorder. Our statement and further background information can be found here: nationalfasd.org.uk/statement_on... 011
Reposted by @nationalfasd.bsky.socialDRYMESTER @drymester-nhsgm.bsky.social · 10/06/2025Greater Manchester FASD Network doing a great job at connecting stakeholders across Greater Manchester with lived experience being at the core of what they do - making an impact to promote better outcomes for individuals with FASD. #FASDUK2025 @sb-fasd.bsky.social @nationalfasd.bsky.social 043
Reposted by @nationalfasd.bsky.socialUniversity of Salford FASD Research @salfordfasd.bsky.social · 10/06/2025Hearing from @nationalfasd.bsky.social about the lack of action on PAE and FASD by NHS trusts and ICBs throughout the UK despite the NICE quality guidelines. 044
Reposted by @nationalfasd.bsky.socialUniversity of Salford FASD Research @salfordfasd.bsky.social · 09/06/2025Amazing coverage of the struggles faced by people with FASD on Radio Five Live just now @bbc5live.bsky.social From @nationalfasd.bsky.social @sb-fasd.bsky.social + Jan and Rossi 👏🏼👏🏼👏🏼There is a desperate need for more support for children and adults living with the condition in the UK.media.tenor.coma neon sign that says the number 5 on itALT: a neon sign that says the number 5 on it 253
nationalfasd.bsky.social @nationalfasd.bsky.social · 09/06/2025National FASD’s CEO Sandy Butcher was joined by other families impacted by #FASD on BBC Five Live to honour #RATW star Sam Gardiner’s family’s efforts to raise awareness following his tragic death. www.bbc.co.uk/sounds/play/... (starts at 60 min)To donate: www.justgiving.com/page/sam-gar...bbc.co.ukNicky Campbell - Is social media a danger to kids? Plus your experience of Fetal Alcohol Spectrum Disorder - BBC SoundsIs social media a danger to kids? Plus your experience of Fetal Alcohol Spectrum Disorder. 021
nationalfasd.bsky.social @nationalfasd.bsky.social · 23/05/2025Great day at the South Yorkshire #FASD Summit!! A creative forward-looking day organised by a multidisciplinary steering group announcing new resources, brainstorming for next steps & including lived experiences 👏👏 Thanks for inviting our CEO! @sheffieldchildrens.bsky.social @sb-fasd.bsky.social 043
nationalfasd.bsky.social @nationalfasd.bsky.social · 20/05/2025Parents to be, enjoy this summer season safely by choosing an alcohol free pregnancy ☀️ For more information visit: www.alcoholandpregnancy.info #PreventFASD #Pregnancy #FasdAware #WhyRiskIt #Pregnant #Parentstobe #Pregnancyplanning #Mumtobe #Pregnancysupport #Maternity #TTC #FASD 011
Reposted by @nationalfasd.bsky.socialUniversity of Salford FASD Research @salfordfasd.bsky.social · 15/05/2025⏰Last few tickets still available for our conference!⏰We're over the moon with the quality of speakers we have lined up and to be close to selling out😀If you know anyone interested in Fetal Alcohol Spectrum Disorder or working with children and adults with the condition, please share #FASDUK2025 #UK 144
nationalfasd.bsky.social @nationalfasd.bsky.social · 13/05/2025National FASD is recruiting new trustees nationalfasd.org.uk/trustee_sear...nationalfasd.org.ukNational FASD Trustee SearchNational FASD seeks new trustees to help expand the capacity of our Board of Trustees to help guide the organisation at a key time of change. 011
nationalfasd.bsky.social @nationalfasd.bsky.social · 15/04/2025 The reduction in #ASGSF will have a significant negative impact. It is increasingly urgent that #NHS bodies commission #FASD diagnosis and support and that Government establish an FASD Prevention and Response Fund equivalent to 0.2% of the alcohol duty. nationalfasd.org.uk/national-fas...nationalfasd.org.ukNational FASD Responds to ASGSF CutsNational FASD calls for funding and NHS commissioning of FASD diagnosis and support following changes in Adoption & Special Guardianship Support Fund (ASGSF). 022
Reposted by @nationalfasd.bsky.socialUniversity of Salford FASD Research @salfordfasd.bsky.social · 04/04/2025Interested in the latest research on Fetal Alcohol Spectrum Disorder? 🔴FASD🔴 Join us in June, in Greater Manchester UK. Link to get tickets in the comments.. 146
nationalfasd.bsky.social @nationalfasd.bsky.social · 30/03/2025It's Mothering Sunday.🌸 🌷We know mothering takes many forms and none of it is ever simple. We see you. We celebrate you. We stand with you. #FASD #Hope 011
nationalfasd.bsky.social @nationalfasd.bsky.social · 19/03/2025National FASD is increasingly alarmed that the futures of people with #FASD are being put at greater risk by changing priorities and cuts in support proposed by the Government. Please read our full statement here and share if you agree: nationalfasd.org.uk/wp-content/u... #Benefits #SEND #DHSC #DWP 021
Reposted by @nationalfasd.bsky.socialDRYMESTER @drymester-nhsgm.bsky.social · 10/03/2025It's been 6 months since @nationalfasd.bsky.social published the #FASDNotCommissioned Report which highlighted the lack of progress in meeting NICE QS 204 by NHS Trusts and ICBs across the UK. nationalfasd.org.uk/not-commissi... We applaud those areas who have taken positive steps since this report. 023
nationalfasd.bsky.social @nationalfasd.bsky.social · 11/03/2025Another study proving #FASD is a hidden epidemic that is not yet properly captured official data. 011
Reposted by @nationalfasd.bsky.socialAlan Price @alanprice.bsky.social · 20/02/2025Our latest paper, which provides a broad overview of #FASD past and current research and future directions, is out now in full - www.minervamedica.it/en/journals/... @salfordfasd.bsky.socialminervamedica.itFetal alcohol spectrum disorders: where we have come from, trends, and future directions - Minerva Pediatrics 2025 February;77(1):68-86Fetal alcohol spectrum disorders: where we have come from, trends, and future directions 023
nationalfasd.bsky.social @nationalfasd.bsky.social · 20/02/2025Good to see Government recognising the importance of support for and diagnosis of #FASD and the role that schools should play. 👏❤️📚#SEND #SENCO We can help with training and have an education toolkit ✅ www.theyworkforyou.com/wrans/?id=20...nationalfasd.org.ukOnline and in-person FASD training - National FASDElevate your FASD awareness with our specialised training. Equip yourself to support those affected. Join us in making a positive impact today! 011
nationalfasd.bsky.social @nationalfasd.bsky.social · 21/01/2025Hello Bluesky! We are pleased to be here. And what better way to say hello than to forward this notice of a fantastic opportunity for people to explore #FASDintheUK2025. National FASD is proud to cosponsor this upcoming event! #FASD 031