iiinova — where your digital self keeps evolving

Reposted by Natasha Seaton

Navigate MS @navigatems.bsky.social · 24/08/2026

Do you live with MS in England, Wales or Scotland? We’re recruiting adults 18+ for the Navigate MS study. 📱 Use the app and share your feedback to help improve digital support for people with MS. 🔗 Learn more & sign up: qualtrics.kcl.ac.uk/jfe/form/SV_... Please share! #MultipleSclerosis

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Natasha Seaton @natashaseaton.bsky.social · 22/06/2026

Have you ever felt dismissed, unheard, or not taken seriously by a doctor? 🏥 At King’s College London, we’re running a study on how patients experience healthcare 💊 If you are an adult in the UK who has come into contact with the healthcare system, you can sign up with below ⬇️ tinyurl.com/4zzcd93u

tinyurl.com

Medical Dismissal Study | King's College London

Understanding experiences of medical dismissal

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Natasha Seaton @natashaseaton.bsky.social · 11/09/2025

Thrilled & giddy to officially be Dr Tash #PhDone⭐ massive thanks to my supervisors and colleagues for making this journey so enjoyable. I'm also excited for future collaborations, feels like we're just getting going🤓 @valeriamondelli.bsky.social @annieskjones.bsky.social @sophieharding.bsky.social

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Reposted by Natasha Seaton

Pooja Schmill @poojsaurus.bsky.social · 05/06/2025

@natashaseaton.bsky.social & I sharing our work at the @divhealthpsych.bsky.social conference in Cardiff! 👩🏻‍🔬

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Natasha Seaton @natashaseaton.bsky.social · 23/05/2025

9️⃣ The IRD Scale is a brief tool to capture illness-related distress in chronic medical conditions, ready for clinics, trials, and health-services research. Please repost/share if useful! End of thread 🧵

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Natasha Seaton @natashaseaton.bsky.social · 23/05/2025

8️⃣ Big thanks to star team ⭐ (incl. @annieskjones.bsky.social and others not yet on bsky) and the 3️⃣0️⃣+ UK patient charities & others who boosted recruitment. This enabled genuine cross-diagnosis validation (190+ distinct conditions represented) 🙏

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Natasha Seaton @natashaseaton.bsky.social · 23/05/2025

7️⃣ Please get in touch for a toolkit (forthcoming this summer): PDF of the scale, scoring sheet, syntax (R/SPSS/Stata), and implementation guide. DM me or @ronamoss-morris.bsky.social for early access 🤓

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Natasha Seaton @natashaseaton.bsky.social · 23/05/2025

6️⃣ Future research ideas? ❔Compare IRD change sensitivity within an intervention. ❔Model mediators (catastrophising, illness perceptions) of IRD reduction. ❔Test invariance across specific conditions, cultures, ages. ❔Translations Open to collaborations! @ us with ideas 📬📞

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Natasha Seaton @natashaseaton.bsky.social · 23/05/2025

5️⃣ The development pipeline: ✔️ Thematic analysis of patient interviews📄 ✔️ Lit review & expert panels👩‍🔬👨‍⚕️ ✔️ Think-aloud with patients & clinicians💬 ✔️ Large online sample (n=1,398) for EFA → CFA/ESEM📊 👏Excellent face/content/convergent validity, internal and test-retest reliability, gender invariance

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Natasha Seaton @natashaseaton.bsky.social · 23/05/2025

4️⃣ The structure? 2 correlated subscales, analysed separately 🔹 Intrapersonal👤(7 items,0-21, cutpoint 15): emotions related to challenges (EG. anger, frustration, worry) 🔹 Interpersonal👥(7 items,0-21, cutpoint 12): feelings related to social/self-perception (EG. embarrassment, feeling burdensome)

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Natasha Seaton @natashaseaton.bsky.social · 23/05/2025

3️⃣ How can the IRD scale be used clinically? By assessing if distress is LTC-related: 🔸 Screen in primary care/psych-liaison/non-specialist service to decide between depression/anxiety pathway vs LTC-adjustment modules 🔸 Track outcomes📈 🔸 Benchmark burden across multimorbidity/rare condition cohorts⚖️

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Natasha Seaton @natashaseaton.bsky.social · 23/05/2025

2️⃣Conventional distress measures do not distinguish illness-related distress 🩺🫀🫁 from primary mental-health disorders, potentially mis-triaging patients & misdirecting therapy ❌🚑 Evidence suggests that LTC patients have poorer outcomes, likely due to insufficiently tailored psych therapies ✂️

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Natasha Seaton @natashaseaton.bsky.social · 23/05/2025

1️⃣ NEW *open access* measure alert 🧵 We’ve just published the Illness-Related Distress (IRD) Scale in Psychological Medicine doi.org/10.1017/S003... It's a 14-item, trans-diagnostic PRO for distress related to living with any long-term physical condition (LTC). But WHY does this matter 🤔 ⬇️

doi.org

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Natasha Seaton @natashaseaton.bsky.social · 17/03/2025

What drives self-reported disease activity and healthcare usage in IBD? 💩🔥 ❗️Spoiler alert❗️It's a more complicated picture than gut inflammation alone. Depression predicted: 🏥self-reported symptoms, primary & secondary care, A&E visits and impact of #IBD on #productivity 🔥but not inflammation

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Natasha Seaton @natashaseaton.bsky.social · 24/02/2025

Link to full video: youtube.com/shorts/YpGX8... Great team 🙌 @ronamoss-morris.bsky.social @valeriamondelli.bsky.social @samjnorton.bsky.social Annie Jones, Sophie Harding & Joanna Hudson

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Natasha Seaton @natashaseaton.bsky.social · 24/02/2025

1 year on and engagement continues to be amazing & humbling. 📰31 print media outlets 🎙️1 radio interview 🏆1% of altmetrics scores EVER 📈HIGHEST engagement of EBioMedicine papers of a similar age 🌍And, most excitingly, 3 wikipedia mentions Learning to see #scicomms as an essential part of research

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Natasha Seaton @natashaseaton.bsky.social · 21/02/2025

Just received an email from none other than Joseph Stalin ! In this world of cancel culture, it is ✨so heartwarming✨ to see dictators having later in life career changes. Hoping Joe has set an example so others with totalitarian tendencies can follow in his footsteps 👀

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Natasha Seaton @natashaseaton.bsky.social · 18/11/2024

Would love to be added! A PhD student in psychoneuroimmunology and psychological interventions to improve physical health

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Natasha Seaton @natashaseaton.bsky.social · 18/11/2024

Me please! Thank you for pulling together.

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Natasha Seaton @natashaseaton.bsky.social · 18/11/2024

My passion for good #scicomms is not unrelated to my move from X -> bluesky. It feels pretty urgent that we need to build trust, inspire the next generation, and help with informed decision making. I hope that clear comms can combat misinformation, motivate behaviour and foster curiosity.

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Natasha Seaton @natashaseaton.bsky.social · 18/11/2024

Honoured & delighted to be shortlisted for the Medical Research Council's Max Perutz Prize for outstanding science communication. An amazing day - spectacular videos from an array of scientists with diverse talents..! www.youtube.com/shorts/RyPD0... (1/2)

youtube.com

The mind body connection: what is psychoneuroimmunology and why does it matter?

YouTube video by Medical Research Council

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