Brilliant to see this article out about the detailed, thoughtful process of designing and co-creating a consent process for our #newbornscreening #genomics research study @genomicsengland.bsky.social tl;dr it's about much more than a consent form! karger.com/phg/article/...
karger.com
Co-Creating the Experience of Consent for Newborn Genome Sequencing: The Generation Study
Abstract. Introduction: The Generation Study (GS) aims to recruit 100,000 newborns in England to evaluate the utility and feasibility of using whole genome sequencing to screen for rare conditions tha...
