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Narcolepsy Network

@narcolepsynetwork.bsky.social

The official Bluesky feed for Narcolepsy Network®, a non-profit organization dedicated to advocating for people with narcolepsy and IH & their families, increasing public awareness, and promoting research.

Posts Replies Media

Narcolepsy Network @narcolepsynetwork.bsky.social · 29/04/2025

Join #TeamNarcolepsyNetwork at the #TCSNYCMarathon on November 2nd, 2025 to spread awareness of #narcolepsy and idiopathic hypersomnia and support Narcolepsy Network ⭐ Applications are now open! Click here to apply: ow.ly/BVkM50VJVSj 🏃‍♂️🎽

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Narcolepsy Network @narcolepsynetwork.bsky.social · 14/04/2025

Interested in participating in research? Check out 3 NEW clinical trials as well as other active studies: ow.ly/7wbn50VAhJL. PLEASE NOTE: Narcolepsy Network does not endorse, advise, recruit, or promote participation in any specific clinical trial or study. #NarcolepsyNetwork #clinicalresearch

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Narcolepsy Network @narcolepsynetwork.bsky.social · 10/04/2025

ACT TODAY! 📢 There is real URGENCY to SPEAK UP! Do you want to preserve funding to help people with #narcolepsy and IH? NORD Rare Action Network's prompts will show you exactly how to contact your senators or representatives: ow.ly/bshb50VyBB4 ⭐ @rarediseases.bsky.social

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Narcolepsy Network @narcolepsynetwork.bsky.social · 09/04/2025

Wondering how mindfulness and breathwork can support your daily life living with narcolepsy and IH, helping you feel more balanced? 💫 Join Sarah Jane Shangraw on 4/23 to learn how to use mindfulness to check and regulate markers of well-being: ow.ly/nmp750VxHoE.

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